ERRRGGGGHHHH caution rant to follow
I will apologize in advance...
But, I really just need to throw up on somebody right now...
I had my bi-lateral mastectomy Jan. 20th... did pretty good once I got past the initial post-anesthesia throw up routine and passing out when I tried to get up to the bathroom... and then throwing up and nearly passing out upon seeing myself naked for the first time... As you can see, I have developed a pattern here...
Well, Saturday Jan 31st brought me to a wonderful day of a stomach virus... I have been cooped up in my house with few visitors... but it caught me... so I spent all day Saturday throwing up... that feels so good with all the tubes and staples...
So, I wake up this morning with a sore throat...but I did get my drains and staples out... only to learn that my cancer was found in a node... I just KNEW that all of this had gotten rid of the evil from my body...
Now, I am recovering from surgery, a stomach virus, have a cold and learned that my cancer was not contained.. Oh and by the way.. the prophylactic mx on the right side was a great decision because the pathology showed pre-cancerous changes!!!
I know I am just whining but how in the world am I going to get through chemo and fight this crap when my immune system can't withstand a few viruses... am I just going to spend this year fighting off one thing or another???? I am a vegetarian, take all my vitamins like a good girl... what gives.
And, I really need to get back to work at some point and I absolutely can't make those poofy things look like anything but tissues stuffed in a bra. I work in a male dominated environment and I just can't stand the thought of them staring at my misshapen chest. How do I hide it???
I am sure that you all agree that this SUCKS and you wouldn't wish it on your worst enemy. I am just so tired of all the well meaning "your tough, you'll fight it" and "how can you be so positive" said with their pity face on. I don't feel tough or even like I have the power to fight anything. It is obvious that I have no control over my body. It is much easier to fight another person or fight for a cause.
Thanks for listening and sorry for the screams... I'm just trying not to cry... I'm already stuffy:)
Comments
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okay, I am better now... not physically but mentally... this helped...
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Yes. It sucks. Alot. No lie.
Your immune system is probably low due to stress and being in the hospital. Stock up on antibacterial soaps and hand sanitizer and dont touch your face EVER! You will get through it. Through out my 4 months of chemo, both my kids and my husband were sick and I managed to not get sick.
Good job on making the right decision on bilateral. I too had a bilateral and my proph side was all clear - don't care, still the right decision for me!
Feel better...heal and get stronger. Go for a walk if you can.
As far as clothing. layer. Not sure if you wear corporate or casual clothes but a polar fleece vest is good for casual (zippered half way) . For corporate - a suit jacket, pretty scarf, etc.
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I always find that saying it (or screaming it as the case may be) makes me feel better too.
I also have the immune system with all the strength of a wet kleenex. Like everyminute said, become a hand washing lunatic, place bottles of hand sanitizer in every room - and insist people use them, and I agree the key is to never, ever touch your face.
I caught foot and mouth disease from my son between my 2nd and 3rd surgeries, so I know how much it sucks, but I managed to not get sick during chemo (a record for me to go 4 months!) so Ireally think becoming OCD about the handwasing it helps.
And come here, and yell and scream all you want. It really does help. And we really do understand, and care...
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When I first went back to work, I wore a black leather jacket that looked like a blazer. The stiff texture helped hide unevenness.
Teresa
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It sounds as though you are doing the expander thing, right? They can be a bit of an unnatural protrusion! Mine were so high, I thought they were coming out of my gills. Still, jackets, bulky sweaters,etc. hid them for the months I had them. I received my nice new silicone girls this week and I feel so much more comfortable. They look beautiful and feel so soft. You'll get there, too.
After chemo I embarked on a supplement program. I suggest researching the various supplements on the natural med/therapy threads. I see you are Her 2+ which means you will be taking Herceptin for a year; I am assuming. There are several supplements which benefit your heart that you may want to take during your Herceptin therapy to keep up your Injection Fraction scores. I was exposed to that nasty stomach bug that has been making the rounds several times in the past few weeks and have not gotten it yet! I have not had a cold either despite multiple exposures, so I think the supplements really do boost the immunity.
If you have not done so already, I strongly suggest you join us on the Her 2 Support Site: http://her2support.org. There are many really knowledgeable and valiant woman and men on the site. We Her 2 gals have a tough row to hoe, and that site contains much valuable information for us.
This BC thing is rotten to the core. It really just stinks. There isn't much to do but keep going forward. I do think there is another side and that the sun comes out tomorrow. Here's to all of us getting to the other side!
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I, too, am in a male dominated work environment. The guys say I'm "more like one of the boys now!" I say, yep, I have bigger balls than all the rest of ya! One of them asked if I could play the accordian now, and I responded I wasn't sure, but I was pretty sure that my golf game would improve.
I stand tall, shoulders back, (no chest out) and carry myself the way I did before my flat chest. Layering IS the key. I'm sure people notice, but what are they going to say? When I came back I got a lot of hugs from the female support staff, and even one of the guys I don't work directly with came up to me in a group, shook my hand and said welcome back. Very touching all.
I actually feel a bit sexier if that doesn't sound too crazy! I still wear pretty clothes, hair, make-up, etc and yet my body is different than the other females. Kind of like when I had big boobs in high school and no one else did. I just have to be different, don't I!
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2lk, glad you're feeling better. Call the American Cancer Society and ask if they have Reach to Recovery in your area. They gave me soft temporary prosthesis I could wear and a bra to put it in until I healed at 6 weeks and could get a regular form. They also have tlc catalogue or you can go there on line. They sell the soft breast forms and the regular forms. It helps if you go somewhere the first time and get fitted so you know what size to order. tlc catalogue is much cheaper than other places. They deliver very quickly also. I also ordered the things you sew in your regular bras, swimsuit, etc to put the prosthesis in. I find the prosthesis very comfortable. have one for regular wear, swimming, exercise, and soft foam one also. Also wear gloves to handle dirty laundry, clean bathrooms, handle dirty dishes. I got a box of cheap gloves at wal-mart and kept a box in laundry room, beside kitchen sink, and in bathroom. It helped me to remember. Handwash lots. I never got sick so I think it worked. Hang in there. Brenda
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that was an excellent rant!
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I'm so sorry that you are going through this all. I have the stomach bug too. Spent all last night on the bathroom floor! I haven't started cancer treatment yet and was wondering if this is what it is going to be like with the chemo. My system is compromised and maybe that's why I caught it too. I just got over surgery to move my defibrillator from over my left breast (where the cancer is) to over the right breast. Just completed that surgery two weeks ago. I definitely think that we are prone to illness from the stress on our bodies and also the stress on our minds. I'm going to bed! Please feel better soon. This too WILL pass. I hope that your rant made you feel better (it helped me!!!!)
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Any of us can succumb to a stomach virus, cold or flu even when we aren't stressed by a cancer diagnosis or surgery. It is better to get it now than combined with chemo. I got a cold during chemo.
Do you know which chemo you are getting? If it is taxotere, caboplatin and herceptin (TCH). there is a thread on the chemo forum titled taxotere,carboplatin and herceptin for those taking that chemo. It is really supportive. It has been going since 2007 so you can read old pages to see how people did and what side effects they had or you can go to the last page and talk to those of us who are getting TCH now or recently finished. I'm almost done and it has been really helpful.
I'm another working in a male dominated profession; so male dominated in my specialty that I'm often the only woman in the room. The guys have been great. Some have had wives, mothers or sisters with breast cancer. Others have had there own brush with cancer. Even the ones who haven't are smart enough to understand that this doesn't make me any less the colleague. I went with the lumpectomy so I can't help with the dressing question.
I haven't gotten much of the pity or worried face. When I do it is usually from someone who has lost someone to cancer and I explain that cancers are not all the same and treatment for early stage breast cancer has gotten really good. Last week I did get it from someone but that was understandable as another colleague died two weeks ago from another cancer. The person making the face worked really close to him. I explained that the cancer that killed him was stage IV when it was discovered and then recurred while mine was early stage breast cancer with a miracle drug to fight it so our situations are totally different.
I get a lot of the "your strong, you'll do fine" but that doesn't bother me. I want my colleagues to see me that way. And they still know this is hard even for strong people and try to help.
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Thanks for all the encouragement and I'm glad my rant was helpful to someone besides me.
I am feeling better now, I have actually been feeling pretty good. I went to a fitter, got a bra and soft fluffies and I kind of look normal. I can't do any kind of expanders or recon yet because the tumor was so deep that after chemo I will probably have to do radiation as well. Thanks for the clothing tips.
I will be doing 4 treatments of andramycin (sp) then 12 weekly treatments of Taxol and then 40 weekly treatments of Herceptin. But before all that, I get to have another surgery to remove the rest of the lymph nodes on the left side... I go today to get that scheduled and then the plan is to start treatments on Feb. 25th...
After my visit with the onc and hearing how serious it really is, I had my first doubt about not making it. I have mourned the loss of my breasts, the loss of my "normal" life, etc but I have never really thought that I wouldn't get better. So, I had a bad day and then moved on... I can't focus on what might happen... too much to do...I guess that is pretty good and I need to cut everyone a break on how they react to me.
Thanks again for all the support... I will check out the links that everyone suggested...
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