Where are the tri-negs!

Thanks for the info.  It will be good to have friends going through the same thing.  Ebann...nice to see you here, too.  We can hold each other's hands!  My onc did not suggest rads yet as it is in the liver and so many nodes.  Maybe at a later date when I can get the lesions on the liver under control? 

What about diet for us triple negs?  Nutritionist said stick to low fat for bests results.  That will be hard for me but I will do what it takes to fight this! 

Lori

RNKaren:

 Oh, I am so sorry to hear about your brother.  He was so young...I lost my dad like that 20 years ago when he was 53.  It is so hard.  Prayers are with you!

My onc also has me taking B6 to prevent the neuropathy and so far I haven't had any problems (I've had 4 tx of abraxane and 3 of avastin).  Glad to hear the hair is coming back!

Hi, ladies --

 I wish I'd known about the B6 when I was going through the worst of the neuropathy.  I did take L-glutamine and that helped a lot.  It's been over a year since I ended treatment, and I still have it in my toes and my fingertips -- heavy  paperwork days make my fingers zing.

RNKaren -- I'm so sorry about the loss of your brother.  My sister died two years ago at 56, and she took a chunk of my life and history with her.  

By the way, I was in Boonsboro this summer for a Nora Roberts signing -- she's your town royalty, isn't she?   I'm down the road a "bit", in Montgomery County.

Vicki - give her a call and ask about it!  That's what she gets the big bucks for! 

I go for #6 tomorrow and meet with the onc for the first time since I started treatments.  I'm a little nervous.  We're supposed to schedule scans to see if the Abraxane/Avastin combo is working.

Lori

I'm coming up to my two year anniversary for cancer #1 and my one year anniversary for cancer #2. (March 28 & March 31) I see my Onc on March 9 for my check up and I am terrified. Nothing seems out of the ordinary, but what's ordinary any more???

Linda

I'm coming up on the 2nd annniversary of my 1st cancer (trip neg) and my 1st anniversary for my 2nd cancer (Not trip neg)......  I see my onc March 3 for my first 3 mo check up following treatment for the 2nd cancer......I'm petrified....

Hi Ladies,

I am also coming up for my second 3 month check-up in March 3rd (seems like a busy month) . Keeping my fingers crossed for me and everyone else.

X

Vickan 

Update-

Just had my yearly mammogram on Friday the 13th- but it was a GOOD LUCK day.  The results were only post- surgical changes.  What a relief!

Still have aches and pains now and then.  The neuropathy is gone:)  I guess it will be a while before everything returns to normal- if it ever does.

I am a newbie to this site.  I was diagnosed on January 15th as having Tripe Negative Breast Cancer, Grade 3, Invasive.  My surgeon and oncologist suggested having a lumpectomy, (1.4 cm, left breast) followed by AC 4 treatments every other week and Taxol every week for 12 weeks, followed by 6 weeks of radiation. I had 14 lymph nodes removed, 13 showed negative and the centennial node showed 2mm positive. I will be added to a clinical trial of adding Avastin with the usual treatment above, every 21 days (Avastin), however I won't know until after the 7th treatment if the avastin was a placebo or not.

I have been reading the comments on this site since I was diagnosed but this is the first time I actually posted mine.  My emotions have been up and down,crying, fear of the unknown, scared and wondering if my life will get back to normal. 

My first chemo is this Thursday.  I am scared however I have read several of the comments above encouraging me....yet, I know when the day comes, I will be very nervous.

During my surgery,(lumpectomy, partial mastecomy)) they did find 1 cm DCIS Ductal besides the 1.4 cm invasive tumor, however, we do have clear margins of 1cm.  I am hearing so many are electing mastectomies, therefore, I am wondering if I am doing the right thing.  My surgeon and oncologist states it is not medically necessary for a mastectomy since clear edges of 1cm were found and by following the treatment above researchers have found the lumpectomy(partial mastectomy) is the same as having a complete mastectomy of that breast.  Has anyone heard this?  Are there any individuals who chosen a lumpectomy over a mastectomy?

 I am glad to be added to this discussion and very grateful to those who take the time out to respond.   I am still feeling a sense of being isolated, wondering if it will return...How do you get passed this feeling?

 Your help will be greatly appreciated.  Thank You

Hello everyone.  I am so glad to read such good posts.  Flalady you are an inspiration to me.  Your strength is amazing.  Thank you for being so active here.

As you can see by my signature I was dx in June.  I had 4 EC tx's then 12 Taxol.  My last Taxol was Dec 16th.  I am still having alot of joint pain.  If I am up and moving I am fine but if I sit down for a length of time then my knees and back hurt.  My hands are the worst though.  If I am using them they are fine but when I turn over in bed I can't hardly bend them the pain is so bad.  I don't know what the problem is and the docs just keep saying its the chemo.  They did an arthritis panel on me to make sure chemo hadn't pushed me into early arthritic symptoms but it came back normal.  I hope it goes away within time.

My main problem is the anxiety and emotions that I am feeling now that chemo is done.  Being TN is terrifying.  My onc said "go live your life".  I know that is what I should do and I am trying but I find myself scared and emotional alot of the time.  Its like I am waiting for the ball to drop.  I feel like I am living on borrowed time and I am scared.  God has blessed me so much through all of this.  My best friend has become my boyfriend and he is wonderful to me.  Chemo wasn't a walk in the park but it was doable and definitely could have been worse.  I was very blessed to not have all the side effects that others had.  I feel like God has blessed me so much that he is going to get tired of it soon and it will stop.  I know that Satan is really working on me.  You all seem so strong and it amazes me.  I know that I have to accept what God has in store for me but I am so scared.  Nights are the worst.  That is when the fear creeps in.  I have started taking ativan to sleep but it only allows me about 4 hours sometimes.  I know people say that it gets better and I hope it does. 

I am sorry to lay all this on you all but I am hoping that someone might can give me some advice.  I am hoping I am not the only person that has ever felt this way.  Is it normal?  Cancer is horrifying and add triple negative to it and it just seems worse. 

Thank you all for being so strong.  Thank you for posting.  I have learned so much from you.  I appreciate your time and efforts.

God Bless you all,

Tonya

Tonya36,

Just wanted to tell you that my mother is a 10 year triple negative survivor. She was dx at 69 years old.....first in her immediate family. I just wanted to let you know......hope it calms you just a little sweetie.

Hugs,

Terry 

I think I read somewhere that triple negatives are not all the same..other than the fact that they are triple negative to the er, pr, her2. So there are many unknowns.....that is why my mother is a 10 year survivor......the longer you are ned.....the better chances that you can survive this triple negative breast cancer.....at least that is our hope.

My mom does not like to talk about her breast cancer........anything that has ever scared her during her life.......she avoided. It works for her......but she knows I am the researcher and will take care of her medical should she have a question that needs answering.

When my mother was all done with chemo ( I attended each of her chemo sessions) I told her she needed to get back to really LIVING HER LIFE..........and do her best to not dwell on Cancer. Wow..........when I got breast cancer I realized how difficult that task could be.....but I am trying to follow my own instructions that I gave to her that day.

Hugs to you sweetie,

Terry