Starting Chemo February 2009?

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  • webwriter
    webwriter Member Posts: 535
    edited February 2009

    MicheleS: Hang in there woman. I hope you've talked to your Onco by now and that you have some new drugs. I swapped Phenegren for Zofran for TX#2. I have far more nausea this time than last, so I'm switching myself back to the Phenegren as of now. I'm praying it works. I puked last time, but no nausea. This time, I constantly feel car sick. Having both, along with all these other pesky SE's seems beyond me right now. Anyway, what I'm trying to say is, the right med can make all the difference. Make the call, every time. This is hard enough without trying to be brave or "not put more chemicals in there." We've given ourselves over to the chemical cure by taking chemo in the first place. No need to punish ourselves on top of it by refusing the counterbalance chemicals that can give us relief. Don't give up. Stay with it.

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited February 2009

    Hope everyone is doing OK this weekend. I am over a week out from Tx #2, and finally feel back to my old self. So for everyone feeling crappy, hang in there. It will pass. I even went and bought a wig today! Feels nice to have hair again. It is shorter than normal - thought it would be less obvious when it grows back.

     Kathie - the anti nausea meds are what constipates you. I didn't stay on top of it for my first go round and got quite blocked up. I took them the first night the second time and was much more comfortable. You could try prunes or something if you want to try something gentler. I was told to wash produce well when eating it - mostly to avoid germs from other people touching them in the store. Think you are OK if you wash things well. Good luck with it, you will do fine.

     Webbie -  hope you feel better soon. Hang in there, you will feel better soon!

    Jancie -  wow, what an amazing story. I too have been amazed at how some people - some of them total strangers - have just done wonderfully kind things for me during this. It certainly restores your faith in humanity....!!

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  • elizzim
    elizzim Member Posts: 146
    edited February 2009

    Hi everyone,

    I just found out yesterday that I will be joining you. I'm scheduled to get my first chemo this Thursday, February 19th, provided I'm over the virus I have by then.  I'll be part of a study comparing 4 dose dense cycles of AC with the same of taxol, so I won't be sure which I'm getting. I'm scared - I have to travel 2 hours to the hopsital (CT to NYC), and don't even know who'll be taking me yet. But I'm glad to know I'll be going through it with you all!

    -Liz 

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  • susan13
    susan13 Member Posts: 732
    edited February 2009

    Hey Ladies,

    Day 3 of my #2 Taxotere, and this one seems to be a little different then my first one.  First off I in no way have the steroid craze I had with my first Tax.  Much more fatique this round and a little queezy too. But nothing horrible and still not as bad as the AC.

    Keep going strong ladies!

    Sue

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  • gcpommom
    gcpommom Member Posts: 883
    edited February 2009

    Hi everyone, just wanted to check in real quick, trying to get caught up on the posts.  I have been feeling ok, no more breathing/heart problems for now. 

    This has been, however, the hardest few days of my life, as my mom, my best friend in the world, is still so very sick.  I have never felt so completely devestated, it was all so unexpected.  They started her on dialysis to get rid of the fluid build up in her lungs, but can't work on the heart problem until her kidneys recover.  My dad and her doctor decided I should go home, that it was upsetting for my mom to see me upset, but I think my dad didn't want me to see her after they put her on the respirator.

    The good news is that tonight I get a phone call tonight from my mom!  She was off the respirator, and they had removed like an IV bag full of fluid from her lungs, so she is breathing easier.  She's not out of the woods yet, of course, but just to hear her voice made me so happy.  It was a very short call, she's very weak, but still, I couldn't believe it after how she looked this afternoon.

    Hope all are doing well, I'll check in later, need sleep...

    Judy

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  • Artemis
    Artemis Member Posts: 759
    edited February 2009

    webwriter ~ I'm sticking with Propel's berry flavor for now.  I figure I'd best not mess with what's working.  I'm glad you got a laugh out of the "family discount" thing, lol.  My aunt and I are extremely close; we both have had asthma for years, and now we have cancer at the same time.  I told her that I love her and love being so much like her in other ways, but that this is getting ridiculous, LOL!

    Furies, I had my husband buzz my hair yesterday.  I'd trimmed it myself twice and planned to keep doing that til it was ultra-short, but it was so messy and clumpy that I said,  "To heck with it."  He used the longest blade on the clippers, so I still have a bit of hair left.  It's sort of Annie-Lennox-at-her-shortest length.

    I bought a wig that looks pretty much like my own hair, but it gets on my nerves when I try to wear it.  I guess it'll take some getting used to.  

    kat4 pink, xpectmiracles, elizzim ~ welcome to our group.  I'm sorry you had to join us, but this is a great board!

    jancie!!!  What a story!  *weeping, weeping*

    Hugs to all,
    Artemis

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  • csbsk123
    csbsk123 Member Posts: 16
    edited February 2009

    Hi all!  I had my second Herceptin infusion on Wednesday.  I am Taxotere/Cytoxan/Herceptin every three weeks and Herceptin alone the two weeks between.  Friday when I went to pick up my daughter from school I could hardly see.  The sunlight really hurt my eyes even with sunglasses.  By Saturday morning the sensitivety was even worse, the TV hurt my eyes.  I called my Onc and he said he didn't think it was chemo related.  Like I've done anything else to my body in the last 2 weeks.  Iv'e been using eye drops and hot compresses and closing the shades.  They were very dry Saturday and seem a little better today.  Anyone else have this problem?

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  • csbsk123
    csbsk123 Member Posts: 16
    edited February 2009

    Kat4pink:

    One oncology nurse told me taking fiber pills will help both ways, constipation or diarrhea so I started taking one Benefiber every morning with my other meds.  I didn't get constipated and had a little diarrhea after my 2nd herceptin infusion but nothing bad.  I'm going to keep taking the fiber, it seems to work well for me.

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  • Artemis
    Artemis Member Posts: 759
    edited February 2009

    Furies ~ I just have to share what my darling son said when he saw my buzzed hair today.  He loves Annie Lennox, and I had told him my hair was short like hers used to be.  When he saw me, he said, "Huh.  Annie wishes she looked that cool!"

     *bawling*

     Hugs to all,
    Artemis

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  • sue50
    sue50 Member Posts: 61
    edited February 2009

    Webbie, I got comfy elastic scarves from CJ Hats on eBay (she made them an inch larger for me at no extra charge) and also from PositiveAttitude on Etsy, which also fit great. I let my son chop my hair to about 1/2" stubble now that it's coming out fast. Don't want to clog the shower drain!!

    Furies, I went for my 2nd round of AC at Dana Farber on Thurs. Still have the carsick feeling today but still passing No Puking 101 class. Also have to have potassium in my IV which gives you a strong metallic taste for 2 1/2 hours, just intensifies the nausea, yuk.

    But I have to tell you this cool story. We watch out the window during my infusion and we can see the new Dana Farber building under construction next door.  We noticed this time that someone has painted a Spongebob on part of the crane that goes up and down all day, must be for the kids here, we said. And then we noticed kid's names spray painted in bright colors on all the steel girders! How sweet. I have thought many times that I am so glad I have the cancer, not my kids. Anyway, we mentioned it to the nurse, and she says the name painting is a tradition now. Follow this link to see a Jimmy fund movie trailer with the story about the steelworkers and the kids at Dana Farber:

    http://www.jimmyfund.org/abo/broad/default.html?Track=movie 

    Hope it lifts your spirits, Furies.

    Sue 

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  • stillme
    stillme Member Posts: 17
    edited February 2009

    Hello All You Strong Women:

    I was wondering when does the hair come out?  Is it a pretty standard timing thing for all the different types of chemo regiments?  A friend who went through this 10 years ago said it was exactly 14 days when hers fell and she decided to buzz it all.   I have to figure it out because I'm going to be in a small cabin in the snowy mountains with 2 other families that each have 2 young girls same age as mine (7 & 9).  I guess I'll be bringing the buzzer on the trip up there with me.  Luckily it's cold up there and hats indoors is not too odd.

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  • Artemis
    Artemis Member Posts: 759
    edited February 2009

    sue50 ~ Glad you're doing well.  Thanks for the great story about the Spongebob crane and for the link to the movie trailer.  I guess I don't need to say that I am crying...those sweet babies...

    stillme ~ My hair started coming out on Day 14, and I buzzed it off on Day 18.

     Hugs to all,
    Artemis

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  • xpectmiracles
    xpectmiracles Member Posts: 439
    edited February 2009

    Hi Liz! Welcome! I am glad you found us. It has really been a comfort for me to keep in contact with others going through chemo.

    I have a question about the whole neulasta injection and claritin. Does it need to be claritin D in order to reduce the achiness? When do you start taking it? I am about 4 days past my first TC and the achiness is my biggest complaint.

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  • Terri42
    Terri42 Member Posts: 56
    edited February 2009

    Hey ladies!  I've been off the thread for a while - first week of AC #1 was bad - very flu-like but second week has been back to normal and I didn't want to even think about cancer for a while!  Back for round 2 tomorrow and I am totally dreading it!!!!!!!!!!  Not only do I know how crappy I'm going to feel but I'm expecting my hair to fall out this week - can't seem to think of anything positive about any of this...sorry I need to vent - you all can relate - boobs are gone, expanders hurt like hell, got hair cut short now it's going to be gone and I feel like I won't be able to have my "normal" forget about cancer time at all any more because I'll have this damn bald head.  Ok I'm done......don't mean to be a downer-I'm heading to a support group tonight hope that helps!Undecided

    Jancie - Love the story - thanks!

    Artemis - as always thanks for the words of wisdom!

    gcpommom - hang in there - I can't imagine all of this at once but it sounds like your Mom is turning the corner - keep us posted!

    Webwriter - hope you're feeling better!  I can feel the car sickness just reading your post!

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  • living4today
    living4today Member Posts: 215
    edited February 2009

    Terri42, thanks for writing my sentiments exact.  My first dose of A/C was on Wednesday and I have always though of myself as a tough, positive person....this sucks!  Every day I keep thinking, it will get better...hoping for today.  Lucky we had a break with work, otherwise I don't know how I would have made it.  I feel like a big whiner!!  I hate this cancer crap!   Thanks for being honest, it helps to know that I am not the only one who has pulled out of society.  Best wishes on your next tx, I can't evan imagine going yet.

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  • apple
    apple Member Posts: 7,799
    edited February 2009

    great story Jancie!  thanks for sharing it.

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  • Nancyb7912
    Nancyb7912 Member Posts: 84
    edited February 2009

    Mornin' all. Well, it's 4 days after tx #1 and I'm going to venture out all by myself today - first time as DH insisted on driving me everywhere. I've been fortunate to have avoided the intense sickness that so many of you have had to endure. Queasiness, yes, and tired a lot, but could have been so much worse. 

    I decided I needed to take a stand on this regimen and have refused to consider those IV's as anything other than the "life saving medicine" that will allow me to beat this nasty stuff for the long haul. DH has had more difficulty - keeps letting the word "poison" enter his vocabulary. Maybe, just maybe, attitude does have an effect. Don't know - and I don't know if I will be so lucky with # 2, but for now I will embrace it.  

     I have reflected on a story from a book my BF's daughter gave me about a woman who hated the color red after chemo. I think I do understand this feeling, much as I've always loved the color. Red head coverings will be verboten at this time!

    I have to go back to work tomorrow so I'm hoping I can hang in there for the day. Anybody have good tips for dealing with the tiredness? 

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  • webwriter
    webwriter Member Posts: 535
    edited February 2009

    NO worries about venting, ya'll. That's what the thread is FOR! We can be positive on our up days. No need to try for it on the down ones. It's a mixed bag, that's for sure. I'm astonished at how down I can be after being so up...and then watch it slowly come back just in time to start over again. This sucks. But we CAN and we WILL do it. Suckage and all. Besides, your vent may be the one that prepares someone coming behind us for something they hadn't thought about yet. 

    About hair... I'm on TC, so it's probably slightly different for me. (I've read that most A/C gals start promptly on day 14) I'm on day 19 and it's finally gotten serious about coming out. FINALLY! I will have it shaved tomorrow when my hairdresser is in, but it's none too soon. Ladies, when the hair gets ready to fall, you will kNOW! For nearly a week now, my hair has ached like ponytail tight pain on steroids. The last couple of days it's been really, really bad. Last night, it finally started coming out in the tingly/itchy spots. I didn't have headaches with this at all, just hair aches and then some odd sensations in the spots that wanted to start falling. I'll be SO glad when it's out so it stops hurting. If this is the price of possibly keeping my hair, I don't want it. Off with it. Pronto!

    About headaches ... I get massive headaches from, what my Onco says is, the Aloxi. (For nausea.) Splitting headaches for the first 4-5 days after TX. I've never had a migrane, but from the descriptions, this pretty well matches. I've added two Tylenol to my pill pile and it does seem to take the edge off. I've also added Zyrtec to the other allergy meds (Benadryl, Claritin) in the pile and that seems to be doing a great job on the sinus mess. My throat isn't nearly as sore with post nasal drip as last time and I can actually blow the junk out of my nose and have it say clear awhile. (Sorry gross, but well, that's chemo!) However, it has been suggested (in the TC thread) that both things may be related to the Cytoxan going in too fast. Will check that out with Chemo Nurse and let you know for round three.

    The Senekot change has done a good job this time around. I started it the day of TX and have continued to date. Probably get to stop them tomorrow as things seem to be evening out a bit. Not nearly the issue it was last time. That tip is a KEEPER!

    I ran out of Claritin D and switched to whatever was in the cabinet after my Neulasta shot. The hip pain was MUCH less this time around. Might not be the Claritin tho. Too many other variables to be sure. (PMS?, body adjusting? etc) I just know it's not nearly as awful this time and I'm quite thankful for that!

    Gotta go dig up my notes on the rest, tee hee. Chemobrain is REAL folks! Great to hear from all of you who are struggling through this one.  Even though it sucks, it's better not being alone in it. Upswings for all! Starting TODAY!

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  • Raeanne
    Raeanne Member Posts: 6
    edited February 2009

    Hello

    I am just posting all over the place trying to find out what to do about getting a picc or a port I was scheduled for a picc tomorrow and chickened out.  I sleep with my arm under my head. I just finished radiation with a mammo site and the catheter drove me crazy so now I'm leaning toward port I am set up for 4 treatments 3 weeks a part and because of that the nurse thought a picc would be the best choice.....any advise would be greatly appreciated  thank you

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  • MicheleS
    MicheleS Member Posts: 937
    edited February 2009

    Hi everyone,

    I'm pleased to announce that the nausea is finally gone (what... I get 3 whole days without it before my next treatment?? <grumble>).  I had a pretty good weekend and am working all day today through Wed.  I don't remember who asked about regular Claritin vs Claritin D but I took regular Claritin (no "D") and had no Neulasta pain. 

    I have the lovely follicle pain associated with hair loss.  Does everything about chemo have to hurt?? Today is day 12 post-AC#1 so maybe a day or 2 left of hair for me? 

    Judy~  I'm glad to see that your mom is doing better. 

    Terri~  My AC#1 was bad too.  Here's to hoping that #2 is better!  Are they going to change your premeds any?  I've begged for changes and hear from my onc that things will be better this time.  We'll see.

    living4today~ Whine away!! AC sucks... as does the damn cancer that forced us into this mess. I *used* to be the "camp director" in our family... the real organizer/planner/care-taker... not so much anymore.  Now, I'm a slobbering, blubbering, sobbing, (usually puking) mess of a person.  I just keep trying to keep my eye on the prize: being there to see my kids grow up, go to college, get married, etc.  then I cry more. Cry  Anywhoo, please, keep whining.  It helps (me anyway) to know that I'm not the only one *not* sailing through chemo. 

    Raeanne~ I went throught the whole picc vs port thing too.  I got a port and while it hasn't been smooth sailing (is anything?), I'm glad I did.  I can shower and take baths without worrying.  Plus, I like to go to the beach w/ the kids in the spring and knew a PICC would not do well in that environment.  If you look back in the forums, there are several PICC vs port threads.

    csbsk123~ My eyes burned for 24hrs post-AC.  The onc nurse (at my Neulasta shot appt) told me that I was excreting some of the "A" in my tears.  Lovely.

    Artemis~  So did you have AC#2 yet?  How did it go?  Please tell me that #2 is a breeze!

    Need to run and get some work done!  Hope everyone has a (non-nauseated) great day!

    Michele

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  • kmn0701
    kmn0701 Member Posts: 117
    edited February 2009

    Hi, this is my first post here. I'm a little intimidated by the length of these threads, there are so many responses. I started chemo (Herceptin, Taxotere & Carbo) last Friday (13th) & am "ok". Still tired & sick feeling. Not too nauseous though. I'm going to make myself go to the store today & walk around a bit. I'm a full time mom to 2 beautiful little girls (ages 5 & 3), part time work at home Mom, though I'm on a medical leave right now. I had a bilateral Mastectomy last month with tissue expanders put in. I still don't understand all the terminology, as far as ER/PR/HER goes. I know I'm not positive for the BRCA 1 or 2 genes though....at least mostly. Part of it was inconclusive, like they hadn't figured something out yet but they told me not to be concerned now. Whatever, no one in my family has had breast cancer so this was totally unexpected & shocking to us. I am 38. I found the lump myself last September & it went from there. I'm just glad I pointed it out to my OB because my cancer is aggressive. I had an excisional biopsy at the end of October on the right side of my left breast, it was less than 2 cm. They didn't touch the lump on the left side of my left breast though until my Mastectomy and that sucker was 11 CM!!! Thus, I went from stage 1 to stage 3. Crazy. My right breast was cancer free but I still had the bilateral mastectomy because I just didn't want to risk ever having to go through this again. If I can at all avoid it, you know?

     I don't know if this is even the right place to introduce myself but I'm feeling a little overwhelmed right now. Very tired, very emotional, very weepy. Just wanted to get in touch with others who understand it all. Thanks.

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  • MicheleS
    MicheleS Member Posts: 937
    edited February 2009

    Hi Kristine,

    Welcome.  This thread is long but the ladies are great.  There are several of us with little kids (mine are 13, 10, and 3) so I can relate to your feelings.  I'm 36 with only a relatively distant family history so I was "blind-sided" by a self-found lump as well.  Being weepy has become a way of life for me now... I'm sorry to say.  However, I hear that it does get better and that there will be days (long in the future, I'm sure!!) where breast cancer doesn't enter our every waking thought.

    {{hugs}}

    Michele

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  • flmomof3
    flmomof3 Member Posts: 28
    edited February 2009

    Kristine,

    Your post made me cry...you are definately in the right place...I don't usually post but reading about what all the other ladies are going through is extremely comforting to me. I am 41, with a 3 year old, 11 year old and 12 year old...so I have great empathy for you. I can't imagine how frightened you must have been but there are many women who will understand exactly how you are feeling. 

    You will be in my prayers!

    Sue from Florida

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  • Brenny
    Brenny Member Posts: 116
    edited February 2009

    Raeanne,

     I did the port and I have been very happy with it. Yes, the insertion procedure was a bit more involved (I had a twilight drug - was never out and I remember talking to the doctor and everyone). I should have mentioned to the dr how susceptible I was to nausea because the twilight drug did make me nauseous the next day - they could have given me something in it for that had I known.  It was sore for a couple days and covered by a strip, but no drugs needed. And was swollen a bit for a week maybe and for a couple days I slept on my other side or back.  But since then, it has been great. It is about the size of a quarter and feels like an inverted pop bottle top.  If you use lidocaine about an hour before they use it, you don't even feel a pin prick when they access it.

    My friend had a pic and she hated it - an issue with what she was wearing and it showed and also showering. I think they may be easier to insert but then need a bit more maintenance and need to be flushed more often (like once a week compared to once a month for the port).

    If I ever have to do it over again, I will stay with the port.

    Good luck to you! 

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  • Denali
    Denali Member Posts: 347
    edited February 2009

    Kristine, sounds like we're on the same regimen and chemo date.  I'm also on taxotere, carboplatin and herceptin, and had my 1st treatment Feb 12th, so we'll be on the same schedule.  These boards are wonderful, as are the warrior women who write and help us newbies.

    Be sure to get a prescription for Xanex.  It really helps with the weepiness!  Also, visit the following board too because those folks are on the same chemo we're on and know the side effects well.

    http://community.breastcancer.org/forum/69/topic/578284?page=100#idx_2997

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  • Artemis
    Artemis Member Posts: 759
    edited February 2009

    Michele ~ Yes, I had AC#2 on the 9th (week ago today).  I felt foggy all last week, but finally "woke up" yesterday.  I'm glad your nausea is gone, and I surely hope they can do more for you this time so that you won't be so sick again, bless your heart!

    Kristine ~ Welcome.  I'm sorry you had to join us, but you are with a great group here!

    Terri42 ~ I'm not sure what words of wisdom I imparted, lol, but you're quite welcome!

    Hugs to all,
    Artemis

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  • gcpommom
    gcpommom Member Posts: 883
    edited February 2009

    Hi gals.  Well, tomorrow is tx #2, I'm nervous again.  I went to my cardiologist today, he wasn't much help.  He didn't seem too knowledgable on chemo and tachycardia.  So, basically he sent me home with a monitor that I hold on my chest during an episode, then phone it in.  That should tell us what my heart is doing when it speeds up.

    I'll find out tomorrow just before tx whether or not they are going to change my infusions.  I am wondering what he'll decide to do. 

    I lost a little hair today, so I am panicking because I'm not really ready for this.  I have one wig I bought, but it isn't exactly what I wanted (bought online).  I have been so tied up with my mom in the hospital that I haven't had time to deal with wigs.  Or a haircut.  Or hats.  Or scarves.  Yikes, I got nothin'.

    Anyway, my mom is back in ICU today.  It looks like they will have to do a bypass in the next few days.  I can only hope and pray that she can make it through the surgery, but they just can't wait. 

    Michele, I am glad you are feeling better.  Hope your next tx goes much better for you.

     Terri42, we are on the same schedule, and I am right there with you, I am scared, don't really wanna go, don't wanna be sick again.  But, maybe we'll both have a better time of it this time around.  I thought I'd do ok emotionally with the hair thing, but after losing my first strands today, I was surprised at how upsetting it was.   

    Everyone take good care of themselves, big hugs to everybody :)

    Judy

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  • MicheleS
    MicheleS Member Posts: 937
    edited February 2009

    Judy~  I'm so sorry about your mom.  FWIW~ my 86 yr old grandmother recently had an emergency bypass and did well.  Bypass operations are done so frequently anymore... the technology is very good.  I know that really doesn't make it any better; I know I'd be worried sick if it were *my* mom...

    {{hugs}}

    Michele

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  • sue50
    sue50 Member Posts: 61
    edited February 2009

    Hi Judy,

    Praying for you and your mom. You are a trooper to be caring for her and dealing with your own chemo at the same time!!!! My dad went through a 5 way bypass, and it added many years to his life. 

    I have the same ACx4 treatments as you; my second AC was 4 days ago, and last night, my heart was pounding so hard I couldn't sleep. Doc isn't sure what's up; might be the nausea meds or my low potassium is back again. All I know is that I drank a lot more V8 juice the first round and this heart thing didn't happen. So for now I'm downing V8 (has potassium) and eating more veggies.  Maybe Gatorade, Pedialyte or V8 would help you too (adding electrolytes and keeping well hydrated?)Just a thought

    hugs to you....and love the mosaics!

    Sue

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  • gcpommom
    gcpommom Member Posts: 883
    edited February 2009

    Michele and Sue:  thank you so much for your encouraging words for my mom, I do hope she can do as well as your loved ones did.  Honestly, it is hard to cope right now, thank god for xanax, it helps a bit.

    Sue, I wonder if the fruity type V8 would be ok, I don't like tomato.  I hadn't thought about potassium, I should have though, I've seen what the lack of it does to my DD (those potassium IV's are painful).  Thanks for the heads up on that, I'll try it.  I hope your heart is ok now?

    Well, off to work,

    Judy

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