What to expect

Options
theredheadamy
theredheadamy Member Posts: 43

Hi Ladies--

I was diagnosed on 12/19/08 with breast cancer after finding a lump in my right breast.  My primary care physician immediately sent me to a breast specialist and biopsy.  Biopsy returned "aggressive, poorly differentiated invasive ductal carcinoma", about 2.9cm, with "areas of necrosis" (oohh-who wouldn't like to see that description about something in their own body----serious sarcasm here  :)  ).  Score 8/9 on Sccharf (?--I can't really remember) scale.

I also had an MRI, which showed something "suspicious" in the left breast---core biopsy of that returned as fibroadenoma.  I'm 39, and have had a long (20 year) history of fibroadenomas and dense breasts.

A lumpectomy and SNB is scheduled for next Weds.  

Anyone out there in a similar situation, or have had similar diagnoses, who would care to share with me their experience?   I'm the kind of person who really wants to know what to expect.

Thanks so much,

Amy 

Comments

  • Survive
    Survive Member Posts: 45
    edited January 2009

    Amy

    I am so sorry to hear of your diagnosis.  Please be positive.  There is alot of very kind and supporting ladies on this site who have a wealth of information regarding breast cancer.

    My mother was also diagnosed with BC in 06.  She had invasive ductal just as you.  She had a lumpectomy, 4 rounds of chemo and 6 weeks of radiation.  She is older that you are "60".  She did very well with the chemo treatments only got sick after the first treatment.  She was very tired and did lose her hair.  As for the radiation, her breast did get burned, blistered, and was pretty uncomfortable for a while.  There is some type of medicated patches the hospital gave her to put on the burn which helped a bunch!  Unfortunately, she recently found out her cancer had spread just short of 2 years from diagnosis.  She has been getting weekly chemo treatments 3 weeks on 1 week off since November of 08.  Her treatment includes: Taxotere weekly, Avastin every other week and Zometa once a month.  She has lost her hair once again but this time we did get her a pretty nice wig to wear.  Emotionally, it is very draining.  She is on anti-depressants which she had been on prior to her first diagnosis.  She also takes anti-anxiety pills when needed.  Remaining positive is very important. 

    My wish for you is that your Dr. will be very aggressive with the treatment and that you will beat this!   

    Stacey

  • Shirlann
    Shirlann Member Posts: 3,302
    edited January 2009

    Hi sister and welcome!  First of all, ALL path reports say "aggressive", otherwise it would not be cancer, I suspect.  Or they are really trying to drive us crazy.  But this word and poorly differentiated do turn up in almost every path report.

    I am 10 years post treatment, doing fine, a TriNeg who had a lumpectomy and rads.  My tumor was small so I did not have chemo, although now, I think all TriNeg's get chemo.  

    Come often and ask any old question, Gentle hugs, Shirlann

  • 2z54
    2z54 Member Posts: 261
    edited January 2009

    Hi Amy!

    On 7/23/08 I was diagnosed with a lump in each breast.  The left is 3.7 cm TN and the right is a very small 7 mm ER+.   My pathology report read exactly like yours on the left breast, "agressive, poorly differentiated, and top 80 or 90% of the worst kinds to get scale, etc." 

    Since dx, I've had the SNB - all clear, and completed dose dense chemo which was very doable, and shrunk the 3.7 considerably.  I am now anxiously awaiting a BLM with immediate DIEP recon on 1/22. 

    Although it was a total shock to have not one, but two separate cancers - one in each breast; I am very grateful and relieved that the radiology doctor found them both. Many radiologists would have missed the second cancer and I would have been back in chemo/surgery down the road. So, I feel fortunate to be able to do everything possible now, so that I don't have to go through this again. 

    I am sure you will be fine. The treatment is all very doable with minimal side effects. Just ask questions when you need to and do what your doctors suggest.  Good luck!

    Sue 

  • chiquita
    chiquita Member Posts: 135
    edited January 2009

    Hi Amy I was diagnosed with lump in each breast and the Left turn out to be cancer, the right was a tumor but not cancer. I had a double mastec. on November and I am going to the chemo, I had to beg to have the lump biopsy because my gynecologist is a jerk, I had my family Doctor send me for a biopsy and to see a surgeon....I feel very luck the cancer did not spread and after the chemo I will be ok again...good luck I am sure you will be OK!

  • theredheadamy
    theredheadamy Member Posts: 43
    edited January 2009

    Thanks so much for your posts!!  

    I found out yesterday that they are "working me in" to surgery---had to find an earlier open OR spot because they wanted to get me to surgery sooner rather than later.  How did the SNB's for anyone go?  I am definitely hoping for the all clear in the nodes, but very concerned that they won't be clear.  I feel the lump has almost doubled in size since I had it first examined in December.

    Sue--you give me hope that my LNs will be clear (my biggest fear right now, short of brain mets)!!

    Stacey--Thank you so much for the wish for aggressive treatment--it is my wish, too.  So far, I feel I have been able to control my emotions pretty well--no anti-anxiety or anti-depressant meds (yet), but I've been able to work and focus on other things.  When I'm not at work, but stuck at home I'm afraid it might be a bit more difficult to keep positive about all this.  Smile

    Shirlann--I'm glad your tumor was so small!  I have been told that chemo and radiation would be in my future, just haven't met with the onc or rad docs yet.  Seems so hard to prepare for since everyone reacts so differently.  Thanks for the hugs Kiss

    Chiquita--I hope I'm with you and my cancer has not spread.  Sorry you've had such bad docs, but you did the right thing about being aggressive and demanding better treatment.  When do you start your chemo?  Good Luck!

    Thanks to all!!

    Amy 

  • chiquita
    chiquita Member Posts: 135
    edited January 2009

    theredheadamy

    I am in my 2 chemo and I feel very shake and nauseated, other than that I am OK....

    I hope my treatment goes ok and I can take a summer vacation...I need a long time in the sun and sand!!!!

    xoxoxox to you....

  • rsben70
    rsben70 Member Posts: 137
    edited January 2009

    Hi Amy, we have dx similar, my tumor is larger, and i was diagnosed on 12/5/08, i am doing chemo first in hopes to shrink my tumor. I am 38.

    I had port placed on monday and chemo starts friday

    chiquita hope you are doing better.  vacation sounds good to me too.

    hugs to all

  • guitarGrl
    guitarGrl Member Posts: 697
    edited January 2009

    Amy -

    Like you my biggest fear was the lymph nodes - the thought of lymphedema scare the stuff out of me. My tumor was smaller than yours, but I did have clear LNs.

    The SNB is no worse than the lump because you are asleep for both. For me they stopped after 2 or 3 after not finding anything. That scar has been slower to heal though because it's under my arm. 

    Also, your moods will go up & downand even sideways. Just hearing the "C" word is bad enough, everything they put your poor body through will give you way too much time for reflection.

    Good luck - we've all be through it or are going through it & can answer your questions or just listen if you want to scream.

    susan

  • theredheadamy
    theredheadamy Member Posts: 43
    edited January 2009

    Hi girls,

    Thanks for the posts--

    rsben70---wow, we are close.  I hope the chemo goes well.  I'll be interested to follow you progress, if you don't mind  Wink

    Susan--I hear you, and hope I'm as fortunate.  We'll find out today, as my SNB starts at 10 and my surgery is scheduled for 1, and I'm supposed to get the final path report on Friday, so we'll see how it goes.  I'm hoping that means we might have a plan mapped out by next week, and I can quit wondering what will happen, I can plan for it.  

    Take care, everyone.

    Amy 

  • rsben70
    rsben70 Member Posts: 137
    edited January 2009

    amy i dont mind i'll let you know how it goes..

  • rsben70
    rsben70 Member Posts: 137
    edited January 2009

    chemo just wears me out it takes days to feel half way decent then it is time for another tx. luckily i have a 2 week break between tx this time and can build up strength.

    i can't taste food i am hungry but when i go to eat i don't want nothing

  • theredheadamy
    theredheadamy Member Posts: 43
    edited January 2009

    rsben70--

    I'm so sorry the chemo is taking your strength.  Are you on AC or ACT?  Thank you for posting; I hadn't checked the forum much in the last few days as I have been dealing with several doctors ;)

    I wish you well,

    Amy 

  • mrschilicook
    mrschilicook Member Posts: 23
    edited February 2009

    Grade 3 cancer is considered an agressive form of cancer.  Not that it has actually aggressively done something in your body,  just that it IS an aggressive form of cancer.  So don't let the word 'aggressive" scare you (although it does everyone I think).

    Triple Neg. cancer is treated with chemo almost always now according to my cancer team.  I finished my chemo in Dec. and the treatments weren't nearly as bad a I had expected.  I wouldn't recommend them for a "good time", but they weren't as bad we we are often led to believe....however, they ARE different for everyone.

    And I actually have grown quite fond of being bald....it turns out to be VERY liberating.  Will almost be sorry to have hair back again someday. Tongue out

    Let us know how it's going...we're here for you.  Surround yourself with friends and family.  Share your concerns and educate not only yourself but your support group. You will come to appreciate the fact that you did.  We can come out of this stuff stronger, happier, and better people understanding what others have gone thru or about to go thru.

  • rsben70
    rsben70 Member Posts: 137
    edited February 2009

    hi amy right noe i am doing taxotere and gemzar after 4 cycles i will start AC.

    just when food starts to taste good again it is time to start another cycle.

    mrschilicook i agree with you bald is great, i neveer have like to fool with my hair much and now i don't have to.

  • chiquita
    chiquita Member Posts: 135
    edited February 2009

    I am doing my chemo #3 and this time I feel very tired and my taste for food is not there, I had chemo last Tuesday and today a week and still no energy...I went to see my Doctor today for some think for infection because I am putting mucus greenish and blowing my nose a lot.

    I hope to feel better tomorrow because my work is all behind and my husband is not doing any think...(well he makes food) and wash TV and feeds the birds...here is winter and very cold with a lot of snow...I agree with the other girls bald is great and is so easy to take care of. My husband is bald too and he calls me Mine Me!!!!

  • rsben70
    rsben70 Member Posts: 137
    edited February 2009

    tx #2 went ok, got emend for nausea this time so far it is working good.  still can't taste much i guess that is why i am trying some spicy stuff.

  • chiquita
    chiquita Member Posts: 135
    edited February 2009

    Hi there, rsben70...are you ok?

  • chiquita
    chiquita Member Posts: 135
    edited February 2009

    I am going to start my next chemo on the 19 and this time is Taxotere, I hope not to have a bad time on it, the last chemo was very bad...take me a week or more to start feeling better.

    If you are on Taxotere or had this before, please help me with the symptoms Thank you...

  • rsben70
    rsben70 Member Posts: 137
    edited February 2009

    hi chiquita,  been down for a few days but much better now thanks,  my last tx really got to me  i really think it was a combination of things i let my self get to ungry before trying to eat and a church member who brought supper thursday after my tx brought her kids who were WILD and stayed for 3 hours so by the time she left my nervers were shot, meds had worn off and stomach was so empty that what i ate came back. my hubby said no more of that if you want to visit 30 min thats it.  it was the gemzar that got me this time....

    taxotere SEs are like that of the flu tired and achy.

    thinking of you on 2/19

  • chiquita
    chiquita Member Posts: 135
    edited March 2009

    Hi rsben70, my last chemo was bad...I think I had still a lot of chemo from the treatment before and the accumulation of the both chemos made me really sick...the Doctor should give me a week in between to clear my blood...next week I have to go back for 2 taxotere and  I am scare...I am hoping to get through this really fast..is to hard!!!!

  • tos
    tos Member Posts: 376
    edited March 2009

    Hi Chiquita,

    I too have had Taxotere and it can be a tough one to get thru.  You are almost there and you can do it, remember that.  I know it can be hard just stay with it for yourself and family.

    You may have some neuropathy or edema with Taxotere also.

    http://www.chemocare  you can go here and look up Taxotere and see what the side effects usually are, they will differ for all of us.

    Best wishes

  • rsben70
    rsben70 Member Posts: 137
    edited March 2009

    hi chiquita, mine too, got home thursday after tx # 3  went to bed and stayed there til sat. felt bad yesterday just today feeling a little better. i am scard about next tx too, on 2/19 hope it is not like this past one.

    it is hard but we have to stick to it and stay in there.

    hugs

  • Indigoblue
    Indigoblue Member Posts: 274
    edited March 2009

    When I was dx with triple negative basal type breast cancer in 12/05, searching for the best chemotherapy, radiation, and any information regarding this type of breast cancer was next to impossible.  All of the information I found was terrifying.  I came to Breastcancer.org and found women who taught me how to research, be my own best advocate, and hopefully trust the doctors who were involved in my care.  The best advice I can give is to thoroughly research your decisions using this site, Triple Negative.com, and No Surrender.com as the best resources on how to make the best decisions and actually see a light at the end of this Triple Negative Tunnel.  There is a light, if you squint and hang-on!  Remember to listen to your "little voice".  Trusting yourself,  having faith & hope in your own personal decision-making process of what, how, and why, should never be cast aside or forgotten.  Trust yourself, and you will be okay!

    (((hugs)))

Categories