Nearly Two Months for Surgery?

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Britt
Britt Member Posts: 731

Hello All -

As you can see, I was dx on 11/24/08 - due to my BS being very conservative, she had a battery of tests scheduled prior to surgery - which was originally scheduled for 12/16/08, then rescheduled because of suspicious stuff shown on breast MRI, then rescheduled to 1/9/09 in order for MRI guided biopsy to be performed on 12/31/08 (which thankfully turned out to be benign) and now, due to my having a bad cold this week, surgery now rescheduled to 1/16/08.  I see my BS this afternoon to discuss upcoming surgery.  Every possible test has been done at this point and I am anxious to get my path report from the lumpectomy that I anticipate she will suggest at this point.  Has anyone else waited this long from initial dx to date of surgery?  Many thanks for any input any of you may have!

Maria

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  • fairy49
    fairy49 Member Posts: 1,245
    edited January 2009

    Hi Maria, I can't help you with this one, but just wanted you to know I was thinking of you...I am sure someone with more experience and knowlege will get back to you soon. I have had the opposite happen to me, had surgery 9 weeks ago and still waiting on the next step of treatment...I will keep checking this thread to see what people say! hang in there, you really are a warrior princess! :)

    Lorraine ox

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi Lorraine!

    Thanks for responding and thinking of me . . . I don't know what is better - having the surgery first and then testing/treating, or having all kinds of diagnostic tests done and then surgery.  The reason I posted this is that I have discovered that many of the women on this board didn't really know the stage/grade of their tumor until their lumpectomy.  So we shall see !

    Take care - and thanks for the compliment re warrior princess!  I'm trying, anyway!

    Maria

  • fairy49
    fairy49 Member Posts: 1,245
    edited January 2009

    Hi Maria! Can you get a second opinion?maybe that way you can relax a bit (if there is any such thing while going through this!) just an idea.........

    L

    ox

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi again -

    I have given that a lot of thought but, because of the nature of my insurance, it would be very difficult to find another BS who could examine me and my records and offer a second opinion.  And I do like my BS very, very much and also her staff.  And I think I have waited long enough - so I shall see what she will advise me this afternoon - it's going to be lumpo vs. mast.  My choice, hopefully - which means I will go with the lumpectomy.  Again, I know a lot of women who opt for a bilateral because they never want to deal with this again, but I want to hold on to The Girls for as long as I can if there is no need to bid them adieu at this point!

    Thanks for the suggestion, though!  Have a great day!

    Maria

  • Robyn66
    Robyn66 Member Posts: 169
    edited January 2009

    Hi Maria,

    I was diagnosed in August and not operated on until October 27.  It was AGONIZING!!!!  I had a battery of test results to wait for and pretty much lived on attivan so I totaly feel your pain honey!!

    Love  

    Robyn

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Whoa, Robin!!!!!

    So your BS sounds conservative, also!  I am living on Xanax at the moment - was very happy the results of MRI Guided Biopsy from Hell turned out to be negative (BTW, I am still bleeding a bit from where they busted a vein during one of the biopsies - that occurred on 12/31/08 - and I am seeing my BS today so I will ask her to examine it - thankfully, it's on the left non-tumor breast)

    Okay, I don't feel so bad.  I was just imaging that the Big C is rapidly spreading throughout my entire body during this waiting period!

    BTW - was reading your posts re your chemo experience!  Hang in there - you are an inspiration to us all - voodoo dolls and all!  Your irreverent sense of humor has snapped many of us out of the Miasmic Funk!!!!

    Big Hugs and I am sending a figurative voodoo doll to you -

    Maria 

  • Robyn66
    Robyn66 Member Posts: 169
    edited January 2009

    Thanks Maria!!!!!

    I know how you feel, I was having nightmares of waking up after surgery having the docs say "Gee if we only operated two weeks ago you would have lived"  But the reality is, this nasty junk has taken years to grow and you have time.  Plus, I am in Boston and had surgery at Brigham and Womens and have my oncologist at Dana Farber so if they allowed it to go that long it MUST be ok.

    I am trying to hang on.  It just makes me MAD to feel like CRAP!  WHo'd a thunk I would have felt more healthy WITH cancer!!!!!

    I wish I could swear here!!!

    Love ya 

    Robyn

  • sweeeeetpam
    sweeeeetpam Member Posts: 115
    edited January 2009

    Hi there,

        Yes I was diag on 09/16/08, that was my rusults from a biosphy.  Then I started chemo A/C.had all of the tests you had, then had my surgery on 12/29/08.   They say there is no rush, and you need to get your thoughts together before surgury.

                         I go to my chemo dr tomorrow lets pray I am done and can grow my hair back yah!!!!

             Take your time and make the decision that is right for you!! A lot of people on here who had a lump.......ended up going back and having a second surgery for a mast!!!

          Their is so much information out their it can at some times make you crazy!! I am 2 week out of surgery just one breast, and no recon going back to work on Monday!!   Wish you well talk soon Pamela 

  • sweeeeetpam
    sweeeeetpam Member Posts: 115
    edited January 2009

    Hi Again, I just have one more comment at my second biosphy, I asked the doctor what she would do lump or mast...........Sorta funny but not real she literaaly grabbed my boob and smashe to between her hand and said.......This is what will be left of your breast after a lump...........is that what you what to look at everyday??

                         She was one of the first HONEST people I had dealt with on this long rode, I went home that day and called my BS and said lets do a mast.

            If you visit a good PS, they show you pictures, that wil help. I thought I would not be able to look down ever for a long time............and now my goal is to see how many peole I can fake out, cause unless you tell them they will never know.  Good luck with your decision. talk soon Pamela Also find out if they can save the nipple in my case they would not of been able too!!  We get very personl very fast on this site sorry but if it helps!!!! 

  • ghety
    ghety Member Posts: 478
    edited January 2009

    Maria, I have wondered the same thing. the wait for surgery feels like forever. I was diagnosed in mid october and just got my surgery date confirmed last week for Jan. 28! I had to wait so that BS and PS could coordinate. BS did do the SNB in the interim. I don't like the waiting and xanax has been a good friend to me when I start to stress.

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi Swtpam -

    Thanks SO much for sharing your experience re lump vs. mast - luckily, my BS sounds a lot like yours - compassionate, but she does not pull any punches and is quite blunt (but with humor) when dealing with a Diva like myself!  I don't have a PS yet due to insurance reasons (that's another long story)

    Ruby, thanks - wow, a long wait but you are getting recon so I see why the coordinating with BS & PS - and at least you got the SNB out of the way!

    Good luck to you both and thanks again!

  • slepeint
    slepeint Member Posts: 20
    edited January 2009

    Your diagnosis is very similar to mine.  My surgery was also between a month and a half and two months after the initial diagnosis (dx 8/1/08 and surgery 9/15/08).   There's so many decisions to make in regards to surgery options and reconstruction with this stage cancer, that the extra time can be healthy.

    An estrogen positive cancer, grade 2, is, from what I understand, not growing very fast.  You've got time.

     Now the big surprise for me?  Was that I had the dang drainage tube in for SIX WEEKS after the surgery (modified radical mx).    It was hard to sit still enough to give the skin time to heal over the muscle again.

     The good news?  I thought food tasted GREAT, especially whole, natural foods, while my body was working to hard to heal.  Boy, if there's a time to have friends bring  you their best dishes, it's after surgery! 

    Suzy

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    Britt, I was 6 days from diagnosis to surgery only because my surgeon only operated on Tuesdays! He knew I would go bilateral mastectomy right from the biopsy if there was any cancer at all. When he let me read the pathology report (he couldn't even tell me!) he already knew he had an opening.

    Ask your doctors what they would do for their wives/daughters/mothers. Then you will get a real answer. I think sometimes they anticipate what they think you want to hear. My surgeon told me after, that there was no question in his mind that a BM was the best way for me to go! 

  • scarp
    scarp Member Posts: 104
    edited January 2009

    They found my tumor on 6/12, biopsy on 6/25 and got results on 7/1.  I was operated on 08/08/08.  I hope it was a lucky day!  Due to confusion with my oncotype and oral surgery, I didn't begin CMF until 10/28.  I was freaking out that so much time lasped from June but they all assured me it was common???

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi everyone:

    Suzy: Nice to encounter someone with a similar dx!  And I will arrange for my favorite dishes to be prepared during my convalesence - but what a drag about the drains (that's what I am dreading - even more than the SNB!

    barbe:  That's good advice about asking one's doctors how they would treat a close family member.  Excellent advice.  However, my BS is very conservative and she wanted to to a battery of tests to rule out any possible complication prior to my surgery, which I discovered yesterday is going to be a lumpectomy with SNB.  A bilateral mast was not an option for me at this point, and not something that I wanted unless it was absolutely necessary.  But we are all different in that regard, and I respect and understand everyone's individual choices.  We have to do what is right for each of us and what we feel most comfortable with.

    scarp: That is a lucky day!  At least they resolved the confusion with the oncotype, and oral surgery also takes a lot out of you.  I have found out that it is common - my surgery after the initial tests was supposed to be today, but I had such a bad cold last week that it was rescheduled to next week, 1/16.  Everyone's situation is different, as everyone's cancer is different!

    Blessings to you all!

    Maria

  • KinAZ
    KinAZ Member Posts: 180
    edited January 2009

    Hi

    I was diagnosed in Mar 2008....was scheduled for surgery in April.  Someone mistakenly scheduled my bs for 2 surgeries at the same time and since I was the 2nd one, I was rescheduled for July.  4 months....arggghhh   I started freaking out.....so my bs & onco decided to do chemo first.  I finished chemo the end of Sept and 2 weeks later had my bmx.   It worked out fine, but the waiting can be a nightmare, so I know how you feel.  I hope all goes well, keep us posted.

    Hugs, Karen

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Karen -

    My goodness, I can imagine your impatience and anxiety during that protracted waiting period - but at least they decided to do the chemo first.  How are you doing with the bmx?  Did you opt for recon?  Your dx I see is very similar to mine (only my tumor is 2.6cm and I have no idea about the nodes yet, but the same grade and same homone receptors and also HER2-) and as Suzy commented earlier, we have a slower growing BC.  Is your chemo totally completed at this point?  Did they put you on Tamoxifen or an AI?  Thanks for the good wishes and all the best to you and hugs,

    Maria

  • KinAZ
    KinAZ Member Posts: 180
    edited January 2009

    Maria,

    I am totally done with chemo, and did not need rads.  The bmx has been an adjustment.  I had expanders inserted during the bmx, but due to infection, they had to be removed.  My ps will put the expanders back in March.. I will be having DIEP recon at the end of the year.  I am on Arimidex, and cant complain much about the se.  I hope everything goes smoothly for you.  It does get easier....

    Hugs, Karen

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Karen - that's great that you are finished with the chemo and didn't need the rads, but I can imagine the bmx being an adjustment.  I was facing that myself and, who knows, may still have to face it, depending on the margins and lymph node involvement with my lumpectomy next week.  That is really unfortunate that you got an infection from the expanders, but at least it will be completed by the end of the year.  Also good to know that Arimidex is not causing you really bothersome s/es.  Thanks again for your good wishes and your optimism!

    All the best and some more hugs -

    Maria

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2009

    Hi, Maria ~ I had a lumpectomy less than 30 days after my initial dx.  But, that local surgeon went in with a very poor MRI (several "obscured" areas noted on it).  Thank God the path from that surgery showed something else might still be brewing, and I took my records to a major breast center for a 2nd opinion.  They wanted another MRI, which took a good month for my insurance to approve.  When I was finally able to have that 2nd MRI, they found 2 more lesions, which had to then be biopsied -- tried first by u/s, but couldn't find what they'd seen on MRI, so rescheduled to be biopsied by MRI.  Finally got a dx that both lesions were bc, and had to wait another 4 weeks for a date when BS & PS could coordinate their shedules.  So.... from my initial dx to my mx was almost 4 months, even though I'd had a lumpectomy that got the largest lesion.  My new BS didn't seem overly concerned; she just moved things along as quickly as she could.  So, it sounds to me like you're in good hands, and really couldn't do anything sooner at this point anyway. 

    I'll be thinking of you on the 16th ...  Deanna

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi, Deanna -

    I am so sorry you had to go through that ordeal!  And the more I think about it, the more I feel confident that my BS has made very sound decisions about having all testing done prior to surgery, despite my impatience to get it all over with!

    Your experience with the u/s and MRI guided biopsies was the same as mine.  U/S could not find what was on the initial breast MRI, so the MRI biopsies were scheduled and, thankfully, the results were negative.

    Thanks for thinking of me on the 16th and for your innate graciousness and good wishes - all my best to you and hugs,

    Maria

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2009

    (((Hugs))) back to you, Maria. And, by the way, I laughed -- no, roared -- when I read your comment on the Worst Thing Someone Said thread this morning.

    Speaking of MRI's and mammos, my MRI-guided biopsy was very much like yours -- especially the excessive bleeding.  I just didn't want to tell you that up front because I was hoping mine could be attributed to what I later decided was probably a newbie doc doing it for the first time, and hoped you would not have the same experience.  Anyway, I was soooo sick from the procedure.  I had a splitting migraine by the time they were done just from the stress of it, and then when I saw all that blood!   So, when they did the mammo-torture afterwards, I promptly threw up!   Obviously, not something to tell you beforehand, but I really empathized when I read your account of yours.  Glad to know we're both survivors of that lovely capability of high-tech medicine!!!     Deanna

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Deanna!  So nice to know I wasn't the only victim (and survivor!) of incompetent techs!  And I am reluctant also to share my particular experience to someone who will be going through it for the first time!  Tell me, was you excessive bleeding due to them hitting an artery?  Just curious - or what exactly did they tell you that caused the bleeding? (BTW, I didn't get sick there - I got VERY sick later that evening - on New Year's Eve, no less! - encased in that Ace bandage.  Did they wrap you with that also?

    And I'm glad I made you laugh - I just thought I would put it out there as warning of what may happen - and also to vent, needless to say -

    It IS a nightmarish procedure - and after that, I am no longer nervous about the surgery, as I told my BS -

    Take care -

    Maria

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2009

    Maria ~ They never mentioned hitting an artery.  They just had me sit in a chair while they applied pressure for maybe 20 minutes to stop the bleeding, all the while calmly telling me that bleeding sometimes happens -- although I could see on their faces that they were concerned.  My head hurt so bad and I was too nauseous and sick to care why it happened.  The procedure itself had seemed to take a really long time, and at one point I was aware that everyone had left the room and that I was alone.  So, while they were working on stopping the bleeding, they told me that the MRI machine had quit in the middle of the procedure, but that they had been able to get it working again!  Thank God!   Can you imagine being told you have to come back to try again tomorrow?!!! I don't remember if I had an ace bandage.  Probably. By that time I was so out of it!  Luckily, my DH had taken me because there's no way I could have driven the 150 miles home.    Deanna  

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Deanna - I experienced almost the same thing, but luckily for me MRI machine did not malfunction - the biopsies were finished and I knew they had punctured something during the first biopsy - lots of commotion (I had earphones on with music and at that point I told them to lower the volume and asked what was going on) - to which one of the techs responded, "Oh, nothing, hon, we just hit a vein, it's not the first time or the last time that this happened."  But they sounded a little nervous. 

     For me, the entire procedure for two biopsies took five hours from the very beginning to end.  When I saw all the blood on the machine, I was taken aback. The techs kept complimenting me on what a "trouper" I was and then I was escorted to the mammo room to be treated by the mammo tech for a mammo, a dressing and post-procedure instructions.  After the mammo, it was a total geyser of blood - the mammo tech was actually very kind and wrapped me in plastic and kept applying pressure to staunch the bleeding, which took 45 minutes!  She finally wrapped me in the Ace and that seemed to do it. 

     One of the techs went out to see my mom (who had driven me and was quite anxious at this point) to tell her what happened, at which point Mom stormed into the inner sanctum demanding to see her daughter!  And she was admitted - all I remember is the mammo tech telling me I was lucky they didn't hit an artery, and the very concerned and nervous faces of the techs.

    One of the only good things is that I live only 10-15 minutes away from the place -and your DH had to drive 150 miles to get home, with you feeling as you did!

    I would love to conduct a survery of how many times this has happened, but then again I don't want to unnecessarily alarm anyone who may actually have a decent (well, relatively so) experience.

    Maria (who earned her Xena sword that day!)

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    Britt, don't get me wrong I had a lot of procedures before diagnosis.

    Bleeding nipple, waited from June to October for a mammogram, then ultrasound, then another mammo, then another u/s, then MRI, then biopsy, then lumpectomy, then diagnosis on December 10th! So it was quite a long haul. My SNB was done during my mx on December 16th..

    You said your MRI was negative...but you have cancer? Or it just didn't show anything? Frustrating,eh?

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi, Barbe -

    What an ordeal! Glad you made it through . . .

    As to my MRI, they wanted to check two two suspicious nodules in my left breast (my right has the Tumor) and the nodules turnd out to be benign. They also through they saw something else in my right breast, which seemed to have disappeared.  The MRI guided biopsy confirmed this with my parth report that these nodules are indeed negative.  yes, still cancer in the tumor in the right breast. Surgery 1/16 to determine node involvment and of course, one doesn't know what's really going on until they take the tumor out and do a path report - also hoping for clear margin.

    How are doing with the BM?  I see you have no node involvement,which is great news, but I understand that type of cancer you have is rather care and sometimes easier to treat?  is that correct?

    Anyday, thanks for responding and I wish you all best!  Maria

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    My cancer is between .5-2% of all breast cancers! Go figure. My surgeon and I can only find reference to a man that is on record! I had node involvement within the tissue they took off and also ITCs which are isolate tumour cells. We're not quite sure what to do about that, but the ones in breast tissue are obviously out.

    So, it is being treated as DCIS and the best treatment for DCIS is mx. So I went for both and am thrilled with the results. I am finished. No more treatment! No rads, chemo or reconstruction. I can get on with my life, my flat chest my only reminder.

    No prophylactics either. As I said on another thread, I told a co-worker, "Why should I wear fake boobs to make YOU feel more comfortable?" I was a 42D.

  • Britt
    Britt Member Posts: 731
    edited January 2009

    Hi barbe -

    I am glad you are happy with the results and that you didn't need rads, chemo and did not opt for reconstruction - but challenging to have a form of BC that is only experienced by such a low percentage of individuals.  SO important to be able to get one with one's life.  I feel as if mine is on hold right now until the surgery and subsequent path report.  And good for you for your response to a co-worker - it's your body and your choice and we are not here to make others feel more comfortable in that regard.  So there!

    Best of luck and great good wishes -

    Maria 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    I think that's why I'm so relieved and happy with my decision -- because it's over!

    The waiting is the worst, I felt like a time bomb ready to go off. I felt like I was holding my breath, that I couldn't make future decisions, that I shouldn't buy new clothes or makeup. As I drove to work and back each day (2 hours total) I planned my funeral in my head, over and over. I picked music to play and pictures to show and everything! I cried driving to work and coming back home. Then when I got wherever I was going I was calm and in control. No one knew what I went through, except now you guys.

    You are not alone. There are so many ahead of you leading the way, and so many behind, ready to give you a gentle push! 

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