Recovery time
Comments
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I have been out of a 13 month treatment for one year now (2 chemos, mastectomy, axil node disection, radiation) and have a lot of financial stress. I have been working full time for one year now and was at 7 hour days through treatment. I do not feel well and am doing all the right things (vits exercise etc.) I don't have much resilience against infection and have anxiety attacks for which I have had accupuncture. HOW LONG does recovery take? Does any one else still feel bad after this much time?
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jellen...Everyone is different, but I'd say that 13 months is not a very long time post-tx. When I was 13 months out, I was just emerging from the emotional trauma of it all. While we're going through the active stuff like surgery & chemo, we suck it up and go into warrior mode. Then, seemingly suddenly, all the bustle & noise stops and we're just stunned...and feeling like we're just cut loose out here & just flapping in the wind. And so we try to process it all and recover. For some I guess it's a snap. But for most of us, we have to deal with all of the physical residuals, like fatigue, chemo brain, pain & insomnia from tamoxifen or an AI, skin & hair changes...you name it. And then there's the emotional hangover..depression, anxiety, fears about recurrence, all direct leftovers from the year+ long trauma we've just gone through.
Have you thought about a support group or even seeng a counselor who specializes in cancer issues? If that doesn't strike you as potentially helpful, maybe starting something distracting but not too taxing might give you a new perspective and engender more energy (at least emotional energy). Finally, I'll just add that if you haven't had a thorough workup to rule out physical causes for your low immunity, maybe you should start there (I know, you're sick of doctors, but this could be worth it!).
Hang in there, girl. And keep posting. So many of us share these issues and we can help one another get through them...together.
~Marin
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jellen, I'm struggling with fatigue and not feeling normal, and trying to put things in perspective as well. How to move ahead? You are a trooper, working full time. I agree with Marin about getting all the support you can.
There's a downloadable pdf on Living Beyond Breast Cancer, on emotions:
I'll bet many people who have gone through what you have, and are working full time time feel very similar to you. This is when we need the support, and this is when we're expected to resume our lives, unchanged.
Kira
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Thank you - it is good to know that I may be expecting a little too much too soon. Guess my patience is running out. You are so right about the warrior mode - I don't know where we summon the strength. It feels great just sharing this and getting feed back. I have a counselor but I don't think he really gets it. I think I will look for someone who has had BC herself. Yeah - guess the only emotion I was processing before besides sheer terror was "there is an end to this and then it will be over and I will recover: The missing link there was - the end doesn't end after treatment and there is no set length of recovery time. I read somewhere that the amount of treatment I went through takes 18 mos to recover back to 90% energy. That is what I hold onto. But that doesn't even begin to address the emotional stuff. Thank you thank you thank you for responding - I have been feeling so all alone - and thanks to Kira too. The regular checkups at the clinic are so, well, clinical! I had Reiki when I was first diagnosed and it was phenominal. I am saving $ to have more done. I think it releases the emotional component from the cellular level where I believe it is held. This healing path is quite the adventure. Also - have a link to a web site where there are cd's for sale that deal with post traumatic stress. If I get one I will pass on the results. So glad I found this place to share
Bless you all - jellen
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Fitchik, this statement you made about the hustle and bustle and suddenly we feel cut loose and left flapping in the wind, is exactly how I feel! It all seemed like a blur with going to chemo and then every day to radiation and then it was all over and I didn't, and still don't, know what to do with myself. It's almost orphan like, after being fussed over and then I'm on my own.
jellen, I understand how you feel and it's so nice to know I'm not really on my own and that what I've been feeling is normal. I ended treatment just last summer so I feel much better after reading here, too. Thanks to all of you.
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Yes Fitchik,
You've hit the hammer on the nail! It sounds crazy, after all the treatments are over, we should be happy, ecstatic, etc. and everyone expects us to be back to normal (after all, we are now okay). It's true, after diagnosis, you are going through a million things (tests, surgery, treatments, etc) you don't have a minute to think about anything else but getting through all this (super women mode)! After everything is finished, it's almost like a let down (kind of like when you plan a wedding), you go crazy for months planning, and then it's all over, and then what! So, we finish treatments, we are hopefully all cured, now we should be able to move on. Somehow moving on is harder then the treatments, because now we either finally realized what we have just endured, and what it all really meant (we weren't really thinking of this during all the fuss). Now, we think about oh my god, I had cancer, and all of a sudden, we are dealing with what now, fear, depression, and all the leftover side affects.
So glad that this board exists, because people around us (who have not been through this) will NEVER get it. My husband says, I understand you are depressed, but it's enough, move on. My sister-in-law tells me, go get pills, you need to get over this. It is SO easy for others to tell you what you should do, how you should feel, etc., but when you are the one going through it, it's so different.
Thanks for putting it into words, it's inspiring for all of us to hear things that we feel, and make us feel that we are not all crazy thinking these things.
Shelley
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I think that during all the tesing and such, we have such adrenaline coursing through our systems, that is what keeps us going.
Then, when it is "all over" our bodies are totally drained and there just anything left to enjoy life with.
Little bursts of healthy adrenaline; laughing, sports, exercise, movies, shopping! would put an appropriate amount of adrenaline into our systems. I think at the beginning our bodies over react to the adrenaline because we relate it to something negative like another surgery. We have to train our bodies to enjoy the andrenaline rush again.
So do some retail therapy, watch some good stand-up comedy, have a good cry, see a great (female) therapist! Allow yourself to heal at the pace your body needs. You were "sick" (hate that word!) for a long time, you need time to get back to YOU.
If all that fails, consider a chemical interaction. You used that for your cancer, didn't you? Why not use it for your peace of mind. It can take weeks to get a chemical balance in your brain, but we have the technology! Don't be afraid to use it if you have to.
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I have been askin myself HOW LONG will it take to get my life back.......or the next leg of my journey back... I am only 4 months post BMX. And I did not have to deal with Chemo/Rads/ Tamox or any other evils or working. I felt the absolute worse the first 3 months....then I hit bottom emotionaly...and have been for the most part getting better.
I have just begun to surrender to the fact and as DH is also becomming more aware ... that I am not recoverying from Gall Bladder Surgery..... that this is going to take close to a year physical front and like 2 years emotionally.
I am looking forward to winter and just hibernating.....mending. Taking care of me. I hope that that time comes for you.
Its a long way back and most of us are clueless to what we have to go thru on every level of our being.... mental/emotional/ physical/ spiritual.....and its not all goin to happen in 6 weeks post op when your BS says YOUR HEALED.
(( Strength to see you/ us thru ))
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