Starting Chemo February 2009?

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  • apple
    apple Member Posts: 7,799
    edited February 2009

    to chemo lab i go with a smile

    where  time seems to be halted

    i'll be learning organ music while

    the  cancer and my hair is assaulted.

  • webwriter
    webwriter Member Posts: 535
    edited February 2009

    apple you crack me up! Good luck today!

    Michele and who else was looking at sleep meds with youngsters? I have a monitor (yes, still) in my daughter's room so I can hear her two floors away when she wakes. I take the Lunesta every other night, starting on Decadron night. If I take it every night, I get the groggies. So far, I haven't had to go get her. But I have gotten up several times to pee in the night. No trouble waking for it, no trouble getting back to sleep afterward. If I hear her tho, I'm kicking the hubster. He can go up and get her! 

    I can't recommend Lunesta across the board, since I've heard about crazy side effects. Meds just affect me weird. I have had ZERO trouble with it at all. For the first time in my life, I sleep exactly eight hours and wake up ready to go! Talk to your Docs. They had me on Restoril (like Ativan only stronger) and Ambien to no avail. Lunesta really did the trick.

  • webwriter
    webwriter Member Posts: 535
    edited February 2009
    flmom, No, no Angela's here. Sorry to confuse you. I meant Annie Camel, a well loved member here who lost her fight recently.
  • MicheleS
    MicheleS Member Posts: 937
    edited February 2009

    Apple and "sue from fl" (and anyone else going today)- Good luck!  I'll be thinking 'bout you.

  • kat4pink
    kat4pink Member Posts: 63
    edited February 2009

    My fever is gone this morning...woohoo! Had 100.6 when I finally drifted off a little after midnight last night, and so far this morning, no fever at all.  My underarm is still very swollen though, but at least the fever and body aches are gone. Guess that shot in the butt worked! There is a thread about Cellulitis, which is what jumped on me, in the lymphedema after surgery thread which is very informative and explains how important it is to seek medical treatment if you suspect you are getting it if anyone wants to take a look. I wish I had found it BEFORE last night, AFTER I had gone to the doctor... thank God I went ahead to my local doc and got started on the antibiotics.

    Good Luck to everyone going to chemo lab (with a smile - you are great Apple!) today. My thoughts and prayers are with you.

    Hope everyone has a great day today... and by the way, I aint leaving the Fab Feb Furries... I'm from the south and you can't make me! lol

  • kmn0701
    kmn0701 Member Posts: 117
    edited February 2009

    I'm glad I'm not the only one. Smile I don't know how to post my chemo schedule. I'm Taxotere/Carboplatin/Herceptin every three weeks for six cycles, Herceptin every week & then once my "big chemo" (TCH) is done at the end of May I'm continuing on with Herceptin every three weeks until next February. After the big chemo I will also be having rads...not sure how long for that though. How do you shorten all that?? lol webbie....can you update me & make sense of that?? Wink

    Kerry...aggressive cancers suck! I'll be telling myself that too.

    Michele....we'll celebrate with boiled peanuts when we're done! lol

    xpectmiracles...I don't know how to post pictures yet but I can't wait to see yours!! 

    Kathie....you stick with us as long as you want! 

    Good luck today apple (love the poem!) and Sue (fromfl)!! And anyone else going...Denali, is today your day too?? Mine's tomorrow.

    All of us & Chemo....kicking cancers butt since February 2009!!! 

  • webwriter
    webwriter Member Posts: 535
    edited February 2009

    Kat, you crack me up too. Of course you're not leaving us! You're one of us. This thread doesn't end just because some people are getting finished. I know that many, many of the friendships we build during this time will also endure beyond chemo. Some of us have rads next, some move on to other drugs...but we'll always be Furies and we'll always have our "home thread" to come back and check on. Even if it's only on our "anniversary" dates.

    I'm wiped today, but otherwise, not too bad all things considered. Halfway. Hmmmm. Nice!

  • susan13
    susan13 Member Posts: 732
    edited February 2009

    Home from Taxotere #3, so all in all 7 treatments down, and ONE TO GO! wohooooo!

    Onc. says that these last 2 tax. are gonna really wipe me out. Oh joy oh bliss.

    Think I'll do a poem too... Apple u crack me up. Maybe we should all do a poem to sum up our chemo day.

    A Taxotere I go and steroids follow too

    Hi Ho the Merri-O no sleepin I will do

    I'll never get a break, cause chemo really sucks

    Hi Ho the Merri-O I think I'll go feed the ducks

    Ey... I tried.Laughing

    Hope everyone's having a not-so-bad day. Remember to drink up and take your laxatives!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited February 2009

    Kristine~ I am also on TCH until May 18 and then I will continue with herceptin until Feb 10  So I feel like I have a LONG, LONG way to go but I just keep looking forward to May.  I really want my expanders replaced so it gives me something to look forward to for now. 

     I can't wait for my tastebuds to get back nothing is tasting right :(

  • MicheleS
    MicheleS Member Posts: 937
    edited February 2009

    Jaimieh~ I'm glad you posted this afternoon.  I *thought* I saw a new poster (you!) yesterday? But, I couldn't find you (later on) to welcome you... I plead chemobrain.  Regardless... WELCOME!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited February 2009

    LOVE the poems...will think one up tomorrow while I am sitting in the chair ()and before the Chemo fog descends!!)

     susan13 - whoohoo for you!  One more left, that must feel great.

  • Gramof3
    Gramof3 Member Posts: 301
    edited February 2009

    Thanks for the welcome--I've learned so much just from reading here.  I wore my new wig to the office yesterday and one of my student workers (who is young enough to be my grandson) told me I look "hot"!  Wouldn't you know it--62 yrs.old, bc, and now I'm hot??

    Thought I'd pass this along--there is a great bed jacket you can find at the Jockey outlets (maybe online too).  They're velour, button up the front, have a hoodie and I found them for $10. Even though they are "bed jackets" they look like warm up jackets. 

    And a question--how much Claritan do you take before the Neulasta shot to try to head off the bone pain?

    Thanks.  Helen

  • TwillNW
    TwillNW Member Posts: 46
    edited February 2009

    Hair, hair, everywhere

    Nesting in my collars

    In my sink

    On my keyboard

    In my car

    On my work chair

    Why don't I just buzz it off?

    I don't know. 

    Maybe I want so see how long it takes to all come out. 

    Maybe it is to take some of the heat off the dog.

    Today it snowed and I wore the hat with ear flaps.  

    Maybe tomorrow I will try...the wig. 

    (There is my poetry contribution.) 

    I haven't posted recently but read everyday.  I am midway between AC 2 and 3 - still minimal s/e (coated tongue, sinusitis that won't go away) - but functioning pretty normally. 

    I am another one whose chemo will go into June as presently scheduled with 12 weeks Taxol after AC - and then rads.  Seems like forever right now - but moving along.

    Going out of town this week-end so everybody try to have some fun and relaxing times as we leave February behind...

  • apple
    apple Member Posts: 7,799
    edited February 2009

    my friend today who has lymphoma

    fournd that she won't need a comb a

    brush. spray  even styling gel

    fortunately she's feeling well.

    .

    .

    we'll do chemo together sometimes.

    .

    .

    the  nurse i had  today was Bryce

    he was extra kind and nice

    he brought me a pillow and a drink to sip

    his service was excellent and i left a tip*.

    .

    .

    really!   (*1 dollar) ha haLaughing

  • Carol0371
    Carol0371 Member Posts: 23
    edited February 2009

    Had #4 chemo Tues.As usual didn"t sleep much that night.Yesterday Did laundry & grocery shopping.Today steroids have worn off & am wiped.Took a 3 hr. nap this afternoon.Ready to back to bed now,want to stay up to watch CSI.We'll see.My hair was coming out all over for a week so had my daughter bring her trimmers & get rid of the rest.One less thing to take care of.I enjoyed your poems,too brain fogged to try to think of one.Good luck to everybody going this week.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    susan13, i'm doing the light-at-the-end-of-the-tunnel snoopy dance for you!

    has judy posted about her mom? i hope the operation went well. 

    TwillNW, i especially related to your hair poem.Laughing i didn't buzz either. just watching it all fall out in the shower. mourning and saying goodbye-and-come-back-real-soon-y'hear to each strand. somehow i'm getting used to it. i'm also getting used to the wig. i've designated my office mate to be the official "um, your wig's askew" notifier. i also have a mini-mirror on my desk, just to make sure.

    today after work, when i got in the car and took off my hat (i always take my hat off when i drive), whoops, off came the wig! so i plunked both back on my head. when i got home, i told the menfolk, "scuse me, i've had a wardrobe malfunction" and scampered to the bedroom for my comfy cap. 

    does taxotere also make your hair fall out, or keep it from coming back? i'd love to think that after my last AC on march 18th, that my hair might start growing back. wishful thinking, i'm sure.

  • jancie
    jancie Member Posts: 2,631
    edited February 2009

    The poems are cracking me up!!!  I am not creative nor can I do most crafts other than simple knitting or crocheting but I will try to think of something next time I am getting chemo.

    Apple - love the "hair is assaulted" - ain't that the truth!  By next Friday at the latest my hair will be coming out in clumps.  I think I will bring my horse clippers home so I can finish the buzz at that time.

    Susan - congratulations on 1 more treatment to go!  I so wish I were at the same pace as you but alas I have only done 1 so far.

    Webbie - I tried Lunesta and the only thing I didn't like was the after taste the next morning but that wouldn't stop me from taking it again.  I have upped my Ambien to 15 mg and still can't sleep at night.  I sleep until 3:30 am and then I end up taking another 10 mg to get back to sleep so must talk to doctor before I OD on Ambien.

    Kat4pink - great that your fever is gone.  Now when are you scheduled for chemo?  Being from the south at one time myself - you don't mess with ladies from the south - they are tough cookies!

    Jaimeh - ok I probably spelled that wrong - welcome to the group!!!  Sorry if I missed saying hello before but like others I will plead chemo brain!

    MicheleS - how are you feeling?  Are you still our puking queen?

    KerryMac - will be thinking of you tomorrow when you are sitting in the chemo chair. 

    Gramof3 - don't know the answer regarding Claritan because I didn't take it my first chemo round but neither did I get any pain from the Nuelasta shot.  I thought I read that you take one the night before you do chemo and then for a couple of days afterwards?

  • buddy1
    buddy1 Member Posts: 750
    edited February 2009

    I am a newbie.  I will be starting Taxotere (docetaxel) Cytoxan and Adriamycin in about 2 - 3 weeks.  Can you please tell me what to expect.

  • kat4pink
    kat4pink Member Posts: 63
    edited February 2009

    Here I sit, all broken hearted,
    thought my chemo I would have already started.
    I want to get started so I can get done,
    although I know it aint gonna be fun. 
    It will only be OK for another delay,
    if I stay home with hub and have a roll in the hay!

    lol there's my contribution!!

  • kat4pink
    kat4pink Member Posts: 63
    edited February 2009
    I can't believe I really posted that corny crap! lol Embarassed
  • jancie
    jancie Member Posts: 2,631
    edited February 2009
    LOL Kat - it's ok - I can't believe some of the "stuff"  that I post sometimes but hey.......pretty soon you will be able to blame chemo brain!  You just aren't there yet Wink
  • jancie
    jancie Member Posts: 2,631
    edited February 2009

    I think the "drugs" are getting to me and messing with my head.  I know the steriods screwed me up royally mentally and I still feel like they are lingering in my system even though I haven't taken one since Saturday.  On top of that I started my period so I've got those emotions running like crazy.  Since I became perimenopausal about 2 years ago my hormones rage like crazy during this time and I was hoping that I would just skip this month and go straight into chemopause and of course at my age, they would probably never start up again which is fine with me.

    So bottom line my emotions are nuts and my body feels weird.  Then my hubby leaves to go out of state today at last minute notice and won't be home until Saturday (work required) and even though I am glad to have my home to myself, I am all weepy eyed and sad and I really don't know why - I have no freaking clue!

    I feel so strong as though I can kick ass and take names (ooops, wonder if the mods are going to catch that one) and then other times I just feel totally vulnerable and realize how darn bad cancer is and am I taking this seriously enough - am I facing the reality of what could be my fate 2 years from now, 5 years from now - even 10 years?  I feel as though reality is not really going to hit me until my hair comes out and then it is "you have cancer and you will remember this every second of the day, you won't be able to just go to the barn and see your horse and forget that you have cancer, it will be in front of your face 24/7/365"

    I am not sure I could hang on like I am without you gals here on this site, every single one of you!  I know that "here" I can spill my guts and tell you how I feel when I can't even begin to explain all of these emotions to my own husband and best friend as I feel they won't understand at the level that y'all understand what it feels like.

  • gcpommom
    gcpommom Member Posts: 883
    edited February 2009

    I just wanted to stop in and share that although she fought hard the last few days, my mom died today.  I'm totally exhausted, heartbroken, and just don't know what to do next.  I just don't know what to do.  I know that even she was facing her own surgery, she was very worried about not being here for me right now.  She was the most wonderful, amazing person and always worried about us kids even while she knew she might not make it through this.  I'm going to miss her so much.

    I'll try to post when I can.  I'm sorry I haven't time to read through all the posts I've missed. 

    We have a lot to do, and I thank all of you again so much for your support.  I told my family how you all were so worried, and how much it meant to me. ((((((thank you))))))

    Judy

  • jancie
    jancie Member Posts: 2,631
    edited February 2009
    ((((((( Judy ))))))   I am so very sorry for your loss Cry
  • kat4pink
    kat4pink Member Posts: 63
    edited February 2009

    I have the luxury (if you can call it that) of having a good friend who got dx with breast cancer 3 years ago and has been my rock! Even thought she is not my best friend.. who is a fantastic person I could not live without, I go to her now more then anyone because she understands... She had the same TAC treatment I will be starting, only difference is she only had one breast removed instead of both. BUT on the same note, this website has been a God send to me also..So, I agree with you Jancie! And just think... with your hub gone, you can stay on the computer more! LOL (and by the way... remember he is a man.. even if he had cancer himself (God forbid!) he wouldn't understand how you felt anyway! lol)

    When I start thinking about the reality of this, I just keep reminding myself that they have come such a long way with bc and women with stage 4 survive now. I really believe that one day bc will be totally curable.. I pray that anyway.

  • jancie
    jancie Member Posts: 2,631
    edited February 2009

    buddy1 - I almost missed your post!  That happens when I am posting at the same time and someone else and before I get my LONG winded posts submitted someone jumps right in front of me Laughing

    Are you going to do Adriamycin and Cytoxin together and then Taxotere afterwards?  How many treatments and what is the spread between (i.e. every 2 weeks, every 3 weeks?)

    There is a good thread in this forum about preparing yourself for chemo, the things you will need to purchase, etc.  It is one of the top 3 threads listed in this forum.  Please do take the time to go through and read it.

    Everyone reacts differently to AC other than it is a given that your hair will fall out in 14 to 17 days after your first treatment.  MicheleS is the puking queen here and myself on the other hand, I have a cast iron stomach and only got nauseated for one day and never threw up.

    Some people have major problems with the Neulasta shots (given to increase your white blood cells) and have awful joint pains and others it doesn't phase (like myself).  But then again, how you react on treatment #1 versus Treatment #2 and Treatment #3, etc. can be totally different.

    It is a biatch but everyone here says it is doable.   A couple of responses above you will see where I posted about my emotions being all over the place - and so far that is the only real SE I have had but I can't stand how I feel right now mentally.  Some days I am up and other days I am down and that is one thing that you can probably expect to happen to yourself as it seems to happen to most everyone here.

    Send a PM to Webwriter so that she can get you on the schedule at the top of this thread (page 1) with your treatment schedule so we can keep up with you! 

  • kat4pink
    kat4pink Member Posts: 63
    edited February 2009

    (((((JUDY))))  I am so sorry!! I am sure your mother knew how much you loved her and how supportive you were to her, even though you have been going through your own issues. You can be proud of the daughter you are!

    My thoughts and prayers are with you and your family!

    XO

  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited February 2009

    ((((JUDY)))))    Know that we all care for you and wish to comfort you in your loss. Please post when you can. We will listen.

  • apple
    apple Member Posts: 7,799
    edited February 2009

    i'm so sorry about your mother Judy . that is so sad.  so devastating.

    may her beautiful soul and motherhood continue to sustain and empower you during your treatment.  may you find comfort and peace with your family and friends as you gather.  sending my prayers to you and yours.

  • suzmarks
    suzmarks Member Posts: 83
    edited February 2009

    Judy - I too want to share my deepest sympathy for you and your family. What a great lost to you at this most difficult of times. Take comfort from those who love you and find the strength to help yourself through this time of grief.  

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