After less than a day, I can't wear my new forms or the bra.

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After less than a day, I can't wear my new forms or the bra.

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  • anianiau
    anianiau Member Posts: 182
    edited January 2009

    After a bilateral mx on 12/08/08, this past Tuesday I was professionally fitted with Amoena Climate Light 2A forms in size 6, using size 40B  Amoena bra, model Mona 614. Within a few hours I had swelling (about half the size of my hand) on the right side below the band and extending around the side. What a sad development! My worry is that this is the beginning of truncal lymphedema.

    I really like the bra, the forms, and the fitter. When I called the woman who fit me (she is a Platinum dealer who handles Amoena, among other brands, and an RN who previously worked in the oncology field), she said that I was 'sensitive' and should not try to wear them for a while. At this point, I have no idea how long that will be. I do have the puffy forms that came with the post-surgical camisole, but after having tried the Climate Lite forms, they are so lame by comparison. I can see why people like to have a mini-wardrobe of forms, though... 

    Any suggestions on bra styles, models, etc?

    Am I likely to be 'stuck' (in terms of insurance coverage) with the Climate Lite forms?

    Has anyone else had a similar problem with swelling, and how did it resolve?

    Would a long-line mastectomy bra be likely to help?

  • otter
    otter Member Posts: 6,099
    edited January 2009

    anianiau, I'm not a good person to reply to your question, but you've been waiting a long time.  I do understand how difficult this must be for you.

    My mast/SNB was a year ago, and I still have difficulty wearing a bra for long periods of time.  Most of my old bras don't work at all anymore, because the band is too tight.  I've shopped until I dropped, trying to find a bra that fit properly and did not put too much pressure on my chest wall on the mast side.  It's easy to tell when the bra is too tight:  even if it fits fine when I first put it on, by the time I take it off I can clearly see a band mark cut into my skin on that side.  I finally found some bras at KMart that are soft and cottony and do not cut in.  But, they're not mast bras.

    I was fitted for a prosthesis and mast bra a few months ago, at a highly regarded breast cancer-specialty store.  All the women working there have had BC and understand what we're going through.  The woman who measured me and picked out the bras insisted that I should be wearing a 34B, which is what I wore before my dx and surgery.  I pointed out how tight the band was, and how puffy my under-arm tissue was already, but she said the bra would be fine.  So, I bought 2 bras from her.  She wanted me to buy all 4 that my insurance allows, but I declined.

    Like you, I cannot wear the bras she sold me.  Even after an hour or two, the band cuts in and my chest wall and under-arm area start getting even more puffy.  It may be chest/truncal LE.  I don't know.  What I do know is that I paid (well, my insurance paid) $75 for 2 mast bras that I cannot wear.

    I like the breast form (prosthesis) she sold me, so I'm thinking of sewing pockets into my soft, cottony bras to allow me to use the prosthesis with them.

    A lot of this is trial-and-error, unfortunately.  It can get expensive.

    otter 

  • lilums
    lilums Member Posts: 37
    edited March 2009

    I've heard of women who had to wait several months before being able to wear silicone pros/bras due to sensitivity - maybe ask your breast surgeon? Otter's idea of soft cottony and sew in pockets sounds nice - I noticed with "full weight" pros, I end up hurting/very red/deep mark on that side on band of bra. When I wear weighted foam forms, I don't have that - I had my surgery years ago - I like the silicone for the "realness" but don't like the discomfort.  I wish you much luck with a solution. Also I had a lot of pain and deep itching for a few years - don't mean to sound discouraging but it can take a long time to totally heal. hang in there.

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited January 2009

    You shouldn't be stuck with your breast forms since you just bought them. Where I was fitted they told me that I could return my forms within 30 days if they weren't comfortable. I was led to understand this was standard.

    However, from what you say, it sounds as if the bra, rather than the breast form, is the main problem (though I know it's sometimes hard to sort out exactly what is causing sensitivity or swelling).

    Perhaps you can call your fitter and ask what the policy is on returns.

    I'm another sensitive person and (even before bc) always had a hard time finding comfortable bras. I've come to feel that, for me, finding the right bra is even more important than what form I wear. By the way, I have a pair of Climate Lights in size 3 and find them very comfortable.

  • SunshineSmiles
    SunshineSmiles Member Posts: 769
    edited January 2009

    I would try a bra that is larger around the torso.  I have never been able to wear a tight fitting bra since my double mast.  I have since had recon, but still don't wear my bra tightly.  I would think that your fitter would let you try another size since you had such an obvious reaction to the one she fit you with.  

    Also, I had to just wear a padded, weighted bra for the majority of time before my recon.  The other forms, etc were just too uncomfortable for me, especially so soon after my mast.  The soft cotton backing on the bra cups was way more comfortable to me. 

    Best of luck,

    Susan 

  • anianiau
    anianiau Member Posts: 182
    edited January 2009

    Thanks and aloha to all of you for your support and suggestions. This afternoon I dropped off for return the two bras that still had tags attached. Monday I will call the fitter to find out about being fitted for a lightweight form and a bra with a 42 band. (I used to wear a 42 in a regular bra.) However, after she measured me, she said I should be wearing a 38. I said that felt too small, so we went with a 40 band. 

    I think it should be standard practice to tell women what the policy is on returns. Hope the Amoena Climate Lites can be returned for something lighter in weight. Even when you buy them on-line, forms are pretty expensive.

  • tos
    tos Member Posts: 376
    edited February 2009

    When I was fitted I had on one side more of a dog ear they call

    them and also the other underarm was puffy and the gal told

    me to just stuff that down in the bra and yes it looked better

    but that was a year and a half ago and I hardly wear my

    bra or boobs.  My bras aren't too tight really I just feel so

    like I have them on, don't like it but that's me.

    I've tried the soft poofies and they seem to sit

    somewhere around my neck area. lol

    What a nightmare.  Also we can deal with

    even a little lymphedema sometimes coming

    and going in the chest area which would

    cause more of a uncomfortable feeling.

  • Mouser
    Mouser Member Posts: 245
    edited February 2009

    I'm 65 now. diagnosed at 63, then they found more ADH, so i had a left mastectomy 8/29/08. Was fitted for prosthesis after 7 or 8 weeks - surgeon said 6 weeks, but i waited a bit longer because i was so sore. Really good advice from this site, plus a good fitter, so i'm quite happy with the amoena prosthesis.

    Bought 2 bras the same day i was fitted - 1 with underwire (which is all i wore for 45 yrs!), one without because i may have some truncal lymphedema from the rads ... i already had 2 very soft 'leisure bras' from after my earlier lumpectomy, because i was told not to wear underwire bras during rads.

    Until about 4 months after the mastectomy, i couldn't wear the underwire more than one day in 3, and was sore by evening unless i wore the leisure bra (only that doesn't give my remaining breast any suppport - i'm 34 D, down from 34DD 2 yrs ago - and i hate having my breast flopping around!)

    Unlike many women on this forum, i really really need to "look good" - i can't face the world without that -- i don't wear makeup, and won't color my hair, but i've always had a good figure, and i need to keep as much of that as i can at 65! Vanity of vanities and all is vanity -- but that's how i am.

    Now i wear the underwire bra 5 days out of 7, the leisure bra otherwise - but the poofy rides 2" higher than my breast - not good. I almost never wear the tight-band bra without underwire!

    Take home message -- try things out. Save some of those insurance-paid bras for a second try.

    And remember -- you bought bras with your own money before all of this. Sometimes it's worth it?  Not saying we don't deserve the insurance -- but if i have to buy one of these $75 bras on my own, instead of 4 of the $20 bras i used to buy, i'll do it! Because. I like sleek shirts, and i do need to look good. Even tho i decided on the mastectomy (in a borderline situation - my local onc didn't think it was necessary; the 2nd opinion thought that it was), even tho i would do it again -- it's been hard enough to cope without looking like a bag lady.

    You're not me; don't take any of this as truth for you. It may take a while to work out what works for you -- take tim efor that!

    And good luck!

    mouser 

  • carol1949
    carol1949 Member Posts: 562
    edited February 2009

    Has anyone considered just wearing a bra extender on your existing bra?  That was a gift the American Cancer Society gave me in my initial packette of info.

    Also, a professional rep from ABC told me just what Erica said which is the bra is really almost more importaant than the form.

    I also was told by my oncologist to wait a few months post rads, just so I woudn't be as tender.  I do find that having a bra on too long becomes a little uncomfortable.

    Incidentally, I have also done research that indicates underwires may be associated w/ bc as they restrict the flow of the lymph system. One of my oncology nurses told me not to wear them as well!  She is in her late 50's and said she had learned it in some of the continuing educations!

  • geebung
    geebung Member Posts: 1,851
    edited February 2009

    It was 5 months before I could even be fitted for a silicone prosthesis. I had constant lymph swelling right from when I had my mx and couldn't bear anything tight over my scar. During that time I had regular LE massage and kinesio taping. When I did finally get a prosth., I had to 'break it in' slowly by wearing it for increasing periods each day. Eventually, I got used to it but in hot weather I don't like the feeling of having it strapped to my chest and it comes off (and my bra) as soon as I come through my front door. My prosth is an ABC assymetric design.

  • mysimplepleasures
    mysimplepleasures Member Posts: 1
    edited June 2009

    Hello,

     I am a fitter and yes you should be able to return your breast form within the 30 day period.  If it is the bra that is causing the sensitivity ask your fitter to adjust your fitting with a different bra.  i.e) bigger band and smaller cup or smaller band and bigger cup.  As long as the prosthesis fits into the cup proportionatly.  Don't leave the store until you are completely comfortable.  You have suffered enough you shouldn't be uncomfortable now in your healing stage.

    All the best.

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