Hip pain

Yep hip pain from herceptin - i think!!  Had xrays, no damage or anything, go for treatment number four (i think) tomorrow, so we'll see if it gets worse!  My onc said he's seen more and more of this lately.

Laura

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I wondered about that too mmm5, I guess that the 3 monthly bone scans will show whether the pain is SE's  (Arimidex caused arthritis) or mets progression.  My Onc told me 2 weeks ago that the Arimidex was 'killing the cancer cells' in the bone mets, leaving me with the idea that I was being 'cured.'  Alas, she later explained that it was only temporary and that, although she didn't know how long it would be, eventually the Arimidex wouldn't work anymore.  Then she told me that I would get arthritis from the Arimidex. 

I get the pain in my left hip and, although it has been gone since I started the Arimidex, Nov 08, it is now coming back in my hip, back, legs and ribs with a vengeance. I am finding it harder to climb the necessary steps into my house again. I find that I have to be very careful when standing up from a chair or when I need to change direction, when walking A to B. If I turn too sharply, I get a pain that makes me cry out, which can be frightening for me and those around me. I also find that lying in one spot in bed, on left side of course, can cause a quite heavy aching pain, but I also get it if I lie on my right side for too long.  Actually, I hate to say this, but I find what I call the 'coffin position' the most comfortable, ie - lying on back, legs straight, toes pointed up, hands folded on chest. At least it helps me get to sleep for a while.

Sheila.

I had bone mets to my left hip and along with other places.   They found the bone mets when they did my initial pet scan at time of diagnosis.  I didn't have any bone pain.  However, once I started Herceptin I did have alot of bone pain in my hips.  Riding in the car for long periods of time was difficult.   I take 1800 mg of calcium a day and it really helped.    I also am on Aredia every 6 weeks for bone met.  I have had two pet scans both completely clean...last one was two weeks ago.  So I know, for me, the bone pain had nothing to do with mets  but more with the herceptin.    Try upping your calcium intake and see if it helps.

Jennifer