Starting Chemo February 2009?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    (((judy))) you are so strong. i can't even imagine going thru treatments while dealing with so much grief and pain. you're my hero, and your dad is firmly in my prayers.

    (((kathie))), so sorry about your postponement, but i think you've made the right choice. 

    (((liz))), don't feel bad about putting yourself first. right now, it's all about you. i know it's hard, but you need every ounce of rest to be able to do what you have to do for your kids. everything else can wait. do you have any nearby friends or relatives who can help with cooking, cleaning, errands etc? don't be afraid to ask, it's truly miraculous how many people want to do anything they can.

    artemis, welcome back. the brain fog is a beeyatch, ain't it?

    jancie ...6 wigs?! i can't even figure out how to manage with one! (still not used to it. fixing it CONSTANTLY.) oh & happy belated anniversary!

    kerry, ditto on your gorgeous family. i love the one with you and your daughter, that's a great picture. you can do the bald, doll - you got what it takes.

    and sue, your little lovebug is adorable! thanks for brightening my morning! sorry you're still battling those damn headaches.

    kerry & gina, thanks for the photo compliments! 

    off to round #3 in a bit. i'm a little nervous because my regular team is on vackay, and i go to the other center today. but hey, that's what ativan is for. i also downloaded a few guided imagery podcasts to my ipod, one specifically for chemo treatments.

    i can't wait to be able to say "only 5 more to go"! 

    (((everyone))) 

  • apple
    apple Member Posts: 7,799
    edited March 2009

    growing bald is very sad

    we miss the hairs that once we had

    we wake and it's another day

    a hundred hairs have slipped away.

    what we wish we could control

    reveals a window to our soul.

    we smile and say that it doesn't matter

    inside we cry and we are sadder.

    --------------------

    (Prayers for you Judy -  thinking about you and your family)



     

  • susan13
    susan13 Member Posts: 732
    edited March 2009

    Judy-I had anemia also on AC, twice. It does knock u down big time. I sent you a PM with a suggestion on what I did for it.

    Thanks Lisa!  Headaches headaches headaches... I'm seeing my onc. first thing tomorrow morning and I'm going to moan and groan to him , that I need relief from this... tylenol and motrin just isn't cutting it!

    Have a good day everyone... at least let's try to!

    Sue

  • MicheleS
    MicheleS Member Posts: 937
    edited March 2009

    Karen~  Holy shit?!  Your DH died?? Are you OK???  Wow, you must be an AMAZING woman.  I can't imagine.  Please let us know if we can help you in any way... {{prayers}}

    Judy~ You are doing great!!  Don't let "Little Miss all-business" get to you.  (But, ya know, she's right in that you need to take care of yourself... you will be of no help to your dad or son if you don't try to eat... enough lecturing from me!)  I'm glad you didn't postpone your treatment.

    Terri~ I have AC3 tomorrow... I'm dreading it. <sigh>  But, after that one then there's only 1 more AC to go...

    Apple~ You poem today made me cry.  uggghhh...

  • susan13
    susan13 Member Posts: 732
    edited March 2009

    Karen,

    Oh my gosh.....I am so sorry for your loss.  I can't even imagine.  This just is NOT fair. Hugs and prayers to you and your family.

    Sue

  • kisblessed
    kisblessed Member Posts: 7
    edited March 2009

    Judy-I do feel your pain...and understand the hurt.  We are both on this path together, your mom-my husband- even though it isn't one we would have chosen.

    My DH died Feb 24 last week.  I feel blindsided as it was unexpected.  A week ago he was rubbing my head and hair letting me know it would all be OK.  He was my rock in decision-making as he was an OB/GYN MD. Now I feel as my hair is slipping away, so is his touch.  I know too about not wanting to delay Tx #2. I just want to get it over.  I go in today.

    You are lifted up in my prayers for peace in your heart.

    Love & Hugs,

    Karen

  • apple
    apple Member Posts: 7,799
    edited March 2009

    oh my gosh Karen

    my heart goes out to you.. how will you cope?  I don't know what I would do. I hope you have lots of support.  i am so sorry.  May God be with you and yours.  That is soooo unfair.

  • Terri42
    Terri42 Member Posts: 56
    edited March 2009

    Apple - love the poem!  How true!

    Karen - OMG - I'm sooooo sorry - lots of hugs coming your way!!!! 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Karen - so, so sorry to hear of your loss. I couldn't even imagine going through this without my husband, I hope you have lots of loving family around to help you out. Hang in there. He would want you to keep strong and keep with your treatments.

    Big hugs,

    Kerry

  • Denali
    Denali Member Posts: 347
    edited March 2009

    Karen, I'm so sorry to hear of your husband's sudden passing.  He sounds like he was a gem, helping you during this journey.  I just can't imagine what you're going through.

    I wished we could help you in some way.  Do you have the support of family and friends closeby?

  • webwriter
    webwriter Member Posts: 535
    edited March 2009

    Oh Karen! My heart is breaking for you! I'm adding you to the constant thoughts and support list right there with Judy. This monster is so hard to deal with as it is-a loss like this is utterly incomprehensible to me. Please, please let us know if there is anything at all we can do to lighten the load for you. 

    Ladies, I'm on my way back up from crash #3, but my MOTHER is coming in a couple of days. No way I'm going to get caught up and stay active during this one. Sigh. High maintenance people should NOT go visiting during  chemo, I don't care WHAT the relationship! Sigh.

    Small thing to bitch about, I guess, in the grand scheme of things. I'm just highly annoyed today and even the THOUGHT of my Mother coming just sends me right over the edge. 

    And since I'm feeling gritchy anyway, can I just say I've found NO remedy for the burnt tongue thing? I've been using Biotene since right before chemo started. I also use the bakingsoda/salt rinses. No luck. Everything tastes like burnt tongue. And we're supposed to be worried about steroid weight GAIN? HA!

  • Terri42
    Terri42 Member Posts: 56
    edited March 2009

    Webwriter - I can totally relate to the Mother visit - I practically had to kick my Mom out after my mastectomy - love her but it was just too much! Aaaaaagh! 

    Maybe can you give her a list of things to get done for you?Wink

  • Artemis
    Artemis Member Posts: 759
    edited March 2009

    (((Karen and family)))  I'm so very sorry.  I cannot even begin to imagine the devestation.  I'm so very, very sorry.

    Artemis

  • gcpommom
    gcpommom Member Posts: 883
    edited March 2009

    Lisa:  thank you so much!   I'm trying to be strong and you guys are a great help to me.

    Apple:  very true poem, hits home for sure.  thanks for the prayers and thoughts :)

    Susan13:  thanks, I will check my pm's next, I appreciate any ideas to help with fatigue from this.

    Michele:  I know what you mean, and I am eating, just don't like her attitude on many topics.  I promise to take care of myself, because that is also what my mom would have wanted for sure.

    Karen:  I am so sorry to read your news.  Big ((((((((hugs))))))))  from someone who's right there with you.   I was so saddened to read your post, and I can totally relate to your feelings right now.  This is so not fair, it is so hard to understand and deal with, especially right now when we really need our loved ones so much more.  My mom's surgery was the same day as your DH's, but she held out for 2 days more before passing.  She had taken me for my first Neulasta shot back in February, and 3 days later was flown to the hospital.  It was too sudden and unexpected, which makes it so much harder.  Good luck with your treatment today.  Feel free to p.m. me anytime to talk if you want to.  My thoughts and prayers are with you and your family. 

    Web:  my tongue is sore as well.  All they suggested was the water/baking soda thing, which does nothing.  Have no idea what might help, although mine tends to have good days where it's not so bad.

    Well, I'm off to visit dad, then neulasta shot, then work.  Good thing I'm not too out of it the day after tx; it usually hits me about 3-5 days afterwards, and lasts another 5-6 days.  Strange how we're all different.

    Judy

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited March 2009

    Karen ((bighugs)) I am so sorry to hear about your wonderful husband.  Just remember what he told you you will be fine thru all of this. 

    I am thinking that my wbc are in the tank and therefore I hurt 10x more than normal yesterday and today.  I actually had to call the doctor's office yesterday because my fever went to 100.6 which I got the go ahead for advil which kicked the fever out.  I started the morning with advil and they wore off at 3pm and I started aching again so 3 more advil for me :)  When I called I spoke with the NP and she goes well you only have 2 more treatments ...right ??  and when I told her I had 4 more she was shocked.  When I asked her if she knew why she told me I needed to aske the doctor about why I am getting 6 instead of 4.  I know I will go thru with 6 but I just need to  know why ?  and the last time he showed me a website with a formula.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    My WBC is low too - is that why I am achey?? I got sore last round too.....

  • kmn0701
    kmn0701 Member Posts: 117
    edited March 2009

    Karen, I'm so very sorry for the loss of your husband. I wish you peace during this very trying time. {{{hugs}}}

    Ladies, I'm adjusting to the new bald me. It's oddly liberating. I'll try to figure out how to post a picture. I'm off to read webbie's post on it.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Well if I can figure it out, I am sure anyone can! Can't wait to see the pix!

  • jancie
    jancie Member Posts: 2,631
    edited March 2009

    I catch up with ya'll later on tomorrow - maybe tonight - just not sure.  Had my second A/C today and even though I don't really feel bad - I feel "off"  Can't seem to sort out my thoughts at all.  chemo fog really hits me hard.

    They changed my nausea meds due to my allergic reaction to Compazine and she gave me a different type of sleep aid that should work really well.  I was also given permission to cut my steriods from 4 mg per day to 2 mg per day.  That should help overall mentally and physically.

    I am going to heat up dinner that a friend brought by - run a load of laundry and fold it on my bed as I watch TV.  I am just in a really lazy mode so I don't feel like being on the computer.

    But - I am fine!

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited March 2009

    Liz--I am concerned about my goal to work through treatment. Some days I can get through an 8 hr shift without difficulty, sometimes I get SO TIRED towards the end. When I get home I am worth nothing. I go straight to bed.

    Sue and Kerry---I got some saline spray the other day and will see if it helps me with my headaches after treatment.

    Tomorrow I go for TC # 2. I got my claritin, senokot, tylenol, saline spray... I'll keep you all in my thoughts and post on how I am doing when I can.

    (((February Furies)))

  • caligrlof68
    caligrlof68 Member Posts: 323
    edited March 2009

    I just wanted to offer my support and encouragement to all of you going through chemo now. I finished at the end of January. It was rough, but with each day that passes I am slowly regaining my strength and vitality. 

    Hugs to all of you,

    Stacy 

  • marlomom
    marlomom Member Posts: 6
    edited March 2009

    Karen -

    I am so sorry for your loss. I wish there was something I could do to ease your pain.  You and your family are in my prayers.

    I've been bald for about 2 weeks now; lots of other side effects after tx #2,  but still able to keep going.  Latest side effect is black streaks in my nail beds, so now i have an excuse to buy pretty nail polish and doll up my nails. 3rd AC treatment is Friday.

    kmn0701 - i agree being bald is liberating.  

  • apple
    apple Member Posts: 7,799
    edited March 2009

    well...it was a tough day.. feeling the pain of Karen and Judy.. i feel so sorry for you gals and pray that comfort comes your way.

    i screwed up my head big time.  first i tried to do a mohawk but forgot and buzzed the middle of the back of my head.  then i decided to go for one of those super marine cuts where the sides and back are shaved and the top remains but i guess i have to make the sides even higher something.. it just looks stupid.. the buzzer kind of made streaks and it's freaky now.. i want to keep my few bangs for just a day or two so i can look at them.

    maybe time for a bit of levity

    me

  • kmn0701
    kmn0701 Member Posts: 117
    edited March 2009

    Well Kerry, apparently you are much more computer savvy than me because I cannot figure it out that way. lol

    apple....thanks for sharing! I just can't figure out how to add & share too.

    When you go to add an image do you have to add all that "other stuff"?? Dimensions, alignment, border, vertical/horizontal space???? Why is this so hard??

  • suzmarks
    suzmarks Member Posts: 83
    edited March 2009

    Where does one go with all this sadness. Our kindred chemo experience brings us all together. A baby being born and mom having surgery and chemo. Losing a beloved mom and still facing chemo, and now losing your beloved mate, your support system, and still their is chemo. I thought some of us were facing the challenges of our life with our cancer but yet Judy, Karen, and I'm so sorry I don't remember your name, newest mommy, you face so much more. Your strength and braveness is so inspiring. You've got the cyber support from all of us here. Group hug. Love and best    suzanne

  • WarriorWoman
    WarriorWoman Member Posts: 1
    edited March 2009

    When I did the AC/Taxol regime I could not tolerate the Taxol. A friend in my support group was taking Taxatere instead of Taxol, so I asked my Dr. if that would be a possible substitute. Though he never brought up this idea, when I suggested it, he said, sure it would be possible to use taxatere instead of taxol since I could not tolerate the taxol. Without this suggestion I could never have completed my treatment. Today, I am 6-years post chemo! Friends in my support group saved my life with this suggestion.

  • kmn0701
    kmn0701 Member Posts: 117
    edited March 2009

    Can you add a picture that's on Picasa?? I swear I'm usually good with computers.

    I keep wanting to share a little about me but I just never think the time is right with everything that we're all going through. I guess there's never a good time though. lol So here it is....you know how they say bad things happen in threes right? Well, though my diagnosis is by far the most tragic it was actually the 2nd of three bad things that happened to us last year. The first was in September. I had an ectopic pregnancy, my right fallopian tube ruptured & I was rushed into emergency surgery since I was bleeding internally. We got through that & then in November was the cancer diagnosis. The next day my husband got into a car accident & totaled his car (he's fine BTW). So, it was NOT a good year & we're really hoping that's the end of the "bad luck". Anyway, my SIL told me last month that a professional photographer she knows was participating in this project called "Giving is Awesome". This is the premise in the photographer's own words from her website:

    "You know someone. You know someone who's experienced a tragedy, is struggling to stay afloat, is raising kids while holding down more than one job, or is volunteering selflessly despite extenuating personal circumstances. You know someone who can't afford custom photography, but who would cherish it fully. You know someone who deserves a year-round reminder of their family's spirit, love, and beauty.

    You know someone. I guarantee it.

    I want to know who they are, and I want to give them the chance to experience complimentary custom photography worth over $750. The winner will receive a photo session with me, 5×7 prints from the session and the complete set of digital files."

    So, SIL nominated us and I got an e-mail from the photographer last Wednesday saying we won. Wow! It was bittersweet for me because dang....I guess we've been going through some pretty crappy stuff lately. When I really think about everything it's tough because you know....it just plain sucks. I mean, I "should" be seven months pregnant right now. I should be fat and happy and rearranging furniture. I hate that there's a part of me that just cries every time I hear another friend tell me she's pregnant. I shouldn't know as much as I do about chemotherapy, about drugs like Taxotere, Carboplatin & Herceptin. About how toxic they are and how they literally try to kill you....just to make you better in the long run. About the plethora of insane side effects and the havoc they wreak on your body. I shouldn't have two huge, angry scars across my chest. I shouldn't have to try and explain all this garbage to two beautiful little faces who just cannot understand it all. I shouldn't know so much about this monstrous disease called cancer, none of us should.

    Still...I'm ok. As difficult as this is I'm ok. I feel like I say that a lot to people but that's the best way to describe it. I'm not doing bad, I'm not doing great....I'm doing ok You just do what you have to do. Because there is no alternative. I'm not done yet and this damn cancer thing certainly isn't going to stop me.

    We met with the photographer on Sunday (I think I mentioned last week we were taking family pictures). Even though my hair started falling out last Thursday I really wanted to have the pictures done with MY hair & I made it....barely! We had fun taking the pictures. When I get them, and if I ever figure out how to post them I'll share a couple.

    Here's wishing us all a peaceful, comfortable evening where cancer is the LAST thing on our minds! {{{Hugs}}}

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    Kristine - oh, I am so sorry about the terrible time you have had these last few months. It certainly does seem sometime that life just isn't fair. I lost two babies to miscarriage before getting pregnant my daughter, and I still cry sometimes thinking about them. I know the time around their due dates was a hard time, so you are probably going to be feeling extra weepy then. You have a great attitude though, "You just do what you have to do". I am just putting my head down and getting through this, I keep imagining it is summertime, and being able to put all this treatment behind us, and reclaim some sort of normal life again. I am glad you got a lovely family photo WITH your hair, and I am glad cutting it off didn't prove to be too traumatic!

    As for photos, apple, I love your great experiments with the hair! I wish I had been more imaginative when we did the big chop. I am soooo conservative with my hair usually - I have had the same style within a few inches forever. It might have been fun to try a mohawk!! I guess when it is growing out I can try out different lengths.

    I have tried grabbing a photo from Picassa, it doesn't seem to work. You basically need a URL where the photo is being hosted, so BC.org doesn't have to cope with the file. Did you right click on the photo from the album you created? That is what I was doing wrong the first time.

    Oh, I just had an idea. You can paste from Picassa. Just upload to a web album, then click on the photo you want. Right click on the photo and go to "properties". Copy and paste the location into the "Insert Image" spot above. Should work - I just tried it here, with another photo (my daughter sledding!!)

    Phew, long post, this is what happens when you can't sleep.....!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2009

    I have to add one of my son too, just cos he is so cute!!

  • MicheleS
    MicheleS Member Posts: 937
    edited March 2009

    Kristine~  You captured what I feel PERFECTLY.  I know I vent a lot here about SE but I'm able to continue treatment... that's a blessing.  Plus my other friends just wouldn't understand so I do it here...Ya know, one of the HARDEST parts of this bc diagnosis (for me) was knowing that I wouldn't be having any more babies. Just prior to my diagnosis, DH and I were discussing "just 1 more".  My surgeon and OB have told me that I would be "playing with fire" if I were to be PG again.  Plus, I know I'll be living in fear of recurrance... I wouldn't want to do that to ANOTHER child.

    Apple~ I think you look "hip" and beautiful with your new "do"!!!

    Kerry~ Your kids are just so cute!

    I'm up early 'cause I have AC3 today.  I just don't want to  go!!! I'm not ready for another 10 days of nausea. bleck.

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