Starting chemo January 2009?
Comments
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BevR - yes, i have the protein supplement every day. here are the ingredients: 1 cup organic plain yogurt (from trader joe's); 1 heaping teaspoon creatine (from max muscle);1 heaping tablespoon organic ground flax meal (from whole foods);1 heaping tablespoon organic flax oil with high ligans (from whole foods);1 scoop L-glutamine (from max muscle);one heaping teaspoon Fibersure (from long's drugstore); 1 scoop whey protein powder (from GNC); 1 cup organic frozen blueberries (from trader joe's; 1/2 cup calcium-fortified orange juice. it's not necessary to buy organic, but i do when i have the option.
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Jess, I haven't spoken too much with my onc about Taxotere, but I did talk with my oncology nurse. She said that generally FEC is tougher nausea-wise than Taxotere - she said people generally cope better on it than with FEC. But I guess everyone is different so no guarantees - I'll see what my onc says when I next see her and let you know.
According to the SE sheet I have for Taxotere though, the common side effects are low blood count, hair loss, fluid retention, mouth ulcers and general weakness/fatigue. Uncommon ones include things like nausea and vomiting. So maybe you doctor expects you to be feeling more tired rather than sick as such.
Good news re the WBC. I don't have mine tested until Feb 2 so by then hopefully it'll all be okay.
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Ok day wed was first TC...I am flying high!!! Must be the steroids!!!! Help!!!! When will I crash!!!! Has the nuelasts shot last night. I feel like I am my skin is crawling. Had last round of roids last night......hep!!!!!! Should I have asked for the ativan? Took a ambien last night slept til 2am...advice?!
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Hi all TC # 2 is in - My WBC went from 1.7 to 8.4 - ANC from 0.2 to 6.8 - in seven days. Once they kick in and start producing, your bone marrow makes a million cells a day --- Praying for my bone marrow worked! Hope this is the case for you JillyG. Thankful to stay on schedule and have two done. I feel exactly as I did last time -- no new weirdness -- yet. Took Milk of Magnesia last night - my new best friend ---Imagine that! Will repeat tonite and every night as long as I need it - using the Phillips non-cramping formula - no cramps. Using colace and fiber pills - two a day (have for a long time) .And dried fruit.. I will not have constipation again, that was horrible the first time around.
Jan 2 Jewels - thinking about you.
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ddlat - Just a head up, not a warning since alot of this stuff is debatable but my nurse recommended against the L-glutamine. I think she said some study indicated it might intefer with one of the chemo drugs.
Al0- I was told to expect a crash when I went off the steroid but instead of just stopping cold turkey she has me tapering off with two morning pills today, one tomorrow and a half pill on Sunday. She said might help with the crash. But I have not really be effected by the steroids for some reason. I am taking one adivan (IC LORAZEPAM 5MG) at bedtime and sleeping through other than needing to pee. I was told I could take two if I needed them.
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Thank you for the welcome, ladies. Nice to have you guys to talk with.
I agree with you all about the "cumulative" thing. Don't need to hear that one any more.
Here's a couple more that are already getting old:
"I knew someone who had chemo & THEY didn't lose their hair." Just what I need right now, a fairy tale.
"You've got to keep a good attitude." Spoken by people who haven't a clue what you are going through. Better be careful about throwing that remark out at me in a couple months.
Oh well, I did pretty well with the first AC yesterday. Just minor SE's. Had the neulasta today and seem to be okay there, too. Or, is that "cumulative", too?
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Thanks for all the adivce....I'm gonna pop a colace right now!!!!
I'll ask about the weaning of the roids for next time!!!
Crazy stuff!!!!
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I had my first TC yesterday and so far so good except for diarhea. Has anyone had trouble with that? I was so worried about constipation that I went ahead and took Milk of Magnesia to ward that off and ended up with the other problem - very unusual for me.
Also, my mother in law sent me this great book called Cancer Vixen by Marisa Acocella Marchetto. It is about the author's breast cancer and I could really relate. Has anyone come across that one? I don't think I've ever had a cartoon make me laugh and cry.
For all you teachers out there - how's it going in the classroom? I teach high school and there really seems to be more elementary teachers out there. I'm only going back for 1/2 days and I think that's going to work out well. Another teacher who is right down the hall from me just got a diagnoses of ovarian cancer - my heart is breaking for her. They did a hysterectomy 3 days after her diagnoses and found cancer everywhere. They are being cautiously optimistic about her prognosis. This makes me feel really lucky about my situation - I just have some treatments to go through to make sure this doesn't happen again. She's fighting for her life right now.
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Hey all January Jewels...and a special shout out to the Jan 2 gals who have just had tx 2. Just get us through the side effects and we're halfway there!
I spoke with the nurse who did the infusion about some of the se's I had the first go round. One of which was the constipation. She gave me samples of Senokot and suggested I take them when I take vicodin for bone pain. She also recommended Colace, so I went ahead and bought some of that. The thing is that I didn't really have a whole lot of bone pain, and only took vicodin twice, so I'm wondering what else causes the constipation? But she did say that stopping the meds for that as soon as I had "movement" was the way to go so that I could avoid the diarhea that I had last time as well.
I know I'll get the balance of all of this right...yeah, as I'm completing the last treatment!
How about chemo fog? Anyone getting that? I know I am as my short term memory is just getting a little whacked. This mornig I took my steroids and calcium with my breakfast. As I was going for tx, I had to give it serious thought if I had taken the steroids or not. Later at the pharmacy, I kept tellimg myself as I was waiting for a prescription to get filled to remember to get Tylenol. The next thing I know, I'm the freeway...and no Tylenol. Also, watching Jeopardy, I just sat there thinking "Oh I know it's...uh...well...it's...ah well...what he said..."
Now I have post-it blocks in every room to either provide me with a new list, or to remind me of something.
Also noticed my tongue starting to have that numb feeling already. Tomorrow is Neulasta shot day...At least I'll remember to have it in the stomach. Just need to remember the Claritin! I forgot how the first days of treatment are filled with managing the meds...crazy... Okay, now I'm just rambling, so...
Big hugs to all of us!
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I can sooooo relate to the " culmulative effect" comment from people as somewhat irritating. I also am irked-though I know people are well intentioned- by "Oh, your attitude is great!" This is mostly by people who do not know me. Yeah, right. Whatever. I am a person who does not like all the sudden attention. Of course they made the announcement at work and now people feel compelled to suddenly help me out, and I feel bad because I suppose I should be gracious and accept it, but so many times in the past they've walked by me and totally ignored me. Am I off base and selfish to not feel right about accepting their graciousness???? When the say, "whatever you need......." I DON"T KNOW WHAT I NEED! I know what I want, I want to be forever cancer free and I want the researchers and doctors and nurses and all the people involved in finding a cure to find one. I don't want anymore of the JANUARY JEWELS and all the other wonder people on this web to not have to suffer anymore. I desire the folk who offer help to be around when my hair has grown back and i am slinging the hash with my students and they show an interest in their lives, their learning , their needs. I long to laugh without worry and get up and go outside and run a couple of miles, then come back in and go back at it the next day.
Okay, enough of that tirade.
Lester 63, I am a high school teacher. I have quite a regimine I go through in the morning to disinfect my room. I have a huge bottle of hand sanitizer and every person who walks through the door uses it. The teaching staff has been very nice about making sure they don't send sick kids through my door. That part is very smart thinking and very helpful and I do appreciate that support.
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Hello everyone: 2nd tx done Thurs. Went to work yesterday. Felt really good!!! Imagine that. Neulasta shot yesterday so far feeling okay this a.m. I am having trouble staying asleep at night so I may need to ask for something to help w ith that but I feel really fortunate that is the only Se I am really having. I thought I might get a lower dose chemo this time since I ended up in the hospital for 4 days after the 1st tx. but my dr said he did not want to go to lower dose yet and gave me permission to be mad at him if I ended up in hospital again. Nice of him huh? He said that in his experience the neuropentic fever (sp?) only recurs in about 20% of people and he would rather give full dose if he can. So we wait and see now. He did give me oral anti-b's to take this time starting on Monday since it was Tues. after last treatment that I started to run fever. And I have to go see him on Wednesday, which is the day I went into the hospital last time to check WBC count. Hopefully being proactive will prevent a repeat of hospitalization.
My hair is coming out really fast now. I will probably shave my head today. Yesterday it took me longer to wash the hair off my body in the shower than it to took wash what little hair I have since I did cut it really short a few weeks ago. Last night it was coming out on my pillow and everytime I turned by head I got a face (sometimes mouth) full of hairYUCK I am not sure yet what I will do on my head. I have bought some hats,scarves and a wig but not really excited about any of them. Since I work in a preschool I was thinking at work at least I may do a different funny hat thing everyday. Kids would love it. I am having a hard time finding funny hats though that will be confortable. Been surfing the net and checked out some stores. I got a batman type ball cap yesterday because I thought the boys would appreciate that. Well if anyone has any suggestions on where to purchase funny hats let me know,
Sounds like we are all doing pretty well and I am so glad to hear that. As far as the cumulative fear best to remember that with each tx we are closer to the end and be grateful for mild SE's when we have them.
God Bless! Have a good day everyone. Patti
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It looks like a lot of us had our 2nd treatment done. Yey! And eadsla, we are also on the same schedule with TC along with kt57 and Stacey. Good to hear that yours went well, too, kt57! So far feeling good. My face is blushed again, and have a lot of energy I think due to steroids. had trouble sleeping last night.
I do get crazy cravings, too! I am craving on roast beef sandwiches! Hope everybody else is doing well. And thank you, Lisalisa for keeping us updated on your progress. It is good to know that your second treatment is going well, too.
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Hey all, did not have a very good night last night. Warning TMI ahead. I was all bloated and gassy during the day so I was eatting lots of fiber and took miralax and a colace. All night I was tooting like train which was not pleasant for others but gave me some relief. I went to sleep very late and woke in the wee hours cramped and needed to use the bathroom but not wanting to get out of bed. I finally made myself get up and spent a long time sitting and emptying. It was not the loose mess of diariaha but I still got that awlful cold sweat that comes with diariah and I was feeling very tired and cramped. Then my head started to hurt in spots, like I was wearing headphones that were too tight, but all I had on were ear bud for my Ipod. I guess that is the chemo working on my hair follicals. Then to add to the joy I got my period this morning, though it looked strange, just one long dry string of red. I guess the dry mucus has an effect. Today I am not cramped but achey and tired. My ears ache little but they tend to do that alot due to wax build up. I am taking my tempurture at the moment but so far it has not gone above 98.9 but it is taking forever to beep.
I was going to take my son to a puppet circus at our local Wellness Center (a place for cancer support programs) but I don't think I have the energy and probably should not expose myself to the germs. Too bad it is free and might have been fun and is very near my home. My parent are leaving today. I hope I have the energy to get through the next week with my son. I have to see if I can get some friends to do pick up after school. That will help alot.
Hope everyone else is doing well.
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renrel - isn't it just the most frustrating thing that our docs cannot get on the same page about supplements??! all my docs and dietitian (at the hospital) strongly recommended L-glutamine as well as creatine every day in my smoothie. i've done a LOT of research on it, and i find nothing but support for this.
here are some of many links i've bookmarked about l-glutamine specifically with regard to chemo:
http://articles.directorym.com/Glutamine_and_Chemotherapy_Toxicity-a961722.html
http://www.bromleyhealthmanagement.com/health/living/00035lglutamine.htm
http://www.vitalnutrients.net/hq_handouts2.asp?VitaminName=Glutamine (Powder)
http://content.nhiondemand.com/psv/monoAll-style.asp?objID=100186&ctype=ds&mtyp=4
http://www.obgyn.net/newsheadlines/womens_health-Oral_Mucositis-20040701-101.asp
http://www.caring.com/tips/reduce-tingling-and-numbness-from-neuropathy-with-powdered-l-glutamine
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Hi all,
<:AtomicElement>Renrel- your tmi description was so appropo! I have to admit I had to laugh at the of your descriptions.
<:AtomicElement>
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hi all, had tx on friday, nauseous, fever 99.8 all night. feeling alittle better today.just still tired and weak. This was tx 1b my first 4 cycles are 2 parts
jily try some protein, my sis-in-law is onc nurse she said that may help.
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I hope everyone is having an ok day. I'm so happy to say mine has been great! Been feeling really well and I'm just now getting a little bit tired, but it's been a pretty full day. I finally did the hair thing today and may I say it having it buzzed was a total non-event. It doesn't look that bad. And I LOVE the wig!!! My neighbor, who I see daily and knew I was going today came over and said "you decided just to get your hair cut instead?" She couldn't tell, LOL!!! I'm so relieved it's done as this was absolutely my biggest issue. And just in the nick of time, too. When I pulled the elastics out of my braids at the wig place big ole' chunks of hair came with them.
My only problem today is a little bit of heartburn, other than that no se. So all in all, tx #2 so far so good.
Hope everyone else is ok!
Diane
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Get my luck... I knew it was too good to be true...1st treatment day was great, next day too.. then bam... Neulasta shot brings on bone pain and exhaustion and I suddenly get a period (which I haven't had for months). So, I have been down! Like I've gotten hit by a truck.... so weak that I actually consider peeing in my pants as an alternative to pulling myself up to go to the bathroom.. lol. How's that for TMI? lol Hmmm... maybe I should get some Depends. I called the dr and asked her if chemo or the shot can actually stimulate a period but she thinks it's coincidence... which sucks for me... coz even when I'm healthy a period drains me... and now it's come at the worst possible time. Ugh!! I'm thinking my first treatment experience has been suddenly made to be much worse than it should be because of it. I thought chemo was supposed to put me in menopause... whatever!!!! Okay I'm on day 5... so when do you start to feel better? At least no nausea... just weakness and pain in every bone and joint....
alo - you still doing okay?
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Hi Jilly,
I have never heard of that ,I am going to go look at my lab sheet to see what it says, hope fully it will be higher on Monday are you doing 2 or 3 weeks in between??? Happy weekend!! Pamela
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I am so glad for this support board! You are all my main cancer support even though I don't check in much.
I had my second AC chemo yesterday and I have been quite tired and have a headache. I am talking Eleve, Zofran, and one other drug for nausea at home. Plus they gave me something for nuasea in the drip yesterday. My headache is definietely lighter than the headache I had after the first round. I do take Lunesta for sleep which may be why I am so sleepy.
My stomache is queasy but I haven't vomited. The nausea wore off after about four days after the first round. I am able to eat. I am taking a Centrum with iron and that's all for supplements. I got a protein powder for after the mastectomy and implants, but could not down it. I have gained a couple of pounds since I started chemo but I think I am just nervous about the issue and am putting too much emphasis on it.
I had my wig trimmed by someone who has worked with cancer patient wigs for a very long time. She did a beautiful job of whittling it down to a plausible texture for me. I also had fine textured hair. It wasn't long and I was not so attached to it. I am happy with the shape of my head and baldness is sort of a novelty.
This cancer experience is incredible. We are getting through it. Every day we are one step closer. Man.
Hang in there everyone. Hope everyone is feeling OK.
Nancy
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Holtbolt....I am so sorry!!!! I hope tomorrow is better.
Tylenol and raglan are my new best friend!!! Oh and amdien at night!!!! I hate the steroid buzz!!!! I can walk 500 miles!!!! You know that song!!! I can't get it out of my head!!! My skin is crawling!!
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Hello, January Members ~
I'm here to join you as my first chemo treatment is this coming Tuesday Jan 27th. I will have 4 rounds of Adriamycin/Cytoxan and 4 of Taxol with a week in between each treatment.Hugs to everyone,
Artemis -
resben - Hope you had a better day today.
Shocked- Yeah for a good day. I admire your spirit and the way you are embrasing the moment. I think it will take you through this journey and to many special places.
hotbolt- intresting that we are both hit with our periods today. I wondered if my New Years period would be my last due to all the talk about chemo and tamoxin putting you into menapause. For me though it is a weird almost non-event. Barely anything there. I was not even sure what it was this morning in the toilet until I dapped to make sure the blood came from where I thought it came. Never had anything like this. Maybe it is just a foreshadowing and I will start a real flow in a day or two. I did not have the nuelasta shot but I am also full of bone and joint pain today, though not enough to keep me from going to the bathroom. You must really be hurting doll. I was debating going to the bathroom last night though. I just want to lay in bed and be rather than deal with what my body needed to do even though I was hurting pretty bad.
yearofthehat - Glad the wig came out well. I am still waiting for the hospital boutique to call to let me know the ones I ordered came in. Then I can choose and they will style it. I did make an appointment with a wig shop that give away free wigs through the American Cancer Society to see if they have anything that will work for me, maybe as a back up wig.
Alo - When do you go off the steroids? Are you tapering or going cold turkey. I am suprised that I am not getting a buzz from them since I can not even handle Claritin D without getting buzzed.
Today went pretty well other than being very tired and lots of bone and joint ache. No nausea or queasinness that I remember. I slept late given the bad night and was kind of annoyed that nobody even asked how my night was or seemed to notice that I was wiped out and did not want to talk about stupid things like whether I still had a use for some baby product that was still sitting in my kitchen. My parents left around noon. DH took DS out sledding after he spent about 4 hours watching tv this morning. I really hate how much tv and computer time he is getting these days. It is going to be a hard habit to break. While the were out I forced myself to take a walk for exercise and sunshine. It has been so cold and snowy around here I wanted to take advantage of a reasonably warm day while I could. I walked about a half hour. I find it so strange how people I meet have no idea what is going on in my life. That I had bilatal surgury two months ago, that I had chemo last week, that I expect to lose my hair in a week or two, that my body hurts. I just like like a health young woman (in my mind anyway) without a care in the world taking a walk in the snow. Reminds me how little I know about all the people I pass in the street. What prayers and blessing they might be needing. Why they may look sad or mad or just be acting like jerks. I also wonder how I will feel when I am walking around in a month with a hat or scarf that screams baldy and people do know something is up.
When I got back to the house I climbed into bed to rest. DH dropped off DS and went to the store. DS (age 5) came up to my room and after awhile got his leapster game and played in my bed while I half napped till he decided he was ready to nap. It was really sweet laying in bed with him being both aware of the aches in my body and the feel of his body touching mine ever y so slightly. i have not napped with him since he was an infant. We both took a very long nap and then I woke up and read and he continued to sleep with his head on my lap. Of course he is going to be a pain to get to bed tonight (DH is giving him a bath now to help that along) but it was worth it. I need to find some thing we can do together in bed or on the couch that does not take alot of energy but is not electronic.
So far my stomach is feeling fine today. I am hoping to have a good night. We will see. i have not been drinking as much so maybe I won't need to pee so much. How long are we supposed to be guzzleing water anyway?
I am worrying about the energy to get DS to and from school this week. It takes 1-1.5 hours to get to and from his school because it is near where I work on near home. I have to see if I can call in a few offers to help.
Welcome Artemis - We cross posted. Sorry you are here but I hope we can help you through the experience.
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Artemis... I am starting chemo on Jan. 30. I will also have 4 rounds of A/C and Taxol. Come join us in the "starting chemo in Feb. 2009 thread". We are all starting this together. I have been so scared but everyone here has really helped me relax and realize I am not in this alone. It is great.
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Thanks, Donna ~
I'll see you in the February thread! -
It's Day 3 after my 1st chemo session (1 out of 4 TC sessions) and I'm feeling slightly better.
Day 1 was a no visible side effect day, slightly tired in the afternoon but I managed to entertain a guest. Day 2 was like slowdown day for me. I practically slept the whole day! Had some minor muscle pain but nothing the meds couldn't conquer.
Wasn't able to eat much yesterday since the idea of oily/greasy food made me a bit queasy. My appetite is coming back today but still can't eat that much.
How long does the SE last? I plan to go back to work tomorrow but if this tiredness I'm feeling is still there, I might have to stay home tomorrow.
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Jas_man - My SEs sound a little like yours. Well, worse. I did have an awful headache for days after the first chemo but I did feel normalish about five days after. Now I am two days out from the second treatment and am a little quesy and tired but I have been able to do a little around the house.
Holtbolt - So sorry you are having such a crummy time! I had a migraine with my first chemo and it was rough. Tylenol helped some. You might want to ask for a scrip for something stronger. Can anyone at home help make the calls and run the errand for you? It will get better.
Welcome, Artmeis.
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Renrel, I admire how you are handling your family life. I have a Chihuahua and a cat who seem to know I am sick and just like to lie with me, so you are incredibly strong to be getting through this with your family.
I also wonder whose paths I am crossing who are also going through this. We are not alone.
I have had some chest pain and shortness of breath. The nurse said to keep an eye on it and make sure it is only intermittent and mild. She said to keep pushing the fluids, so I have been guzzling away. It really does seem to help my breathing.
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Hello Warrior Jewels - I've taken a few days off - taking advantage of feeling almost normal before 2nd tx on Tuesday 1/27. Went out to dinner with friends on Thursday evening while I still had hair. 37th anniversary on Friday 1/23 celebrated by learning how to do headwraps with the beautiful Anokhi scarves that were one of my gifts. DH helped me buzz the rest of the hair yesterday. I guess I feel that each of these milestones brings me closer to a return to the good life.
I found that searching You Tube for "headwrap how-to's" turned up the best clips. BTW check out the great video of a rehearsal for a T mobile commercial at Liverpool Station. It brings smiles everytime I watch it.
We seem to be all over the place with digestive reactions. Immodium is going to become a supplement for me. My new favorite breakfast is Gerber Rice baby cereal. And I am thrilled to report that I was able to start drinking coffee again after week 2.
Much love and best wishes to all of you as we begin another week of this trek. Your openness, humor, kvetching, vivid descriptions, advice, etc. are lifesavers.
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ddlat- Those are great links about L-glutamine. My boyfriend's mother is 73 and is having chemo and radiation at the same time, in her second bout with colon cancer. I don't know if she is using this. I'll be sure to get the info to her. Thank you!!!!!!
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