2009 Herceptin group

Options
1…6791112…21

Comments

  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Prayers for Diana.  So sorry to hear this.

    · Share on FacebookShare on Twitter
  • mamakaren
    mamakaren Member Posts: 225
    edited February 2009

    Diana~ Haven't been on the boards in a long time but i just want you to know that i am praying that God gives you the strength to fight this, I have all the faith that you will. We are all here for you anytime all the time. God will give you the strength to survive this through your 4 little angels. Sending you a big hug and POSITIVE vibes. We have to give it all we have (easier said than done) We have to survive this and you will.

    I hope that everyone is okay. Having to take all these scans is torture and it just aint right!!! If i had one wish in the world it would be that there wouldn't be to make all diseases curable.

    Lots OF Love,

    Karen

    · Share on FacebookShare on Twitter
  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Today is my Herceptin treatment. On the way home I will stop for some chinese take out. Just me, alone, so there will be left overs for tomorrow also.  

    Hugs, smileys, and good thoughts for (((all))),  Nancy 

    · Share on FacebookShare on Twitter
  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Oh man, am I aching after tx today.   I may dig out the tylenol 3.   On the way home I bought a new tv - my contribution to stimulating the economy.   And I decided against chinese take out - made a nuke em dinner instead.   

    · Share on FacebookShare on Twitter
  • traceyz
    traceyz Member Posts: 745
    edited February 2009

    Diana,

    You are in  my prayers, something just tells me that you are gonna be fine. BTW your little daughter is BEAUTIFUL!!

    Lisa I am also sorry that you had to join our club, but we will support you all the way!!

    Tracey

    · Share on FacebookShare on Twitter
  • mamakaren
    mamakaren Member Posts: 225
    edited February 2009

    Yesterday was the worse day of my life. My Mom, the one person in my life that has really been there for me through all my cancer journey and now they tell us that she has Stomach Cancer!! I feel like i'm going crazy I can't handle this. I really need everyone's HELP I need prayers for my mom. I can't believe this is happening to her. I feel like i'm reliving all this again but way worse. You know this is my mom, I have always been so worried about my dad and then i get hit with a ton of bricks. I don't know if i can be my mom's rock I don't know if I can be strong for her. I feel my heart torn in two. I can't stop crying! I feel so angry and i feel like i just want to run. I know that i have to get myself together, but i'm really having a hard time. Please everyone pray for my mom PLEASE. Cry I wish I would wakeup from this awful dream.

    Karen

    · Share on FacebookShare on Twitter
  • lencass
    lencass Member Posts: 14
    edited February 2009

    Karen,

    I'm so sorry to hear your news.  You and your mom definitely have my prayers.   I know you have the strength to get through this. 

    Take care of yourself.

    Len

    · Share on FacebookShare on Twitter
  • LadyB
    LadyB Member Posts: 9
    edited February 2009

    I'm in!  Started Herceptin with Taxotere and Carboplatin in late October 08.  Just finishing TC, will continue H for the rest of the year.  My Onc plans a Herceptin break during radiation (5-6 wks).  Is that common???  My RadOnc says he has had a few women on Herceptin during radiation without problems.  R arm/hand lymphedema is an unfortunate extra for me.  Anyone else? 

    · Share on FacebookShare on Twitter
  • LadyB
    LadyB Member Posts: 9
    edited February 2009

    Karen, I'm saying prayers for you and your mom.  I'm so sorry for your pain. 

    · Share on FacebookShare on Twitter
  • Tucheta
    Tucheta Member Posts: 51
    edited February 2009

    Oh, Karen, so sorry to hear about your mom! Do you know anything about treatment yet?

    I am sure you will find the strength to help her fight. You and your mom will be in my prayers.

    Hugs, 

    Ralu 

    · Share on FacebookShare on Twitter
  • ango74
    ango74 Member Posts: 255
    edited February 2009

    Oh Karen, I am so sorry to hear about your mom! I will keep her in my prayers.

    · Share on FacebookShare on Twitter
  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Karen.. I am so so sorry... that is just insane.. how can all this go on... I just prayed for your mother and you.. I will keep going with it. What is her name?

    · Share on FacebookShare on Twitter
  • DianaT
    DianaT Member Posts: 532
    edited February 2009
    Karen ~ I am praying for you, your mom and your whole family!!!! This crud is so unfair!Cry
    · Share on FacebookShare on Twitter
  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Love the new pic Diana...

    Karen... you doing ok?

    · Share on FacebookShare on Twitter
  • mamakaren
    mamakaren Member Posts: 225
    edited February 2009

    Thank you all for all your prayers and good vibes. My mom is in shock just like all of us when we were dx. Last night my whole family got together and prayed for my mom. It was so powerful i know that God has got to answer our prayers. i'm so upset with everything, I called the doc that told me about my mom because he said that he would call us but he didn't. Then they said that he wasn't there. I asked if he could cut out the cancer area and he said that he couldn't because it was to big but that he was gonna talk to the board of onc and surgeons to see what they thought. He said that maybe they could give her rads or chemo to shrink it. He told me that it was all over the top of her stomach. Still waiting for them to tell us what kind of cancer it is so they can determine which treatment will work. I pray to God that there is something they can do. Has anyone heard of BLUE SCORPION?? I heard it has done miracles for people with cancer when the doc says that there's nothing they can do. It's used in Mexico and Canada but not approved in the US yet. Today the father from the church came to our house and prayed over my mom it was amazing how powerful the word of the Lord is. I'm hanging on to that faith and hope that God hears our prayers. My moms name is Martha Dennis

    Karen

    · Share on FacebookShare on Twitter
  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Hugs Karen, Martha and family.  Prayers go out for you all.   Nancy

    · Share on FacebookShare on Twitter
  • traceyz
    traceyz Member Posts: 745
    edited February 2009

    Karen,

    I am so sorry to hear about your mother. That is just so devastating im sure. Now that I see you posted her name I can call her name in my prayers. Just know Karen that you have friends here who care and will be praying for you and your Mom! And yes I KNOW God hears our prayers.. he is AWESOME!!!!!!!!!!! The sun will come out again I just know it!

    Tracey

    · Share on FacebookShare on Twitter
  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Ladies.... How are you...

    Tell us your Herceptin SE... my doc says my swelling.. sore joints and bone pain is NOT Herceptin.. what do you think? I am done with chemo... three months ago... just Herceptin for me.. and I am swollen... one bone in arm hurts hurts hurts... and my joint hurt..

    I have NEVER had pain IN MY LIFE.. not even headaches until cancer...eeeeeeeeekkkkkkkkkk.

    · Share on FacebookShare on Twitter
  • traceyz
    traceyz Member Posts: 745
    edited February 2009

    Laura, 

    My wrists HURT like hell up until last month when I finally went and got a cotisone shot in them!! And I finished chemo in August....so trust me you can have lingering effects of chemo and even new side affects months and months sfter chemo!!Wink So no worries!!

    Tracey

    · Share on FacebookShare on Twitter
  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    I had taxol and herceptin every week X 12, then a 2 month break for surgery.  While off of it, the aches stopped and the neuropathy almost went away.  When I had the first herceptin only,  the very next day the aches were back and so was the neuropathy.  Don't tell me it was not herceptin.   

    I am trying to find a Tai Chi group and have a DVD for it, but so far too lazy to put it on.   Tai Chi is very relaxing and easy on joints and the body.  I had done it some time before bc and enjoyed found it to be good for me and my body.   It also can be adapted for self defense, which the instructor threw in at the end of each session.  

    Hugs and Prayers for everyone.   Nancy 

    · Share on FacebookShare on Twitter
  • mamakaren
    mamakaren Member Posts: 225
    edited March 2009

    Thank you gals for all your prayers and thoughts. I feel secure knowing that i'm not alone in this war. I'm thankful that i have all my sisters here to help my fight this. I feel as if my party bus just got four flats! Wed my mom goes to the onc and maybe we will get some answers. We went to her family pract and they finally got the report but the doc said i'm sorry but i don't understand this terminology so she couldn't explain what the pathology report said! We have been in agonizing mental pain just wondering.

    What's going on girls?? This thread has been so calm i see. I haven't been on the thread in awhile myself but lets keep it together and keep it going. I had been feeling so good health wise and mental and now this happens with mom. My hands are still swollen a bit but my wrist hasn't hurt me like it used to. My bones haven't been so achey either and my EF was good also. It's as if God makes things better so you can be able to handle the rest.

    Love you all,  Karen 

    · Share on FacebookShare on Twitter
  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    So sorry Karen. 

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited March 2009

    I just had treatment number 2 of TCH and  I was left with the wonderful SE of just a touch of neuropathy in the tips of my thumbs and my toes.  Could this be something besides herceptin ??  Could it be the taxotere ???

    · Share on FacebookShare on Twitter
  • ango74
    ango74 Member Posts: 255
    edited March 2009

    Karen, so sorry you and your mom don't have answers yet.  I think the waiting and not knowing was by worse than the knowing.  Once you know what the monster is you can plan the attack.   I will keep you in my prayers.

    I had my second herceptin and avastin and boy did my hip and thigh bones ache.  That lasted 3 or 4 days but is much better now. I still have a mouth sore from my last chemo tx which was almost 8 wks ago. Anybody have any lingering mouth sores?  I've done the mouth washes but it hasn't helped.  The doctor said they can give me an antibiotic and at first I declined but now I think I will have them call it in. 

    Take care ladies.

    Angie

    · Share on FacebookShare on Twitter
  • mamakaren
    mamakaren Member Posts: 225
    edited March 2009

    Jaimieh~ I'm more than positive that it is the taxotere! At least it was for me but then Herceptin made it worse. I'm done with taxotere and have had 21 herceptins. I had lots of hand pain and swelling but thank goodness it's just about gone. I still have a little numbness on the tips of my fingers but it's tolerable. Things will get better in time.

    angie~ Thanks for your prayers. I hope your doing good considering all this stuff. I started to feel raw in the mouth but they gave me some antibiotic to swish swash and i was good. Hang in there girl!

    Karen

    · Share on FacebookShare on Twitter
  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited March 2009

    Hi I am Jennifer.  New to the group.    I am 42 years old.  Was dx Feb 2008 with IDC - mets to nodes, liver and bones.   6 Rounds of TCH plus Zometa (now switched to aredia).   Currently on Herceptin, Tamoxifen, Aredia and Tykerb.   I have been NED since June 2008. 

     I am a single mom of two beautiful girls - 13 and 9.  I have a small farm with chickens, rabbits, a big big dog and a lot of cats.  I work full time in marketing and sales.   

     I am sitting here toasting you all with a big glass a red wine.   I am probably going to be Herceptin for life but I am good with it.   No side effects from Herceptin that I can tell.

     Cheers!!!

    Jennifer

    · Share on FacebookShare on Twitter
  • DianaT
    DianaT Member Posts: 532
    edited March 2009

    Hello everyone.  Sorry I took a breather for a while, I was pretty overwhelmed but have gotten my feet walking again, one foot in front of the other. 

    Welcome Jennifer!! I am sorry you are here, but glad you found this support board, especially the party bus!  I see that you are dancing with the wonderful NED fellow! I had a brain met (so some say!) and have to go to the onc for a new treatment plan on Thursday.  May I ask you why you are on Tamoxifen if you are ER-/PR-?  Also, what is Aredia, is it a chemo? If it is, is it an oral medication and what side effects do you have from it? How is the tykerb for you? Manageable? You are new and here I am, playing 21 questions! Sorry, but welcome!

    · Share on FacebookShare on Twitter
  • GramE
    GramE Member Posts: 5,056
    edited March 2009

    Hugs, diana.   Good luck and prayers are made for a good outcome for you.

    · Share on FacebookShare on Twitter
  • mamakaren
    mamakaren Member Posts: 225
    edited March 2009

    Jeniffer welcome to the bus of all emotions! Thanks for the toast of red wine I could really use a sedative right now. Cheers

    Diana that's the way to do it! One step at a time!

    I feel so bad and I hurt for my mom because i know how she feels. It's like reopening wounds all over again. Don't understand! Of all cancers, why stomach cancer????? I know i have to be strong for my mom but feel as if i'm loosing it mentally. Tomorrow she has an appt with onc. Hope everyone has a good day tomorrow.

    · Share on FacebookShare on Twitter
  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited March 2009

    Hi Diana

    I am 5 percent ER.  My onc thought it was marginable but she is treating this disease from every angle so she said I will do Tamoxifen.    The Aredia is for bone mets. I was on zometa but it caused me horrible joint problems.  I might try to go back to the zometa.  I increased my calcium big time and I think that was the issue more than the drug.    Aredia is given via IV like zometa.  Tykerb is not bad actually.  I had a first day with diarrhea but I take a product called Transfer Factor and I upped my Transfer Factor and have been great since.  No other side effects with Tykerb.    Actually I feel really really good.   Of course, wine is always helpful too.

    Jennifer

    · Share on FacebookShare on Twitter

Categories