Jan 2008--Ain't it Great?

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  • sheshe48
    sheshe48 Member Posts: 338
    edited February 2009

    Hey Joan I somehow missed you in fb. I don't have you for a friend I don't think. LJ, wish you could join us. I'll keep checking this thread for awhile. you have a great weekend.

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  • sheshe48
    sheshe48 Member Posts: 338
    edited February 2009

    Happy Sunday JJ's

    Joan and LJ  I will leave my name here for another day if you both would like to join FB. I really believe we are leaving this thread.

    Sherry Myers, find me and I can connect you to the Janurary Jewels.

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  • deb102307
    deb102307 Member Posts: 248
    edited February 2009

    LJ - Sorry you won't be coming to FB but I will keep coming here to check on people anyway.  They haven't blocked it at work for me yet but can easily see that happening.  You didn't say if you were thinking about coming to Vegas.  Would be nice to meet you.  Sounds like we have a pretty good crowd going.  I am taking my partner so will be added bonus for us to be able to get away.  Will be celebrating 13 years and she really stuck by me through all of this.  Anyway, hope you are doing ok.  Keep posting so we know how you are doing.

    Maz - hope you are doing better and able to start planning your attack.  We are here for you.  This just really sucks.

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    LJ:  I'm going to keep coming here too even though I started a fb profile.  FB is blocked here at work, and I don't always have a lot of time to check it during the week either.

    Deb:  Is Joan on FB?

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  • deb102307
    deb102307 Member Posts: 248
    edited February 2009

    KathyL - I do not see Joan in my friend list or in the group list.  That doesn't mean I haven't missed something.  I am new to FB so still learning.

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    Hi Ladies.  Bad news... my MRI from last week was abnormal.  I don't know exactly what it means yet, they just told me they saw "suspicious foci" on the opposite side (my right, since my left is gone).  So, here I go again on the roller coaster!  I see my breast surgeon this Wednesday to plan what's next-- I'm sure it'll be a biopsy.  I can't feel a thing where they tell me they see stuff, so it should be fun... NOT!

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  • Wing
    Wing Member Posts: 34
    edited February 2009

    Hey Kathy stay positive if its that small it could be a shadow or calcifications I'll be sending positive vibs while I'm having my MUGA scan Wed.

    Maz, How are you doing?

    FUBC!!!!

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  • PAlady
    PAlady Member Posts: 176
    edited February 2009

    Kathy I am sorry to hear that. Hopefully it will be a false positive - there are a lot of them with MRI's. I will keep you in my prayers and hope that the next couple of days go quickly for you. FUBC

    Hugs

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  • tinalee123
    tinalee123 Member Posts: 112
    edited February 2009

    Girls...does the site look different to you??  Things are looking different to me today, and getting logged in was challenging.  You guys notice anything out of the ordinary?

    Kathy L, CRAP!!!  I'm sending healthful and positive thoughts your way!  I know you've had a difficult time with the kids and the illnesses lately, but, stay stress-free. Think only good things about this...take Wendy's thoughts...

    I don't recall seeing Joan on FB.  But, she may have slipped past me.  My work blocks FB, too.  

    Gonna go watch the President...

    Tina

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  • tinalee123
    tinalee123 Member Posts: 112
    edited February 2009

    Not sure what I was smoking there...after I submitted my post, everything magically returned to normal.  Hmmm...oh well, whatever it was, thinking I may need a little more.  LOL

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  • JulieK_11_30_07
    JulieK_11_30_07 Member Posts: 260
    edited February 2009

    Tina -- the site gets funky for me every once in a while too -- then just goes back to normal - very strange.

    LJ - wish you would join us on FB and Vegas! Laughing

    Yes - Joan is on FB -- I sent you all a suggestion last night to add her. If you didn't get it, let me know. She's in the Jewels group so you should be able to add her there too.

    Maz and Kathy -- positive vibes being sent to you both!!!!!!!!!!!!!!!!!

    Off to grade!

    Julie

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  • camazur
    camazur Member Posts: 70
    edited February 2009

    Kathy--I'm praying not you too.  Keep us posted.

    I'm hangin in there, trying to schedule my bilateral mastectomy.  Should be soon.

    I'm so freaked out.  Thanks for the vibes.

    Maz 

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  • sheshe48
    sheshe48 Member Posts: 338
    edited February 2009

    Maz,  hang in there, I don't know what to say to you. I'm sending all my prayers to you. I know you will be a stronger woman, praying that it's not cancer. Sending you positive energy Vibes.

    Wing  Good luck on your MUGA, I hope your numbers will be terrific.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    KathyL, try to not worry. I'd put a paycheck on false positive. I know you want agressive follow-up, and I understand that. My onc. won't use MRIs because the FP rate is so high. Needless worry to the patient, needless biopsies, needless costs to the system.

    You got dah H-bomb (Herceptin) ... I'm sure you're fine!

    Try not to worry. We're all with you!

    And Maz, we're still with you girl. Hang in there.

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    LJ:  Thanks.  I'm trying to focus on exactly what you said.  My onc also does not like to do MRIs for the false pos. rate and he did not recommend it to me.  I went ahead though b/c my breast surgeon and my second opinion at UPenn recommended it since I'm high risk for recurrence.  I don't think it makes much sense for it to be BC again so soon.  I just finished the H a little over a month ago.

    Maz:  I'll be thinking of you.  You're still my "chemo buddy" and I'll never forget that!  Remember, we started the same day?

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  • camazur
    camazur Member Posts: 70
    edited February 2009

    Well, Jewels, I got a surgery date: next Wed., Feb. 18.  They first offered me Friday, which is the 13th, and even though I don't consider myself superstitious, I passed.  So that gives me a week to be anxious.  But also to get used to the idea.  I saw my therapist today and he's helping me thru it.

    Kathy--I'll be thinking of you, too, chemo buddy!

    Maz 

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    Got some more news today.  My surgeon is doing an ultrasound before my appointment tomorrow AM.  I guess it will give her some more info before she sees me.  Fingers crossed for some good news.  I have ds's parent/teacher conference at 7:45, and then the fun starts at 8:45.  Deep breath...

    Hang in there Maz.  You CAN do this!

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  • deb102307
    deb102307 Member Posts: 248
    edited February 2009

    KathyL - We are thinking about ya.  Praying for better news.

     Maz - Got it on the calendar.  Be strong and try to do something nice for yourself.  I know it is hard to not think about constantly but sounds like you have a good support system.  Prayer will continue.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    lol on the 13th, Maz. I'm not superstitious either, but I think I would have passed too  Wink

    No sense in taking unnecessary chances.

    Crossing fingers for you KathyL.  XXXXXX  ( <-- crossed fingers )

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    More words of wisdom on Facebook:

    http://www.pcmag.com/article2/0,2817,2340357,00.asp?kc=PCRSS03129TX1K0000625 

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    Hi Ladies!  LJ:  thanks for the FB info.  I'm still rather leery of the site, and have set all mycontrols so no one but "friends" can view it.  I actually don't even have any pictures on it or a picture of me. 

    Maz:  One things I wish I'd done (or someone had told me about) prior to mastectomy... it's really hard to reach/shave your armpits for quite sometime after surgery.  Consider getting them waxed beforehand... seriously!  That'll last 6 weeks or so, and by then you'll have better range of motion to do it yourself again.  I had some rather furry pits for a while after mastectomy because of swelling, cording, etc.  I already felt yucky, and that just added insult to injury.  Also, make sure they sign you up for some PT to start ASAP after surgery.  It was a huge help in me becoming self-sufficient again.  If possible, look for a PT who specializes in breast cancer surgery patients (yes, they are out there).

    My update:  they saw "something" on the U/S today; no one is sure, or is saying, what that "something" is.  The surgeon is hopeful and "confident" it's just fibrous tissue, but I'm going to be biopsied tomorrow at 5pm.  Should have results by my follow-up on the 19th.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    KathyL, did they say where specifically?

    I have felt some thickness in my "good" breast at the upper/outer location, and asked the Onc. to check it out. He says that it is very common for the tissue there to be fibrous and denser.

    Keep us posted !

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  • camazur
    camazur Member Posts: 70
    edited February 2009
    Kathy L--Thanks for the mastectomy tips!  (Weird. but since the chemo and radiation, my pits have been hairless.  Just the pits.)  Anybody else have any?   
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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    LJ:  Girl, you just have the power to keep making me feel better:)  My "spot" is right breast, 11:00 spot (upper outer).

    Maz:  Since I'm thinking again...  gather some extra pillows to sleep on at night s/p mastectomy.  I used two under my left arm for quite some time (so plan on 4 for you since you're b/l), and at least two behind my back to prop me up; I couldn't lay flat for about 1-2 weeks.  Use a shoelace or lanyard to pin your drains on when you want to shower-- less pull and easier to maneuver to clean.  Buy lots of extra gauze pads to have at home, thick ones (called ABD pads).  Also regarding PT, try as soon as you can to use your arms (gently) even though you might be afraid.  The longer you wait or hesitate, the harder it becomes to do stuff.

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  • deb102307
    deb102307 Member Posts: 248
    edited February 2009

    KathyL - Keep us posted.  Hoping it is all just density and nothing else.

    Maz - One of the most helpful things for me after my mast was one of those pillows that you use to prop up and watch tv.  It has a back and 2 little arms stick out from there.  I was able to sleep much better with that than flat on back. And you can supplement with other pillows to help get comfier.  As for the drains, they are a pain but I found a fanny pack and wore it to help keep everything together.  With a longer shirt, some people never new they were there.  Make sure your surgeon makes the lines long enough that you can hang them outside of the shower or the pinning it to the shower curtain works too like KathyL said.

    Will be keeping both of you in my prayers.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    I just heard that a lady at work who was diagnosed just before me has had a recurrence to the brain.

    Dam this disease. She's such a sweet lady.

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009

    LJ:  That just sucks! 

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  • Wing
    Wing Member Posts: 34
    edited February 2009

    Hey Maz, boy this is happening so fast I wouldn't want to do surgery on Fri the 13th either plus it gives you more time to deal with all this mentally and tie up any loose ends around the house and all.  Positive vibes going out to you all day Wed. best of luck.

    KathyL I'll be thinking of you tommorrow hope all goes well and don't forget the ice packs!

    Going over to check out facebook now night all.

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  • KathyL
    KathyL Member Posts: 534
    edited February 2009
    Biopsy's done.  Now it's just the waiting game...  All went well today.  Amazing what one little Xanax can do!  Maz, you're gonna do great next week.  Better living through chemistry Laughing
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  • RN2teach
    RN2teach Member Posts: 312
    edited February 2009

    Happy Valentine's Day, Jewels!

    Most of you have read from Facebook about what's going on w/ my family. Eddie has decided to stop treatment. We'll get an MRI next Friday and decide how to proceed from there. I don't know whether we can even convince him to continue with treatment if it shows improvement... cross that bridge when the time arrives, I suppose.

    LJ- I'm so sorry to hear of your friend's new battle. This recurrence stuff sucks! Just learned about AlaskaDeb's passing recently. What a loss to the BC.org community!

    Got to go get the laundry going. Hope you all have a great weekend.

    Paula 

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