Diagnosed with IDC

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maydene
maydene Member Posts: 6
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Hello, I have just been diagnosed with IDC. The Ultrasound of my lymph nodes (the ones they could see) looked good they said but still very scared. I am having a bialteral mastectomy on Feb 27th because I have a family history and I don't want to go threw this again, besides, I want my boobs to look the same afterwards too. My fears are if they find it in my lymph nodes, what is the survior rate? Also, I hope its my imagination but my breast is starting to look "puckered" where the mass is and I am afraid its in there GROWING! I just want to get this done, I wish I could have had the surgery the day after I was diagnosed.

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  • Denali
    Denali Member Posts: 347
    edited February 2009

    They said the same thing at my ultrasound --that the lymph nodes looked good.  And that's exactly the result of the pathology report after my Mastectomy.  I'm like you, I wanted the surgery immediately!  I still don't understand why they don't just roll you from biopsy right down the hall to the OR.  However, I've been told that our tumors have taken years and years to grow.

    Express your concern that it be done ASAP.  And get a prescription for Xanex.  It sure helped me with my jitters during that first wk or two!  Once you have the reports and a plan in place, it gets better, I promise.

    Wishing you positive thoughts! 

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  • LizM
    LizM Member Posts: 963
    edited February 2009

    It is good that the ultrasound indicated no lymph node involvement but they will not know for sure until your surgery.  However, even if you do have lymph node involvement, the survival rate is good.  I was diagnosed over 3 years ago with a 2.1 cm tumor and one positive lymph node and I am doing just fine.  Hang in there and take it one step at a time.

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  • coonie
    coonie Member Posts: 7,618
    edited February 2009

    Hi maydene....I know exactly how you feel. I couldn't get the cancer out of me fast enough. But.....it sounds like you're on the ball. I just get really impatient and want things to happen YESTERDAY!!! It's really scary at first.......well, actually it's still kinda scary. But after you get your path report and treatment plan and surgery over, you'll feel much better. It's good to have a plan. You'll do just fine! This is a great place to come to for support. I finished chemo last March and Herceptin last month, so I'm still a newbie, but there are lots of women who have been here a long time and have SURVIVED with a good life. Gentle hugs to you.....just take a deep breath, and be thankful you've found it when you did.

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  • maydene
    maydene Member Posts: 6
    edited February 2009

    Denali,

    Oh thank you for your post, it made me feel MUCH better and laugh at the same time, I like the idea of rolling me off to OR right after the biopsy, makes sense!

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  • maydene
    maydene Member Posts: 6
    edited February 2009

    What a great site this is! Thanks so much for your response and everyone else's you all make me feel so much better. This friday is approaching fast and I look forward to it in a very strange way. I know once I have a plan (I am planner) I will feel much better, I just want to get going!

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  • libby
    libby Member Posts: 165
    edited February 2009

    I was diagnosed with high grade DCIS last year and opted to skip radiation because it was only 4 mm and had 1 cm clear margins after the second lumpectomy.  I have been having 6 month mammos and this time with stereotactic follow up more DCIS was found near the surgical site but now also IDC.  I am so disappointed and scared.  I have my surgical appointment on Monday and I am thinking I want to just go for a mastectomy - I don't know if I would even be a candidate for lumpectomy -WITH RADS for sure this time.  I agree it feels better when you have a plan and when all the pathology stuff is in and you know what and how much you are dealing with.  I am assuming I'll need the SNB this time.  I'm thinking once I have this mastectomy,  I'll consider doing the other side.  The emotional stress of going through this again is really the pits.  Even concentrating at work is a real challenge!!  But there is no distraction great enough to keep my mind off of it - I feel like if I think about it enough I can solve the problem - how crazy is that!!  Just wanted to vent as a new member of this IDC topic.

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  • coonie
    coonie Member Posts: 7,618
    edited February 2009
    Hi Libby.........I feel your pain. I REALLY do! At first I went with the lumpectomy/chemo. Then after chemo, I just decided I couldn't live with "wondering" if cancer was gonna come back in either breast, so I decided then to have a bilateral mastectomy. So far, I haven't regretted it. Everybody is different though. I'll be praying for you to make the right decisions. It's so confusing sometimesUndecided It would be nice if we could see a few years down the road, but....we only know what's going on TODAY :) {{{{{{{{{{hugs}}}}}}}}}}}} and prayers!!
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  • Bethie1
    Bethie1 Member Posts: 393
    edited February 2009

    Mydene,

    I have IDC with 5 out of 24 lymph nodes affected.  The doctors did a mastectomy on me (right breast) with adriamyacin and cytoxin followed by hydation.  They tell me survival rate is very good.

     Hope this is some comfort

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  • libby
    libby Member Posts: 165
    edited February 2009

    Thanks Coonie.  Sometimes reading the discussion boards is so scary and other times it is helpful to read and remember we are not alone in dealing with this.  True it would be nice to see down the road, but I guess that's true with everything.  Again, thanks for your supportive words.  Just wondering, how long  were you laid up after surgery?  Did you have bilateral at the same time and do you think that was more difficult then recovering from one at a time? 

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  • coonie
    coonie Member Posts: 7,618
    edited February 2009
    Hi Libby......yes, I had bilateral at the same time, and also had my ovaries removed at the same time! So.......I was a little sore for awhile. But, I was able to go 4-wheeler riding about 4 weeks after surgery and I rode 86 miles on a trail. I felt great and it really felt good not to have the "girls" in the wayWink I"m not sure if you've found it, but there is a website called www.breastfree.org that I go to sometimes. Everybody is different, but it's good to get others' thoughts and feelings. Take care {{{{{{{{{{{hugs to you}}}}}}}}}}}}
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  • libby
    libby Member Posts: 165
    edited February 2009

    That is so awesome!!! So I guess a month to get back to normal is not out of the question (ha ha - although 4 wheeling is not normal for me - I did do it once).  So I take it you didn't do reconstruction.  I'll check out the website.  Thanks

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  • bluedolphin
    bluedolphin Member Posts: 11
    edited September 2012
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  • libby
    libby Member Posts: 165
    edited March 2009

    blue dolphin - wow you do have a familiar story, but both breasts, I'm so sorry.  I guess we can't look back - we did what we did with the info we had at the time - radiation was no guarantee it wouldn't return.  Now it is time to just focus on the future and what we need to do now.  I have tried the conservative route and now I don't have any reservations about a mastectomy - I'm also thinking  bilateral, maybe down the road.  Is  Is he saying try chemo and radiation rather than the mastectomy or in addition?  Am I reading it right that you started with grade 2 DCIS and ended up with Grade 3 IDC? 

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  • nikita75
    nikita75 Member Posts: 4
    edited March 2009

    Hi everyone, I was diagnosed originally December 23, 2008 with DCIS high grade comedo after having a stereotactic biopsy. Dr told me i had 10-12 years before i would possibly have anything to worry about but do lumpectomy and radiation. I scheduled lumpectomy January 7th 2009 and he told me they usually do not check nodes with this type of cancer but since i was bent on knowing everything and researching if they find things ugly the oncologist would want to go back in.I told him do it while i was under. latest results are shown...I am awaiting bi lateral mastectomy surgery is March 11,  2009 with reconstructive. I will be in surgery around 16 hours, but at least i will be sure to have a more accurate diagnosis to update. I have a different surgeon by the way, much nicer, and easier to talk to. I hate waiting, but the wait is almost over, i have had to be on limited activity and pain meds all this time, had trouble after lumpectomy and hubby wants to know if it spread more because of where i have pain. They did a bone scan which is normal, but i have a lot of pain in back and side. I wonder how fast "fast growing" is.

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  • dmayes
    dmayes Member Posts: 25
    edited April 2009

    Hi All,  I was diagnosed with IDC on 13th March (black Friday - go figure).  Anyway today I found out that it is T2, N0, Mx and ER-/PR- and HER2-.  Grade is 3 (grew to 4.7cm in 4 months) but is not in-situ.  The surgeon said this is a "good Cancer" and treatment should be minimal - no oncologist meeting yet - still waiting to hear from Cross Cancer hospital.  Can anyone shed any light on this for me so when I do go and too am armed with some knowledge of it all.

    Anyone had any similar dx and what can I expect for treatment?  Deb

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