TripleNeg, 50 yrs old, white...anyone else?

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited December 2008

    Thanks for the tnbc website, I didn't know about that.

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  • VickiG
    VickiG Member Posts: 536
    edited December 2008

    I just started on CMF last week.  I was on Navelbine w/ amazing response for 2 mos, and then poof, everything started to progress before my very eyes (I have skin mets, so it doesn't always take scans for me to know when I have response/progression.)  Anyway, very hopeful that CMF will work....

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited December 2008

    VickiG,

    Sorry Navelbine did not work for you.  I pray CMF will stop this in it's track.  Nothing like seeing your disease move is there? I getting a good response to Ixempra so far.  My open wounds look so much better.  My problem is I get chemo resistant really fast.  I hope and pray not this time.

    Merry Christmas to you and yours

    Flalady

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  • maxgirl
    maxgirl Member Posts: 407
    edited December 2008

    Caucasian, diagnosed at 57, five years past menopause, triple neg.

    I finished DD AC+T at the end of June 2007 and still have some neuropathy in my fingertips and toes.  It's improved, but I mark progress in terms of months, not days or weeks.  During Taxol treatment and for a couple of months afterward, I took L. glutamine, which I felt helped a lot.  I got the powder at GNC but heard from others that buying it online would have been cheaper.

     I'm intrigued by some studies that suggest a connection between Vitamin D levels and triple negative status.  There was one study of African-American women which found that those who had spent more time outdoors while going through puberty had a lower incidence of BC. I was a reader, and my mother had to force me outside. 

    Maybe the fact that as a nation we're spending more time indoors has something to do with the rising incidence of TN BC. 

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  • jax1961
    jax1961 Member Posts: 5
    edited January 2009

    hi i was 46 first dx in '06 then i had another primary same breast '07 both triple neg, and i too am white.  i too dot go out very much if i can help it..

    jacqueline

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited January 2009

    Raised in Florida lived in the sun every day.

    Flalady

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  • canden7
    canden7 Member Posts: 2
    edited January 2009

    Hi! This is my first time talking to anyone on this site. I am 35 years old and was diagnosed with triple negative BC in september of 2008. I was staged at 3 possibly 4 because of some spots that showed up around my lungs.  The cancer is so progressive that the oncologist wanted to start chemo (ACT) right away.  I have finished the first chemo of AC and am now on taxol for 12 weeks. I have done pretty good with the treatments. I have had the normal side effects along with gaining about 15lbs so far due to the steriods that give me. I am very worried that this chemo is not really going to work, because of the fact that this type of cancer is most likely to re-ocurr I have been taking zoloft to help with the depression, but I don't think it really helps, because in the back of your mind it's always there. I hope that I don't affend anyone buy this reply, but I sure there is someone out there who feels the same that may be able to give me some gleem of hope in this situation. I have 2 kids, boy16 and a girl15 and its very hard to try and live normal when this condition is always hanging over you. Is there anyone out there who has had the same type of cancer I have who can tell me a little more information on the outcome?

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  • hdeall
    hdeall Member Posts: 16
    edited January 2009

    Guess we are not alone, I'm 53, triple negative and BRCA 1 positive and oh yeah, just thru menopause.   

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  • Indigoblue
    Indigoblue Member Posts: 274
    edited January 2009

    How white I am, how white I'll be, if I don't find a doctor for me...

     Yes, I am of Scottish, Irish and Welsh descent.  I complained for years of this pain in my breast.  I don't know how long it was there...I am guessing it began at about age 40.  It took 12 years for the lump to appear; exactly where I had the pain; I knew it would emerge.  The doctors and the radiologist treated me like a whining hypochondriac.  I knew it was there and as it turned out the tumor was wrapped in a bundle of nerves and pushing on a nerve.  What nerve.  They could have suggestest an MRI, which I BEGGED for.  It was not given because the mammogram showed dense breast tissue and no evidence of a possible breast cancer.  Dense Breasts suck.

    My life sucks.

    Indi

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited January 2009

    Hi sister, I am 73 now, was 63 when diagnosed, they knew very little about TriNegs, so they basically ignored me.

    I feel fine, just got back from a cruise, am white with brown hair and hazel eyes.  Old, ugly and fat!  hahahaha

    Gentle hugs, Shirlann

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  • Roya
    Roya Member Posts: 346
    edited January 2009

    I still have neuropathy after being off taxol for almost 2 months. My doc told me that it takes about 6 or more months for it to resolve.  My feet are most affected.  When I went off taxol, it was just in my toes but since going off taxol,  it has spread to the whole foot.  I can no longer wear high heels.  I also noted some swelling.

    I had taken Vitamin B6 in a vitamin B complex starting after my 3rd dose of taxol and it helped.  The docs said I had  a ' flare ' when the neuropathy suddenly began to became unbearable.  They said that this is not a common thing to happen but that it does happen occasionally.Yesterday they ordered something similar to Amitryptaline (US).  I took it last night for the first time and noticed a significant lessening of symptoms this morning.  I also take a pain pill but after the Amitriptaline kicks in good then I hope not to need them.

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited January 2009

    Roya,

    You may also want to ask about Lyrica.  This is for restless legs and neuropathy.  I do find I does help with trying to sleep.  My neuropathy is getting bad fast again with Ixempra.  I hope to make in through three more treatments over the next three weeks.  Than I will take a break from Ixempra and just do Avastin for four months. Than back on Ixempra. Do try to get someone to do deep tissue massage on your feet it really does help with mobility.   It did take for me (with Level III neuropathy) six months to just get back to driving.  I did recover about 85% of my nerves but all of it would not come back after so much damage.

    I hope you find relief soon.

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  • Randy0828
    Randy0828 Member Posts: 1
    edited January 2009

    I am a 62 year old caucasian female dianosed 12/08 - underwent a double masectomy 12/30 - tumor was 2.2 cm - found a .3 tumor in sentinel node - am going to undergo lymph node removal 01/29 - and am seeing oncologist next Monday to discuss treatment - any suggestions what to ask?

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