Scared that I have Bone Mets!!!

Thanks to everyone who responded,

      Today is the day I go and see what the heck is going on I am going to think positive!! Not that I want a autiommune problem but its better than the alternative thought. I did not sleep well at all last night. As we all know I won't get the full picture until they can figure out some things but I am hoping he can put the bloodwork test and what I read to rest. I think it will make me feel alot more secure. Its funny how others don't understand. They are like well it could be something else etc etc. but they do not realize the Big C is always looming over our heads whether we want it to or not. And I feel like I am usually a pretty positive person but when you have been on multiable meds for Neuropthy fibro etc and its not working and then you still have severe pain after your chemo has been over for 6 months you do get a little scared. I am only human and it makes so mad when people tell me diffrently and I should think a diffrent way or I am going to make myself sick. Well give me a answer why this is a issue and I hurt 24/7 and its in my face and then I will get over it. Namely my sister who gets mad at me when I say something. You would think I would learn to keep my mouth shut. But this time my mother called her. I told them if they don't cut it out and make me feel worse instead of supporting me I won't tell them anything. They hate that I go online and talk with you all they think I get to many bad thoughts in my head from reading posts etc. But you ladies keep me sane!! That is what I say to them. Sorry about going on and on but it just burns my butt!!!! I will let you all know how the outcome goes.

                                               Thanks again, Bridget

Laura,

   Thank-you for replying I am sorry about your pain, but at least I have found someone who believes it could be the Herceptin. My Onc. says no its not but I truly believe it is. My NP at the Onc center wrote a letter for me and it states right in the letter that Herceptin can cause bone pain. So we are not crazy. I did not due Taxol but I did Abraxane and that can cause the same issues which my Onc. thought was neuropthy which I did have but its weird its never been in my feet just legs. Neurologist did all the emg and muscle testing and the only part that came back weird is when he stuck the needles in my legs I could not feel them. But for me it seems much more than just nerves its a terriable bone ache. I will be glad when I go for my scans on the 2nd and rule out those terriable thoughts going through my brain. Are you on any meds for this? I am on pain meds and cymbalta but it breaks through. I have a appointment with a pain management Dr. in hopes we can come up with something else. I don't do well with meds they do exact opposite on me. Its all so depressing I just want to be me again and I just can't get there.

          How much longer are you on Herceptin? I have to July I go for my muga scan soon also they have had to stop giving me it to get my numbers up and it still running at 50% so it will be intresting to see what it comes back at after another 3 months, I am starting to breath heavier.

             Did your Onc. say it could be the Herceptin?

                                      Good to talk with you!!!!!

                                                  Bridget

Hi,

     I think I got my question answered. I hope!!!!!!!! It may be the herceptin causing its havoc in my system. I am ultra sensitive of meds. But I have mentioned this a couple of times to my Onc and she just refuses to believe it. I know others on the Herceptin thread have experienced the same SE so this is what I am hoping. I go for all scans after waiting forever for them to be ordered. I finally had to go over the Secetary who had the orders on Dec1st and as of last Friday had not done it after repeated phonecalls not enough to be annoying though cause she still blew me off. I finally talked to my Drs. nurse and explained how stressed I am about getting these done especially sense I did not have contrast on the last ones.Do to them not being able to find a vein without it blowing. I will find out Tuesday my results. Keep your fingers and toes crossed for me. I now am calmed down alot since I now know I am not the only one feeling this way.

    I believe my calcium levels are borderline, and my cr-creatin level was very high which my Rheumotologist said it can do this even if I have a sniffle. He redid the test and it came back normal. And I scared myself cause I did not know what that test was associated with and it mentioned possiable cancer issues I guess its a protein we make. I really need to stop looking things up and scaring myself silly, I don't know if I would be so freaked out if I was alesser stage then stageIII and being triple positive and Her2-+++ I have way to much time on my hands.

                  Thanks for answering me though I really appreciate it.

                                                         Bridget

LuAnnH,

      Thanks for all the imfo you always give the best advice and you sure know your stuff. Its weird how much you learn going through this. I talk to my husband and he looks at me like I have 2 heads cause he does not understand a thing. I just wanted to thank-you and tell you how appreciated you are on these boards. You are always so kind to everyone. And if I could and this may sound like a silly question but I really don't know. The first set of scans I had last January were Muga, CT, and Bone Scans. I only went into 2 diffrent machines and I have heard others that they can see stuff on their bone scans I could not see anything. So I am not sure which machine actually does the bone scan. Also they did not give me contrast due to bad veins and they could not get it in. I was able to get it in for the Muga. Then when my scans were suppose to be ordered again this month I asked if they could do all 3 again and was told no you never do the muga with the others. I don't get it. They did write a report on the bone scan so I must of had it but I just don't know which one of the scan machines did it. Sorry if this is silly but I thank-you if you could tell me and what you think.

                                                   Thanks-LuAnnH!!!!!