Why do I get hot flashes as soon as I get horizontal ?

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trigeek
trigeek Member Posts: 916

Ok this is getting really tiresome. I fall asleep in a reclined position sleeping like a baby.. I drag my sorry b..tt to bed as soon as I get horizontal I start getting hot flashes every hour !!! I need my uninterrupted sleep.

Any explanation on why being horizontal induces hot flashes ? Is it because the body is in contact with the bed ? Someone needs to invent a temp control bed, which changes temp according to the body heat.

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Comments

  • otter
    otter Member Posts: 6,099
    edited February 2009

    I don't know the answer, but I had to write anyway.  My most predictable hot flash comes about 30 seconds after I've climbed into bed and nestled myself into a comfortable position.  It's also the "biggest" flash.  What is it about lying horizontally, anyway?

    otter 

  • turtle42
    turtle42 Member Posts: 139
    edited February 2009

    I dont know the answer either but as soon as I fall asleep I get a hot flash and I have to pee. Wakes me right up.Doesn't matter if I just went, I have to go agian, or at least it feels like I have to. If I lay there until after I cool down then I dont have to go. Crazy huh?

    Jackie

  • MJ6266
    MJ6266 Member Posts: 180
    edited February 2009

    Hi All,

    I get the hot flashes when I lie flat too!  I talked to my doc- who said that at night time- estrogen levels drop very low...and that that is why you get them more at night.

    Mary

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2009
    I don't get hot flashes in bed but drenching night sweats..the other night, I kept using the sheet to dry myself off. It doesn't happen every night though and I sure do like those nights that it is only hot flashes or flushes.  But I do have more hot flashes at night and in the morning. 
  • Floradora
    Floradora Member Posts: 29
    edited February 2009

    The horizontal position sets them off for me too. And it's not just at night. Whenever I've had an ECG, I lie down on the couch, have the sticky pads stuck on me, and then go into a hot flush, so they can't get any readings on the ECG as the pads aren't making good contact because of the sweat. After a couple of minutes the flush subsides, and they start getting readings. One time, the nurse asked me to stop having a flush so she could get on with the test. Yeh, right......

  • otter
    otter Member Posts: 6,099
    edited February 2009

    This has to be a blood-flow issue--maybe when we lie down, the blood flow to the brain increases ... ?

    The problem is, AFAIK, no one really knows exactly what it is that triggers a hot flash.  I mean, they know flashes occur when our estogen levels drop because of meno or drugs or surgery; they know that estrogen replacement (HRT) makes the flashes stop.  But, what physiologic process triggers an individual hot flash??? 

    Estrogen levels may go down at night, but when we're on an AI and don't have any estrogen to speak of anyway, the lower-estrogen-at-night explanation doesn't seem to fit.  And, it's not as if it takes hours for that first night-time flash to hit.  For me, it's a matter of minutes--maybe even half a minute.  Way too fast to be explained by a night-time drop in blood levels of a fat-soluble hormone like estrogen. 

    Anyone want to do a Master's Thesis project?  :)

    otter 

  • NatsFan
    NatsFan Member Posts: 3,745
    edited February 2009

    Wow - I'm so glad I'm not the only one. It's so weird - I get into bed and 30 seconds later - wham!  A hot flash. I haven't been able to figure out a rhyme or reason or pattern - using or not using alcohol that night, suing or not soaking in the hot tub that night, exercising nor not exercising that day, having spicy food for dinner or not - none of those things seem to matter.  

    I like your Master's Thesis idea, Otter!    Wink

  • LizM
    LizM Member Posts: 963
    edited February 2009

    YAY!!!!

    Trigeek,  I am sooo happy someone else mentioned this.  I never posted about it but I have been complaining for 3 years since my 2d treatment of chemo that I get hot flashes as soon as I lay flat.   I just complained to my hubby the other night that for THREE SOLID YEARS I have gotten a hot flash EVERY NIGHT when my head hits the pillow.  I am freezing when I go to bed but I can't wear much because I know as soon as I hit the pillow I heat up.  I throw the covers off and on all night long.  I am quite use to it and it doesn't interfere too much with my sleep because I take melatonin.  I also take my Femara at night before bed which might make things worse.  I am happy to hear some explanations for why this happens as I thought it was weird that it is not even a minute after I lay flat that I heat up. 

  • Maire67
    Maire67 Member Posts: 768
    edited July 2010
  • apple
    apple Member Posts: 7,799
    edited February 2009

    many woman rave about the Chillow.   I don't have one, but i might get one soon.

    http://www.chillow.net/

    from the website   (if this is not cool to refer to a product let me know or remove it)

    "A Chillow can benefit a wide range of people, their symptoms and conditions. We have put some examples below. We are always happy to hear from you if you would like to add to the list!

    People who are hot - Some people have a high metabolism and are always warm. At night this heat can cause discomfort, a hot pillow and a disturbed night's sleep.

    People who experience hot flushes - These may be brought on by the menopause or may be a side effect of cancer treatment or other medical treatments.

    Cancer treatment - Many NHS oncology units and Macmillan nurses are recognising the benefits of a Chillow to those undergoing treatment as side effects of this are often severe overheating.

    Menopause - The effect of the menopause varies from woman to woman. Some experience very few problems. Others can experience symptoms such as depression, anxiety and hot flushes to name a few. If these occur at night then they will cause a lack of sleep. This will have a negative impact on the other symptoms being experienced."

  • lisasayers
    lisasayers Member Posts: 850
    edited February 2009

    OMG....I have the same problem!  Really no hot flashes during the day, but as soon as I hit the bed...watch out!  Glad I'm not the only one! 

  • Jeansbeans
    Jeansbeans Member Posts: 175
    edited February 2009
    Hi Girls,  I too  have NIGHT SWEATS! Tongue out Soaking wet every 30 min. all night long.  I have them now in the early evening before I go to bed, I tried changing the time i take tamoxifen, nothing different seems to change. I also wondered if it has something to do with laying flat.  Why don't we all try sleeping in an upright position!  I'm sure my DH wouldn't mind me finding a solution to this as I keep him up all night too from all the moving around i do!  I guess we're all in the same boat for 5 yrs.!! Gentle hugs to all. Jeanie
  • trigeek
    trigeek Member Posts: 916
    edited February 2009

    Apple I had the chillow which helped for the first couple of hot flashes then I even warmed that up ! Thought about getting a second one, then somehow I got air in it and it got mold..ewwww... had to trash it.

    Jeanie lol, same problem here, I used to be a stomach side sleeper now I get hot when I do so , so I turn on my back then I snore cause I packed about 30 pounds since this whole thing started.. dh nudges me.. I turn on my face.. then I start fidgeting .. another nudge from dh.. luckily the older dd is off to college I seem to do best starting in my bed and then moving to hers around 2 am.

     If I had a recliner I would be inclined to try and sleep there.

    This is getting really old I am thinking about taking a 'Femara vacation' and see what happens.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    OMG, I have the exact same thing and the sensation that you have to go pee!  I love you guys!

  • GayleB
    GayleB Member Posts: 385
    edited February 2009

    Sigh, I feel so much better.  I thought I  was losing my mind!  I just completed my first year on Arimidex.  Natsfan, I do exactly the same thing you do--doesn't matter if I just went to the bathroom, I fall asleep, and you can bet within less than an hour, I am flashing and have to get up.  I had started to think the flashes when I lay down were just coincidental, or that I was just imagining it, now I know I am not losing my mind.  Same goes for the memory loss.  Anyone here having problems with that since starting Arimidex?

  • artsee
    artsee Member Posts: 1,576
    edited February 2009

    Boy...can't wait to get to bed tonight to see what happens.LOL!

    I hadn't had a hot flash for years before BC and now I've been off of Aromasin 4 month and I'm still getting sweats at night! Figure that one out........why are they still coming?

    Artsee

  • Floradora
    Floradora Member Posts: 29
    edited February 2009

    I bought a Chillow a while back, and it seemed to help for a couple of weeks, then the cat jumped on it and punctured it. Water leaked out and none of the repairs I tried were successful. Cats and Chillows don't mix!

  • snowyday
    snowyday Member Posts: 1,478
    edited February 2009

    That is so right, it really does happen that way, thanks for posting it. 

  • smithlme
    smithlme Member Posts: 1,322
    edited February 2009

    I had a total hyster/ooph last June and I have terrible hot flashes every night. I also had them while going through chemo and after. My onc suggested that some type, I can't remember which one, of anti-depressants work on hot flashes. I'm not sure if I want to take another drug just to get rid of the flashes, but I am exhausted from the blanket flinging I do every night...

    Linda

  • trigeek
    trigeek Member Posts: 916
    edited February 2009

    Ok listen to this.. I did not get ANY hot flashes yesterday .. day or night.. and what did I do ?

    I got a colonoscopy with anasthesia hehe..

    I thought some people took some nerve med like neurontin ? Anti depressants do not work and make me depressed apparently if we shut the nerve responses down hot flashes also go hmm....

  • emanresu
    emanresu Member Posts: 60
    edited February 2009

     From an anatomy and physiology class I took I do remember that the hypothalamus of the endrocrine system is supplied with estrogen to work properly. Estrogen gone, whacky hot flashes. I notice I am usually cold. And very very cold right before a hot flash. Then it starts, the heat, a response to my cold body, even though it is sporadic, my body is trying to compensate for me being cold.

    When I lay down my blood vessels fill with blood and I get hot. Maybe because of my vascular system is also off due to loss of estrogen and my body thinks I fainted and rushes blood to my head. That is a big fat guess. I don't know. Before menopause by body regulated everything so nicely. Below I found some info. But really no answer. Good to know things though. mg 

      

    Hormonal Causes for hot flashes.

    The most common cause of hot flashes in menopausal women is changing levels of estrogen in the body. Diminished amounts of estrogen have a direct effect on the hypothalamus, the part of the brain responsible for controlling appetite, sex hormones, sleep, and body temperature.

    The most common cause of hot flashes in menopausal women is changing levels of estrogen in the body. Diminished amounts of estrogen have a direct effect on the hypothalamus, the part of the brain responsible for controlloing appetite, sex hormones, sleep, and obdy temperature.

    Stage one is the estrogen withdrawal.
    Stage two is decreasing circulating endorphin and cathecol -estrogens.
    Hypothalamus increased serotonin, norepinephrine release and lowering of thermoregulartory set point.
    Stage four  is the heat loss mechanisms triggered by subtle changes in body temperture which trigger the hot flashes.


    Lowered levels of estrogen confuse the hypothalamus, causing it to inappropriately sense that the body is overheating. This provokes an internal chain of reactions that women experience as "hot flashes".

    http://www.34-menopause-symptoms.com/hot-flashes.htm
     

  • Juli50
    Juli50 Member Posts: 859
    edited February 2009

    Trigeek - You are correct! Ever since I started taking Neurontin for neuropathy, my hot flashes are few and far between, and much milder when I actually have one.

    Juli

  • suntree
    suntree Member Posts: 14
    edited February 2009

    I just starting taking Arimidex and within two days my short term memory seemed to be fried.  I was even afraid to drive because my concentration was not there.

  • Linda54
    Linda54 Member Posts: 2,689
    edited February 2009

    All this sounds just like me too!!

    As soon as I get in bed and start getting settled with covers around me, ha I am throwing them off.  I took effexor for 8 months for hot flashes and I battled constipation (one of the side effects) the whole time.  Nothing seemed to help.  I went off of the meds last week (cold turkey) and had some withdrawals but I got over it and now I am fine.  Don't know yet if the flashes will come back with a vengence....they never went away while on effexor but they seemed milder.  I just got tired of the other problem.  One thing that helps me more than anything having a fan handy.  If I can just get come air blowing on my face I can handle it.  I have a small fan on a plant stand (perfect height) by my bed and it is blowing on my head all night, unless I get cold and then I just slightly turn it.  I also have a good supply of hand fans all over my house. HA   Hope this helps someone.   I am sure when I go to bed and it happens that I will get a smile on my face thinking about all of you going through the same thing.  Love you all

  • kad45
    kad45 Member Posts: 3
    edited March 2009

    I am SOOOO happy to hear other women suffer "bed time flash"!!! I can almost time it! Asked my onc he said flashes are worsened by stress, there is NO stress in my bed!! But I also get them while trying to nap in my recliner....And if one more man says dress in layers and carry a fan.....

    I'm on effexor and it does seem to help But will they ever go away??? I'm on Aromasin for another 2 1/2 years and post menopausal. But I'm a two time BC survivor so I feel the aromasin is needed.

  • nelia48
    nelia48 Member Posts: 539
    edited March 2009

    Kad45, I also just found this thread, and so glad to hear that I'm not the only one.  I've been going to bed with an ice pack under my pillow.  I sleep great in the recliner, too.  In fact, I'm missing all my favorite shows!!!!!  Then, when I go to bed, It's terrible hot sweats,  etc.  And all day, I'm freezing cold.  So I'm not doing too well with sleeping through the night either!

    The ice packs work wonders!

    Cora

  • ees
    ees Member Posts: 1
    edited March 2009

    I too have more hot flashes at night that any other time.  I was diagnosed with breast cancer that was estrogen and progestone receptor positive.  I am 52 I was still using birth control pills so my doctor told me I had to stop immediately because of the type cancer.  I had my surgery about a week and 1/2 later and immediately after the surgery the hot flashes at night and night sweats began with a vengence,abt every 90 mins all night long.  My doctor put me on Zoloft and at night has me take Xanex to help sleep, I don't wake up as often now only about 3-4 times at night instead of all night long and I am able to get back to sleep a lot quicker now but I still have no energy and cannot focus well on any task.  Dr now has added Wellbutrin in the morning to see if it will give me more energy.   I have never had any health problems until this and it is miserable, I have always been very detail oriented and able to come up with solutions fast, now I cannot focus and every little activity wears me out.  I too sympathize with everyone going thru this it is devasting to our mental and physical well being...

  • smithlme
    smithlme Member Posts: 1,322
    edited March 2009

    I had an interesting thing happen with my "power surges." I had done all I was supposed to, work out, not eat sweets or drink caffeine before bed. Last weekend I spent a couple days away from home and stayed at my daughters. Guess what? Only 1 hot flash, and I slept well. What changed? My husband wasn't there. Perhaps his body heat is adding to my distress? On Monday I saw my Onc for a check up and complained about the hot flashes and lack of sleep. She suggested anti-depressants and I opted out. When I took them, years ago, I couldn't sleep. I asked for sleeping pills instead.

    When I got home, I took the heavy comforter off of our bed and told my husband to crank up his side of the electric blanket! Between the sleeping pills and lighter blanket, I have been waking up only once at night. Maybe I'm sleeping through the surges? I have my fingers crossed that it will continue...

    Linda

  • mamasan
    mamasan Member Posts: 1
    edited September 2011

    Hi I'm sorry you are all experiencing the same thing I am but it's nice to know that I'm not crazy.  I had BC when I was 46 (4 years ago) first surgey, then radiation, then chemo.  Starting immediately after the first chemo treatment came the hot flashes.  Horrible, horrible, horrible.  I've tried the anti-depressants, try to stay away from all the things that are supposed to contribute to hot flashes but NOTHING WORKS.  I haven't slept for more than 3 hours in a row (and that is rare) in 4 years.  I want to sleep again, I think my concentration level and memory are not very good right now but I blame that on lack of sleep.  Unless you go thru these or live and sleep with someone who does - NO ONE can understand how disruptive flashes are to your life - try explaining to a male boss that you are exhausted to the point of collapse because of hot flashes - they can't get you out of their office fast enough LOL!  I am supposed to be taking femara but I don't do that very often because I can't imagine how bad my life would be if the flashes got worse.  I'm sitting here sweating like a pig while I am typing this.  It is 97 degrees today and my husband doesn't think we need the AC - I am dying!!    I also take Neurontn at night and it is the only thing that has allowed me to get some sleep.  I tried some over the counter hormone aid that fakes hormones and slept well - but my breast surgeon had a fit saying my body doesn't know the difference between real and fake hormones - so there went those.  I tried black cohosh but that didnt help either.  Neurontin, fans everywhere, handheld fans also, and understanding are the best I have found so far.  I hope at some point in my life they go away!

  • BrendaD
    BrendaD Member Posts: 26
    edited October 2011

    Same here.  Very few hot flashes during the day.  I soon as I lay down, the night sweats start.  Haven't slept a full night since I started Tamoxifen.  If I go to early, or stay up late.....I'm still awke 2-3 times a night, always at 4:30 am.  I take an occasional Ambien, but don't want to become dependent on it.  Right now, I'm suffering through. 

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