Saying no to Chemo

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Hi,

I am having a double mast.  My lump is 1.5 cm and I am ER+PR+HER2+++.  I am wondering if anyone out there has made the decision of not having chemo with a similar situation.

I look forward to your advice.

PdlC 

Comments

  • mary6204
    mary6204 Member Posts: 373
    edited January 2009

    Hi, Pdlc, Are cases are quite different.  I did not have a mastectomy, my lump was under 1 cm and I am hormone negative and HER2+  I went through chemo and radiation and the chemo was hard, but I'm so glad I did it.  Herceptin (a drug for HER2+ cancer's is a wonderful drug and it gives us HER2+ woman so much hope.

    I had my one year mamm yesterday at a facility that gives you the results right away and they found nothing to be concerned about!!!  I am grateful, thankful and so relieved.  My mom got BC and had a lumpectomy, radiation and went on Tamoxifin.  Four years later it came back and had already spread to her liver.  1-1/2 years later she died after it spread to her brain.  I am so glad I did  chemo and just knowing that I did everything I could to be a survivor helps a lot.  I feel great and so happy to be a one year survivor.  If your oncologist recommends chemo, and I would think it will happen, I hope you listen and do it.  It's not fun, but it's do-able and so worth it for peace of mind.

    Good luck and God bless, Mary

  • lisasayers
    lisasayers Member Posts: 850
    edited January 2009

    My tumor was only 6 mm...and I had a bilateral and am currently going through chemo.  It has been very doable.  Being triple positive I'm pretty sure they will tell you chemo. 

    Do your research!  Best of luck

  • 07rescue
    07rescue Member Posts: 168
    edited January 2009

    I am very in favor of alternative health care, but because I also have HER2 +++ breast cancer I have opted for the bilateral mastectomy and chemo, and will use alternative treatments both to help get through chemo and afterward to repair the damage, and to assist my body in every way possible to avoid a recurrence. I hope to live the best quality of life for the longest time I am able. Her2 +++ cancer is too aggressive for me to forgo western allopathic medical treatments.

    I want to support you to do whatever is right for you, butfor myself I would choose BOTH approaches, and chemo is a very important, and imperfect treatment which is a compromise I choose to accept in this case. 

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited January 2009

    pdlc,

    I'm all for alternative you can see my many post.  But for you...please do conventional treatment.  You are "triple positive" this is very serious disease.  You can find alternative that will not effect your treatment protocol.  And you can rebuild your body after treatment.  Many of us do.  But please understand you are not like many of the ladies on the site. (I'm not either...9 diff. chemo in three years shows aggressive disease.)  Your receptors are rare and a lot harder to treat. I do both (alter/conv)  and work a full time job and have a life even after three years of treatment.

    You need to kick this in the butt hard and than rebuild your body and fight off any recurrences. I don't want to scare you but I've study both sides and know quite a bit about bc from non-stop research.  Many early stages bc ladies can treat with alternatives but their disease is different than yours.  You must take this serious.

    Sorry to be out spoken...but I very concerned for you. I love all ladies who seek alternative protocols to supplement or treat their bodies.  But you also must know your disease.

    I hope you find your path.

    Flalady

  • mom_of_2
    mom_of_2 Member Posts: 347
    edited January 2009

    PLEASE CONSIDER CHEMO

    I am also ER+, PR+, HER2+++ and after 8 short weeks of treatment I had a clean MRI. I am following thru with treatment plan and had a total of 20 wks chemo, bi lat w/ TE, 1 yr of herceptin and 5 yrs Tamoxifen. I know its scary but you can do it!

    You are in my thoughts 

  • pdlc436
    pdlc436 Member Posts: 60
    edited January 2009

    HI!!

    Thank you all for your encouragement, I will definitely do it.

    Mom_of_2, when did you complete your treatments?  Ane permanent side effects of the chemo?

    PdlC 

  • mom_of_2
    mom_of_2 Member Posts: 347
    edited January 2009

    I finished my chemo November 4th and will continue herceptin until June. No lasting side effects. I actually tolerated fairly well. Lost hair day 14...plus side didn't have to shave or dye roots, achey body (flu like), fatigue, no appetite and nausea. White blood count dropped and needed Neupogen and Nuelasta injections. All in all ok...hair started growing back before chemo stopped and now two and a half months later I have 2+ inches of very curly hair. None of these side effects are perm and you can get through them...please consider treatment...Kris 

  • pdlc436
    pdlc436 Member Posts: 60
    edited January 2009

    Hi,

    Your words of support helps immensely.  I am definitely doing chemo, I don't want to be sick ever again! 

    Paula 

  • jader
    jader Member Posts: 223
    edited January 2009

    I am er+ .. unknown pr and her2+++

    I did chemo ... every percentage point that gives you another chance .. I took it!

  • mom_of_2
    mom_of_2 Member Posts: 347
    edited January 2009

    Paula

    I am so glad you are at peace with treatment. Your simple words gave me chills. Please keep in touch and let me know how you are doing. Feel free to PM.

    I'll be thinking about you,

    Kris 

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited January 2009

    pdlc,

    We are there for you.  Please do a lot of reading while in treatment.  There is so much you can do to rebuild the body and continue your fight. 

    Be sure to read in the "getting through treatment' notes on how to get through chemo.  There is some very good info they will help you.

    Best wishes for gentle treatment.

    Flalady

  • Luckysmom
    Luckysmom Member Posts: 49
    edited January 2009

    I am so glad you are going the chemo route; it's rough but it's doable; and absolutely use these boards for support! I had chemo in 2006 and have had no lasting side effects; am just as sassy as ever!!

    Best wishes and treat yourself with care; you deserve it and you deserve to live!!

    Brigitte

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