Need help after one sided mastectomy

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I had a total left mastectomy back in October and since then I have been bra-less. I bought a couple of mastectomy bras but I don't like them. They don't look good on my right side where I still have my boob. I used to be 34A/34B. Any suggestions of bras+form? I am not ready for a fitting yet.

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  • wishiwere
    wishiwere Member Posts: 3,793
    edited December 2008

    There was a thread somewhere they discuss bras and proths and some very good suggestions about them.  Here it is:  http://community.breastcancer.org/forum/82/topic/709120?page=4#idx_104

    Hopefully you can click on that thread from here, if not, you might have to cut and paste into the browser window.

    You don't have to allow anyone to see yourself if you are uncomfortable, but the women who do fittings are very good at making you feel comfortable.  If you still aren't after talking with them and discussing the fitting, you could just allow them to measure without your shirt off to get started and then go from there.  Trying them on in a fitting room without them present.  But it really is better if they can see your breast that is still there, in order to more closely match the proth to it.  Everyone being built so differently it's hard to guess which proth might match up with your other one otherwise.

    I waited a year b/c of the issues you have, plus I never liked bras much anyway, so it was the worst part of recovery, admitting I now had to wear one most times in public :(  You can order online, but until you get a sense of what the fitting entails and what the proths are and how they work, you might spend a good deal of time and money trying different types :(

    Visit that thread started by Erica and her site also has a lot of great information!  Good Luck to you!

  • otter
    otter Member Posts: 6,099
    edited December 2008

    Yes, simvog, it is difficult to bare everything, including that mast scar, to a strange woman.  But, the place where I went to be fitted was run and staffed by women who'd had breast cancer themselves.  They had seen and experienced it all.

    One reason why it's helpful for the fitter to be able to see our whole chest is because some of us are missing more tissue than others.  Sometimes the mast side is perfectly flat; sometimes it's a little indented; sometimes there is more or less tissue on the side of the chest under the arm.  Fitters are supposed to take all that into account when they decide what type of prosthesis and/or mast bra would work best.

    As I've mentioned elsewhere in this forum, I have a perfectly good, $$$ silicon breast form I bought last month, along with 2 nice mast bras.  They're still in the BC-pink bag.  Instead, I'm wearing a soft, cottony bra I bought at KMart, with a fiberfill puffy in the cup on my mast side.  I'm small (34A/B), and it works just fine for me.  I do plan to sew some pockets in my favorite bras, so I can keep wearing them.  I figure since I don't need all that elastic for support of a large boob (and prosthesis), I should be able to stick with my favorite bras.

    otter 

  • Nancy10102006
    Nancy10102006 Member Posts: 25
    edited December 2008

    I, too,had a total left mastectomy.  I was very nervous about going for a fitting; however the woman who helped me was so kind and very good at doing the fitting without making me feel embarrassed.  Afterward I was so happy to have a well fitting breast form and bras paid for by insurance....be sure to check yours....mine covers 6 mast bras per year.  It has been over a year and I am still wearing mine. I agree that going for the fitting is very worth it.  Just tell yourself that you'll be glad you did...and proud of yourself, too!  After all you've been through - you can do this :-).

  • caaclark
    caaclark Member Posts: 936
    edited December 2008

    simvog-

    I am not sure where you are in NJ but I am also from NJ and my fitter was excellent.  She made me feel comfortable and she knew right away what I needed-both physically and emotionally.  I went to Sylene's in Lawrenceville.  I realize you don't know me but if you need someone to go with you pm me and I would be more than happy to meet you there.  I cannot say enough great things about my fitter.  The day I left with the prosth. and a few mast bras was the day that made me feel back to normal.  Good luck.

  • havehope
    havehope Member Posts: 503
    edited December 2008

    Thank you all for the kind words and encouragement. I will check with my insurance to see what they cover and will go from there.

  • lafera12
    lafera12 Member Posts: 71
    edited December 2008

    Hi Simvog,

    Most insurance companies cover one prosth. every two years and about 3-6 bras a year.   Where in NJ are you, I'm in southern Ocean County and went to the Bra and Girdle Factory in Lakewood.  They have a special area just for women like us.  They were wonderful, kept bringing out different bras for me to try on until I found the right one...Good luck--you will feel 100% better with the right bras and prosth...

    Angie

  • bre
    bre Member Posts: 89
    edited December 2008

    Hi Simvog,

    I am about the same size as you.  I had  a right mast.  I did the same as you....felt that I just couldn't go to a fitter and put it off for months.  After I went, I couldn't figure out why I waited so long.  The bras and prosthetic she fitted me for were sooo much more comfortable and natural feeling.  Once you get fitted and know about what you want, you can also get bras, forms, etc from tlc catalogue put out by the american cancer society.  They have an online site and you can also get catalogues delivered to your home.  They are much cheaper but you need to know what you want and size so you don't waste time and money.  Good luck!

    Bre

    1.7cm tumor plus malignant microcalcifications, er+/pr-/her2+++, stage 1, nuclear grade 8, no nodes, idc

  • golfer779
    golfer779 Member Posts: 1,378
    edited December 2008

    Simvog ... I too was a bit apprehensive about going to be fitted ... long story short, waited about 4 months from my mast surgery went to Nordstorm's (I don't know if there is one in your area), came home with a prosthetic and the best fitting bras that I've ever own.  Low and behold I had been wearing the wrong size for many years and never knew it.  I had a girlfriend join me, we shared many laughs which made for a great day.    Try to make it a fun day !!!

    Carol 

  • lilums
    lilums Member Posts: 37
    edited March 2009

    Dear Simvog,

     You mention you have mast bras that don't fit your remaining breast well - I am small too (34A/34B) and have the same situation. It seems the mast bras are great for bigger breasted girls - I either put a bust cup on that side to smooth it out or use a regular bra with either a silicone pros (either against skin once you are healed enough - ask doc, and if you find it comfortable - or in the cloth cover) or a polyfill (puffy) or foam pros, some have  a little weight.  Or there's some other non-silicone ones that are made to wear with regular bras: bosom buddy and jillianna - can be bought online and under $100 so cheaper than silicone. It's been 10 years and I still try different bras/pros - best of luck to you!

  • havehope
    havehope Member Posts: 503
    edited April 2013

    Thank you all and Happy Holiday!

  • NancyNJ
    NancyNJ Member Posts: 128
    edited December 2008

    Can someone tell me when after surgery to expect to be able to be fitted? I've been using a post mastectomy camisole but I'm fairly big chested and have no support for the other side. I really ned to get into a bra.

  • lilums
    lilums Member Posts: 37
    edited March 2009

    Your surgeon is the one to tell you when you can be fitted - for most, it is 4 to 8 weeks after surgery to allow for healing, swelling to go down etc.  You might get more support from a leisure bra with a puff on the mastectomy side - ask your doctor.  Best wishes with quick healing! There are many types of forms and bras, so take your time to find what works best for you. :-)

  • 4bethann
    4bethann Member Posts: 34
    edited January 2009

    I just love the Classique bras (style 768) and my Airway form.  The Airway has a natural looking fron, a soft microfiber back and some type of beads inside that conform the the contours of your breast area- amazingly cool and comfy.

     I also like the Amonea Comfort Plus gel backed form, but for pure comfort the Airway is amazing.

     http://www.classique1.com/bras.php 

    http://www.airwaymast.com/breastform.html 

    http://www.amoena.com/us/Products/Breastforms/Natura/ 

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited January 2009

    bethann,

    I also wear Airway breast forms--mine are the Airway Tritex Triangle and they are so soft and comfortable against my skin. Mine are the ones pictured in your link. However, they don't have any beads inside--just the very soft silicone form with an ultra-soft microfiber backing. Is that the one you have?

    I've recommended this form here and on my website (BreastFree.org), but not too many fitters seem to carry Airway, so not that many women get to try them. By the way, Anita Care (a European company which makes wonderful mastectomy bras) has bought Airway and I believe they've started marketing the Airway forms under the Anita name. Perhaps they'll get better distribution now. I'm glad you're enjoying yours!

    Barbara

  • anseliam
    anseliam Member Posts: 5
    edited January 2009

    Nordstrom's sews in a pocket on regular bras for free if you have an "outplant". That way you can have something comfortable and pretty.

  • OLBinNJ
    OLBinNJ Member Posts: 236
    edited January 2009

    Try the ABC T-shirt bra (style # 105).  It's the ONLY mast bra that works for me as it's made for petites (I'm a 34 A/B).  Good luck.

  • Sossy
    Sossy Member Posts: 22
    edited January 2009

    I actually had some bras altered at Nordstrom to include a pocket.  They were nice, but the one I really liked I actually found at Gap Body (you can order online if you don't have one nearby).  It's called the shaping bra.  I didn't need to have any pockets sewn in.  I just put my prosthesis in the cup, and it was completely hidden and stayed in place no problem.  Plus it was more comfortable and attractive than any mastectomy bra I ever saw.  It has lightly lined cups that help make both sides look more even too.  I was surprised so few mastectomy bras had lined cups.  That just made no sense to me since my regular breast and prosthesis look so different from each other.  Oh, I'm also a 34A/B.  Hope that helps!

  • Sossy
    Sossy Member Posts: 22
    edited January 2009

    Oh, I just checked Gap web site, and they're now calling it the "Shaping T-Shirt Bra".  Comes in colors now too!

  • havehope
    havehope Member Posts: 503
    edited April 2013
    thank you everybody. i am going shopping! (on line) Laughing
  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited January 2009

    Nancy, I've got one very large breast too. Not long after surgery..pretty much when I could confidently do up a bra..I took the underwire out of my surgery side and wore the bra as normal. You can kind of fold the cup flat. Pretty soon after (maybe 2 weeks out of surgery) I bought a good foam form. I never had any discomfort or pain wearing that and I went back to work double-sided! As I healed fairly flat, that form ended up too small and I bought a big, fitted silicone one. I've just about decided to not have recon, just have a reduction on my 'good' side. When that happens, it will be back to the smaller foam form (yay!!) and I'll donate the big silicone one. 

  • marvinr
    marvinr Member Posts: 3
    edited August 2009

    Anything loose and blousey. Avoid anything tight around the midriff or arms. Cotton things are good. You should be wearing compression stockinets an both arms from wrist to shoulder to keep edema down. You won't be working for awhile especially with drains in. The surgery takes a lot out of you. Your arm is going to be weak and sore you will need to be fitted for a prosthetic bra soon too.

    Total Mastectomy

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