UNIV. OF PENNA. - RECONSTRUCTION ANYONE?

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nancyluvspink
nancyluvspink Member Posts: 102
edited September 2016 in Breast Reconstruction
UNIV. OF PENNA. - RECONSTRUCTION ANYONE?
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  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited April 2008

    Hi Everyone, I am considering all of my options for reconstruction following my bilateral mastectomy which is scheduled for June 08.  The more I read, the more unsure and afraid I get.  I would appreciate any input.  Thanks, Nancy

  • merrilla
    merrilla Member Posts: 26
    edited April 2008

    I had my bilateral mastectomy and immediate reconstruction at the University of Penn.  Dr. Liza Wu there is my ps and she is great.  Are you going there and who is doing your surgery?

  • felix
    felix Member Posts: 4
    edited April 2008

    I had my bilateral mastectomy and immediate reconstruction at Upenn.  My muscle sparing free tram was done 12/18/07 by PS Dr. Liza Wu. Dr Liza did a fantastic job and I'm happy with the outcome. I had my nipples and areola reconstruction 3/21/08. They make them look almost almost normal. 

  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited April 2008
    Hi Andrea - I had a hysterectomy at U of P in December 07.  I wanted to be fully recovered and healthly before my bilateral mastectomy.  My surgeon is going to be Dr. Boraas.  I really like her, she spent alot of time with me and explained her part of the surgery.  I think my PS is going to be Dr. Serletti, that is who I am scheduled to meet with next week.  Now I am really wondering about Dr. Wu, too!  Please tell me about your experience going through the bilateral mastectomy.  How long were you in the hosp? How bad was your pain? Do you really come home with drains?  What kind of recon. did you have?  I'm thinking about the one where you get the tummy tuck as a bonus.  How are you doing now?  I am so happy that you commented back to me.  thank you
  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited April 2008
    Hi Felix - This is Nancy.  Thanks for your response, this site is such a wonderful thing.  I am wondering who did your surgery.  I am wondering about the muscle sparing free tram, could you tell me basically what exactly that means.  Are your breasts a different size now than they were before?  How were the first few days following surgery, lots of pain?  I have been through breast cancer twice in 6 years.  First on the left, then on the right.  Now it is time to say bye bye to the breasts I grew up with.  The mastectomy is freaking me out a little bit, the reconstruction is the bright side for me.  Thank you so much for sharing. 
  • TammyLou
    TammyLou Member Posts: 740
    edited April 2008

    The MS Free Tram (Muscle-Sparing Free Tram, or MS2) is an abdominal flap (or flaps) that is supported (vascularly) by a small cuff of muscle.

    Muscle tends to be more active than fat, so it tends to have a robust blood supply.

    In the procedure, the microsurgeon takes a credit card sized sliver of muscle off of the rectus abdominis.  Then, the flap is reconnected to the blood supply in your chest.  (It's kind of like the process you'd have to go through to connect your foot to your forehead.)

    The way it "works" is similar to the way that amputated limbs can be "saved."  The vessels are reattached and circulated.

    If you need two flaps, the surgeon cuts your abdominal skin and tissue in half.  If you need one flap, the other half is discarded.

    There is a small risk of hernia, so sometimes surgeons insert a little mesh to support the abdominal wall.

    The typical recovery from this surgery is 6 weeks.

    Immediately following the surgery, it will be difficult for you to get out of bed by yourself.  The nurses will show you how to lever yourself up.

    I had MS Free Trams in October 2007.

    I am very pleased with my results.

    A very good website:

    http://www.breastreconstruction.org/

    In the personal stories section, there are pictures of each type of procedure.

    Tammy Lou

  • TammyLou
    TammyLou Member Posts: 740
    edited April 2008

    IF you don't have a weak stomach (aren't sensitive to graphic surgical images)...

    http://www.breastreconstruction.ca/living_tram1.htm

    Tammy Lou

  • Noni
    Noni Member Posts: 327
    edited April 2008

    Tammy Lou,  thanks for posting that link.   I can't believe my body experienced that!  Wow!

  • TammyLou
    TammyLou Member Posts: 740
    edited April 2008

    :)

    Ain't nuthin' easy about that!

    (Wow is right!)

    Tammy Lou

  • merrilla
    merrilla Member Posts: 26
    edited April 2008

    Nancy,

    I was in the hospital for four days. I went home with five of the six drains that I had.  But I was lucky in that four got removed after one week.  And the last one in two weeks.  My recovery so far is going pretty well.  I have my six week visit with the PS next Monday. I'm hopingto have the nipples done next month, but it may have to get pushed back because some of the skin was affected by the dye they injected for the SNB and it hasn't heal completely.  I was suppose to see Dr. Borsas initiately but she was booked so I went with the other breast surgeon. I had diep in one breast a tram flap in the other.  She had to take a very small amount of the muscle out.  Both were skin sparing.  My stomach is really tight right now. I'm hoping that looses up in time.  It's such a strange feeling.  The pain wasn't too pain.  I took the pain meds for a couple of weeks.  The worst part for me was trying to sleep.  I had to sleep in a chair a few nights.  I didn't have a reclinder, but one of my friends brought other their glidder rocking chair and I was so thankful to get it.   Dr. Wu was wonderful.  She's a great PS.  Wonderful bedside manner.

  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited April 2008

    Andrea,

    I am wondering why you had diep in one breast and tram flap in the other...I just expected that it would be the same.  I am a total novice, so please excuse me. I will probably be a lot more informed after my PS appt this Wednesday.  I hope all goes well with your PS follow up appt.  2008 has surely been a whirlwind for you.  Are you married or have kids?  Are your breasts bigger, smaller or amount the same after all of this.  I would imagine there is swelling and maybe you are not sure at this point.  Just curious...I was always a B - and always wished they were a little bigger!  Be strong, hang in there and Be Happy!

    Thanks, Nancy

  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited April 2008

    Hi Tammy Lou

    Just when I thought I had surfed all of the breast construction websites...wow...I couldn't believe my eyes!  Thanks for that.  I'm not scared.  It is what it is.  I hope you are doing well.  I meet with my PS next week.

    Thanks, Nancy

  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited April 2008

    Hi Noni,

    I hope this note finds you recovering well.  Could you tell me what the diep surgery consists of?  Nancy

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited April 2008

    Nancy, the Breastreconstruction.org site has a section that describes the different types of recon. the free flap showes the DIEP surgery.

    Sheila

  • felix
    felix Member Posts: 4
    edited April 2008

    Nancy - Sorry for the late response.  I'm back to work and only checked in on the comments on weekends.  Tammylou did a great job with her description of  the MS tram surgery. Dr. Wu actually said that she is only using a quarter size mucsle.

    My left breast was a little bigger initially.  However, she fixed that during areola and nipple reconstruction. Now, both look great.  In terms of pain, the pain management in the hospital was good. I was there for five days and came home with pain pills. The first week was rough, but it's worth it.  

    I heard Dr. Serletti is great.  He's the head of the PS department at PENN. He has been doing this longer than Dr. Wu.  I wanted to see him initially but he was booked and didn't want to wait. I'm glad ended up with Dr. Wu.

  • merrilla
    merrilla Member Posts: 26
    edited April 2008

    Hi Nancy,

    As Felix mentioned I as had Dr. Wu for my surgery and she had to take a small amount of muscle for the right breast.  When I read my discharge papers it stated diep was done on left and tram flap on right.  I guess that is because she had to use some ab muscle on the right breast.  And just like Felix my left breast is a little larger than the right but she is going to fix that during the second surgery.  I won't be having that until the end of May.  I have children but they are all grown up now.  My youngest is attending college at Drexel and was able to come home and help me during the first week of recovery.  If it wasn't for her and my best girlfriend I couldn't have made it through.  It was really tough but I believe it's worth it already.  I know after the second surgery things will look better. 

    Hey I have a question for Felix.  Did you have the nipples and areola done the same day.  Dr. Wu mentioned she would be doing the origami technique.  Is this what you had?  Where the aerola's tattoed. I forgot to ask her about that. 

  • felix
    felix Member Posts: 4
    edited April 2008

    Andrea- Can't remember the name of the method for the nipple and areola reconstruction.  Both were done same day and I'm scheduled for the tatoo next month. 

  • MarieE
    MarieE Member Posts: 11
    edited February 2009

    Does anyone know the recovery time for the nipple and areola reconstuction? (i.e... out of work a day.. a week or?? Thanks!!

  • nancyluvspink
    nancyluvspink Member Posts: 102
    edited February 2009

    Hi Marie - I was scheduled for my nipple reconstruction Jan 12...I chickened out.  At this point, I don't know what I am going to do.  My PS said that he would do the procedure in the office and that it was "no big deal", "really a simple procedure".  I can't imagine laying there, fully aware while he is doing it.  Sorry that this doesn't answer your question, but I felt compelled to respond! 

  • PhyllisCC
    PhyllisCC Member Posts: 397
    edited February 2009

    Marie,

    My rt mast was done Nov 07 and my exchange 5/08.  I had my nipple done in Oct 08 as part of other revisions.  So I was actually under general anesthesia.  Went in on Friday, took Monday off from work (have a desk job) and returned on Tuesday.  I don't even think there was a name for the procedure...she just took the existing skin on the breast, twisted it and stitched.  The worst was the goofy bandage to protect it.  And it was absolutely huge!   My tattoo was done in her office, took about 45 minutes... a lot of the time spent trying to get the perfect shade to match my existing side.  Then drove myself home and was at work the next day. The nip and tattoo was by far the easiest part of my reconstruction...and turned out great.  Really draws the eye away from the scars.There are some women on this site that had 3D tattoos done.  I would have considered that but I was trying to match my exisiting side.  Phyllis

  • MarieE
    MarieE Member Posts: 11
    edited February 2009

    PhyllisCC....

    thanks so much for your input.. I'm glad to know more of what to expect...

    Much appreciated!  Marie

  • MarieE
    MarieE Member Posts: 11
    edited February 2009

    Nancyluvspink...

    I can understand your apprehension... I have not set up my appt as yet... The idea of it being awake.. hmmm I can relate... but as I do not have any feeling in that breast, I suspect I will not feel a thing.. Wishing you all the best.

  • skies
    skies Member Posts: 1
    edited March 2009

    This is my first post.  I am getting my DIEP done with Dr. Serletti in two weeks.  Very scared of what I am going to get.  I have gained a lot of weight with Chemo and got worried when the nurse told me they will not touch the top part of my belly and will only work with my lower belly fat. I am invisioning this lopsided belly.  Did you guys get Lipo to look symetric?

  • Tmjy1992
    Tmjy1992 Member Posts: 1
    edited April 2013

    I am scheduled to have a diep flap on may 21 with Dr. Wu. How long was your recovery and hospital stay. Also how did she do you nipple reconstruction and areola?

  • Ondagrow
    Ondagrow Member Posts: 349
    edited April 2013

    DR. WU IS MY DOCTOR... I AM SCHEDULED FOR DIEP FLAP STAGE 2 TOMORROW...

  • Janetanned
    Janetanned Member Posts: 532
    edited April 2013

    Good morning Sohardbnme - I had me stage 2 in early February at Penn (SrugiCenter/Perelman).  It was a piece of cake compared to first go round!  Mine was scheduled for 7am, so I was at the center by 6.  I was home by noon and ready to eat lunch.  The recovery was easy.  My PS (Dr Kovach) does this procedure on Fridays. I was back to work (teaching) on Monday.  I had my nipples done and dog ears fixed.  Dr Kovach also did some light lipo around the dog ear site.  I came home with a surgical bra and bandaged nipples, both of which had to remain in place for 48 hours.  I also had a binder that I had to wear until my followup appointment.  The binder was removed for showering etc.  I will probably finish with tattoos later this summer.  HUP has a person who does tatooing in the plastic surgery department.

    I found the overall experience to be very doable.  I was back doing normal things, other than lifting, in a day or so. The Perelman Center Surgicenter is very comfortable and the staff were wonderful.  I particularly enjoyed the receptionist that checked me in.  She is quite a character.

    Pm me if you have specific questions.  I leave for work soon, but will respond later this evening.

    Good luck!  Let me know how everything goes!

  • Ondagrow
    Ondagrow Member Posts: 349
    edited April 2013

    ThAnks so much Jane... Your post helped me breath lol/serious... Were your dog ears big... Was your doctor generous with LIPO... Did you get orgamni nipples...

    I am having a breast lift, nipple and dogear adjustment...



    I have Dr. Wu... I have to be there at 11:40am...

  • Janetanned
    Janetanned Member Posts: 532
    edited April 2013

    My dog ears were more annoying than large.  They stuck out funny!  Not very nice looking.  Dr Kovack removed the extra flesh and lipoed around the revision area and around my hips.  I don't notice a great difference just a subtle improvement.  There was a lot of bruising afterwards which tylenol took care of. The scars are about 5 inches on both sides.

    The nipples are origami nipples.  They look good but I was warned that they will flatten over time.  I'm not too worried as I didn't want permanent 'high beams' anyway.  I will get tattooed this summer.

    I've heard great things about Dr Wu!  You are in good hands.  Hopefully you will be home by dinner.  Do you have off for the rest of the week?  You might be sore for a few days.

    Well, I'll be thinking of you.  Good luck!

    Janet

  • Ondagrow
    Ondagrow Member Posts: 349
    edited April 2013

    THANKS... WHAT DO SUBTLE IMPROVE MEAN TO YOU... ARE THEY STILL PROTRUDING... CAN YOU WEAR A FORM FITTING SHIRT NOW...



    I AM SO ANXIOUS...LOL THANKS FOR TAKING TIME TO RESPOND...

  • Janetanned
    Janetanned Member Posts: 532
    edited April 2013

    The dog ears are totally gone, so that's not a concern anymore.  I have a lot of weight to loose (30-40lbs), so I'm not ready for form fitting yet.  However, the lipo gave me some shape, which is good.  The rest of the fat I have to loose through diet and exercise.  I guess what I was trying to imply is that even after going through liposuction, I still have a layer of fat around my hips and stomach that I have to put some effort into loosing. I'm afraid that loosing weight will shrink my flaps, so I've avoided the whole diet thing. I'm sort of caught in this catch 22, I need to loose weight, but loosing weight might shrink my flaps.

    Try to relax.  This procedure is easy compared to the DIEP procedure.  There is minimal, limited pain afterwards and you will be surprised how nice the nipple looks once finished.  Hopefully you won't have to wait long once you get to Penn and before you know it, it will be over!


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