Anyone Triple Neg. with mets????

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MissyBraddy
MissyBraddy Member Posts: 87

I am newly diagnosed, and am triple neg. with mets to the bone and liver. I am on taxol/avastin/zometa. Just wanting to talk to others who are in the same boast as me. I also have a 4 month old baby girl. Thanks!

Missy 

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  • Analemma
    Analemma Member Posts: 1,622
    edited February 2009

    Missy, most of us with mets post on the mets board here.

    Also, there is a forum www.tnbcfoundation.org that is just for triple negs, and there is a mets page there that's pretty active.

    BrendaF

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Hi Missy,

    There are a few that hang out here with mets.  But most are in the "recurrence & mets" section as Brenda noted.  Go to Forum Index and click this area to get there.  Please do come back and see us.

    Flalady

    PS A question...it is rare for TN to go to bone early...did they do a FISH test to double check your Her2 status?

  • MissyBraddy
    MissyBraddy Member Posts: 87
    edited February 2009

    Thanks ladies! You know, I have really been thinking of having them recheck all that. I had just had a baby 6 weeks prior to being diagnosed, so I wonder if my crazy hormones after having her could have thrown tests off????

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Just have to add...what a beautiful little girl.

    And I would ask to have them rechecked? 

    Flalady

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