Sorry Ladies, never online much

I am not on Herceptin either. I just wanted to say...Good to see you again..and sorry that you are having so much trouble. I hope they figure out what is happening to you.

Lisa

Snowyday,

 When I was on Herceptin, I had horrible jaw and ear pain.  Most of the pain was in the back of my jaw near my ear.  Herceptin is known for ear and sinus problems.

Hope this helps.

Karen 

Snowy so good to see you posting again!.......Sorry about all the nasty SE's you are feeling......I too have not taken Herceptin but I remember some lovely ladies talking about joint pain in general when taking Herceptin....I hope you fine ease for your pain soon.......Hugs...lucy

Hi everyone,

At my last Hercepton infuson (number 10), I developed low blood pressure that became even lower in the next hour (they made me stay there).  After two + hours it went back to low normal.   SOme of the long-time infusion nurses said they had seen this only a few times but bllod pressure returns to normal. 

Anybody had this experience or know others who have had it?

Jo Anne

I started Herceptin about a month after dose dense AC&T, so when the jaw/ear pain started, Herceptin was the only drug I was on.

Hope this helps.

Karen

Hi Michelle,

Yes, my blood pressure has been lowere than normal since I started Hercepton.  I kept complaining to the technician who would tell me that it was still within the normal range.

After the last Hercepton infusion I felt dizzy and the nurse took my blood pressure and found it lower than when I came in.  Over the next two hours it went down further still -- 90/65. 

The next day I emailed my chemo oncologist who replied "Minor low blood pressure has not been reported in the literature with hercepton but I am not surprised this could happen.  It makes perfect sense that after receiving a monoclonal antibody that a person might act that way..

 I don't beleive that the problem is cardiac in origin.

....drink plenty, plenty of fluids (not caffeinated or alcohol).

Let me know what your oncologist says.

Jo Anne

Thanks JoAnne and hiker for your replies and info.  I have been SO tired lately.... I understand low blood pressure can also cause fatigue.  I will increase my fluids and drink more water - though I simply can't give up my morning coffee... it's my only vice!

My onc is out of town for two weeks, but I am going to see if I she will call in the order for my MUGA before my next Herceptin only on 2/27.   

It is so important to stay vigilant and aware...grateful for this board to share fears, info, encouragement and not feel alone in this uncertainty.

The only adverse reaction regarding blood pressure I can find in the labeling for trastuzumab (herceptin) is an incident rate of 4% for hypertension (high blood pressure) for patients on the drug for one year. Low blood pressure is not listed or discussed.

Hypotension  and dyspnea (shortness of breath) is noted as part of an infusion reaction (i.e, an allergic reaction to the drug) that is watched out for during herceptin infusion.

On Herceptin...

I took Herceptin weekly for a year. My main complaint...(side effect) was a contant cough. An increased cough is listed as a possible side effect- and I had it!  Felt like I had constant drainage- down the throat- or out the nose. Finally, my body adjusted and the cough stopped. No cough syrup helped or medication prescribed. I celebrated being a 3 yr survivor on Valentines Day.  

  Count on it..... Plakatakr!

    I was a frequent visitor to the Chatroom from Jan. 06 on.  Then, I found the No Surrender by Breast Cancer Survivors and began to post there daily.. and somewhat dropped out of the chatroom. Maybe, I felt I graduated. I was in the bc chatroom tonight and someone said- Why don't you post here. I don't know why I never did..... so tonight I did!