Anyone starting chemo in Aug. 08?

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  • alibug05
    alibug05 Member Posts: 182
    edited January 2009

    Well ladies I went for my month check-up for my radiation doctor.  He said everything looks great and I feel great.  So 1 doc down and 2 to go.  I go to my next doctor on February 5th.  I hope everyone is doing well......  Mamakaren sorry to hear about your Dad.  DesertRider glad you made it through your surgery!!!!  Lashon glad to see you back!!!!  Lisahugs that really stinks about your arm hope it gets to feeling better!!!!!  Keep pushing through ladies!!!!!!  Loves to all............. 

  • mommy3abm
    mommy3abm Member Posts: 221
    edited January 2009

    WooHOO for successful dr. appointments, surgeries and loving husbands/fiance's and NEW boyfriends developing from old friends!!  We are a lucky group!

    Warm hugs, thoughts and prayers for follow up tests and scans, surgeries, surgery recoveries and healing radiated skin. 

    Girls, we have ALL almost beat this beast...KEEP IT UP!

    Karen, what a powerful story about your dad and you.  Daddies are special people!  My thoughts are with you both!

    Things here are great where treatment in concerned...only 3 more rads to go!  But, just found out dh's job is getting cut by 70%!!  NOT a good thing.  We are sending out resume's as we speak and are considering job possibilites back in VA and in PA.  I would hate to leave my family again but, can't help thinking that maybe we were brought back here just long enough for me to get treatment and have the close (distance) support of my family??  The timing of it is just too coincidental with the end of my treatment phase and the fact that our tenants backed out of the lease on our house in VA and are not paying rent anymore.  Also, luckily we haven't signed a lease extension here in TX yet and our lease is up next week!  So, prayers please that the job situation is quickly remedied!!  It will be tough with medical bills and a family of 5!

    Stacy 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Stacy, I will be praying for your DH's job to work out. It is good that you are nearly done with your treatment. STill It is quite a concern to not have work lined up with a family of five. I hope you don't have to move far from your family.

    I just got a call from a nurse case manager from my new health insurance. With five days to go until surgery, I am finally in their system and approved! He asked if I thought I might need home health care post surgery, and I told him yes and he said if the doc orders it, he will approve it. That eases my mind a bit as I will be caring for myself alone while DD is at work.

    Tom and I have decided to postpone the honeymoon to FL until I am recovered from rads. We will sneak off to a honeymooner's resort in the Poconos for the weekend, instead. So I get TWO honeymoons out of this! Something to look forward to.

    Ten weeks and two days until our wedding!

    Bette 

  • g94u67
    g94u67 Member Posts: 436
    edited January 2009

    Hello all,

     Well, this isn't a good week. Darn Taxotere creeped up on me fierce. Feels like double flu. Ugh. The hot flashes aren't as bad but the aches and headache. I was so happy DH was home yesterday to help. I'm a little  better today. All I can think, "2 more TX's...2 more TX's!" I can't wait!

    Tonya: I'm so happy to read you have someone special in your life now. You deserve it!

    Deanna:  I'm sorry to hear about your leg pain.  I feel you!  Sometimes I just want to cry. I'm sure it is a reaction to the chemo.  I'll be saying a prayer for you.

    Glad to hear your implant surgery went well Gail. You must be relieved. You're right. After chemo, I think we can accomplish anything.

    LaShon: Glad to hear from you too!  I'll be praying for a successful surgery & recovery for you.

    Thinking of you all,

    Jeannine

  • Corinne6
    Corinne6 Member Posts: 311
    edited January 2009

    Hi everyone, I have been sooooo busy and so much is happening that I have not had time to write, However, I have read and caught up with everyone. As for me last Thurs, I had surgery for clean margins. I was very close in the margin but not close enough. I am now headed for a masectomy. Went for an ultrasound on my other breast today and have a biopsy scheduled for tomorrow. It is so small they can't tell. Ugh!!! Anyhow, my lymphedima is doing much better and my spirits are good.

    BetteLou: The other night, coming back home from church I was thinking about your Bible verse and you. As I was thinking my daughter asked if we could sing a new song that she had learned in her video class. I said, "Sure, what is it?" She said, "We are more than conquerors!!"" I was so surprised but then why should I be with God??? Anyways, do you know that song? It says.

    I will never, never fear, so let the battles rage,

    He has promised to be near

    Until the end ot the age.

    What a week and I have just been singing that song over and over, The Lord is in control and there is nothing I can do but trust Him.

    Wishing you all the VERY BEST , Corinne

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Corinne, I have been trying to Google the lyrics of that song with no success. How does it begin? I'd love to find the music and lyrics.

    Bette 

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2009

    Corinne ~  So sorry to hear that you're not done with surgery yet.  I just hate it when you think everything is okay, and you find out it's not. Is there any chance they can or would you want them to do a 3rd lumpectomy?  I've read many accounts of women needing 3 tries to get clean margins -- as long as they're sure nothing else is going on.

    Mamakaren ~  Thanks for sharing such a personal, touching story about your Dad's cancer dx. It certainly is a thought-provoking one!  I hope he will be able to have that surgery for his broken arm tomorrow.  I'll be thinking of you, and praying that all goes smoothly. 

    Gail ~  I was thrilled to see your post.  We'll have to get together soon to celebrate. 

    Jeannine ~  Sorry that Taxotere is taking its toll on you.  It's certainly worth doing when you realize it's probably life-saving, but I just wish they could either get the SE's out of it -- or at least provide full disclosure.  But the oncs don't even seem to want to acknowledge the joint and muscle aches.

    Stacy ~  What a shock about your DH's job.  But, you know, it really does sound as if things are falling into place for a move, doesn't it?   My heart  goes out to you because this is one stress you certainly didn't need quite so soon after everything else you've been through.  Will keep you & your family in my prayers ~  

    My rad onc's nurse called this a.m., and, thank God, my MRI was totally negative.  So, I guess I'll just have to work on building up my body with exercise and good stuff, and see if I can overcome the pain that way.  But, needless to say, I'm incredibly relieved to know that everything is "normal," in spite of the unattributable pain. 

    Take care, everyone ~   Deanna

  • Misty1
    Misty1 Member Posts: 272
    edited January 2009

    Good for you, Gail!  Glad everything went well.  It sounds like you are happy with the new girls!!  As time passes, you'll recover quickly!!

     I had my 9th Herceptin today.  I am officially halfway through this treatment.  I expect to finish by the beginning of July!!!  Woo-hoo...  Then, just the Tamox. for 4 years & 10 months!!!!

    Love to all!!

    ~Misty

  • Corinne6
    Corinne6 Member Posts: 311
    edited January 2009

    Bette, the song is We Are More than Conquerors written by Ralph Carmichael. I found it in hymnal called Majesty Hymns,

    We are more than conquerors through Him Who loved us so.

    The Christ who dwells with-in us is the greatest pow'r we know.

    He will fight beside us though the enemy is great.

    Who can stand against us? He's the captain of our fate.

    Then we will conquer,  never fear; so let the battle rage.

    He has promised to be near until the end of the age.

    We are more than conquerors through Him who loved us so.

    The Christ who dwells within us is the greatest pow'r we know.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Corinne, Thanks a lot. I found the sheet music on a PDF, so I think I can pick out the tune.

    Yesterday, at the advice of my nurse case manager, I began showering my surgical area with an antibacterial soap called Hibaclens. It is supposed to reduce the risk of infection, so I'm willing to try it.

    It is 11 degrees in West Chester with wind chills below 0. I have to go out this morning, so I must carefully protect my nearly bald head. Soon I will post an avatar with my "new look"

    Today is a day of laundry and packing for my two-week sojourn with my daughter. I haven't spent long lengths of time with her since she got married in July 0f 2007. I guess we will get reacquainted, plus I will get to know my son-in-law a lot better as well.

    I am at peace about this mastectomy now. All I have to do is look at the "before" pictures of my angry, diseased, cancerous breast to remind myself that I really do want it gone. I want to build a marriage with Tom, and that would be a short-lived thing if I held on to my cancer. Don't get me wrong;I still have moments of regret. But in my heart I am agreed that it has to go.

    Bette 

  • TXBadboob
    TXBadboob Member Posts: 597
    edited January 2009

    Hey, everyone.

    Deanna- I'm so glad to hear your MRI was neg!  I find that I suspect every little ache, pain, and weird spots on my body now. Totally paranoid!  I hope your pain goes away, too.

    Stacy- I'm sorry about the DH's job problems.  Very scary for you, but it sounds like God is in the drivers seat once again!  Hope everything works out good for you and your family, but hate to see you leave our great state!

    Bette- my prayers are with you for your upcoming surgery.  Glad to hear you're to be with your daughter through this.

    Corrine- Sorry about you needing more surgery, my prayers are with you on your upcoming tests.

    Jeannine- I hope you get to feeling better.  We're blessed to have good hubbies to help out.

    My last TX is next Tues!  I am so scared they're going to tell me I need more chemo.  I don't know why I'm paranoid about that.

    I have been having appts with different PS and GSs.  I don't want to just go with who they tell me to, although I may choose them.  I just like to know all my options.  The PS I just had an appt with(looked like Keanu Reeves, woo hoo!), told me I might have to have rads according to the pathology after the masectomy.  My onco and GS told me back in Aug, that I would not have to have rads if I chose bilat masectomy, so I have to get this straight!  I also found out if I want a DIEP, I only have enough stomach for an A cup.  So it looks like I'll have to go with expanders and implants.  Kinda sad, I wanted the tummy tuckFrown.  So I may have questions for those of you who have gone through the expander/implant procedure.

    I hope everyone has a great day!  Deen

  • mamakaren
    mamakaren Member Posts: 225
    edited January 2009

    Deanna, Praise the Lord!!! I'm so hapy for you at least now you can be at ease. Lets fill our bodies with positive thoughts and vibes.

    Stacy, I'm praying that everything works out, we already have enough on our plate as it is.

    I hope everyone has a wonderful weekend!

  • Hood1980
    Hood1980 Member Posts: 537
    edited January 2009

    Bettelou - Have fun with your daughter!  It should be a great re-bonding experience for both of you!

    Mamakaren - Sounds like you & your Dad had a very special relationship!  I'm so blessed to still have my father!  I think I'll go give him a call now!

     Deanna - Great news!  (& a big relief too!)

    Deen - I'm not having a smooth reconstruction either.  I've been hanging out on the breast reconstruction board trying to find out more info.  I have my TE & the ps originally told me that I was going to get silicone round implants and the ps tells me on Tuesday he's going to do anatomical salines (he's not part of the clinical trial doing the gummy silicone anatomicals).  Easier to match the existing breast using an anatomical implant. Like you I couldn't do the DIEP unless I wanted to go smaller than my current size.  Who would want to do that and end up with that big hip to hip scar?  Not me, anyway!  Too scary!

    Anyone out there with saline anatomical implants? 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Hood, what has been your experience with your TE? I have just been reading the reconstruction forum, and there seems to be a lot of discussion about TE pain.

    This is making me nervous as I am having a TE placed with my mastectomy on Tuesday. Yikes! What am I getting myself in for?

    When rads are completed and the TE filled, I will have DIEP. I am a plus size person who unfortunately has enough stomach tissue to reconstruct several breasts. Too bad I can't donate some!

    Seriously, my PS has advised me to lose some weight, which I am willing to do, and also do exercises to build my core strength in preparation for the eventual DIEP surgery. There is a man in my church who is studying to be a personal trainer, and he says he will help me with that.

    I know it ill eventually be worth it when the cancer is gone, and I have two perky size C (instead of DDD) breasts.

    I'm REALLY thinking ahead here.

    Bette 

  • Hood1980
    Hood1980 Member Posts: 537
    edited January 2009

    Bette,  I had the mx first & then had the TE 3 months later.  The mx, in particular the SNB, was more painful than the TE.  I did have to have 2 drains both times, and they can be rather painful & uncomfortable to sleep with.  With the TE, after the drains came out, 3 - 4 days, I didn't have pain as much as tightness.  Having the TE placed at the time of mx, your bs should do a skin sparing mx so you shouldn't be as tight.  Of course they will give you plenty of pain meds to help , but I only had to use a couple.  I'll be praying that goes well for you on Tuesday!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Hood, I am not having a skin-sparing mastectomy as I  have inflammatory breast cancer, which means the cancer is in my skin as well. so it all has to go. My guess is that I am going to be fairly tight. I plan to take my pain meds on schedule and try to stay on top of it.

    In other news, The toenail on my big toe just fell completely off, so now I have a naked big toe. It had turned black on taxotere, but I though it would hang in there. I got out of the shower and it was hanging by a thread. I guess much grosser things have happened!

    Bette 

  • Corinne6
    Corinne6 Member Posts: 311
    edited January 2009

    Good News FINALLY!!  My needle core biopsy turned out to be only a needle biopsy because it ended up being a cyst. I am okay. Hurray!!  Anyhow, going for Herceptin Monday and finding out when I am scheduling my masectomy/ I truely was so elated yesterday. The doctor told me he thought it was a solid and not a cyst but decided to do a needle biopsy first just incase he was wrong. When he aspirated it it actually went away. We were all relieved. The nurse gave me a hug and the doctor seemed overjoyed.

    My hair is growing in. I think it is at least 1/4 an inch. My nails look despicable but I feel great. I am now doing a mile of treadmill walking in 17 min.

    Deen, I'll be praying for you on Tues. Just think you LAST one!!!!

    Misty, I am finishing Herceptin in August. Yahoo!!

    Jeannine- How are you feeling today? Your almost done!!! What a relief I am sure that will be!!!

    Deanna. I am so happy for you with your MRI/ God is so good!!

    Well, for all the rest of you have a great weekend. Has anyone heard from Kimberlynn?

    Corinne

  • DesertRider
    DesertRider Member Posts: 178
    edited January 2009

    Corinne,

    I am so relieved for you, too! We all think everything we get is suspicious and to find you are OK is wonderful!

    My hair is at 1/2 inch and stopped growing, I'm sure!!

    Jeannine, thinking of you, will be so glad it's almost over.

    Great weekend to everyone!

    Gail 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    My hair is about 1/4", a mixture of curly black hairs and white hairs that are sticking straight up. If this continues it will be a very interesting bridal look. Seriously, I could wear my wig and dress it up with flowers or something.

    Surgery on Tuesday, Phase 2 of treatment, followed by rads and reconstruction. It will be a long haul, but worth it ion the end.

    Have a great Sunday and MLK day!

     It's time to start packing for Baltimore!

    Bette 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Hi all!  Hope everyone is well, had great holidays and is enjoying 2009.  I had my last tx yesterday.  Called my BS earlier this week to schedule scans and, OOPS I was told he "decided not to continue with the clinic"!  What's up with that??  Anyway, I'm ok with the BS that took over my "case".  I'm too close to surg to be switching to another clinic.  As far as I know, I will be having surg the 2nd wk of March (gotta have my Mardi Gras) and 6 wks of rads about a month after surg.  I'm starting to read up more on rads and I think I'm scaring myself.  My skin is usually very sensitive at first to the sun, I burn easily and have blistered horribly before.  However, if I'm careful out in the sun (good sunscreen, limit exposure time, etc) I can stay in the pool every day and get a nice beautiful tan.  It's a mixture of Spanish and Irish and my skin seems to take on both.  I just don't know what to expect, but I think I'm just going to concentrate on the surg for now.  I'm thinking that I'm ready to go back to work, part time at least.  I'm being told that I cannot consider reconstruction until much later this year due to rads(???), haven't met with PS yet, but going to be in Feb, so he can at least see the "before".  But I'm like Bette, gonna look forward to the "tummy tuck" and the C cups!  Bette... good luck and my prayers are with you!

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2009

    Corinne ~  I'm so relieved to hear that your need for a biopsy turned out to be a cyst!  Praise God!  We have all been through so much, it makes good news like yours all the sweeter.

    Bette ~  I have been praying for you constantly, and will continue to throughout the coming week.  You have handled so many SE's with grace and humor, you deserve smooth sailing from here on out, and that's what I'm asking God to give you.

    Chelli  ~ WooHoo on your last tx!!!!  And what a disappointment to lose your BS!  I hope you really like the new one.  I'm guessing they're telling you it's best to delay reconstruction because sometimes implants (if that's what you'll be doing) and radiation don't mix, and you certainly don't need any complications that might delay your treatment.  On the other hand, I learned from a firsthand experience, as well as stories on these boards, that sometimes BSs sway women away from reconstruction simply because they're not set up to work with a PS.  They tell you, don't worry about reconstruction now mostly because they're not equipped to do it.  If you have any inkling that's what's really at the heart of what they're telling you, you may want to get a second opinion, just to be sure your BS isn't limiting your choices for his convenience.  But if it's truly for the benefit of not running into treatment delays, then that's different.     Deanna

  • Corinne6
    Corinne6 Member Posts: 311
    edited January 2009

    DesertRider:  Today it is snowing and about 20 degrees. After I get back from church and have lunch I am going to ride to my hearts content. It has been so cold here with below temps for about a week that I have just not been able to ride BUT.... I am back in the saddle today!!! Yippeeee!!!!!!!!!!!!!!!!!! Does anyone have Kimberlyn's email or contact information? If so I would really like it. Thanks, Corinne

  • Misty1
    Misty1 Member Posts: 272
    edited January 2009

    Corinne, I am so happy that it was only a cyst!!  You would really have to wonder how anything bad could grow after going through that chemo.  Remember, the same exact thing happened to me back in late October.  I am so relieved for you!!!  So, will it wind up coming out when you have the mast?

     Hope everyone ishaving a nice weekend!!

    ~Misty

  • alibug05
    alibug05 Member Posts: 182
    edited January 2009

    Well ladies hope everyone had a nice weekend.  It is still snowy and cold here in Ohio and I can OFFICIALLY say "I hate winter"!!!!  Bettelou I am keeping you in my thoughts and prayers so I hope everything goes smoothly!!!!!!   Well everyone enjoy the new week!!!! Loves to all.................

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    All packed and ready to leave for Baltimore for Tomorrow's surgery

    I have come to peace with the procedure and am focusing on the cancer being GONE.

    It is snowing in PA, but that will not stop us.

    I am safely in God's hands throughout this experience. 

    Bette 

  • Misty1
    Misty1 Member Posts: 272
    edited January 2009

    Bettelou, good luck with your surgery tomorrow.  All of us will be thinking about you.

    ~Misty

  • mommy3abm
    mommy3abm Member Posts: 221
    edited January 2009

    Good Luck Bettelou!!

    Well, DH has an interview for a job in Scranton, PA next Monday and is working on one back in VA where we still own our house...so things look promising but, I don't want to move again!!

    TODAY IS MY LAST RADS!!!!! By 4 pm CST I will be oficially done,- well, except for starting Tamoxifen tonight!

    Love to all!

    Stacy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Son-in-law drove through blinding snow to get us safely to Baltimore.

    Hoping for better weather tomorrow.

    I am fairly calm, but a little scared. What will it be like to wake up half flat-chested?

    Bette

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2009

    Bette ~  You will be waking up to the life-threatening bc being gone.  That's what's important.  You can have reconstruction later.  It's not what any of us would have chosen to do, but thank God they found your bc when they did and you are getting it out of your body.

    Big (((HUGS))) to you.  Praying for peace in your heart about this, a brilliant surgeon working on you, and a speedy recovery ~  Deanna

  • Hood1980
    Hood1980 Member Posts: 537
    edited January 2009

    My prayers are with you tonight and tomorrow Bette!  What time is your surgery?  I'll say a special Rosary for you!

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