Not IBC then what

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rosied51
rosied51 Member Posts: 170
edited June 2014 in IBC (Inflammatory Breast Cancer)

Good evening everyone,

 well my Dr said today it is not IBC BUT she does not know what it is. She blanky said you have had all the testing but we are no closer to figure this out. The intense burning and redness are still very prominent, she more or less said we are at a loss for words. They had no other suggestion  but a dermo dr. I am so dumbfounded.These breast have seen more hands and eyes in the last few months but we are no closer to a answer.Cry

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  • rosied51
    rosied51 Member Posts: 170
    edited January 2009

    I am not sure she was upset that the fact I talked with other people about this , says you can get misinformed , wanted to tell her I can learn more from my support groups than from her.Told me no 2 people are alike said duh like I know that, gosh and they get paid to tell us that. all I know is my breast is absolutey burning.

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  • runalot08
    runalot08 Member Posts: 163
    edited January 2009

    Rosie how are you doing?  Have not seen your posts in a couple of days.  Did you get to the Dermatologist and how are your balance issues going?

    Hoping you are doing o.k. and as well as can be in this situation.

    Vickie

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  • rosied51
    rosied51 Member Posts: 170
    edited January 2009

    GM, No I haven't been to the Derm yet and my balance issues are pretty nasty. The constant buzzing is getting terrible. I went to a ear Dr a few months ago and he saw no reason for this buzzing, no inflammation whatsoever, but my son brought up the idea of my condtion with Chiari Malformation might be getting worse and that could be the cause of the unbalance, I never gave the Chiairi a thought as the DR at Duke said it wasn't bad enough for surgery so I just didn't with those issues all the time and never thought about it.The DR I saw at Duke University is the same one that operated on Ted Kennedy.My health coach is concerned but have to wait & see.

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  • angeltam
    angeltam Member Posts: 248
    edited January 2009

    Rosie, I'm sorry that you too are having to go through this awful mess. When all you want is answers that will give you hope.. where you can see that there IS in deed an end to the awful symptoms.

    I've been bounced around like a bouncy ball and still no answers either. The most common problem I find with doctors is.... "Well "it" normally doesn't show up like" or "The classic symptoms" and so forth...... I to went to the Derm. and he said he wasn't sure what in the world it was but put me on MORE cream for the "dry" skin. He and his cream were NO help.

    I'm now seeing another Breast Surgeon and pray he'll be the one to bring me hope and relief. Don't stop looking for help and pushing for your health. As I've been told "You know your body better than anyone"

    Praying you get answers soon....

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  • rosied51
    rosied51 Member Posts: 170
    edited January 2009

    I wish for all of us who have no diagnosis to find the dR that will give us the report we need to get on with our lives no matter what it may be.

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  • alt08
    alt08 Member Posts: 9
    edited January 2009

    Interestingly enough the run around I have recieved from my doctor may be useful to you. (or not) A yeast infection can present with burning and white coloring in the center of the nipple.  The treatment is a 10-20 day cycle of 100mg diflucan.  This may not help you at all but if you do take the diflucan and your symptoms disappear that would be a great thing for you.

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  • rosied51
    rosied51 Member Posts: 170
    edited January 2009

    Hmmm, that is strange I have no other areas that give me trouble.How would a yeast infection affect the breast?

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  • TBird1964
    TBird1964 Member Posts: 58
    edited January 2009

    I'm with you on the yeast infection. I also had severe pain, burning and rash on my left breast fairly recently. Was treated with a topical for the rash which my surgeon said was yeast. It cleared first and the pain and burning were gone within two weeks of the rash clearing out. That was in November and the symptoms have not returned. Good luck.

     Teresa

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited January 2009

    My sister had Staff infection in her breast.  It was painful and took a couple of years to resolve. I hope you find your answer's soon.  NO IBC for you.

    Flalady

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  • rosied51
    rosied51 Member Posts: 170
    edited January 2009

    In the beginning of all this the DR put me on antibiotics for 10 days did not help 1 bit. I have no clue what to do next. pulling my hair out.

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  • Hopeful43
    Hopeful43 Member Posts: 5
    edited February 2009

    Rosie, did you have any external symptoms at the beginning? 

    I'm wondering why you have not had a biopsy yet.  It could help.

    Sending hugs!!!

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  • angeltam
    angeltam Member Posts: 248
    edited February 2009

    Praying that you get answers Rosied51. I for one know how hard it is getting someone to listen and hear you. A biopsy is NOT as easy to get as you'd have thought.

    Do NOT stop pushing for answers.

     Praying for you as well as everyone else.

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