teachers working during chemo

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  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited January 2009

    hi all---I am just now starting treatment and I am a teacher .  I teach High school language arts to students with learning disabilities.  I hope to work throughout treatment.  I will be on FEC and then taxotere.  Anyone on such a regiment?  If so, what were the ses?  Similar to other posted above? 

    My administrator has said she will help me out and try to rearrange times where I don't have to use sick days-other teachers may be able to fill in, and then if I have arranged a sub yet feel fine that day anyway, she will use the sub elsewhere. That has been a huge relief to me because I am the financial breadwinner of the family and worrying about limited pay checks because of disability pay has been overwhelming. 

    My mantra has been:  I know chemo will be tough, but I can do it!!!!! (okay, that is the polite version!)

  • apple
    apple Member Posts: 7,799
    edited January 2009

    our darling 2nd grade teacher was stricken a few years back.  she is so cute.. a petite barbie doll blond and well loved for her dedication and kindness.  We were all shocked and saddened by her hair loss and double mastectomy.  We were all struck dumb when most of the girls cut their hair to donate to locks of love and the boys to one up them  (every single one of them) shaved their heads.  that's like 300 buzzed boys... they had a hair cutting festival as a fund raiser.

    She's doing fine now and her blond hair is about 8 inches long.

    myself?.. i only had a few bad days.  I don't teach, but have a very active work load.  I barely missed.

  • sue_blue
    sue_blue Member Posts: 416
    edited January 2009

    I took many days off during chemo and people were able to donate days to me. If I had to work through it, I would schedule chemo on a Thursday. The following day isn't too bad and then you would have the weekend to try to regroup. My experience was that the actual infusion of the chemo took, most of the time 5-6 hours. I did have a different treatment plan that you though. I ran a temp for several days after chemo and needed the Neulasta shot to jump start everything again. The nurses did say my reaction was somewhat more pronounced than many.

    I hope it goes well for you. I found my students to be very supportive. I teach 8th grade language arts. 

  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Just thought I would share this with you. I had originally posted it back in December on my home group page. You must first understand I had set Dec 1st as my goal to go topless(wig). That morning I had decided my hair was still to short and didn't have the courage. It was only between 1/4 and 1/2 inch long. I haven't worn my wig since. 

    We have a second grader in our school that has some form of lice that you can't get rid of. She's had it for at least 2 years that I know of. Don't know all the details but that her parents shaved her head bald to help control them. For a month or so she always wore a hat. Last Monday December 1st, she came bearing her 1/8 of an inch head of hair. She was very subconscious of it and when walking in the hall would pull her shirt over her head to hide it. Her teacher made her pull her shirt down and you could see the embarrassment she felt as she walked by my class. I pulled her to the side and took my wig off to show her my hair. I told her I wouldn't wear my wig anymore and that we would get through this together. Fridays we always have a morning meeting in the gym with the whole school present. I invited her to sit with me if she wanted and we could show the whole school our new fashion trend in hair together. She chose to sit with me and the whole time I don't think she once thought of her hair.

  • bourscheid
    bourscheid Member Posts: 718
    edited January 2009

    MsKarin - love your story! Wow!  It is amazing the positive effect a small (yet scary)  act can have on a child.  I think it is great! I went hatless this week for the first time this week and the kids loved it.  Plan to do it more often when it warms up!  A friend of mine was telling me about another elem. teacher who, when her hair started growing in, had her students measure her hair and graph the growth each week.  I think I may try that!  I'm pretty scraggly right now so may go get another longer buzz to even things out first.

    Jess - good luck with your treatments!  Make sure to take enough time to keep your strength up.  I have my tx on Thursday afternoons (I work Mon-Thurs mornings) and take Friday off to rest.  It has made a difference in my energy level. I understand the concerns about being the financial  breadwinner and worrying about your job.  My principal (and the central office as well) has been fantastically understanding and supportive.  Yes, it will be tough but you CAN KICK BOOTY!

  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Lori,

    The thing that was amazing was that I never even thought about it. I just did it to help her feel better. I understood how she felt. In doing so it helped me. It was strange how things turned out. I did it to help a child and in return she gave me the courage I was lacking. I love my job because I love making a positive difference in a child's life. I wasn't expecting a child to make such a positive difference in my life.

  • bourscheid
    bourscheid Member Posts: 718
    edited January 2009

    That is so awesome.  We never know when we are going to be touched by a child.  I find I learn as much from them as they probably do from me.

  • DoubleMammyWhammy
    DoubleMammyWhammy Member Posts: 30
    edited January 2009

    Hi

    I will be working through as well, hopefully!  4 X AC then tamoxifen for 5 years. 

    My chemo will start early Feb. so I'm just starting to look for head-covering options. Any recommended web sites?

    I'm high school media/technology specialist and teach a section of English so some of the tech work I can do remotely.   Everyone has been very supportive--I  even have a private bathroom (abandoned after a special ed. class relocated) so I can race there if needed. It's not well heated and I teach in central Minnesota so quick trips!   I'm hoping that will reduce germ exposure and I can keep my stock of antibaterial soap, etc.

    I'm hoping to have enough hair by September to forgo any wigs/scarves, etc.  

     Best of luck to you!!

  • bourscheid
    bourscheid Member Posts: 718
    edited January 2009

    Good  luck DoubleMammyWhammy!   I got a lot of my turbans and scarves from tlcdirect.com they have a wide selection.  I also wear bandannas (I have a tiny head) and the knit stocking caps that people have made for me (especially in the cold).  I use the tlc turbans a lot for work since they look a little more professional and stay on really well.  They look great with the scarf bands around them that you can change to match your outfit.  I also re-discovered dangly earrings!  Looks great with the hats/scarves/turbans. 

    One thing I do to keep down germs (in addition to germ-x) is to use clorox or lysol wipes at the end of each school day to wipe down keyboards, mice, doorknobs, lightswitches, etc and even the desks.

    Keep us posted!

    Lori

  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    DoubleMammyWhammy on the first page of this thread I gave a link for scarfs. They have long tails so it felt like I still had a long pony tail.

  • irishbrae
    irishbrae Member Posts: 15
    edited January 2009

    It's been a real rollercoaster ride, but my hair has come back, and I only missed 3 days of school in the first semester. One half day to do my last chemo in Sept, 2 days right before thanksgiving break to have the implant switch, and one half day to have a wisdom tooth pulled(ouch)

  • jeanjean_chang
    jeanjean_chang Member Posts: 4
    edited April 2009

    I applied a long sick leave right after my dx. I am a subject teacher and my students are from grade 1to grade 3.  I was so scared at that time and not in the mood to teach any longer. I don't think these kids can understand what happens to me? Also I cannot deal with so many un-expected situations during the class.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited April 2009

    I have been able to work during chemo tx, but have to admit it is very difficult because as you all know, chemo fog makes it very difficult to multitask. My short term memory is shot and sometimes I can't even recall what I did earlier that day.  I am not sure it is a good thing to work during tx, but for me, I did not have a choice; I am the salary earner of the family.  Another aspect of this is most people assume I will be okay once I get thru all the ses. Good for them to be hopeful for me.....I just wish they had a freakin CURE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 

    Not only is the multitasking aspect difficult, but the additional mood swings I encounter become the biggest blight to my progression of my day to day life.  Little things will set me off and I find I only want to be around people who know what I am going thru.  I know my family loves me, I realize I have support from work and I appreciate my friends who help me by sending me food and at times have cleaned my house, but I always turn to places like this board and desire to talk to those who truly know. 

    This is another good thread.  I hope we keep on talking.  I have one more tx of chemo, and perhaps am facing the fear of what now? 

    That being said, tomorrow I will get up and hopefully the ses won't be kicking my butt and I can go to work.  That I can do I guess-take one day at a time and hope for the best.

  • comingtoterms
    comingtoterms Member Posts: 421
    edited April 2009

    Hi all,

    I am a teacher at an alternative high school.  I work with at-risk adolescents - specifically, teen mothers.  I was diagnosed at school (wasn't it nice of the radiologist to call my classroom phone???) and remained at school until the day before my MS.  I will begin chemo on the 20th and applied to our sick bank for the rest of the school year.  I need to use my own 40 sick days (all that I have...) before the sick bank kicks in.  Sometimes I wonder if I have made the right decision about not returning before next Sept., but my job is EXTREMELY stressful and I don't know if I could handle the heavy emotional needs of my students while I am trying to care for myself.  It was difficult enough when I was "healthy"!!! When I asked my Onc, he said, if I don't need to work, it would be better not to - but if I have to, I have to.  I have a great long term sub in my classroom who knows my girls well and although my students and I  had an emotional parting in the beginning of March, I think that the back and forth of me being there some days and someone else being there the other days would be harder for them then just having me gone.. Being a type A personality, and a mother of four, I can't remember a time when I wasn't working or feeling responsible for someone in one form or another.  As such, not working through chemo is probably the first time ever that I have stepped back and said, I need to stop and take care of myself first.  That was quite a challenge.  It would have been easier and more like me to storm through it all and show everyone how strong I am. But if  there is one thing having BC has taught me, it is that I really haven't been  in control of anything. Sometimes we just need to let someone else take the wheel. So I am trying to use this time to get to know myself a little better and to give myself the care that I have always given everyone else. 

    Tammy.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited April 2009

    Comingtoterms---Yeah, we all have to decide what works best for us.  I so agree with your statement that bc has taught you you haven't been in control of anything.  Good luck and keep in touch

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