Oncotype/Chemotherapy

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  • hopefullady
    hopefullady Member Posts: 210
    edited January 2009

    Auriga,  don't worry too much if you end up needing the neulasta shots.  I had one the day after each of my treatments.  That's just the way my oncologist does things here.  I never took a clariton, or anything else, for the shot and never had any trouble at all.  It doesn't bother everyone.

    Chris 

  • otter
    otter Member Posts: 6,099
    edited January 2009

    I also got a Neulasta shot with every Taxotere/Cytoxan round.  That was standard procedure at my cancer center.  I guess they had seen too many people end up in the hospital with fevers and infections after their wbc crashed.

    Despite the Neulasta, I spiked a fever (100.6+) from a probable sinus infection during both of my last 2 rounds of chemo.  When I called each time about the fever, the on-call onco asked if I had been given Neulasta.  Because I had, he said I didn't need to go to the hospital--he would just call in a prescription for an antibiotic.  If I hadn't received the Neulasta shot, he would have insisted that I go to the ER. He said the Neulasta shot was protecting me--it would bring my wbc back up within a day or two.

    Some oncos don't use Neulasta or Neupogen until they see that the wbc will crash without it.  Some insurance companies won't cover the cost of the shot(s) until that happens.

    otter 

  • Harley44
    Harley44 Member Posts: 5,446
    edited January 2009

    Otter,

    I didn't know that some insurance companies wouldn't pay for Neulasta or Neupogen...

    I know that I always felt safer when I got the Neulasta shot after my tx.  I still had the flu-like se's about a week after my tx, but I kept an eye on my temp, and it never got too high, it always seemed to even out overnight.

    Hope everyone can take Neulasta without any problems, because the idea of developing an infection really scared the heck out of me, when I was getting my tx.  JMHO

    Harley 

  • marlenet
    marlenet Member Posts: 345
    edited January 2009

    Harley44

     Did my 1st treatment, it went very well.  I'm on my way to get my anti-nausea drugs.  I plan to take them!  I pray it will go good from now on. Drinking a lot lot lot of water!  Hope all my treatments go good.  1 DOWN 3 TO GO!!!!!Smile

  • Harley44
    Harley44 Member Posts: 5,446
    edited January 2009

    marlenet,

    I'm so glad to hear that your 1st tx went well!  Yes, take the anti-nausea meds.  I read on these message boards that it is best to keep ahead of the se's, in other words, take the meds. to prevent any se's, don't wait til you have the nausea, because it will be much harder to control if you wait.

    YAY!   1 down, 3 to go!!!

    Hugs

    Harley

  • crusader1
    crusader1 Member Posts: 1,222
    edited January 2009

    Hi marlene,

    Glad to hear all went well today.

    Look at it this way one down and only three to go.

    I may be joining this club in a few weeks.

    Keep strong.

    Francine

    BTW what was your oncotype score? How many weeks after your surgery did you begin?

  • PghGal
    PghGal Member Posts: 1
    edited January 2009

    I just started chemo last Thursday. Very tired...Doctor recommended chemo because oncotype was in the middle leaning more towards to upside for reoccurance.  I am having 4 sessions three weeks apart and then a mastactomy on my left breast with reconstruction on both.  I am also having the BRACA test.  If I have the gene, I may have to think about other surgeries.  I am 69 and this was quite a shock.  I am the oldest of three sisters both of whom had breast cancer.  Not too much support for me going on except at my office.  All have been very supportative.  Basically, no one knows what to say when they are told you have breast cancer!  I look forward to chatting with everyone and getting supprt from those who have gone through the same thing.  Thank you for listening!

  • marlenet
    marlenet Member Posts: 345
    edited January 2009

    Hi PghGal

    I am 45years old  and my Oncotype score was (25) 16% RECURRENCE.  I know the feeling... Breast cancer sucks.    The site has helped me out a lot. I plan on working as mush as possible.  I too have such a support system at work.  I took today off just to rest. I was told my cancer was small and i was iffy about chemo, but i want to do everything possible to prevent cancer from coming back. I know i made the right decision.  Keep the faith,love and hope and we will get through this!

  • marlenet
    marlenet Member Posts: 345
    edited January 2009

    Hi crusader1

    oncotype  score was 25, ( 16% RECURRENCE.)  My cancer was very early and small, no nodes involved, clear, clean margins. But my age was a factor. 45 years old. I had surgery Dec 4th to remove the beast.  I made the decision to chemo.  i too am having 4 rounds of Taxotere/Cytoxan .  I did not do too bad.  Today the anti- nausea pills gave me a little dizziness, nothing major.  You are right, 1 down and only 3 to go!!!!!   Keep the faith,love and hope and we will get through this!

  • hopefullady
    hopefullady Member Posts: 210
    edited January 2009

    I just want to send much  ((((((((hugs))))))) to all of you just starting your treatments.  I know it doesn't seem that way right now, but this really will be over before you know it and life goes on.  You can do it, and we are all here to help.

    Chris 

  • marlenet
    marlenet Member Posts: 345
    edited January 2009

    hopefullady

    Thanks!  That means a lot to me!   Laughing 

  • Harley44
    Harley44 Member Posts: 5,446
    edited January 2009

    Glad to see that everyone is doing well.  I'm sending HUGS to all of you who are starting your treatments now.

    Chris is right... It may not seem like it, but you will be finished before you know it.

    Take care.  Pamper yourself.

    (((HUGS)))

    Harley

  • danigirl
    danigirl Member Posts: 9
    edited February 2009

    Hi there--I was diagnosed with 1.2 cm, node negative, er+, her- and an oncotype dx score of 29.  29  was just too damned close to 30, so I opted for 6 round of A/C.  It was a decision I must have tossed and turned around the whole time I had my radiation(I did it first).  I must say the chemo was not the problem at all--no side effects, no nausea at all, but the Neulasta almost killed me. I have an extremely high pain tolerance, but 6 hours after my injection I could feel my muscles bunching up like I was turning into the Hulk.  I tried everything--acupuncture, 2 hour massages, and nothing helped.  Each time I had the shot after chemo the effects lasted longer and were competely debilitating.  Finally, on my 4th round, I called my oncologist and told him to take the shot himself, to give me the 5 days of Neupogen instead, and the lower doses over the 5 days made all the difference.  I am amazed that you thought the opposite.  I felt like cement was being poured into my muscles.    As to the hair, forget it.  You lose it exactly when they tell you.  I didn't believe them, so I went to get what turned out to be the greatest haircut of my life.  Two days later it dropped out  So my advice is to have a wig party--take what will probably be your last bottle of wine for the next 8 months, get a couple of friends together, and go pick out a wig. I remember thinking I'd be the only inebriated person to ever pick out a wig!  But I must say that without that wig, I don't think I would have been able to get through it all.

  • danigirl
    danigirl Member Posts: 9
    edited February 2009

    Hi there--I was diagnosed with 1.2 cm, node negative, er+, her- and an oncotype dx score of 29.  29  was just too damned close to 30, so I opted for 6 round of A/C.  It was a decision I must have tossed and turned around the whole time I had my radiation(I did it first).  I must say the chemo was not the problem at all--no side effects, no nausea at all, but the Neulasta almost killed me. I have an extremely high pain tolerance, but 6 hours after my injection I could feel my muscles bunching up like I was turning into the Hulk.  I tried everything--acupuncture, 2 hour massages, and nothing helped.  Each time I had the shot after chemo the effects lasted longer and were competely debilitating.  Finally, on my 4th round, I called my oncologist and told him to take the shot himself, to give me the 5 days of Neupogen instead, and the lower doses over the 5 days made all the difference.  I am amazed that you thought the opposite.  I felt like cement was being poured into my muscles.    As to the hair, forget it.  You lose it exactly when they tell you.  I didn't believe them, so I went to get what turned out to be the greatest haircut of my life.  Two days later it dropped out  So my advice is to have a wig party--take what will probably be your last bottle of wine for the next 8 months, get a couple of friends together, and go pick out a wig. I remember thinking I'd be the only inebriated person to ever pick out a wig!  But I must say that without that wig, I don't think I would have been able to get through it all.

  • Springtime
    Springtime Member Posts: 5,355
    edited February 2009

    danigirl,

    The AC kicked my butt (I had dose dense 4) but the Neulasta did *nothing* to me. It is very interesting to me how we are all so different...

    Spring.

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