reconstruction or not ?????

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  • GryffinSong
    GryffinSong Member Posts: 439
    edited January 2009

    Hi Pamela,

    You're so lucky to get out your drains so soon. I'm two and a half weeks out and two of my drains are STILL outputting too much fluid!!! The one I've had removed was SO relieving. Everyone is right when they say you'll feel tons better with them removed.

    As for reconstruction, the only bad moment I've had was last night. I'm still staying with a friend right now, because it's been snowing so much that I'd have trouble dealing with it on my own. There were three teenagers here last night, and they were telling a joke about bra sizes. After they left the room I felt myself all weepy, thinking, but I have no bra size. First time I've felt sad at all about losing my breasts, and it isn't bothering me this morning at all. My fears about lymphedema are still much more immediate than loss of my breasts, since I had all my nodes removed on the right side.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    Gryffin Song, if it makes you feel any better, I still have one drain in too! I'm still draining a good 50 cc's every 24 hours. I was going to go back to work tomorrow, but am going to wait until I see the surgeon on Wednesday. I only have Sunday or Tuesday for the visiting nurse to take the drain out before I see him. I do not want to wear the drain to work! Bad enough no breasts...

    I am still itchy and put a lot of Glaxyl on. My husband had to take the tape goo off with nail polish remover (as per the nurse!). My ribs hurt badly and of course, I think immediately of bone mets. Sigh....thought I was over the scary part. 

    I have put together a great work wardrobe (good time of year for sales) of camisoles and the cool new stylish loose cardigans. I already have jackets so I am good to go. I walked around the mall today with my coat over my arm and a loose shirt on. No one stopped to stare and scream that I had no breasts, so it felt kind of good. I think I'm ready for my co-workers to see me. The only weird thing is that they guys used to hug me a lot and now I know it will feel different for them. Kind of like hugging a guy!

    Does anyone else have problems with belly swelling? I almost look pregnant, and it's not just because I have no boobs, my jeans are actually too tight! The nurse says that the body produces fluid as a result of trauma. I would have thought it would be gone by now. 

  • pip57
    pip57 Member Posts: 12,401
    edited January 2009

    Here is a tip for removing the bandages.  Goo Gone.  You can get it pretty much anywhere and it works like a charm.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    I was going to use Goo Gone but the nurse thought I was crazy! I guess nail polish is acceptable against skin, but I don't really see the difference...

  • anianiau
    anianiau Member Posts: 182
    edited January 2009

    vivianu, I probably won't have reconstruction. I refuse to let breasts or the lack thereof define me. Implants don't last forever, and the idea of changing them out every decade or so doesn't appeal. I've had enough friends with implants to realize that a substantial minority develop problems. The same is true for reconstruction, a daunting surgery many hours long that can sacrifice core muscle I may need in the future to stay independent.

    If the reconstruction was being done to correct a facial deformity, I would probably pursue it. My father had multiple cosmetic surgeries to refashion a nose after he lost his after he was diagnosed with invasive squamous cell carcinoma. The first two failed, and while the pedicle flap (from his forearm) was successful, it required many revisions to make a 'nose' of sorts. In comparison, I consider myself fortunate. I can live a full life, and if I wear even minimal sized prostheses, only the people with whom I choose to share will know I have had a bilateral mastectomy.

    Ten days ago my surgeon called me and said he wanted the steri-strips gone by the time of my next appointment. Remembering how I used to get gum out of my boys' hair, I used plain oil to remove the steri-strips from my bilateral mastectomy incisions. Any lightweight food oil will degrade  adhesive residue, with a lot less pain than acetone/nail polish remover. (I can't say that I had any pain, though it felt weird.) It took about 45 minutes to remove them, since they were criss-crossed over the incision lines, and I still had (and have) scabs and folds along the incision sites. After I was done, I showered with very mild & unscented soap to remove the oil.

    Barbe, I thought I was the only one with a newly big belly! It makes for a strange profile. I have been flat-chested, though on occasion I have worn the pos-surgical camisole with puffs. That does draw attention away from the belly, though right now I find it hard to have any pressure in the incision area, in the center of my chest, and under my arms. (The surgeon removed the drains too early, resulting in swelling in those areas.) What has worked best in clothing have been pretty camisoles paired with button front blouses, or around the house a loose cotton knit t-shirt.

    Good luck with your choice.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    I recall mentioning that I wouldn't have to wear a brassiere ever again and a number of people (who all knew I was getting the BM) wondered why not? Duh on them! I have found many pretty tops to wear that gently fall over my chest and don't make it obvious that there is nothing to fall over, if you know what I mean....

  • pip57
    pip57 Member Posts: 12,401
    edited January 2009

    re Goo Gone

    Both my surgeon and pharmacist suggested it to me.  I use it at work all the time so I knew how well it works.  I had no skin irritation from it at all and did not have to rub to get the sticky stuff off.  It took seconds to work.  My hubby and I thought of putting it in small bottles and selling it to surgery wards.  We could make millions! 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    Well let me be the first to buy one! My husband had to rub quite hard and then I had to pile on moisturizer as acetone dries out skin. I like your way much better.

  • PuddinTame
    PuddinTame Member Posts: 128
    edited January 2009

    So glad to have found this thread.  So much good stuff here.

    I tried olive oil on the goo.  Didn't work.  Thought about nail polish remover, but didn't want to chance getting it on the incision.  Might try it later, though.

    I was supposed to go back to work today at two weeks out, but realized that wasn't going to work.  I got half the staples out on Friday and don't get the others out until Wednesday.  I'm really hoping I can stand to wear the mx bra by then for more than an hour.  At first the pressure felt pretty good, but now I can't stand it. It hurts.  I might have to go get a cami to use the the puffy in--something looser--to wear for a while at work.  I got two vests and a zip jacket.  I already had a couple of cardigans. But I might need a few more things--or maybe not since I work from home part of the time.  I do need to take advantage of the sales, though.  Since I only had a single mx, you can definitely tell when I'm not wearing something.  I went to church last night without the bra and wore a zip jacket but also felt self conscious and kep my coat on as well.

    Thanks for giving me more to think about.  I need to go assess my clothing situation before next Monday. :)

  • d5holmes
    d5holmes Member Posts: 15
    edited January 2009

    I just found this site and have found the discussion so helpful.  I joined the site just so I could thank everyone who has posted.  I am BRCA1 and will probably have a PBM soon.  I have been trying to decide whether to reconstruct or not.  This discussion is helpful.  I see a breast surgeon on Monday and might just see how I like living without breasts.  I have a feeling I might not miss them very much .  I am 40 DD and sort of sick of carrying them around.

  • sweeeeetpam
    sweeeeetpam Member Posts: 115
    edited January 2009

    Hi Everyon, sorry have not beem on hear for awhile, my surgeon did not use staples only tape and what every it was it did not leave marks......................I am on my 3rd week and after a day with a bra on it hurts..............My arm still burns and I am back on chemo............for at least 6 weeks.

                             I did buy some expensive bras turned out my old bra works better, only had one breast removed and I just pin the puff in the other I wore a v neck today and no one had a clue!!! Hello to all of the new people!!  Pamela 

  • NancyNJ
    NancyNJ Member Posts: 128
    edited January 2009

    Hi Pam,

     I did  the same thing - went for the very expensive bras and ended up being more comfortable in one of my old ones with the puff in it. Go figure -

  • anseliam
    anseliam Member Posts: 5
    edited January 2009

    Hi-

    I am only 41 and had to have my reconstructed implants taken out due to an infection. Can I say, "Oh my god...how great!" I had the opportunity to have one reconstructed breast still in and one without, and it feels so much better to not have something fake inside of me...as well as the pain of an implant under the muscle. I feel free and happy about the choice. Man or no man.  

  • sofiajane
    sofiajane Member Posts: 8
    edited January 2009

    Sally,

     I am new to this board and hope you receive my message. I had my exchange surgery over a year ago. I am having much trouble with my neck (constantly feeling the need to stretch it), my chest, and my arm.

    I am seriously considering removing the implants and read with such interest that you had problems with your neck. Actually, I don't know of your history and wonder about the problems you had with your neck.

    So glad I found you. Thanks, Sofia

  • spar2
    spar2 Member Posts: 6,827
    edited January 2009

    after 4 years of thinking about it, I got silicone implants and found my self esteem rose just being able to wear a sports bra and have some breast that are soft and look normal with clothing on.  It is such a personal decision but I am really glad I did.

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