DIAGNOSED TODAY

Options
MAUREENDF
MAUREENDF Member Posts: 16

I FOUND OUT TODAY THAT I HAVE INFILTRATING DUCTAL CARCINOMA WITH FOCAL LOBULAR FEATURES.  HELP!!!!!  I FEEL SO CONFUSED.  I HAVE NO HISTORY OF BREAST CANCER IN MY FAMILY, THAT I KNOW ABOUT.  DOES ANYONE KNOW WHAT THE SURVIVAL RATE IS ON THIS PARTICULAR DIAGNOSIS?  I AM SO SCARED

Comments

  • Lories
    Lories Member Posts: 351
    edited January 2009

    Hi Maureen, I am sorry to hear you have joined the club.  But there are a lot of people on here with lots of good answers.  Take a look, read what you can.

    I do not know statistics, I only know IDC is treatable and there are many many of us being treated and actively getting better. 

    For some of us it comes back.  For many it does not, but the main thing is to focus on getting better.  Usual treatment is surgery followed by radiation and possibly chemo.  Cancer is treatable.

    Go ahead and scream, that is good, then next find a surgeon, read posts, get books and learn what you can.  Don't be afraid. Ask. Seek, live.  

    Lori

  • maryfan
    maryfan Member Posts: 16
    edited January 2009

    Dont worry too much You have A very common treatable B C. This is the worst stage..... diagnosis. It will get easier. Keep us posted.

  • kimmy1
    kimmy1 Member Posts: 31
    edited January 2009

    This is the most confusing stage because it feels like you have been slammed - you now know what you are fighting - get in there and do what you can to beat this! This sight has some great people that have been through every stage of treatment - read through some of the posts - ask questions. We will be here. I was diagnosed in May 2008 and finished all of my treatment in December 2008 - you can do this!

  • Seven11
    Seven11 Member Posts: 162
    edited October 2010

    Maureen, sorry you have to come here.  I am in the middle of my treatment too.  It is confusing and scary and you will find out that you are stronger than you ever imagined you would be.  Read this site and you will learn a lot.  Learn as much as you can - cancer feeds on fear and you fight fear with information.  Best of luck and hugs.

  • Bethie1
    Bethie1 Member Posts: 393
    edited January 2009

    Sorry to hear you joined us!!!! I joined the group 2 weeks ago after finding out I had invasive ductal carcinoma.  I had my modified radical mastectomy yesterday after an attempted lumpectomy.  The lumpectomy couldn't be done because too many lymph nodes were affected. 

    I was scared, and it's OK to be scared.  Your team of doctors will walk you through every procedure you have; the mammo, the x-ray, biopsy, etc.and explain everything!!!

    I start chemo next week.  You're in my prayers

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited January 2009

    Thank you so much for your kind words of encouragement.  It really helps to know you are not alone.  I wish all the best for you as well.  You are in my prayers!

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited January 2009

    Thank you so much!!!!!!  You made my day!

  • Estepp
    Estepp Member Posts: 6,416
    edited January 2009

    You are not alone ! You have a whole group of beautiful women here ( and some men) to be your support and friend. We understand your pain and fears... and everything in between!

    Ta Ta Sisterhood,

    Laura

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited January 2009

    Thanks Laura, we really need to keep up a sense of humor thru this!!!  Hope it all goes well!  Prayers for all!

  • jancie
    jancie Member Posts: 2,631
    edited January 2009

    Sorry for taking so long to respond but I have been on heavy meds for the past 3 or 4 days - I have lost count that I couldn't type at all let alone I was totally incoherrent and wouldn't have made any sense to anyone other than myself Laughing

    There are so many wonderful women on this board that will be so supportive and help you out every step of the way.  Have you received a pathology report yet?  The information on the pathology report will assist us in helping you sort through your questions.  Don't hesitate to ask your doctor for a copy - there is no valid reason for him to not give you one.  I know some are hesitant because they don't think we will understand the terminology, etc and they want to explain it to you on their terms.  You shouldn't have to wait for your next appointment to get the pathology report.  I went straight to the mammogram center and got a copy of mine.  I was told the report would come out in 24 to 48 hours and I had it 48 hours laters.  Because of the report I was able to give the women here more information about my cancer and they were able to help me get through my anxiety attacks.

    Also get some valium or xanax.  Believe me it will help you get through the process in a much more calm manner - just don't expect to remember everything the doctor tells you, write notes and better yet if you have a husband or friend, bring them along with you. 

    Since I found out I had cancer I have lost all of my short term memory. I know it is stress related. I have to write everything down.  I can't remember from one day to the next what appointments I have, what time my horse riding lessons are, etc. (when I am physically able to ride).  I only remember to take my pain meds because I am hurting like hell from my SLN biopsy.  Not to scare you, it is not that bad it is that I have zero tolerance for pain and have been that way all of my life -other people get through it just fine, my body doesn't tolerate pain.

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    Hi Janice,

    So sorry to hear about your pain.  How long ago were you diagnosed?  I'm doing o.k.  I meet with a surgeon on Tuesday, am realllllllyyyyy scared, but I know that I have NO choice.  Sad!  But I really am o.k with this.  I am trying to keep up a positive attitude, but It just hits you sometimes, you know, out of no where!  Wish me luck!

    Maureen

  • LizM
    LizM Member Posts: 963
    edited February 2009

    Hi Maureen,

    I was diagnosed with infiltrating mammary carcinoma with ductal and lobular features which is the same diagnosis as yours.  Basically, your breast cancer is both ductal and lobular (I like to call it IDLC) which should not change your prognosis or treatment plan.  Most IDLC's are estrogen and progesterone positive which is a good prognostic factor and will mean you are a candidate for hormone therapy.  You are at the hardest part of your journey when you don't know exactly what you are dealing with.  Once you have a treatment plan in place, you will hopefully feel better.  I know you are scared but hang in there and remember we are all here for you.  I was diagnosed over 3 years ago and I am just fine.  Take Care,

    Liz 

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    Wow, you made my day!! I am going to see a surgeon tomorrow, and am really scared.  What is hormone therapy?  I know nothing about it.  Will I still receive chemo/radiology?  Thanks for your kind words, everything at this point helps,

    Love,

    Maureen

  • Robyn66
    Robyn66 Member Posts: 169
    edited February 2009

    Hi Maureen,

    I am sorry you have to be here, but this is the best place to be if you are in this rotten situation!

    You are at the scariest part of the process.  The not knowing is the WORST! 

    Hormone therapy is a pill you take every day for like five years after your initial treatment is done.  When I say initial treatment I mean surgery, and radiation or chemo if you need it. 

    The bc I was diagnosed with was found at my first mamogram and I have no history in my family either.  There is no question this sucks!  One thing  you should know.  People are going to gang up on you and say be positive about a million times a day.  I just want you to know that its ok to be upset, scared and cry your heart out.  I know I actually felt like I was letting people down when I had bad days!

    Get some nerve pills to help you get through.  Good luck sweetie, we are all here for  you!

    Love

    Robyn 

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    Thanks Robyn,

    I know, people have all said to be positive, etc..........I am trying, but it's really hard.  Thanks for the words of encouragement.  Nerve pills?  Do they really help?  I will ask my Dr.

    Love,

    Maureen

  • Robyn66
    Robyn66 Member Posts: 169
    edited February 2009

    No problem sweetie we have all been where you are now and its hell.  I have lorazepam others can get vallium or xanax.  It really does help.  I don't know how I would have gotten through the whole test and wait nightmare without them. 

    I know you are trying to be positive.  My husband would really get mad at me when I would be down at first like some how if I wasn't Polly Positive every minute of the day I was willing myself to death.  My husband is a wonderful man and he only would get mad because of how helpless HE felt through all this.  I noticed that my family has often done the same thing.  Now that the surgery is over and I am going through chemo and we are all pretty confident that I will be ok, they have forgotten about me.  WHich is great in some ways, but when they call and I am having a bad chemo day they will just say "oh well you can get through it"  which can make me CRAZY at times!!!!

    Just know that you are handeling it the best you can and it is imposible to be positive all the time.  Don't put the additional pressure of trying to put on a front of being brave!   You are already a warrior woman!  Feel free to pm me if you ever want to talk.

    Love

    Robyn

  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited February 2009

    Hi Maureen,

    So sorry to hear about your diagnosis girl. I'm glad you found this board though. I was dx (diagnosed) 2 yrs ago; I had a double mastectomy, chemo & a hysterectomy. I am single and live alone so I do not know what I would have done without the women on this board. They have helped me through some really tough, scary, lonely times.

    I hope you post again soon to let us know how you are doing.

    Hugs, Traci

    ps Xanax helped me too!!

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    HEY ROBYN, THANX FOR THE SUPPORT.  I HAVE MY SURGERY ON MONDAY, AND AM FEELING KINDA OVERWHELMED.  IS CHEMO REALLY THAT BAD?  YOU LOSE YOUR HAIR, RIGHT? DAMN.  I KNOW I SHOULDN'T BE SO VAIN, BUT THIS IS REALLY SCARY.  IT'S NICE TO KNOW THAT PEOPLE LIKE ME ARE SURVIVING EVERY DAY, SO THAT GIVES ME HOPE!

    I WILL LET YOU KNOW HOW THE SURGERY GOES.

    LOVE

    MAUREEN

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    HI TRACI, I TOO AM SINGLE.  I HAVE A BOYFRIEND AND LOTS OF FAMILY AND FRIENDS, BUT IT IS SO SCARY.  I HAVE MY SURGERY ON MONDAY, AND AM KINDA ANXIOUS.  THANK YOU FOR THE KIND WORDS.  HOW  ARE YOU DOING?  THIS IS ROUGH!!!!

    LOVE

    MAUREEN

  • kim40
    kim40 Member Posts: 904
    edited February 2009

    Hi Maureen

    I was in your shoes only a short time ago.  My surgery was on the 13th of Jan. and I was beyond anxious.  I asked the doc for something to help me sleep and it really helped a lot.  I am now 5 weeks out from surgery, feeling pretty good and now waiting to meet with the docs about my treatment plan.  The worst part of this journey, as some of our sisters told me, is the waiting and they are right.  This forum is a great place to come for questions,rants and raves, and whatever else is going on. Please let us know how you are doing after surgery.  Hope things go well.

    ((((((Hugs)))))))

    Kim

  • Denali
    Denali Member Posts: 347
    edited February 2009

    Maureen, you're going to do fine!  But get a prescription for Xanex!  It'll help calm you down and we really need a boost right after diagnosis.  I sure did!  It's become my new best friend!  I had my mastectomy Jan 16th and don't need it as much as I did before surgery.

    I had my first chemo Thurs and it went very well--be sure to have a port put in for chemo.  Before I lose my hair I had a 'wig party yesterday.  Any excuse for a party!  You should too!  Take some friends into the wig shop and have a ball, trying on different styles and colors.  It was fun and can hardly wait to get the one I ordered.  I'd like to get a 2nd one that's kind of wild.  I'm 60, but I guess I still have my wild streak.

  • Denali
    Denali Member Posts: 347
    edited February 2009

    Maureen, you're going to do fine!  But get a prescription for Xanex!  It'll help calm you down and we really need a boost right after diagnosis.  I sure did!  It's become my new best friend!  I had my mastectomy Jan 16th and don't need it as much as I did before surgery.

    I had my first chemo Thurs and it went very well--be sure to have a port put in for chemo.  Before I lose my hair I had a 'wig party yesterday.  Any excuse for a party!  You should too!  Take some friends into the wig shop and have a ball, trying on different styles and colors.  It was fun and can hardly wait to get the one I ordered.  I'd like to get a 2nd one that's kind of wild.  I'm 60, but I guess I still have my wild streak.

  • LizM
    LizM Member Posts: 963
    edited February 2009

    Try not to worry so much about whether you are going to have chemo, just try to concentrate on one step at a time which right now is your surgery.  I looked at my surgery as a transformation from a breast cancer victim to a survivor.  I couldn't wait to get the cancer out of me so I could move forward with treatment.  After surgery, whatever is decided for your treatment will be to prevent a recurrence (adjuvant therapy).  Some have more aggressive treatment, some less but the goal for whatever treatment you have is to keep you cancer free.  If you do find out you need chemo there will be many women here to help you through that step, including myself - the same goes for any other treatment you may need.  We have all been where you are now and will be here to provide support in any way we can.    

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    Hen Denali!

    I made it out of surgery, and feel pretty good.  I am a little anxious about my next step, i have a feeling its a doosey!!!  Oh well, that's life, I guess.  Thanks for being there with kind words of encouragement.

    xxxoooo

    Maureen

  • MAUREENDF
    MAUREENDF Member Posts: 16
    edited February 2009

    Thanks Liz,  I came out of surgery o.k.  Hope the next step goes well.  I have much to think about!

    xxxooo

    Maureen

Categories