Any Had Chemo for IDC 1mm Or Less??

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Dejaboo
Dejaboo Member Posts: 2,916

Id like to hear who if any had Chemo for a Micro Invasion.  A Micro Invasion meaning 1mm or Less.  (or .1cm) I am not interested in hearing from those that had a larger tumor & had Chemo (well mine was 1.2mm- But not a true Mircoinvasion- LOL) 

Such as DCIS with an IDC tumor of 1mm or Less.

Also Please Say what your tumor Size was.

Thanks,

Pam

Comments

  • rdrake0
    rdrake0 Member Posts: 180
    edited February 2009

    That would be me.  But I'm 60 years old.  Med onc (2 of them) said no chemo.  But I'm also HER2-, too.  Did you do chemo?

    Docs didn't explain, though, what the % benefit chemo would be with an oncotype score of 26 along with the other factors.  I assume there would be a benefit, right?  What would it have been?

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited February 2009

    Hi rdrake0-  Thanks.  What was your tumor size?

    With an Onco score of 26 I assume you would  benefit from Chemo.  But I dont know what the # would be.  I would ask.

    If they are not Recommending Chemo...Are you still doing Chemo?

    I did not have Chemo.  They did not have enough tumor to check my Onco Score.

    And Chemo was not recommended for me.

    Pam

  • rdrake0
    rdrake0 Member Posts: 180
    edited February 2009

    The DCIS was originally (microcalcification circle, anyway) .9cm.  After the biopsy that was gone.  After the lumpectomies (2) they said I had at most IDC of 1.6mm.  But that was enough to get an oncotype dx assay.  Are you postmenopausal like me?

    Ruth

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited February 2009

    Hi Ruth,

      I am Pre Menopausal (45 at DX)

    Pam

  • Mocity
    Mocity Member Posts: 451
    edited February 2009

    Me again...... I had chemo for .4cm IDC tumor that they found during my bilateral.  I am ER+, PR+ and HER2+.  So because of early dx, and HEr2+ combo, chemo was recommended.

  • Hockeymom1
    Hockeymom1 Member Posts: 30
    edited February 2009

    No chemo for me.  DCIS w/microinvasion of 0.5mm. ER-/PR-/Her2-.

  • Beesie
    Beesie Member Posts: 12,240
    edited February 2009

    No chemo for me either.  I had a lot of high grade DCIS with comedonecrosis and a 1mm microinvasion of IDC.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited February 2009

    I was 51 at dx.  I had 0.7 cm IDC tumor.  Stage I, Grade II, er/pr+, hr borderline. 

    I had lumpectomy and rads .. no chemo.

  • LaurelS
    LaurelS Member Posts: 26
    edited February 2009

    Dejaboo,

    May I suggest you visit the Her2 Support Group site:  http://www.her2support.org/ ?   There you will find a very helpful discussion on this subject of when chemo is now recommended or us Her2 + gals.  Your pathology presently suggests full blown chemo, however I would probably seek an onc who would give me Herceptin with just Taxol.  Onc's as yet are not comfortable with giving Herceptin without chemo.   

    Here is the link to that discussion:  http://her2support.org/vbulletin/showthread.php?t=37875

    Your wild card is the Her2.  How positive are you?  What was your score with the FISH testing?  Unless you are just barely Her+ overexpressing, I would get Herceptin somehow, someway regardless of tumor size.  Her2 is a deadly killer.  It has come back with only DCIS that was Her2 positive.  Since your are Her2 + I suggest you spend time on that website as you will find invaluable information.

    I was 7mm, triple positive, stage 1b.  I did 4 rounds of AC and 4 rounds of TH.  Presently I am doing my year of Herceptin and 2 years of Tamoxifen/3 years A.I. therapy.

  • Mocity
    Mocity Member Posts: 451
    edited February 2009

    FYI.... I did Taxol + Herceptin for 12 weeks, weekly and now am doing Herceptin for a year.  I had extensive DCIS in left breast in which they found a small tumor, .4cm of IDC.  Because of HER+ and my age they wanted to go an aggressive route!

  • Ivy
    Ivy Member Posts: 31
    edited February 2009

    To rdRake0:  You asked about the benefit of chemo with an Oncotype score of 26.  Mine was 20, and with my onc appointment 4 days away when I got this score, I was wild for information.  So I called the Onctotype lab and got it straight from them:  a study is still being done for women with scores between 18 and 30.  Below 18, there is no benefit from chemo.  Above 30, there is a large benefit.  The in-between, which is where you and I fall, is still an unknown.  So I asked the lab guy, "So it's anyone's guess?" and he said "Yes!"  (I did not want chemo and my onc recommended not having it since 20 was so close to the no-benefit range.)  I hope this info is helpful to you - it certainly was to me.

  • rdrake0
    rdrake0 Member Posts: 180
    edited February 2009

    Thanks!  It is refreshing to hear from a professional that they really don't know the answer yet.  That was brave of the lab guy for answering honestly, and YOU for asking the question!  Kudos to you, Ivy.

  • knowledgeforpower
    knowledgeforpower Member Posts: 184
    edited February 2009

    My IDC was 7 mm grade 3, my Oncotype was 26, and I start chemo on Tuesday.  I am 58, but both the oncologist and I felt a 17% chances of recurrrence in the next 10 years was not acceptable for me.  I had children late in life, my youngest in 15 and I intend on being around for the next 20-25 years.  Also, my tumor was grade three and had other very aggressive characteristics.

  • rdrake0
    rdrake0 Member Posts: 180
    edited February 2009

    KnowledgeForPower:  This is interesting.  What did your oncologist say your chances improve to with chemo?  By the way, I like your name! 

  • knowledgeforpower
    knowledgeforpower Member Posts: 184
    edited February 2009

    rdrake0, it would imporve byabout  5%, which they say is what they based their recommendations on.  Five percent is their number for recommending chemo.  Plus, my tumor showed very aggressive characteristics which they felt would make it more likely to reappear.  The oncotype TAILORx trial recommends chemo for those with a oncotype of 26 and higher.  I had decided I would do chemo if my number was 26 or higher.  The core biopsy I had prior to surgey retrieved a large chunk, so my tumor was originally closer to a little over a cm.

  • rdrake0
    rdrake0 Member Posts: 180
    edited February 2009

    Unlike you, I had no 'lump'.  What is you ER,PR,HER2?  We seem to have alot in common.

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited February 2009

    Thanks for the replies.

    I am actually looking for those who had Tumors of 1 mm ...Not any bigger.  That had Chemo.

    Thanks,

    Pam

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Pam - a 1mm tumor is really really small. Amazing that it was found when it was sooooo small.  You're the only one I've seen with such a small tumor in the years I've been here.  Was your IDC found in the pathology from your surgery for DCIS ?   Just curious. 

    Doreen 

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited February 2009

    Hi Doreen,

    I have found a few That have tumors that are as small as mine.

    My DCIS was found during my Core Biopsy.   The 1.2mm IDC was found during the Lumpectomy.   Had a BLM 5 wks later & no other Cells were found.

    Pam

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