Ballet/Bike riding

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LiveLoveBelieve
LiveLoveBelieve Member Posts: 25

Hi all -

 I had a mast. in Oct; right side, node biopsy.  Will have left side in Feb., 2009. 

I want to take ballet again - lookin for information on leotards (no reconstruction but have lumpy scar tissue)

Also - will riding a road bike aggrevate lymphedema?

Thanks, in advance

llb

Comments

  • car
    car Member Posts: 492
    edited December 2008

    Hmm. I can't help you on the ballet issue (I'm an incredible klutz), but would like to put in my $.02 about road bike riding. I've developed a real phobia about riding (and I used to do centuries) when I had my horrible 32D implants (the PS was psycho). I know that if I fall the likelihood of hitting chest down is extremely low, and it's unreasonable. Anyone experienced this?

    I am eyeing my roadbike again now that my DIEP is done and my body feels like myself again. I have an appt. w/my onc at the end of January and I'll ask about the lymphedema issue--and will post what he says.

  • digger
    digger Member Posts: 590
    edited December 2008

    I'm curious about the bike riding and lymphedema as well.  Knowing my PS, however, I would imagine he would say to definitely go for it (of course, he's not the one who has to be concerned with permanent side effects).  I would just stay really hydrated and, if you're going to go with short sleeves or sleeveless, then wear plenty of sunblock.  Also, gloves, for in case you fall, the gloves will cushion your fall and you won't have to worry about an infection from a cut.  I know for me, the one silver lining to receiving the bc diagnosis in the fall and then surgery in the winter is that, come spring/summer, I want to be able to be back on the road on my bike.  My greatest pleasure in life is sweating through a nice, hot day on my bike.  I simply love it, and I refuse to give it up.

    About the ballet, I have always enjoyed Lotte Berk classes, which are a combination of dance, pilates and yoga.  I haven't been back to a class since my unilateral mx on 11/20, because I'm still nervous to lift weights (we do light weights) and I don't want to stretch beyond what is good at this point.  However, I did have a suggestion for dance clothes.  I love Lululemon, and they have a great sports bra (it's called the lift and separate bra) with a front clasp.  Almost all of Lululemon's clothes also come with soft, removable inserts in the bra.  When I first came home from surgery and was ready to wear something, I kept the insert for the flatter mx side.  Now, with my tissue expander, the foob side is bigger than the other, so I use the insert on the natural side.

    Good luck! 

  • car
    car Member Posts: 492
    edited December 2008

    Thanks, digger. I already wear gloves and since I'm at high risk for skin cancer am good w/the sunblock and never go sleeveless--though short sleeves. I've got to get over this phobia as I reallly miss riding.

  • bomber410
    bomber410 Member Posts: 564
    edited January 2009

    I road bike and have LE.  Road biking does not seem to make it worse.  Salt makes it worse.  Not enough water makes it worse.  But riding the bike doesn't seem to. My 2 cents.  :-)

    Debbie

  • Binney4
    Binney4 Member Posts: 8,609
    edited January 2009

    Hi, all,

    Just wanted to comment on the question about lymphedema and bike riding. First, exercise is helpful for reducing lymphedema risk, providing that you give some thought to how you're using your arms and hands. After bc treatment, we have to be mindful of any "odd" feelings in our arm, hand, breast/chest, side and back that may indicate early (or "sul-clinical") lymphedema: tingling, aching, heaviness, fullness, numbness -- or of course swelling. If you sense anything like that you should stop at once and elevate your arm as much as possible. You can try again the next day, but always paying attention to how your body is reacting.

    The issue with biking would be the tension from gripping with the hand and fingers and - more to the point - leaning your weight on your arms/hands. Anything you can do to relieve the leaning would be a good idea. (If you're bilateral, both sides are at risk, even if one was prophylactic.)

    Here are some things you can do to lower your risk. First, ask for a referral to a well-trained lymphedema therapist for baseline arm measurements, learning a gentle lymphedema massage you can use prophylactically, some personalized tips for avoiding lymphedema, and a fitting for a compression sleeve and glove or gauntlet you can wear for exercise, travel, or any strenuous or unusual activity.

    Also, stay well-hydrated; carry antiseptic wipes, topical antibiotic and bandaids with you to treat and cover any nicks or scraps to the affected side; avoid extremes of hot or cold; protect yourself from sunburn or insect bites; avoid bras and day packs that cut into your shoulders and could block lymph flow; change the position of your arm and hand frequently, and exercise them at intervals.

    Here are two websites for more information about lymphedema risk reduction and exercise:

    www.StepUp-SpeakOut.org

    www.lymphnet.org

    Hope that helps!

    Be well,
    Binney

  • car
    car Member Posts: 492
    edited January 2009

    Binney & Bomber--thanks so much! I'm just now considering lymphedema risks now that surgery is pretty much over, and I really appreciate it. It's on my list of questions for my onc and PS (I don't know if the DIEP involved any lymph nodes) this month. As an ex-century rider, I would really like to get the bike out of the garage and make it part of my exercise regimen again.

    Many thanks, and happy new year!

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