Angry Rant -- WebMD Says It's our Fault! "Research" shows!!
Warning--my buttons have been pushed. There is an article on WebMD that says that "1 out of 3 of the 12 most prevalent cancers could be prevented by "healthier living." These statements (complete with a table of those cancers and 'reduction rates possible') are the result of "research" by 2 organizations. AAARRRGH!
1. They are implying that 1/3 of us "caused our own cancer." I doubt their research would hold up under an 8th-grader's scrutiny. Please remember, correlation is NOT causation. If 60% of BC dx's are women who are overweight, that does NOT mean that weight caused the BC! Over 99% of BC dx's are women who started life on breast milk or baby formula; does that mean that breastmilk/baby formula CAUSED the BC? Hell no!
2. How many (ex-)smokers have had an idiot ask the "Aren't you sorry now that you smoke(d)?" Do you direct them to the ACS website that states, point-blank that there is no identified causation between smoking and BC? Do they not believe you til you push their big, self-righteous noses in it?
3. If YOU caused it, it absolves everybody else of common responsiblity for such things as environmental polution.
4. If YOU caused it, they can avoid it themselves. That is, they can control cancer. OK, ladies and gents, please post your secrets to controlling cancer, because I personally have seen WAYYY too many angels get their wings here lately, women and men who were not over-eaters, over-drinkers, smokers.
4. The Research. Whoop-di-doo! Two more organizations identified who have taken how-much-money away from FINDING A CURE to push an ideological agenda. (Check affiliations/sponsorships of "research" orgs.) If you can't tell me WHY being overweight "causes" breast cancer, SHUT YOUR MOUTH. If you CAN tell me why, it's a really short hop from there to a cure. Why has your research only resulted in a paper and not a cure?
5. Ask not for whom the bell tolls; it tolls for thee. One out of 3 people in this country will get some form of cancer. Be very careful, you self-righteous ones, because those are going to be tough odds to avoid. (Most serious biologists insist that EVERY living organism will eventually develop cancer if they live long enough.) And suddenly you may have a very different attitude about "personal responsiblity" vs. "curing 'our' disease."
For the record, I am 2.5 yrs. out from dx, I swim 1/2 mile 3 days/week (and have for most of my life.) I've FINALLY broken the chemo/steroid weight boundery (that is, for the first time I have my weight down from what it was in treatment.) I take Omega-3, Iodine, D3 and Glucos/Chond. I also take a product called DIM because I have real problems eating cruciferous veggies. (Even DH thought this was all in my head, though I told him they taste vile to me. Then he saw me "force" myself to eat some broccoli, trying to be a polite guest at someone's dinner table. On the way home, he told me NEVER to do that again. He said he could see how close I was to heaving and how I kept gagging, but that luckily, our hosts had not. They would have thought that their cooking made me wretch.) So it ain't like I'm not "doing my part." I just hate the "blame the victim" attitude and I REALLY hate the fact that we walk, run, phone, volunteer, etc., to raise money for "the cure" only to find our money going to useless research with no value to the community.
So, to WebMd, I say, let me know when a real doctor comes along. And I think I'll go over to your site now and see how many advertisers I can identify so I can notify them that as long as they support the quackery, I'll stay away from their products, thank-you-very-much.
Dona Nobis Pacem,
Beth
Comments
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I got you, I went into a rant two days ago over the alcohol study, it makes me feel like just because I've had a few drinks here and there it's my fault and I'm sure othe women felt that as well. I m sick of reading new studies and really hate when they become major NEWS stories but don't tell every thing about the study. AGGGGGGHHHHHHHHHH!!
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Well, we know perfectly well that another study will come out in a week or so refuting the study we just read!
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I guess WebMD has no issues with the hormones, toxic fertilizers and pesticides used in our foods and contaminating our drinking water. I guess they never used GOOGLE to list the Toxic waste sites throughout this country in coorelation to cancer incidence rankings.
Hmmm... how about those of us with no family history of these cancers (breast, ovarian, cervical, uterine, etc)? How about those of us as you described you never smoked and seldom drink and exercise regular and are within decent weight limits???
How about all those Ob/GYN doctors who prescribed HRT to women for years and never took baseline hormone levels on their patients? Sounds like down right negligence to me.
Oh yeah and those same OB/GYN doctors who prescribed Oral Contraceptives to me for years when I specifically asked about breast cacner risk. Oh No I was told the risk is so minimal and you have no family history and besides it's good protection against Ovarian cancer. Nice sales pitch and I'm sure the doctor got a kick back from the pharma company but I was never told how long I should take the bleeping pills. Okay - just keep filling out my prescription every year and don't bother to read my medical chart. I wait over an hour in the waiting room and get barely spend 10 mintues with the doctor. Oh so professional and looking out for their patients. Ladies bottom line - - be your own patient advocate!
End of rant as I sure I can add more to this list!
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The only thing I remember about weight being an issue is that I think they've proven that estrogen is stored in fat (not created, but has a place to lurk, so to speak), so heavier women can have more estrogen in their bodies to feed ER+ breast cancer. Not that it causes it...just that it has more fuel.
But I'm not kicking myself for anything. Anything I've done, I've done in moderation. Except smoking...I've never smoked. Or birth control...used a diaphragm. I guess it was my fault I was exposed to something that caused this, but darned if I know what it was.
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I think the danger of these reports is in public perception. Ask those who who get lung cancer. We think we have threads about what people say to you? Many tell me that the overwhelming response from people is :you shouldn't have smoked". Can't imagine how hard that is to hear when you get that diagnosis--especially for the many who never smoked and got it anyway. If the overwhelming public perception becomes that breast cancer is "caused" (and everything said above about how that isn't really true is correct) by being lazy and overweight and drinking, then people feel that it can't happen to them, and it's your fault if it happens to you. That ultimately affects how we all interact and get support from family and friends, and in the work place while dealing with this diagnosis, and more importantly support for research in detecting and eradicating this disease.
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I had a MD tell me that 90% of cancer could be prevented by healthy living (shortly after my diagnosis, and in a social setting. Needless to say, I don't see her socially any longer!). In my case, she thought it was probably due to my weight. My BMI is 26! After gaining 10 lbs through treatment! That's the only risk factor I had (oh except for being tall) and that's not very far into the red zone!
Whoever said "correlation is not causation" is right.
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Yeah, but nothing gets my goat like the blaming us for not being good enough human beings - too angry, not angry enough, etc etc etc. It seems that's finally run its course and now it's all about what we do. It's all part of that midset of thinking that one can have control over everything and make anything happen.
I saw a PS speak once about BC - her mom had had it and she was doing all this stuff to keep herself from getting it. Including marketing her own products to seduce other people into thinking that they can prevent something from happening to them. I found myself hoping that she would get breast cancer just to get her off of her arrogant platform....
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Yeah - how to feel like a loser! On the other hand, let's all sue McDonald's and Pizza Hut, etc. for causing our cancer!! And Ben and Jerry's and Dunkin Donuts and... I can see this working out for us!
Any attorneys among us?
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Figures since I get blamed for everything else!.....LOL!......Beth please refresh my Latin...Dona Nobis pacem means......What?..again...Thank you...Hugs!....Lucy
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two things I keep in mind about these types of articles;
1) health stories "sell" so there is a lot of pressure to publish them. Most health journalists don't know much so they just parrot whatever they've picked up without giving it much critical thought.
2) a lot of these 'studies' are done on aggregates. They get big files of stuff about people and run routines on them and bam -- people with cancer also had this or that..... While it may hold true for the averages, who among us is average?
That said, if you live an unhealthy lifestyle you are likely to have health problems caused by them. Too much weight does contribute to diabetes and high blood pressure. Plus you have to wear spandex undergarmets to look your best.
so there are benefits to trying to live a healthier life style.
But cancer isn't the patients fault. It just happens.
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I gaines 40 lbs with my pregnancy. 2 years later diagnosed with breast cancer. Was it my weight gain? Dunno. What about those Saturday nights I met up with friends and indulged in 1 to many Martinis? Dunno. Or when I was in practise all those intra oral xrays I took? Dunno.
I don't think weight plays a big a role in BC than other riskfactors.
There are a ton and I mean a ton of woman who are lean and trim and get cancer. I still got the extra weight on me, unfortunatly, ....lol. BUT I'm not having anxiety attacks about loosing it this second. In time it will happen. but I'm not freaking over it.
BC is a disease of the self. I have a feeling what "caused" my cancer but noone will ever know.
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Well put Maire...
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Thank you Beth for taking the time to write your rant! I totally agree with you.......and with Maire........WebMd is not my first choice of reputable research sites. I'm sure after they published this information, there were diet books and food advertised right next to it. So much easier to blame the victim instead of finding the causes and cure
I'm convinced that my BC was due to exposure to DDT until I was about 16. My mother kept her own personal "stash" in the basement of the house even after it was outlawed and no longer sold. She was a true believer in the benefits of DDT - having lived an impoverished childhood in depression-era Ireland, 13 children in a two-room thatched "cottage" (hut), swarming with bed bugs, and when DDT was invented the Irish all proclaimed "God bless the man who invented DDT!" When I grew up I recall trucks spraying the beaches of the Long Island sound while we kids buried each other up to our necks. Today DDT is still being used in third-world countries, because the risk from death by a mosquito bite is greater to them than the risk of getting cancer when they are "old". But where are the research studies showing the relationship of DDT to BC? I think I found just ONE online - that disputes the old studies that have been forgotten after they outlawed this insectiside because of the danger to birds' survival. This one study shows that it's not how much DDT is in your body NOW - as an adult - while you have BC that is important. What's important is how much DDT was in your body BEFORE you had breasts. The same thing is being said about radiation exposure - it's the exposure prior to having breasts that sets the stage for developing BC..........but this is difficult and expensive to prove.
Everyone is looking for the quick and easy answer - so of course blaming it all on excess weight is an easy thing to do. My maternal grandmother died at the age of 88 - over 200 pounds, never exercised a day in her life - and she didn't get BC. Same with my DH's grandmothers........but these women lived their childhoods in a different world - where horses still pulled milk wagons, where plastics didn't exist and the only food preservatives were ice and salt.
Thanks again Beth for starting this thread!
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Hollyann, It means "Give us Peace".
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cp418: I, too, was told that taking birth control pills would lower my chance of ovarian cancer, which I worried about for YRS because my mom died of OC...
Now, I have BC..... Lovely!
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Whenever anyone comes out with a "new" risk factor, I just remembering two things.
1) Egyptian Mummies have been identified with bc (and other cancers).
2) Remember that 'nurses' study--the long term one? they came up with FRENCH FRIES being a factor.
Now I just laugh at any of them. Personally, I believe that if you have boobs you have a risk factor for getting bc. LOL
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Society today creates an atmosphere where people think if they live a very healthy lifestyle...they will live to be 100 and never look a day over 40
Living in a healthy manner is certainly good for you...but no guarantee for perfect health. Stuff happens and some of us get cancer and other diseases for no apparent reason or cause. If people can be blamed or made to feel they caused thier own illness...then the self absorbed can go on their merry way and dismiss you as someone not worthy of compassion. I think seeing this teaches us a lot about how it may feel to be mistreated or ignored due to other forms of bigotry related to race, gender, occupation or religion.
I personally believe my cancer was caused by taking the HRT drug...Prempro...I was given it by my doctor when I entered menopause...it was almost automatic and I didn't question it. When they came about with reports how it increased your chances of BC, I went off the Prempro. Do I wish I hadn't taken it? Yes...but that can't be undone.
I feel that I have been through enough without being told I'm responsible for my cancer. I think it is nothing but a bunch of skewed statistics anyway.
It happened, I've done everything I can within reason to keep it from coming back. Am I going to live my life watching everything I say, do, eat or drink because I'm worried about the cancer coming back...no. I am trying to develop a healthier lifestyle, but I'm sure not giving up everything I enjoy...kind of pointless in my opnion....Yes, I could possibly live live a bit longer, but if I don't enjoy myself....might not be worth the effort. I am not equating the balance beteen healthy living and enjoyment....I know you can do both at once, but for me...my enjoyment takes precendence.
I refuse to feel guilty or take the blame for getting BC....it is bad enough to go through it...no point adding any additional bad feelings
I went for my mammos regularly...had cysts aspirated form time to time and had a normal mammo/us 6 months prior to diagnosis. I was diagnosed at Stage 3C, borderline 4 with a grade three cancer. I would think that maybe the radiologists reading my reports may have missed it...can I prove it ... no...does it change anything...no. So I may as well just ignore things that try to make me feel bad about myself and I hope all of you do too!
Liz
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My wife and I heard the same crap on CBC television this evening, and we both wanted to kick the tv screen in. Bev didn't fall into any of the risk categories, always watched her weight, exercised, rarely drank, breast fed, no close relatives with BC, ate low fat, natural foods, rode her bike to work. Then they show on tv pictures of people stuffing their faces with french fries and fast food and going on about how lifestyle is the cause of cancer. The whole theme has such a condescending manner to it. And it gives people a false sense of security that their lives won't be touched by cancer because they read in a magazine article that they are not at high risk. Or that lifestyle changes will prevent the disease. For some, yes, but what about the other 2/3? Angry angry angry.
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I love cheetos...yummy
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I hate these "studies". I think a beneficial "retrospective" study of people dx'ed with bc would only be helpful if we all had completed forms with extensive questioning about our eating habits, exposures, medical issues, and who-knows-what.
I think it was about a year ago when I watched a PBS special about epigenomics. The theories those scientists were developing suggest that what our GRANDPARENTS were exposed to might be causative. Gee, that's helpful.......NOT! While I believe causation absolutely a necessary component of research for a cure, I get really tired of "new" studies like this one that seem to say the same things that were being said in the 80s. Did anyone take into account that americans have a larger proportion of overweight people, poor diet (omg...FRENCH FRIES!!), and many of the other factors "they" claim caused our cancer?
. I didn't start getting fat until I started having unexplained symptoms that caused me pain and tremendous fatigue. Being diagnosed with mets from the get-go at age 38 really makes me think it was the cancer that made me fat.
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Before diagnosis, I used to exercise so much, and, it is painful to admit, I was smug about it. I still exercise a lot, but am no longer smug.
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Ladies ~ I swear I have never been overweight. In fact, my doctors have considered me "underweight." Also, never took HRT and have never been a "drinker." I've always excercised. I walk the dog 4 miles a day! And guess what? I got invasive breast cancer. My mom had it and now they are watching calcs on my older sister. Never had the genetic test done, so I have no idea why I got it. Just some rotten thing that happened during my life.
I hate these studies, too.
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At 19 years old I switched to using Aliminium free deoderant, all cosmetics, shampoos, showergels etc were paraben free, and the food I ate was probably 50% organic, I ate the recommended 5 a day, did not consume red meat and all because I did not want to get BC. I'm the perfect weight for my height, have been active from a very young age (captain of most of my team sports) and I don't have a family history of BC or any other cancer... but at 29 I found myself on the operating theatre having my breast removed, and have just finished 2 years of treatment. I know there are many other young women who have found themselves in the same position. It's so hard to read these studies, it would be interesting to know how young women with the same history manage to come into contact with BC. When I look at friends who are overwieght, don't exercise, drink heavily, smoke and eat processed foods constanstly, it's hard to take these studies seriously, especially when they could potentially live longer than me.
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Well said to all! This reminds me of an old joke.
A teacher was trying to impress upon her young students the dangers of drinking alcohol. She placed a worm in a beaker of water. The worm happily swam around the beaker. She then placed the worm in beaker of alcohol. The worm died almost immediately. The teacher asked her class "Can anyone tell me what you learned from this?"
One little boy raised his hand. She called on him. He said "if you don't want to have worms, drink alcohol."
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Kathleen, your message made me spit on my screen.. lol. I am wondering if wearing tennis shoes causes cancer, if being ticklish? Give me a break - Good grief, I am left handed and I still got cancer. Too funny, too sad. Thanks for letting me vent.
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But akanancy, I thought being left handed was a risk factor for bc? Really, I think there's a study somewhere. . . .
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Oh my, yes! It must be so -- I'm left-handed too LOL!!
Now I'm just waiting for the next study that refutes it!!!!!!!
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We got cancer .....bottom line. I too tired to figure out what I had done to cause it. My doctor went down the list of suppose it thinks that make you more prone to cancer and I didn't fall into any of the risk factors. I'm the youngest of 5 girls in my family and the one that takes the best care of herself, I've never smoked, never have taken the pill, am the right weight, exercises, no family history , Oh wait I have on occasion had a glass of wine ( give me a break with that) if that's what caused it then I know a lot of people who should have been in treatment for bc with me. I actually had one of my sisters (not to bright) call me the day after my dx and tell me that it was because of my household cleaning product. I told her that if that was the case then my cleaninglady should have been the one to get bc and not me. I really needed her to blame me ....nice sister.
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Ahhh , the great witch hunt! Well , I've drank , I smoked , I'm overweight , yeah , I win! Wheres my cure!?! And all you ladies and gents who have not par-taked in the above , and got bc anyway, where does that leave you in this great witch hunt? What is the cause of your bc? How many times have we heard the studies on coffee? Its bad. No , its good. No its bad... on and on. Pardon me , but they don't know jack. Lets see , when cells start growing wild and out of control , you have cancer. And yes , it has been said , if you live long enough , everyone would get it. I trully think they need to "clear the slate" and start anew. We need a cure. But then , there is probably not to much money in cures huh? In my honest opinion , maybe looking more into genetics and hormores. But what do I know. I'm just a person who got breast cancer... I hope I haven't offended anyone. Just needed to "get it off my chest"...
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