Something that may help Caringbridge

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40baldboobless
40baldboobless Member Posts: 16
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Hey Everyone,

Just wanted to say thanks for all the information that you guys share.  I must confess, I'm mostly just someone who reads the posts and not really write anything.  I've been a member of the IDC club, (doesn't that sound a vacation/timeshare thing?) since Nov. 7, 2008.  This is my second cancer.  I'm a 20 year Hodgkin's Lymphoma Survivor also.  Since I started chemo Jan7, 2009 (Taxotere/Cytoxan) I begin using a great web site and wanted to share with everyone if they are interested.  It's called caringbridge.org.  It's a reputable site that allows you to blog and share you experiences with family.  You can posts pictures and just say what you would like.  I think it's therauputic and also helps when you just don't feel up to answering the phone or repeating the same story AGAIN.  You are more than welcome to visit my page.  I don't know how to enter the url to show up except to say that you can go to the site (www.caringbridge.org) and click on the purple "visit".  Then enter my name "tinaoates" all one word and you are there.  There's no charge and you can set your security up how you would like.  It seems like we all share the details of chemo, radiaiton, surgery, side effects, etc.  I thought this might be something that some of you may find helpful.   Maybe everyone's aware of it already but I thought I'd share. Have a great day!

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  • samiam40
    samiam40 Member Posts: 416
    edited January 2009

    Thank you for sharing this.  Members of a young women's breast cancer group I recently attended suggested I set up a caringbridge site, but I really had no idea what it should say.  Seeing your site was very helpful. 

    I had thought they mentioned having a caringbridge site would be useful for coordinating offers to help by friends (meals, babysitting, etc.), but I don't see a place on the site for that.  Do you have any advice in that regard?

    Thanks again.  You are certainly an inspiration.

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  • 40baldboobless
    40baldboobless Member Posts: 16
    edited January 2009

    I would guess that "maybe" you could just mention stuff in your journal.  Like put a meal schedule or  list doctor's appointments that you may need someone to go with you.  Stuff like that.  Then your friends, family etc could leave comments regarding what they were planning on doing.  It's just a great way to communicate with everyone, I think, and gives you time with your family so you aren't on the phone constantly.  Everyone means really well.  I've had friends go through this and I'VE was the who was calling.  This way everyone knows how you are doing and feels connected and you don't feel like you're a leaving someone out.  Besides, it's FREE therapy.  You can rant, as I do, and no one will say anything to you about it. Smile Also, I think it's neat because at the end of all this, you can have your journal and friends comments all printed out in a book form.  I have a 7 year daughter and thought that would be something great for her to read at some point.  She would see that mommy may be a little off her rocker from time to time but a wonderful way to document this.  It doesn't matter what you say.  It took me a while before I could put "all this" in it's proper place in my head.  Once I sorted it some of it out, it was easy to write.   I'm still sorting but by God's grace, I'm making it and it's really only through my faith that I can.  I hope you find the site helpful.   I did.  Have a great evening and here's hoping all results are groovy. :-) 

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  • Deb-from-Ohio
    Deb-from-Ohio Member Posts: 1,140
    edited January 2009

    I have one on there also and it saves me alot of time, otherwise I would be typing out a hundred emails per week!!!!!!!!  My friends checked the box to subscribe and they get an email each time I update, it's really nice!

    www.caringbridge.org/visit/debbiecaudill

    Luv, hugs and prayers

    Deb

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  • 40baldboobless
    40baldboobless Member Posts: 16
    edited January 2009

    Thanks Debbie for showing me how to write out the address.  I will email this out to folks instead of my convoluted instructions. www.caringbridge.org/visit/tinaoates

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  • Poppy
    Poppy Member Posts: 405
    edited January 2009

    We have good friends whose 4 year old daughter was dx with leukemia in October. The mom has been using caringbridge to keep everyone updated and it's great b/c we (the recipients) can have e-mail updates sent every time she posts something. It's also a great way to offer support and well wishes w/o the person/family who is going through treatment having to reply to a ton of people. I think it's a great site.

    Erica

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