Alternative Medicine All the Way!!

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I want to thank all the wonderful women who supported me on my journey from breast cancer to health. I came in idealistic, and I'm sure I displayed my ignorance...yet you were accepting, and kind. I am thrilled that I now have direction, and hope. Hope that there are other things available that can prevent cancer. I am still a novice, but with what you've given me I feel a lot more comfortable about the choices I made.

Because my cancer was caught early, alternative medicine can help prevent another bout of dcis. Those who struggle with invasive cancer have harder choices to make.

 I'm so fortunate to have a wonderful naturpathic doctor and a breast cancer surgeon who are committed to my well being. I wish that for all of you.

However...it would be nice if the alternative thead on this forum was a support group, and not a place to have our research and thoughts challenged by those who oppose natural medicine. It seems that there are some who are on a mission to discredit anything alternative. It makes us newbies uncomfortable.

For this reason, I'm saying goodbye. It's time for me to move on, and to wish you all the best, even those who oppose alternative medicine.

B Barry Nice :)

I will be back to copy many of the websites on alternative medicine and information you have here...for my files. thanks

Comments

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Sorry that you feel the need to leave, but I understand that this area has been under attack buy two useless trolls...but I do wish you would not let them run you away.  I still will be here and fighting the ignorance and unfair practices that are trying to control this section. 

    Do not understand why other sections can discuss what they want and language and terms I find very offensive but we can discuss food and supplements?

    Flalady

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited February 2009

    I also am sorry to hear this as you have brought up some very interesting threads.. I wonder why the moderators have not challenged the attacks and by not doing this instead seem to discourage alternative meds?  This is a paradox as many of the founders and doc's that work with the board have themselves used and depended on alternatives and this can be known by interaction with them or reading their books..  I want the moderators to know that I am disappointed that they have not approached the attacks here as they do on other boards.. I will be leaving too if the people here who are doing really good work at TRYING to discover ways to live (TO LIVE) with their own cancers become discouraged because there right to speak is not protected.. It is not appropriate for the moderators to protect other people in other parts of this site and not do the same on this site.. 

    Best

    MODERATORS PLEASE COMMENT!  Thanks

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Facts are not attacks. When alternative treatments are suggested in a blanket manner, with no proof of efficacy and no proof that they do not cause harm, then it is reasonable for someone to point this out. 

    In fact if you look back through the threads, it is the alternative supporters who began the name-calling. If you want to put other peoples' comments under scrutiny, you ought to be sure you own behavior stands up to the same scrutiny.

    No one has denied anyone else the opportunity to express their opinion. How could they? All your posts appear as you post them. Same treatment as everyone else gets.

    You expect to be protected from anyone disagreeing with you? Or presenting an opposing point of view? That's not realistic.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited February 2009

    Deidre:

    With all due respect, you seem to be saying that if some disagree with some of the theories being presented here, then they have no "right" to express their disagreement.  On the other hand, do you expect that you and others have every right to express your views unchallenged?

    Just as on the conventional tx threads, everyone can express their views -- some agree, some don't agree.  I don't really understand why you think the alternative threads should be any different?

    IMHO, there are some good theories expressed here, and there are also some that I, personally, think fall into the quack category.  I think it behooves us all to exercise caution, whether with conventional or alternative tx.  We should do lots of research, but we also have to be very, very cautious about what we find on the net.   Always best to check our research with someone who is well-qualified to determine its scientific value.

    Linda

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited February 2009

    LJ13:  I have seen you quote "facts" in such a way to be disrespectful until recently.. I applaud your constraint of recent but you have been totally disrespectful of anyone and everyone who posts with any position that might actually support alternative med. until recently.. so I'm not interested in your facts but that doesn't mean I need to be rude to you  - facts can be achieved anyway for any position..  your's are good and so are the other's here.  And I have not seen alternative methods suggested in a blanket manner and if you go back and look it appears to me that the women (and men) in the alternative area are held to a MUCH higher requirement than anywhere else on this board to "prove" their positions.. . Perhaps the moderators HAVE addressed your disrespect and that is why you are being more careful - if that is true then I salute their efforts. 

    Lindasa: I am saying that these women have as much right as you and I to be here without the disrespect that, particularly two individuals here have shown them on a regular basis.   Points of view can exists and should exist but disrespect should not ever be tolerated and that is what I am speaking of.  I agree with your HO that there are good and bad theory's here as there are in the other areas on the board however the disrespect of another individual seems to be tolerated here and not called out - thereby allowing it to fester and spill over into any good theory.  That is what I am saying.  Disagreement is the soil that will bare fruit and that fruit might actually be a better life for some here, but it must be done with respect and as I said there are two individuals here that have been blatently disrespectful.  Everyone's light must be allowed to shine or the place has no value, so shine but leave the dark cloud of sarcasm and hurtful statement out.  I am not suggesting that I have seen YOU Lindasa be disrespectful and so this is specifically for the benefit of those individuals who are constantly harming other's with their inapproapriate statements. 

    I will say that Barry has not in any way been disrespectful and has infact sparked many good threads!  The threads that she has started are indeed the conversations and disagreements that are going on in conventional medicine as well a alternative med.  all over the world!  Which is why they followed with good conversation that were continually interrupted with bashes and hurtful remarks. (Thanks Barry for all your interaction!)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Deidre, sorry to disappoint you, but my decision to not be baited by the alternative aficionados was my own decision. Their behavior continues as before ....

    However, since you consider my new polite attitude to be commendable, thanks ! I appreciate the compliment.

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited February 2009

    You're welcome!

  • anianiau
    anianiau Member Posts: 182
    edited February 2009

    I think it makes sense (on both sides, conventional & alternative) for people to "follow the money". In other words, consider who stands to gain financially from a treatment recommendation. I haven't seen that aspect discussed on these postings.

    As an example, let's leave the breast cancer arena, and stay within conventional medicine. There are basically three options for treatment of blockages in coronary arteries. medical treatment (clot busters used within a few hours, to as long as a day); stents; and coronary bypass surgery.

    Sites such as The New York Times have recently reported that research shows very similar outcomes with each of the three options--yet there is a lot of difference in the cost of using each. And in each type of treatment, there is money to be made by someone--a drug manufacturer, a stent manufacturer, an open heart surgical unit at a hospital.

    The same is true in alternative medicine. My uncle owned a health food store. He made a good living selling healthy whole foods--but he made a lot more money from supplements. (An equally profitable area was the cosmetics he carried.) The mark up on food is minimal; however, the mark up on supplements & cosmetics is nothing short of amazing.

    I have a lot of respect for alternative approaches, but I think they work best as preventive strategies and with chronic conditions. Dean Ornish, Andrew Weil, and more recently David Servan-Schreiber (an MD & PhD who has had brain cancer, and who wrote "Anti-Cancer, a new way of life") have all made important contributions in the integrative medicine field. But it pays to be cautious. "Eating healthy" beats supplements any day. At the least, people who want to use supplements would do well to give each of their MDs and perhaps their pharmacist a written list of all the supplements they use. There are dangerous interactions possible, especially with some of the chemo drugs.

    I wish all registered members good health, by whatever means they choose to pursue it. No one has found "the" answer to breast cancer treatment--if they had, it could never remain a secret. It's also right that each person should choose her own path in treatment, because she will have to deal with the health outcome. Let's wish one another well on our breast cancer journey.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited February 2009

    Well said, Anianiau.

    Caution is the watchword.  Someone recommended curcumin to me just shortly after I was diagnosed.  I did a lot of research on it and, while it looks to have some wonderful properties, I discovered that anyone with gall bladder disease should avoid it like the plague.  Still haven't learned why, but since I do have a gallstone, it stays on the healthfood store shelf!

    Another one I'm concerned about is CoEnzymeQ10 and its reputed effect to lower blood pressure.  While it sounds as though it could be very beneficial for some things, I would avoid it as my BP is usually about 95 over 60 -- a bit low.

    Every medicine (whether OTC or prescribed) can have side effects, so I think we should also assume that supplements might have them too.  'Natural" is not necessarily a synonym for "healthful", which too often gets forgotten, IMO.

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Your so right about both industries.  As for everyone... we all should be under some kind of doctor's care who is monitoring are bodies.  But...most conventional doctor would not the good or the bad of most supplements.  It is so hard to fine one that does research both.  But they are out there.  Big part of any of this is what dose are you taking.  Most supplements are not at a high enough dose to hurt anyone.

    I have proof.  I have been doing most of the things discussed on this site and have been having all the standard and more testing to monitor my body if not weekly than monthly.  All I get from my doctor's ( I've seen three top oncologist and three top research clinic's) is...must be doing something right or I would not be talking to you right now. The key is educating yourself and try what you feel in your heart might have use for you.  That is all any of us can do.

    Flalady

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited February 2009

    Yes "caution" is a good watch word for everything in life, but as Flalady shows when you are pushed to the wall and the doc's are scratching their heads, there is hope.  Hope in this example equates to a very well educated lady who took responsibility for her health and is with us today BECAUSe she did this!

    Way to go Flalady and thanks for trying to pass this information onto anyone here who might be in a similiar situation!!!

  • Leia
    Leia Member Posts: 265
    edited February 2009

    Barry, I'm sorry that you're leaving. Yet I completely understand, why. 

    With my January Birad 5 to Benign, biopsy, I'm wondering why I'm still here. Very soon, I will be gone, as well. 

    All that anyone dwells on, here, are all of these "treatments," offered up by the Medical Industrial Complex. Mostly, adjuvant "treatments." Which I don't believe in, at all.

    And the real "litmus test." What if YOU had to pay, for these treatments?

    This latest, MRI-Guided biopsy, the docs wanted for me, after my benign, ultrasound biopsy, would have cost $5,000.  Yet, I would have paid nothing. 

    Yet, if *I* had to pay, $5,000? No way. I am NEVER paying that. 

    This is what is wrong, with this Medical Industrial Complex. The people don't bear, the costs. Everyone here, thinks, it's all ... FREE. All of these bullshit "treatments." Of course, medical costs are "out of control." With this perspective.

    Because nothing, is free.  

    And the solution is just stop eating junk/processed food. And eat healthy food. But no one, wants to do that. No one seems to want to take responsibility, for themselves. They just want to trust some doctor, to cure them, from themselves. Well, as long as someone else pays for their $$$$ tests and "treatments.

    Well, I am. I'm taking responsibility, for myself.

    And I won't be here much longer, either. Because I don't agree with what anyone says, here.  And in contrast, I don't believe in the Medical Industrial Complex, either. The latter is just people, wanting to make $$$ off of scared, sick people. Or rather, the insurance $$$, since the people don't pay anything. IF they have, insurance. 

    That is all this entire "Breast Cancer Industry" is. Enticing people, that are  insured into these useless "treatments." Because, they make their $$$. 

    How may women who do NOT have medical insurance are offered, radiation? Since this "radiation" costs $20,000, I would say, none.

    If you actually had to pay for it, you wouldn't do it.  

    Again, Barry, sorry to see you go. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Lindasa and all - I agree with Lindasa - BOTH alternative and traditional methods need to be researched and used with caution.  I want to see both sides of the information as I will not blindly follow any one study.  Everything, even curcumin, has side effects that can be serious! 

    I also agree that diet (organic) and exercise may be one of the most important aspects for avoiding it, but not curing cancer.  That said, I have been eating organic for 12 years, and have a healthy BMI with none of the cancer risk factors - so what does that tell you?  To quote Dr. Susan Love, that tells us that they REALLY don't know what causes breast cancer.

     As I was diagnosed with early state INVASIVE breast cancer, there is no way that I will shut out conventional medicine.  If I had DCIS I may feel different.  

    I have learned some great things - both positive and negative on these boards.  Most I will try after I finish chemotherapy since many interfere with chemo. After chemo I will be back on the supplements that the Naturopathic Doctor prescribed, along with what my oncologists recommends for 5 years.  If I have side effects, then I will reconsider that.

    Thanks to ALL and Barry, I will you well!

     Susan

  • Yazmin
    Yazmin Member Posts: 840
    edited February 2009

    Barry:

    Thanks for making several threads more interesting by your presence. I am glad you found what you were looking for. All the best.

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited February 2009

    Lei--

    I just noticed this thread, and I have to say, I don't feel that any treatments I receive that are paid by my insurance company are "free" to me or that I am not paying for them.

    I pay $1,448.00 per month for health insurance--not paid by an employer--that comes to approximately $17,000.00 per year that "I" pay for. 

    Looking at just the last ten years (and I am 58 years old and have been paying for insurance for a lot longer than that) "I" have paid approximately $170,000.00 for insurance.

    Before BC, I rarely even made my deductible.

    Now, insurance has paid for my treatments, but remember, "I" have paid for this insurance, so I do not consider that I received these treatments for "free."

    "This latest, MRI-Guided biopsy, the docs wanted for me, after my benign, ultrasound biopsy, would have cost $5,000.  Yet, I would have paid nothing." 

    Do you pay health insurance premiums?  If so, how could you think you would have paid nothing?  What about all of the premiums you pay?

    I am not supporting the Medical Industrial Complex, but just wanted to make the point that if it is paid by your insurance, and you have paid for your insurance, I certainly don't consider that you are getting treatment for "free."

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    You need to look at what insurance has paid out too really see that many are getting a very reduce rate for services rec'd.  Not that I'm not mad that insurance continually goes up and cover less all the time.  My treatment bills have top over $600,000 but I spent $25,000 out of pocket big difference even if I've never used my insurance before bc. If I have to... I will fight this disease many more years.  My medical expenses could easily reach million dollars. The problem for me is I also have spent a lot of money on alternative so I feel good and "can continue working to keep my insurance". So my out of pocket has been high for the last three years. If I did not take care of myself I would be on SSI and Medicaid.  Many of our bc sister do not have a choice but to use Medicaid for treatment after loosing insurance.  So yes we pay for insurance but many of us stage IV will certainly get our monies worth.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited March 2009

    After a pm that upset me I had decided I wasn't going to continue the boards...although this community has helped me a lot. I over reacted. I periodically stop in to see how you all are fairing. I now realize that I wasn't quite ready to let you all go....at least not the alternative group.

    Since being dx with hypothyroidism, I've struggled with what I can and can't eat. It's not just preventing another bout of cancer, it's about being well. It's healing the whole person...mind, body and spirit. 

    I thought once I learned what the problem was, the culpret, I could pick up my bed and walk. I could easily move on. Ok .. the problem is my thyroid. I'm taking Armour now and.the problem is taken care of... so I should move on?

     I'm learning there is a lot more to learn than what not or what to do. I may have a little more knowledge and direction to health, but the road to recovery is ongoing...and doesn't happen overnight....for those afflicted with hypothyroidism...its a life sentence. The health of my thyroid might affect a cancer recurrence...not sure..but possible. Once you're dx with cancer twice you are a little more concerned about your health. I was never a health nut until now.

    So, I'm giving myself permission to visit the alternative board a little more. I'm still working through the whole iodine, thyroid and cancer connection...and health.

    But...time out from the boards has been good. It began to get in my head a little too much. I'm looking for balance in all areas...food, friends, work and even here. With love to everyone, B. Barry :)

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited March 2009

    Hi Barry, I missed ya!  Good to see you back and I think you have done an amazing job of walking through fire!  You have gone out and found a doc who will do things in a more respectful way to your approach!  I think that takes guts!!!  Welcome back and I hope to see more great threads from you!!!

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