Starting Chemo February 2009?
Comments
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Judy, I'm sending all good thoughts your mom's way & i'm sending much copage vibage to you. Please keep us posted.
Jancie, count me in on the getting all teary about your home depot angel. You'll have to post a photo of your Wig-o-rama Pegboard! And I hope it's alright that your "fabulous furbies" made me guffaw! And definitely definitely ask for a valium or ativan tomorrow ... it might not make you dopey, but it'll help take the edge off. I'll be thinking of you while I'm a-settin in The Chair too. i know it's hard but try not to fret, sweetie. you've got a great attitude ... it's gonna be easier than you think. you'll see.csbsk123 hope your light sensitivity cleared up.
Artemis, I heart your son for saying you look cooler than annie lennox. I bet he's right!
lovin' the spongebob crane story ... Thank you for sharing sue50!
Luv2sing, hope your hubby sees the light soon about the hair issue. I know this may sound hypocritical coming from someone who's currently obsessing hideously about losing her own hair, but when it comes down to it, temporary baldness is a small price to pay for being able to beat cancer and live a long healthy life. Tell him you'll grow it down to your arse for him as soon as you can, lol!
Terri42, I'm right there with you re frickin expanders & waiting for the hair to go, hon. one minute i'm laughing and making my usual twisted jokes (i've named the new girls 'ahnold' as in the terminator and 'rocky balboa' - when i get the implants, then they'll morph into 'sophia' and 'racquel' ... hee!), the next i'm holding back tears. and i don't know what it is, but time has seemed to come to a virtual STANDSTILL for me. these past two weeks have CRAWLED. may 13th feels like it'll NEVER get here. oy. i will be glad to get off the emotional rollercoaster.
Michele, happy to hear you're finally feeling OK. I bet your onc will make the proper adjustments and you're gonna feel a lot better a lot sooner this time around. you're doing great, you're a real trooper ... try to think positive, luv.
Big fat Birthday hug for (((grace))). Next year your birthday will be much better. Promise!
Bethie, so glad to hear all is well.
Welcome to kat4 pink, xpectmiracles, elizzim, Lisabarr & kmn0701/kristine! Sorry you have to be here, but glad you found us.
I didn't realize the hair starts shedding that soon (day 14 of AC). I thought my oncologist said two weeks after my second treatment. Day 14 for me is today. i thought i had another two weeks. *sniffle* i need to go back and read my own advice about the small price to pay. *sniffle again* my damn roots are gross anyway. poo.
to end on a humorous note, how many "sue's" and "lisa's" are there in here anyway?
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Hi everyone!
Drove the 3 hours to the cancer institute I am being treated at yesterday to have my brain, chest and pelvis CT scans and the MUGA scan...Had a weird reaction to the contrast used in the Ct scans and almost puked on their expensive machine... lol nurse finally got me something to throw up in, but sure took her long enough! Am suppose to start my chemo (TAC x 6 every 3 weeks) this Thursday, but called today and they don't have the results yet from the scans so they can't verify my start date yet.. grrrr... sitting around waiting on the next step is frustrating.. can't plan anything... things are coming up and I keep looking at the 3 weeks intervals between treatments hoping nothing important is going to fall on those days..but now can't figure any of it out.. ahhh.. lol Oh well... out of my hands!
Take care eveyrone! XOXO
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According to my doctor, after they run all these tests...I will be starting my chemo the last week of Feb. A/C is what I was told and then radiation will follow.
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i remember my first scan...
i felt soooo alone - no one wanted to touch me because i was radioactive.. the room was freezing, tears leaked out of my eyes and pooled on the table on which i lay. i had to disguise the fact that i was wiping them up when the tech came in to help me up off the table.
at least in the chemo parlors, girls can visit.
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my 2nd scan wasn't so bad... i was greatful for technology that helped the docs find the bad stuff.
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Lisa: thanks so much, I like that "copage vibage" If the bypass goes well, she has a good chance at recovering, and going garage sailing with me this summer, as always! I love her!! She rocks!
Had treatment #2 today, and good lord, my hospital is soooo slow. I was there, again, from 1pm to 7:30pm. Is this normal??? It includes the bloodwork (+ 1 hour wait on results), appt with onc, quick discussion with social worker (she heard about my mom and my frame of mind), and then finally chemo. I think the steriods are hitting me this time, I feel pretty awake right now.
Anyway, decided to keep doing the AC together, in spite of the heart/breathing issue. If I can get through 2 more of these, I'll be done anyway. Onc is hopeful that this particular side effect will not be so bad this time. We shall see. If it does get bad, I'm to take a whole Xanax, not a quarter tablet. If I take enough, it does usually help, so that's the plan for now. And I'll be sending the heart readings to my cardiologist every day.
Here's hoping that our 2nd tx's are easier on us!!!!
See you girls later
Judy
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Hello! 1st Chemo on Thursday, the 19th. A/C X 4 (dose dense?). Every 2 weeks. Then 12 weeks of Taxol, 1 X a week. I am also in a study with Avastin........won't know for a few months if I am getting it or not. Very scared.................but I think I will make it. What is freaking me out is the hair loss........have made it through mastectomy, lymph nodes, port, PT, everything else. Kinda seems like a dream.......nothing is real yet, but maybe the chemo will make it real. I will check back more often to see what all is going on. I am dreading this.............but it is the beginning of the end, I hope!!!
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I went to my chemo class tonight. It was informative but I really didn't learn anything other than I don't take meds the night before AC treatment but will when I start Taxol.
The nurse provided a list of side effects and what you can do about them - nothing I hadn't learned already from all you gals! You ROCK! I almost spoke up when she minimized the pain that you can feel in your joints from the Neulasta shots. I thought "oh ya...Tylenol....we are going to feel like a freaking truck run us over but ok....you don't want to scare anyone but hey.....let's get realistic!
No mention of chemo fog which surprised me and I am sure it is going to surprise all of those other people when it starts happening to them. They won't know what the heck happened to their brains.
I asked about "sleepy" drugs while doing my treatment and was told that unless the doctor already prescribed me something, there really wasn't much they could do. So I said "I have valium at home, ok if I take one in the morning?" She said no problem!
She took us back to the treatment room and it is set for 2 chairs (chemo chairs) and then you have 4 side chairs facing those two chairs for visiters. You don't get privacy. Was told there was food stuff in the breakroom area - yep....saltine crackers, that was it. They do provide juice, etc. and ice/water and coffee and some sodas.
I have a bag packed with some graham crackers, chewing gum, hard candy, yogurt and applesause and then all of the great things like flushable wipes, hand sanitizer, hand lotion - I can't remember all of the stuff - oh ya...kleenex.
I am excited but scared and very nervous at the same time. I knew I wouldn't sleep tonight if I didn't pop a valium and also my dh ticked me off so bad I almost went out and got some smokes so I had no choice but to find a way to calm down before I screwed up and bought a pack of cigs.
They do offer CD and DVD players, there is free internet access, etc. I don't know what I will feel like doing so I went ahead and packed up my dvd player, a book, and the newspapers that I haven't read in the last two weeks.
I am too tired to read all of the literature that they handed out tonight.
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I asked my oncologist about a Munga scan before AC and he said it wasn't necessary. First off, I am physically fit to the max, secondly my blood pressure is always below 120/80. I think the other reason is I had an EKG and some other heart test run about 5 months ago and he could see the results of that. All of the hospital records are linked from one facility to another.
I guess if I get heart palpitations or something else weird then he will address it at that time. Now I am wondering how quick I will go into menopause after I start A/C.
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Hi everyone,
Miss whiner checking in today from the hospital. AC was last wednesday, tough weekend with nausea and extreme fatigue, yesterday thought I was turning around. This morning my blood pressure was 70/40, being the tough one I am though, went to work and called onco about 10 (husband said you call or I)...she said to come in for some IV fluids. Well, they did labs and my white count was less than one...got me an overnight stay in the hospital. Yes, I had the neulesta. Was visiting with my onco about how challenging chemo was and she told me that unfortunately the next six months are going to be tough and that I may have to look at future admissions...I guess I am one of the lucky ones whose body is extremely sensitive to chemo (hope that means it kicks out the cancer too...)....thank you so much to all who are updating their journey, from the joys to the struggles. You are all such an encouragement to me!
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I'd love to join all of you! My program is as follows:
TC - 2/12, 3/5, 3/26, 4/16; plus Herceptin weekly through mid April (then I think we switch to every three weeks for one year).
Good luck to all of us over the next few months!
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Kristine - glad you are feeling better. I have had a massive "bowel empty" too, right after I started feeling better, and (sorry...) it has happened after both my rounds. It is almost as if everything is purging from your body. As for my hair, I had the buzz cut 16 days after my first treatment - and it was actually a relief to have it gone. Really, the anticipation is worse that the event. The only funny thing is my leg hair has remained firm and solid!! Not budging. I haven't shaved, so I am cultivating a little leg forest. Same with the underarms.
Judy - I always seem to spend the whole morning there too. we arrive at about 8:30 and are never out before 1:00.....all for a 90min infusion. Hope the Heath/breathing is better.
Kathy - I still feel there is a bit of an "unrealness" to all of this. It is very surreal sitting in the chemo chair, but really it isn't frightening, just boring!
Jancie - Glad you aced Chemo Class!! Yep, our Chemo room is very open too, but we normally get a little cubicle to ourselves, as it is quiet when we have been. (I go first thing in the morning, maybe it gets busier later in the day) As I said before, it isn't really frightening, I thought I would cry or something first time, but it isn't like that - take a movie or something to watch, as it is long and boring. I drink a lot during it and of course have to keep unplugging the machine and trekking off to the toilet!!
living4today - Sooooo sorry you are in the hospital!! Hope the white count goes back up fast.
Hope everyone is feeling OK, or at the very least not feeling too terrible. I am feeling basically back to normal after a hard week last week. Trying to enjoy it all before the whole cycle starts again. I just keep thinking of all the good it is doing me!!
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Good luck today Mom_of_Boys and Jancie! You sound like you are all ready to go! I hope it goes very smoothly for the both of you! Good luck also to KathyAlex1960 and kat4pink starting tomorrow.
I still am waiting on a start date. I go to chemo class today, and had the last of the tests on Monday. They decided on an echo instead of the MUGA, and apparently I don't have an "anatomy conducive to echos" according to the ultrasound tech. The test took an hour and a half! He had tons of trouble finding my heart from the underside angle... I guess my ribs are too close together?? Anyways, once those results are sent over, I should be able to get randomized and find out what tx I'll get and when I start. It can't be soon enough as it has been a month since my last surgery!
living4today I am sorry to hear that your WBC count bottomed out! Hope you're back on your feet in no time! At least you caught it before you were exposed to any sickies at the job or in the grocery store line!
Welcome chemo_girl_warrior! Hope your tx's go well!
Good luck to all this week! Hope everyone is doing ok!
Janine -
chemo girl 3: I am about 1 week ahead of you...I hope reading about others helps you as much as it helps me
Living4today: I am so sorry about your hospitalization: i hit 1.5 on my blood count and took two shots of Neupogen with 3 days in bed...the frustrating part was that I thought I was getting better and stronger and would have at least 2 great weeks each cycle...It is depressing but it will go by fast...i think the only predictable thing is that this is unpredictable!!! Every day seems a little different, more energy, less energy, scalp pain, headaches, no headache, stomach issues!!! ,stomach fine, and then those odd sensations in your feet and hands!!! It's enough to make you crazy!!!
On a positive note, my sister-in-law who is a doctor said that as bad as it is to go through this during flu season, it is much safer for us to be starting our treatments now, than finishing round 4/6 during this same time. As bad as it may be, we are all stronger now than we will be in a few months when it might be a bit more dangerous.
One more positive: I don't have a headache today so I am going to yoga for the first time since my surgery Jan 8th. Yeah!!! And it is so beautiful today...
hugs to all.
Sue from Florida...i think there are at least 4 sues/susans????
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Talked to onc.yesterday when I went in for blood test.For dry nose she said Ocean saline spray & tiny bit of Vaseline.Guess if you use too much you can get chemical pneumonia?Never heard of that before.Learning all kind of things I never wanted to know.Blood counts a little low but don"t need shot.Good.
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Hang in there ladies, there's a light at the end of the tunnel, PROMISE!!
Was anyone told to paint their fingernails a dark color cause they could turn black, separate from the nail bed and fall off??? I painted mine last nite cause my onc. was extremely diligent about this with me. I believe it is just from Taxol/Taxotere and has to do with the ultraviolet rays hitting them, so hence covering them with a dark polish. Let's be safe on this one, cause I hear it can really be uncomfortable if that does happen.
Sue from NJ!
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Hey... after having a breast infection/flu (?) this past weekend, my start date has been pushed to February 25.
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Hey Ya'll! I'm having major computer issues, AGAIN, and to top it off my internet connection has gone wonky. I can't connect more than a couple of minutes at a time. GRRRRR!! Just when I need it the most!
I'm in the upswing of Tx #2 finally. It hit me faster and harder than tx #1, but does seem to be getting over a day early too. Of course I had it (like Grace!) on my birthday, which was also my anniversary. Not EXACTLY what I had in mind, haha! I did, however, come through it just fine and had a happy celebration with the hubster...when I was awake that is. I'm weaker this time. I SO get the tired muscle thing. We have three flights of stairs at our house. By the time I'm at the top of the second, the third is impossible. And then I ask myself why I'm so farquin' tired! DUH!
The nausea was worse this time too, tho I never actually puked. Can't decide which I prefer. I dumped the Zofran and went back to the Phenegren tho. Seems to work better for me. The headaches and chills seem to be related to the IV. Got some good advice on the TC thread that slowing the Cytoxan down a bit may help with that and the "cold" I've had in my face since go.
Other than that, not too bad this time. I'm more tired, but otherwise hanging in there.
OH! Had my head shaved yesterday. WHAT A RELIEF! Day 18 and it was HURTING and coming out by the handful. It's SO MUCH BETTER THIS WAY! You can do this ya'll. You really can. I'm SO glad I didn't wait any longer. My HEAD IS FREE!!!! YIPEEEEE!
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Webbie~ You look cute! What does your daughter think?? I called my hair-person this morning and made an appt for Friday. Mine is not at the "clump" stage yet but is coming out. Today is day 14 post-AC and my onc guarenteed me that I'd be bald for tx2. That's tomorrow so maybe not!
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My white blood cell was 0.3 on day 8 and with no infection fight cells and I was given a shot of Neulasta 24 hrs after the chemo! My Onc wants me to go back on Friday to see if the counts go up, he also put me on preventative antibotics.
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Hi All - looks like I'll be joining your group. I don't have a start date yet, but likely next week (2/26?) or the folllowing so I may slide into March. My onco gave me a chemo choice: CMF for 26 weeks (pills, plus 2 weeks on, 2 weeks off for 26 weeks) or TC 4x over 12 weeks. It seems like a lot of gals have been down the TC road, but I am struggling to find folks with experience on CMF. I know this group is just getting started, but has anyone else been offered a choice of CMF? Thanks in advance!
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Shoulda bet on it Michele! (BTW, I'm thrilled to hear you're doing better!) Mine didn't start coming out at all until day 16 or 17 and I wouldn't have noticed if I hadn't been looking. Is yours as ungodly SORE as mine was? I think it was the night of day 18 when I felt what could've been mistaken for an ant bite my scalp. Instinct of course, I put my hand up there and came away with a "tuft" of it. From there on it wasn't falling by itself, but that happened constantly. Added to the ache, I couldn't take it more than 24 hours. Day 20 (of TX#1, day 6 of Tx#2) and I am a MUCH happier girl!
Little Monkey knew it was coming, so it wasn't bad. She has been telling EVERYONE (including strangers in the check out line) that her Mommy was going to be "bald, bald as a ping-pong ball bald" soon. For a week she's asked me every day if it was The Day. I had it done while she was in school, so it did turn out to be as sudden (for her! ha!) as she thought. I met her at the door with a ball cap on and told her it was a done deal. She looked twice and then asked me to take my hat off. I did and knelt to her level so she could really look. She started to laugh. Then she backed off a few steps and POINTED and laughed harder. SO not like her I had to chuckle myself! She was trying so hard not to laugh and she just couldn't help it!
I finally asked her if she wanted to touch it. She ran her hands all over it, deciding that it felt like sand on her "Bootie" from the beach. After a few minutes study, she declared that I don't look like "myself" without my hair. My impression was that it's partly amusing, partly just weird. She said I looked like a baby, a boy, and a 'daddy." In the end, she wanted me to put my cap back on so I would look like me. I did, however, take it off again over the course of the evening several times. Each time, she was a little startled and asked why my hat was off. I used the self created excuse to go through it with her. My head gets hot, I need my hat off for a few minutes. Wanna feel it?--kind of stuff. She took each opportunity to explore a little and then lost interest. I think she'll adjust just fine.
Hubster, by the way, well, um, I don't talk about him much for a reason. He's a Perv. A Total Perv. I have known this about my most beloved for seven beautiful years, but his reaction to my bald head was just not right and I can't share it. Suffice to say that he has already adjusted and it was purely pheremonal.
I hope like heck your scalp doesn't hurt the way mine did, but I think you are VERY wise to just make the appointment. I wish I'd done this instead of the pixie last week. I truly do.
I'll be thinkin' of you tomorrow and prayin' they adjust perfectly this time. If they miss, hell, call me! I'll send good drugs home with Auntie A, haha!
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My dear Furies ~ I am having a bad day. I am feeling very sorry for myself today and can't stop crying.
This all feels so wrong. It seems wierd to get symptoms AFTER you start treatment; it's very backwards to my mind. It seems that hair loss is a symptom that would send you to the doctor, and then you'd get better. Mouth sores would send you to the doctor, and then you'd get better. I'm having a hard time getting the backwardness straightened out in my head.
I feel a bit like "Alice Through The Looking Glass" where things were backward.
I'm sorry; I want to be positive and say funny things, but today just isn't the day for that. Thank you, all you beautiful ladies, for being here.
I think I'm going to make a chart to mark off the "Days Until The Last Chemo And Then My Hair Can Start Growing Back."
Bethie ~ So glad your first treatment went well! You go, girl!
Michele ~ Are you getting Emend? It's an anti-nausea med that you take for three days. My nurse for my first AC told me, "You're going to be so glad to have this." I've have some queasiness and a few bouts of actual nasea, but nothing at all like what you describe. You are much on my mind, and I do hope things will go better for you.
Lisa810 ~ Thanks for you kind words about my son; he a keeper alright! Unfortunately, the Annie Lennox look didn't last long, Now I look more like a mangey dog which isn't very cool at all, LOL!
Hugs to all,
Artemis -
All you Feb Babes probably know that yes the hair starts to fall out day16 or 18. On the Neulasta shot kelty did every bone in your body hurt 2-3 days after? For me it did and my ONC told me to take a claritin after each shot (it helped, I had a shot every week after Chemo). Best of Luck to all... this to will pass (believe it or not). I can say that now, I was in the Chemo group for Sept.Oct.Nov. and Rad group Dec. Jan. My hair is now about 3/4 of and inch long and my eye lashes are growing back thick. I've started walking again (gained 20lb on Chemo). Webwriter you have the chemo kit down...It is good to come back and view new member you hang in there girls.bunnyrabbit
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Artemis, just have it. I think what of the hardest parts of this has been wrapping my head around it all. Today, I'm starting my upswing. Except that my body is not coming with me this time. It's dead weight and my mind is just watching it with utter confusion. Alice is a good analogy. Very good. I've been using Twilight Zone Meets Oz, but yours is MUCH better. This whole thing is SO SURREAL! And we're allowed the full gamut of emotion in dealing with it. Take the day off and cry it out. Tomorrow is another day. We're here and we get it.
Sorry I missed greeting all of you just joining us! I'm "makin' hay" while the sunshines. But welcome! Glad to have you! I'll get you on the list this coming update. (Hopefully after nap!)
Anybody seeing signs of chemopause yet? Since I'm NOT (just ask my idiot doctors) peri-menopause, but have had a screwy schedule since the birth of my daughter, I dunno what's up. BUT, I'm spotting 20 days from my last start, which is four days earlier than my sort of schedule, and six days late for my other sort of schedule. And spotting? Huh?
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Artemis~ I'm getting emend this time (in my IV and for 2 days after) + a kytril patch (to be applied tonight) + zofran if needed... Here's to praying it works. I'm sorry you are having a bad day. I felt weepy this morning too but had to put on my big-girl panties and get to work!
Webbie~ You crack me up!! My DH hasn't said much 'bout the hair thing. He's supportive about whatever happens. I will say that my missing boob hasn't stopped him tho.
You and I need to get together for lunch... you bring Auntie A, I'll bring my mom, and we can both bring our plastic spoons!! I'll bet with 2 baldies at the table, we'd get GREAT service!!!
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Hey, has anyone tried or heard of this?? I think I'm going to do it instead of just shaving my head. At least it'd be my own hair, you know? If you go under "products" you can see the different types they have. I think I like the underhair.
Kerry, dang it girl getting rid of the hair on my legs & underarms is what I've been "most" looking forward to! Shoot! Well, here's hoping it falls out eventually. Not having to shave is definitely a "perk".
webwriter....LOVE your picture! Here's hoping I look as cute with no hair!
Artemis, I think we are ALL entitled to those days. We need to feel bad so we can appreciate the good ones. Hang in there. :::hugs:::
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I'm game, Michele! We should do it when cat4pink is staying over for her neulasta at USA and then make it tradition so we stick to it!
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Thanx kmn0701! I can guarantee you tho, I could care less what it looks like. I forget if I don't look in the miror often enough. Cross my heart. It's so danged LIBERATING to get it off and over with, I can't BELIEVE I waited so long. I think there was a Lisa in the January chemo thread that did the underhair thing. If chemo brain hasn't got me, she's the Lisa that posted early on in this thread with some good advice and encouragement. You might have a gander at that thread for some good advice.
I'm beginning to see the need for a wig. I never thought I'd want one, and I'm still not sure I do. HOWEVER! My bald pate seems to attract cancer stories from strangers. This is normally not really an issue. I'm, um, not noted for being shy, and haven't really hid my cancer from anyone who cared to eavesdrop at ballet class, ya know? Besides, they're just trying to help and connect. But! When I found myself stranded in a convenience store, on a time table, with five strangers talking to me for 15 minutes, the thought struck. Hmmmmm. Anonymitiy might be a cool thing once in a while.
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Kerry, no joy for me either. I shaved in earnest yesterday. If my legs grow out faster than my head I'mabe annoyed!
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