A husbands' story
Comments
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Hi,
My wife (aged 39) has just had a core biopsy on her left breast, which revealed that she has a 'infiltrating ductal carcinoma NOS' and a mass has also been found in her lymph nodes.
The pathology reports also details that the carcinoma is 'high grade'. The ultra sound showed the main mass is about 35mm.
Due to us being in the country, it is hard getting to a specialist, so she has to wait a few days to get in for an urgent masectomy.
We have two wonderful daughters', aged 5 years and 18 months, so of course, we are reluctantly thinking of the worse case scenario and starting to plan...
How do we prepare ourselves for this...
How am I expected to raise my girls without their mother...
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My mom was diagnosed yesterday, it is overwhelming, but you have to limit yourself to taking one day at a time, one news at a time. You will worry, be anxious, but it got "easier" for us, once we had the diagnosis confirmed, and plan of action in place. Everybody said to me, the worst is waiting and not knowing, and I could not agree more. But it gets little bit "easier" once you are starting treatments.
What helps, is getting yourself informed from reliable websites, like this one. Read as much as you can, get info on your own, do not rely only on the doctor to give you all information. You almost will have to become your own cancer expert, and go beyond what usually people who have not experienced it know about it ( which is nothing, other than the word cancer). Do not blindly trust all the stuff you read on the web, it will make your head spin, and increase your anxiety. Look at the dates of posted studies, as some of them seem to be outdated. Then run it by the doctor who takes care of your wife. Do not be afraid to talk to the doctor, nurses( they are great source of information, and are usually more accessible then the docs).
Otherwise hang in there,
Renia.
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Sammo
It might be a bit daunting at the moment but please don't assume the worst. My tumor was three times your wife's and my cancer was in 17 of my nodes......but I will be 5 years out this May. My daughter was in middle school when I was diagnosed and I am shipping her off to college this fall. My other two children were in elementary school and the oldest of the two will be going into high school this fall.
I plan to be here to raise my children and the two of you should plan the same. These cancer drugs are strong and you will get better drugs than I had five years ago. They are coming out with new ones every day.
Keep the faith....be positive....help her through treatment and don't look back and ENJOY, ENJOY, ENJOY those daughters of yours.
Jacqueline
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The information on this site is a very good place to start. If your wife just got the first biopsy results, it may be a week or so until she gets the more complete results which will tell you things about the cancer cells such as which receptors are positive. Very agressive cancers may be positivie for the HER2 receptor (often shown as HER2+). That use to be bad news and if you read older web material on it don't let it scare you. In the last few years a drug called Herceptin that attacks the HER2 receptor has shown great results. It is now a good thing to be HER2+ because Herceptin improves survival so much. That is an example of why you want to be aware of the age of BC information you read on the web. Treatment improvements are being made in a number of areas.
You might also read the thread that was just started on the Memorial Sloan-Kettering study of mostly stage III women. They got very good results.
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I was 35 at dx with 3 young sons, so I can relate. It's a very scary time, but try to take things as they come. DO NOT start picturing your life without her. There's absolutely no reason to do that. BC science is amazing, and she can and should receive fabulous care.
As for your location, that may or may not be the reason she has to wait a few days for a mast. Most women have to wait days, if not weeks for their surgery. It will be harder to coordinate care for her if you live far from the hospital, so you may want to consider booking a hotel room close by the hospital/doctor where she can stay while she's recovering and going in for post-op appts. Either that, or stay with someone you know who loves closer to the place her surgery will be performed.
Chin up! You wife has every reason to believe that she will be around to raise those darling children, and so do you!
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When I first received my diagnosis, I was truly scared. My thoughts were that this is really bad and that I would not be around for my children. Now that my surgery is over and I have done research, I feel completely different. I have not started my chemo yet but my outlook is much different. I know the survival rates are much higher than ever and that I WILL be here for my children and grandchildren (and I hope for grandchildren much later since my oldest is only 12). Be the best supporter you can for your wife. She'll need you. My husband has done an outstanding job under this pressure. We've always been close but this has brought us unbelievably closer. Hang in there. Knowledge is power and it makes things less scary.
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