Nuclear dye injection

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rdrake0
rdrake0 Member Posts: 180

It was such an ambush.  Poor nipple will never be the same again!  They don't tell you it's coming, and won't talk about it beforehand, or afterwards, either.  A friend told me about it before I went in.  So I begged my doctor to make sure I was numb or asleep.  He assured me it would be ok.  NOT!!!  I cried!  Tears streamed down my face as they wheeled me out of that room and back to my little waiting room.  I have had flashbacks to it ever since.  Can't get to sleep at night and wake up in the morning thinking about it.  We BC surgery women need to ban together and insist that procedure be changed so that we are heavily sedated or anesthetized for it.  How many of us out there are in favor of that?

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Comments

  • samedaynurseJan
    samedaynurseJan Member Posts: 192
    edited January 2009

    It's too late to be able to help you, and for that I'm sorry, my surgeon gave me a prescription for Local Emla cream to get through the SNB injection, you slather a large amount around the entire circumference of the areola and then place saran wrap over it so it doesnt rub off, applying it as far prior to the injection as possible, take the saran wrap off as you are on the nuclear med table, I wont say I didnt feel my injections , I did, but the pain level was totally bearable and tolerable, the nurse who was with me told me how some women sob during the procedure.....everyone should have access to the Emla cream !

    jan

  • rdrake0
    rdrake0 Member Posts: 180
    edited January 2009

    Can't we do better than that?  Let's face it, if it were a man's most sensitive organ, it would be different for him.

    Ruth

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited January 2009
    I agree with you Ruth - I had no numbing creme - and when I asked, they said I couldn't have any analgesics at all because it might interfere with the test. The pain was sky-high, out-of-this world, shriekingly unbelievable.........fortunately the mind forgets pain like that when time passes, except in the most academic way. It was just one more insult my body had to endure - but not the worse. The worse, for me, was the "ambush" I received when I developed hospital acquired MRSA............but I won't go into it - even an "academic" memory of that pain brings out so much anger - anger that I will definitely channel into making sure there is accountability to what happened to me. Cry
  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited January 2009

    I had a good experience with this...no pain at all..they really numbed me up...and this was eight years ago...

  • kamico3
    kamico3 Member Posts: 90
    edited January 2009

    I have to agree, I was not at all prepared for the pain of this injection. (although the doctor did say "this is going to hurt some"-- I should have known that that meant it was going to kill!!). Luckily the intense pain only lasted probably less than 30 seconds, but it is something I will never forget, and I've had plenty of other painful procedures!

  • webwriter
    webwriter Member Posts: 535
    edited January 2009

    TOTALLY on board with this one. There should at LEAST be a standard of care guideline that requires some kind of anesthesia, whether local or total. While I can't say I'd actually rather give birth again, this was right up there with that memory. I too was ambushed.

    "This is going to be uncomfortable" just SO doesn't cover it.

  • softballangel
    softballangel Member Posts: 15
    edited January 2009

    I had it done this past July and did not need any numbing medicine. They felt like little bee stings or what one would get if they were being tested for allergies. I was totally amazed-- so maybe it has to do with the radiologist that is doing the procedure. He just went under the skin and not deeper, Maybe that was teh reason for not having alot of discomfort.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    I'm with the camp that didn't have any more pain than the sensation of being pinched a couple of times.. sorry for those that had major pain!

  • otter
    otter Member Posts: 6,099
    edited January 2009

    Me, too--the pain was quick and intense, but tolerable in the grand scheme of BC indignities.

    The injection was right at the edge of the areola, which is a hugely sensitve area of course.  On me, it was a very shallow injection--kind of like a TB test (it made a bleb).

    The rad tech was kind of funny about it.  She got me all ready, and she prepped the site, and as she was getting near the skin with the needle, she said, "Now this is going to hurt a little...".  But once the needle was in, she said, "I mean, it's going to hurt A LOT!".

    By then, of course, I was stuck like a dead bug in an insect collection, and there was nothing I could do but lie very, very still.  She kept saying, "I'm sorry ... I'm so sorry ... I know this hurts, but it will only hurt for a little while...".  She said there was an anesthetic in the syringe that would make it quit hurting eventually, and she was right (I think).  She massaged the site gently, saying it would help soothe the pain.  By the time she left to go back to her picture-taking station, the pain was gone, except for a very mild burning feeling.

    So, for me it was like a wasp sting in a very sensitive location.   I was stung in the face by a bald hornet once, and I gotta say, that was way worse than this was.  I've also had kidney stones, and this nuclear dye injection did not come close to that pain either.  Even my mastectomy hurt worse than this--my chest hurt like I'd been kicked by a horse.  The nurses would not give me the Percocet my surgeon had ordered for post-op pain.  It was a classic failure to communicate; and only the troupe of docs that came through the next morning were able to fix it.

    I guess it's all a matter of perspective.  Hey, if they had told us ahead of time how much it was going to hurt, do you suppose any of us would have shown up?  (I like the EMLA cream idea.)

    otter 

  • revkat
    revkat Member Posts: 763
    edited January 2009

    This is one of those things where it seems like individual experiences vary tremendously. I was terrified going into it, maybe more than I was scared of surgery since I'd be out for the surgery. I was told no anesthetic too, and no xanax because of the general anesthesia for surger later in the day. And it was totally unremarkable in a day of having things stuck in my boob (guide wire, etc.).

    So if it has to do with the administrator's skill, they should hold training sessions! And if it has to do with the structure of one's breast, they should learn to tell who might have more pain. And if it is just a crapshoot (isn't everything? sigh) some kind of painkiller should be offered. No one should have to go through what some of you are describing as a standard pre-op procedure!

  • fairy49
    fairy49 Member Posts: 1,245
    edited January 2009

    I had NO clue what they were going to do, so when that needle came at my nipple I wasn't sure what was going on! I think in my case ignorance was bliss and it was over before I could think too much more about it! I am kind of glad I didn't know before hand otherwise I would have just panicked and like Otter said, may not have shown up!

  • Emily2008
    Emily2008 Member Posts: 605
    edited January 2009

    Oh, that was incredibly painful for me.  Emla-shpemla, that cream did NOTHING to help the pain for me.  I thought I would pass out from the pain!

  • yellowrose
    yellowrose Member Posts: 886
    edited April 2009

    Incredible pain.  The doctor who did the injection had the gall to tell me it would only hurt a little  and he didn't give numbing injections.  Then while the tears were streaming down my face told me it wasn't "that bad". Ticked my DH off badly. 

    Then when I was rolled into the pre-op area my surgeon came in.  I told him that every doctor who gave that test or ordered it done should be required to go through it at least once.  He laughed and said "well, guys have to have prostate tests"  I told him that wasn't even close to the same thing and my anesthesiologist (a female) backed me up big time.  My surgeon was excellent but needed much better bedside compassion. Comparing the nipple injection to a prostate exam!

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited January 2009

    I remember when my mom had it in 2001, she made the comment that it was the worst part of her surgery experience. I had prepared myself mentally for my bilat procedure in 2007. The radiologist came in, read the orders and said I have bad news and worse news. I have to give you 6 shots in the right breast and go around and give you 6 shots in the left breast. He did it as quick as possible and then the assistant put warm packs on each side as he finished. It did sting but the warm packs seemed to help relieve the pain. I did my focus breathing from yoga and kept telling myself, I can get through this almost in a hypnotic state.

    Sheila

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi all -

    Boy! My lumpectomy and SNB are scheduled for this Friday and my BS called in a prescription for the Emla cream, which I am picking up tomorrow (since my pharmacy had to order it - and it costs $44.00, so the darn thing better work!)

    Revkat - NO Xanax at all?  I have read where some people have taken Xanax prior to that procedure -I was wondering myself if it would exacerbate the general anesthesia - but some have responded that it did not - my surgery is scheduled for 1pm and SNB at 9:15 am - I have already asked my BS about this and she said I could take Xanax after the surgery is over.

    Has anyone else taken a Xanax before this procedure to calm them down, with no repercussions afterwards?

  • kamico3
    kamico3 Member Posts: 90
    edited January 2009

    Don't know about xanax, but my surgeon recommended that I take an ativan the night before to help me sleep, and then another one in the morning before I came to the hospital! My surgery was scheduled for early afternoon. Maybe you should ask your surgeon about ativan?

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi, kamico -

    Thanks for responding.  Actually Ativan is very similar to Xanax so that is encouraging.  I definitely will check with my surgeon again - it is so apparent that each dr has a different idea about these things!  Thanks again and take care - Maria

  • cmb35
    cmb35 Member Posts: 1,106
    edited January 2009

    Although the nurses/techs were very apologetic and concerned, no numbing cream for me. Honestly, although I know it hurt like hell at the time, it was quick and I barely remember it now. It did remind me of when I had to get some thing removed from my son's face when he was 2 years old. It took me, 2 nurses and the doc to hold him down as they injected a HUGE needle in his cheek, right below his eye, to anesthesize him. It was a nightmare, and the giant bruise on his face from the shots were beyond disturbing. A friend of mine who's a surgeon, happen to be visiting that weekend, and was completely disgusted. He said they could have given him a "valium puff" (not the tech term I'm sure) that would have basically just made him so relaxed as to almost be asleep for a very short period of time, and then given him the needle. The reason they didn't? You guessed it - cost! I don't for one second believe that they can't give us something for those injections for any medical reason. I'm not big on medical conspiracy theories, but this one is pretty obvious to me - it hurts like hell, but only for seconds, so it's not worth the cost of the drugs to make it less painful. (Like circumcising a baby boy - they don't use anesthetic when they do that either! My sister had to pay $75 of her own money for some numbing cream for her son, because she couldn't bear the thought of them circumcising him with no anesthetic.)

    Goodness, rambling, sorry!

  • C130sunshine
    C130sunshine Member Posts: 174
    edited January 2009

    I am so sorry for those who had just a terrible pain with the injection.  Mine was not too bad....I was given a local.

    I really like the idea of giving people the EMLA cream before hand but I also think since it does not work on everyone that you should also be given the option of the local.

  • rdrake0
    rdrake0 Member Posts: 180
    edited January 2009

    I'd rather be asleep!  I wonder if giving a sedative, similar to that given for a colonoscopy or upper GI would work without it interfering with the bc surgery.  We definitely need to be given an option.  I wasn't even told it would hurt!

  • auriga
    auriga Member Posts: 315
    edited January 2009

    I was asleep for mine. From the sounds of these experiences, I'm glad I was. I wasn't even given a choice. My BS told me that is the way she does it with all her patients.

    They gave me something in the IV, I was wheeled into the nuclear room, and that was it. I didn't wake up until after the mx. If the shot is that painful, why don't they knock everyone out? I just don't understand sometimes.

  • rdrake0
    rdrake0 Member Posts: 180
    edited January 2009

    auriga, PLEASE, tell me where you had yours done and who your surgeon was!  If I ever have to have that SNB done on my right side I want your doctor!  I think I know alot of others here who would, too!!!

    Thanks for the info!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    I was fully awake for mine and yes it hurt like HELL, but I was warned and it was explained to me that numbing meds would interfer with things.....like with the others here it only hurt for a few moments....

    I think each one of us has our own pain tolerancy levels and the SNB was the closest Ive ever been to my limits!!!!!

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi everyone -

    I promise that I will describe my SNB experience in detail once I get it over with this Friday.  I am armed with the Emla cream and a clearance from my BS to take a Xanax beforehand.

    If it is worse than my MRI guided biopsy . . . then watch out! 

  • MicheleS
    MicheleS Member Posts: 937
    edited January 2009

    Maria... Just for comparison's sake... I thought the MRI-guided biopsy was worse than the nuclear dye.  And... I didn't have EMLA or a local for it.  I won't lie and say it didn't hurt but you've already been through the worst of the "awake procedures"... IMHO.

    Michele 

    PS. I took 1/2 a xanax the morning before my procedure (at ~7am).  However, my nuclear dye procedure wasn't 'till 11am so the xanax was long gone by then. 

  • JoyY
    JoyY Member Posts: 52
    edited January 2009

    I was told by the nurse when I was getting on the table that it would hurt some.  But they have this can that they sprayed some stuff on the area where the needle was to go in which was to freeze the area so it wouldn't hurt.  NOT!!!!  After the proceedure was over he made a comment to the nurse that he didn't know why the freeze didn't work and it hurt so much. 

    Yes, I was one of those that cried. 

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi, Michele -

    Well, I'm taking my Xanax at 5:00 a.m. and the procedure is at 9:15 so I should be ok - and thanks for sharing your opinion that the MRI guided biopsy was actually worse than the nuclear dye procedure - I am feeling better about it already - and you didn't have Emla or a local!

    Joy - OUCH!!!!  I would have grabbed that can of spray and sprayed it in his face!  How insensitive!  I would have cried, too.  Heck, I would have screamed!

    Really - can't they conduct this procedure in a more humane manner?

  • rdrake0
    rdrake0 Member Posts: 180
    edited January 2009

    Good luck, Britt!  Let us know how you are when you can!  We're all in there along side you, in heart!

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Thanks, rdrake0 for your good wishes!

    And thanks for starting this rant!  About time someone addressed it!

    Your SNB experience sounds so similar to my MRI guided biopsy experience (which I documented in detail elsewhere on this board) - well, if we can survive this, we can survive anything!

    Take care -

    Maria

  • rdrake0
    rdrake0 Member Posts: 180
    edited January 2009

    Hey, Britt, see if you can get them to knock you out before that injection!  I've been working on this at many different levels.  Right now I'm searching for docs who are willing to do the right thing and use anesthesia first!

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