Starting chemo January 2009?

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  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    sorry all!  i'm here!  i'm fine....just feeling like I should get my butt off the computer and hang out with my family LOL!

    i'm doing ok.  no new side effects.  food is still kind of distasteful.....lived on saltines, applesauce and popsicles today.  and....embarrassing, but i'm feeling constipated even though I'm on miralax.  thing I'll add colace to the mix.

    i'm hoping to feel bettter tomorrow.  today was day 5.  day 6 will get me back to normal, right!?!?!??  let's hope so!

    thanks for asking about me!

    Lisa

  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    Renrel,

    welcome!   just wanted to say that i'm 45 and have a 5 yr old as well.....also a 9 yr old.  so sorry that you were on the verge of ivf.....i can't imagine having to switch gears from ramping up for ivf to being told you'll be thrown into menopause.  i count myself lucky that i'm done having kids (even though i'm an "older" mom).  i have met a few with breast cancer who want more kids....its the most heartbreaking thing.  just wanted to say that i'm sorry!

    hugs,

    Lisa

  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    I haven't added a photo here before but will try to add a few from Christmas.  One with my kids and one with the kids and dogs!  My huband isn't in them....he was taking all the photos!  usually, I'm the photographer but wanted to be sure to get photos of me before I lose my hair!

    [IMG]http://i273.photobucket.com/albums/jj232/lisalisa_1212/xmas cards 08/xmaseve08treewkidsanddogs.jpg[/IMG]

    [IMG]http://i273.photobucket.com/albums/jj232/lisalisa_1212/xmas cards 08/christmasevepeacelovejoy08.jpg[/IMG]

    darn.....does anyone know the method to adding photos on this board?  thanks!

  • Hawaii808
    Hawaii808 Member Posts: 35
    edited December 2008

    I admire all of you teachers who are determined to continue working thru your treatments.  Teaching requires a lot of energy and commitment.  I'm planning on working as well but my job has the flexibility to allow me to stay home if I'm not feeling well.

    Today I went to buy Claritin D which is suppose to help with any bone pain from the Nuelasta shot and Senekot to help with constipation.  I'm trying to make sure that I'm armed with every single thing I'll need to treat the side effects.  I need to start working on getting a decent looking wig. 

     BTW, is anyone else getting chemo treatments before surgery?

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited December 2008

    Lisa,  I did look at your web page.  What a nice job!!  You are beautiful and so are your kids. 

    I hope you are feeling better today.

    Hawaii808- claritinD is something I hadn't heard about, but I am going to stock up on it. 

    Renrel--You came to the right place.  Hugs.

    I am actually going to venture out farthere than 20 minutes from my home---going up north to a place that offers a free lunch for your birthday....Mine is New Years Eve!! 

  • babyc
    babyc Member Posts: 58
    edited December 2008

    Hello, tomorrow is a big day for me.  I will see my onc. and will find out if Tuesday is still the launch day for chemo.  The healing problem is going to be the deal-breaker.  Today, I'm going to begin floating myself in water just in case.  A few questions:  many of you have referred to Muga; are these the series of ct scans for possible metastisis?  Before the Neulasta shot, are your onc's suggesting the Claritin or Claritin-D to be taken and are they pushing Tylenol or Aleve for the joint/bone discomfort SE from the shot.  I'm just curious since some of you have already had your first treatment.  I have been told I will be on Taxotere/Cytoxin treatment and I have been reading a lot on that topic under the Chemo forum.  Today, I'm trying to sort through all my notes and make out my list of questions for my onc. and hopefully I'll leave there with a shopping list for a drugstore.  My ability to organize seems to have dissolved.  Best wishes to you all, January Jewels....... 

  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    Hi Baby C,

    I already had my first treatment 12/23.  Today is day 6 for me and I feel GOOD!!!  Food still tastes awful but everything else is good!  I'm about to even go for a long walk on the beach....I'm so excited to get out of the house!  My oncologist suggested tylenol for pain from the neulasta shot.  I didn't take it as I didn't want to mask a potential fever.  My shot gave me some pain, not horrible though.  It may have even been pain from sitting on my butt for days watching tv (I NEVER do that!!!)

    If you haven't seen it, on the chemo board, there is a great list of items to shop for and have on hand.  I used it and haven't need many of the products.  But, b/c my chemo was the 23rd and shot on the 24th I stocked up on everything.  I didn't want to need something on Xmas Eve and not be able to get it!

    Hawaii - welcome!!!!  I did 2 surgeries before chemo (lumpectomy and then bilateral mastectomy).  but, I have a good friend who did the order you are doing.  She had surgery the day of my first chemo.  She is doing well!

    Jess- thanks for your compliments on my blog.  Its really just a caring bridge site to update all in one fell swoop!  if anyone wants to folllow it, www.caringbridge.org/visit/lisamittleman

    Ok....off for my walk and some FRESH AIR!!!
    see you all later!
    Lisa

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited December 2008

    Baby C: Good luck healing! The muga scan is to assess heart functioning. My doctor wanted me to do it because I'm doing Adriamycin, which can rarely affect the heart. Also to make sure I could do the Avastin clinical trial.

    The PET/CT scan was to "stage" my b/c, to see if the cancer was anywhere else in my body. I guess cuz I had 3 pos. lymph nodes.

    Hawaii: Is Claritan a pain kiiller? Not an antihistamine? My onc said I could take tylenol  or advil after neulasta. Hope I don't need either, but then I already have aches and pains and haven't even started chemo!

    Lisa-glad you're feeling better. I just started really long walks again and feel like I"m reclaiming myself. I'm determined to keep it up after chemo when I can.

    and Jess, I know what you mean about getting out of the house. I finally started groc. shopping again just a couple weeks ago and felt like an alien in a way, but taking my girls to SEcret Life of Bees was so healing, and I hadn't thought I could brave a movie out. I've had  ups and downs  processing this whole damn b/c thing and remembering I'm still me.

  • Hawaii808
    Hawaii808 Member Posts: 35
    edited December 2008

    Baby C - My onc suggested Claritin for the bone pain from the shot.  I bought Claritin D because it cost more so I thought it must be better.  LOL.  I think Claritin D is time released but I may be wring.  Let me know what your onc suggests.

    Lisa - I'm glad to see that you're feeling good and that your friend is doing well.  Gives me hope that I'll get thru my treatments.

    Mimi 07 and jrgolomb - Ready for our ports tomorrow?

  • Hawaii808
    Hawaii808 Member Posts: 35
    edited December 2008
    Berkeleykim - I also thought it was odd about the Claritin but my onc said that they have found that it helps.  I also read about it somewhere on this board but the person said it didn't help them.  Oh well, we'll see.  I know what you mean about the aches and pains.  I keep thinking thatI won't know what pains are from the treatment and what I already hadWink.
  • ChrisBern
    ChrisBern Member Posts: 33
    edited December 2008

    Hi - I'm new on this forum. I will start chemo tomorrow December 29th (4 AC + 4 Taxol). I will then have a bil mastectomy since I have the BRCA2 gene.

    I'm a man of 31 years old that lost his mother from breast cancer when she had 33 in 1988. I have two young children (a 3 years old daughter and a 10 month boy).

    Chemo brain is the only side effects that scared me.Otherwise, i'm not really nervous to start my treatment tomorrow. The readings I have made so far on this forum are helping me. (Sorry for my English level - French is my first language).

  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    Hawaii - do you live in Hawaii?  we go every summer....usually to a different island each year.  We were in Kauai this past August when I found my lump.  I drove all over that island trying to find a medical center LOL!  I didn't want to tell my husband and ruin our vacation LOL!

    Chris - welcome!  I'm sorry for the loss of your Mom to this dreadful disease.  Its nice to have a guy join us here.  You'll do fine with your chemo.....its not nearly as bad as I expected!

    I'm back from my walk.  I did 3 miles on the beach.  I need to kick myself to get out more often....I felt like a "real" person, not a chemo patient!  But, remember if you get out, take sunscreen!  I was told chemo heightens sun sensitivity.

  • mamasarah
    mamasarah Member Posts: 23
    edited December 2008

    As we begin a new week and a new year, I want you all to know how much this discussion has come to mean for me.  I don't post often by a visit a lot.  You are all such an inspiration, especially those who have begun or are about to begin treatment.  I start on the 6th.  I hope all of you have a fine week, one week closer to our cure. By the way, for those who plan to spend a quiet night in or have TiVO, Lifetime Channel is rebroadcasting "Living Proof" (the documentary about finding the HER receptor) at 10 on New Year's Eve.

    Happy New Year,  

  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    Hi Mamasarah,

     Glad to have you on this thread!  Please join us more often!  Best of luck as you start treatment too!

    Thank you for posting about "Living Proof".  I've been wanting to see that movie.  I'm being treated at UCLA and the doctor that the movie is about is a UCLA doctor.  He discovered herceptin.  Doctors at UCLA says its a terrible portrayal.....but that's ok....I still want to see it!

  • Carol0371
    Carol0371 Member Posts: 23
    edited December 2008

    I will finish radiation Jan.19-so will probably start chemo the next week.This will be the third time for me.Original dx june2002.Mastectomy,6 mo chemo 45 trtmts radiation.Took Arimidex,went almost 5 yrs. before recurrence in lymph nodes.Feb 2007 surgery of lymph nodes,chemo for 9 wks.recurrence in Nov 2008,surgery,radiation 25 trtmts,then 12 wks chemo.I'm glad I found this site to connect with others going thru the same thing.

  • kt57
    kt57 Member Posts: 425
    edited December 2008

    Hello!

    I'm new to the discussion board,as in posting.. I've been lurking for days through all the wonderful information...what an incredible resource.  I had a lumpectomy and SNB on 11/19/08. Path report showed Stage 1 IDC (one area 0.6cm and three other microinvasive) and lots of DCIS, grade 3 node negative ER+PR+ (the oncotype says PR negative) HER2-.  My oncotype score was 29 with a 19% relapse rate...so chemo it is: cytoxin and taxotere X6.   I'm still a little unclear why I need 6 cycles instead of the usual 4, but I see a few others here are getting 6 too.  Think it might be the multifocal high grade nature of the cells.   I get my port on Dec 30th and start chemo on Jan 2.    Thanks to everyone who says this is "doable".  It has to be! 

    Stay hopeful. 

  • Route53
    Route53 Member Posts: 340
    edited December 2008

    DDlatt,

    Yes the physician group you are with is the same as my wife's and my mother's.  They like to treat things as aggressively as they can.  They will take the risk factors that are given to you but incorporate the margins of error to make sure that not mistakes are made.  They do like to avoid ports from what I've noticed, but I'm not sure if that is a normal thing,

    Route53

    http://route53.wordpress.com

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited December 2008

    Added to the list:

    KT57--Jan 2-  TC  x 6

    ChrisBern--Dec 29  4x Ac  + 4x Taxol

    Hugs to Chris

    Mimi, Me (Jess) and Hawaii808--Port time!  Dec 29

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited December 2008

    Hi all:

    Good luck to the many of us who have a busy week coming (port placements, surgery, chemo starting, and continuing for some). I'm still not sure what I should be taking to chemo...I'm calling my nurse.

    I melted down this morning but am ok now, and am going out for all you can eat Indian food with family since I'm not so sure I'll be able to stomach it for the next few months! Then on to GNC for that L-Glutamine powder. Found the Throat Coat tea. My mind is starting to shut down a bit, so for now I'm giving up on the hair thing for now. Hope I have the energy later...

    Hello to all new on the list and cheers to us all.

    kim

  • ChrisBern
    ChrisBern Member Posts: 33
    edited December 2008

    Hello everyone,

     I just had my first AC treatment this morning and aso far so good! My first SE are: my head is a little bit dizzy and I have some nausea. I'm feeling like my anti-nausea meds are trying to overcome my chemo and prevent me to vomit.

     I will reconnect tomorrow.

     Good evening everyone!

    Chris

  • lisalisa
    lisalisa Member Posts: 824
    edited December 2008

    so....i spoke to soon and made this all sound so doable.  today, my back is hurting and its been increasing in pain throughout the day.

    went to my oncologist and my WBC is 3.  it should be at least 4.  ugh.  they say days 7-10 are lowest for WBC and tomorrow is my day 7.  Looks like as my WBC goes down, my pain from neulasta shot increases.  I was also told that I'm not out of the woods for sore mouth, etc.  So, off to drink Throat Coat and sit in my recliner with heat on my back.

    Hope everyone else is having a better day than me.  Is this what I get for being too cocky about all this?  ugh.

  • mimi07
    mimi07 Member Posts: 25
    edited December 2008

    Thanks Jess! for remembering!  I don't know why this port thing, I really dread it... But I will feel stronger thinking of you and Hawaii808! 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited December 2008

    H all:

    Chris--glad it went well today. I go tomorrow for AC, plus Avastin if I don't get the placebo in the clinical trial. Finally got my insurance to cover anti-nausea but with a co-pay. Glad to hear meds  work. I'm still very nervous, though.

    Lisa--sorry you're having pain. Is yours mainly in your back? I hope you feel better and there's some sort of pain med to help.

    Mimi, Jess, Hawaii--Hope your port placements went well. I had some discomfort, but not really pain, for about a week and a half. I can now move my neck like before--it had been stiff. I had bruising too, which seeped down throughout my remaining breast.

  • kt57
    kt57 Member Posts: 425
    edited December 2008

    Hi All,

    Chris - one down.  You are on your way - one day closer to having this all behind you.

    Lisa- Have you tried the L-glutamine or claritin or aleve, like some of the others have suggested,  don't hesitate to call your onc and ask for pain relief.  There are many options.  Hope it's better soon.

    Mimi- how did the port go.  I get mine tomorrow.  Will be glad when it's over - I'm almost dreading this more than the breast surgery.  I know it will be way better than getting stuck for blood draws and chemo.  How long will you keep it in after your chemo is done.  My oncologist suggested leaving it there indefinately.  When I said I wasn't too keen on that notion, he said maybe 6 months after I'm done with chemo.  We'll see..my surgeon says he'll remove it in May - so i can get on the golf course again - at least to putt and chip - long shots will have to wait. 

    Well with chemo on Friday, I decided to get my wig today and be ready for the inevitable,  What an adventure that was!  My 20 year old son came with - he did an awesome job helping me decide.  It was wild.. this place must have had 400 wigs, most were down in the basement - on styrofoam heads - it was like something out of a Stephen King novel - we laughed and laughed - wondered if the heads talked to each other in the middle of the night.....  too funny.  Well, I put on the wig when I got home, and my hubby had to do a second take to realize it was a wig.  So I think it's going to be just fine.   My co-workers thought a Sarah Palin wig would look good on me, but my son said he couldn;t take the accent for 6 months. 

    Well hang in there everyone; stay hopeful.

    Kathy 

  • Snowbird
    Snowbird Member Posts: 124
    edited December 2008

    Round 1 of 4 (TC) - check. Neulasta "booster" shot - today. So far, so good. Slight queasiness last night, but able to eat just fine. DH made a great carrot, sweet potato, orzo soup w/grilled ham & cheddar sanch... the recipes came from some 'cooking for cancer' cookbook my onc. gave us.

    Today's still early, but am only feeling sluggish and fatigued so far.

    Onc. nurse gave us a lecture about boosting calories & protein to prevent weight loss...  I was really hoping that could be one of the benefits of all this, but alas, I guess not. Oh well, at least it's a good excuse to wallow in good old-fashioned home-made-from-scratch macaroni & cheese, my secret comfort food vice.

    Also discovered that some weak green tea with a quarter of an orange makes a great filler for that huge water bottle "they" tell you to drink, drink, drink...

    Going for a wig today, even tho the nurse said that with the drugs I'm on (TC) she didn't think I'd lose all of my hair - just some thinning (hopefully!?!?!). Insurance covers one per year so I want to get "this year's" in yet, just in case I do need it.

    What's "Throat Coat" tea?

    Thanks for all the help, support & info found here...

  • Brenny
    Brenny Member Posts: 116
    edited December 2008

    Snowbird - not sure where the nurse is getting her info, but you might check out the TC only topic - I don't think anyone has reported they were able to keep their hair. My onc nurse has known no one -- hopefully you will be the exception!

    Kim - to take to chemo -- a good book, your ipod, a dvd player and a funny movie that you can laugh out loud at - like What Happens in Vegas.  Hand lotion, some hard candy, crackers (if your facility doesn't offer them), a warm blanket.  Wear comfy sweats and take slipper socks. 

    I am soooo thankful for my port - I couldn't touch it for a couple weeks, but now there is no recognizable bump and the neck vein is no longer noticeable. 

    Good luck to all this week - I am 5 days out of tx2 and doing well.

    Bren

  • Snowbird
    Snowbird Member Posts: 124
    edited December 2008

    Brenny: I don't know where she was coming from either, and I'm not sure I really believe her, but it sure felt good to have some hope... I'm preparing for total loss, however, just to be "prudent"...

    Kim: I took my laptop and sorted through digital photos to transfer to my new digital photo frame. The time flew. Also, I was really surprised to see SO many others there too - t'was a "full house"! 

  • auriga
    auriga Member Posts: 315
    edited December 2008

    My onc told me I would lose all my hair on TC. I hope he is right because my husband surprised me yesterday and took me to a wig store. I ended up buying 2 different ones. One that looks a lot like my hair does now, and a baseball cap with hair hanging down. That one is really cute. My insurance co pays for it, so I figured why not? Although I assumed I would just have scarves, it might be nice to have a wig too.

    I have to check out that "things to bring with you" thread and then go shopping for it all. My first treatment is scheduled for Jan 5th. As nervous as I am, I'm also anxious to just get it started and get it over with.

    Happy New Year Everyone!

  • ChrisBern
    ChrisBern Member Posts: 33
    edited December 2008

    Hi everyone,

     Let's start with the bad news (I think it's important between us to be honest all the time): I had my first chemo shot yesterday at noon and been sick from 6pm to 10 pm (threw out 4 times). I called my nurse this morning and she said she will increase the meds dose at my next chemo shot in two weeks. She thinks that because I'm a young man, I need more meds.

    Good news now: I had a great night and I'm feeling top shape this morning, like a 31 years old man!

     By the way, I have compassion for all the women on this board that are anxious with the hair/wigs and the breasts issues. I think it's definitely easier for a man to deal with those issues. You have all my admiration.

    I wish to all of you a happy and healthy 2009 year.

    Christian

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited December 2008

    I had a hard time with the port.  Started to have an anxiety attack in the operating room-so they gave me extra "medication".  I guess I was pretty loopy and my friend and the nurses had a good laugh at me because i was waving at everyone when we left the operating room and guessing their names.  My friend said I sounded like I had imbibed heavily while I was in there!!! later, the bandage got a bit bloody so I called the doc on call and he said to expect it. 

    I certaintly don't like the port, can't wait to get it out and am now really counting the days till the end of May.  Hope there are no delays in my treatment.

    I also went and picked out a wig and got my hair cut short to a sharon stone style--too bad I don't get her salary!  I went with my friend and we laughed at how funny some of the wigs lookI also got tips on make up.  If I go to a day class I can get a back of make up and make up tools for my face........I may go for a bandana if work will allow it-high school and rules for scarves on the head/  It 's a no-no-Yeah, Like I look like a gang wanna be!!!Foot in mouth

    Auriga- good to know some insurance pays for the wig.  I could really use it since every little penny counts at this point.

    Lisa-sorry about your back.  Is it the neulasta?  the low wbc?  Hope the heating pad and just sitting helps.

    Hugs to you all

    Jess

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