Starting chemo January 2009?
anyone? i'm recovering from a bilateral mastectomy with immediate reconstruction on 11/19. I see my oncologist on 12/17 to come up with a chemo plan. She's been out of town at the Breast Cancer symposium.
So, I'm guessing I'll start chemo after Christmas or in January. Anyone else? Let's get thru this together!
Lisa
Comments
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bump.
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Bumping again. I will start chemo on either December 29th or January 5th. It depends on when I can get my port put in.
anyone else in January?
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Hi Lisa, nice to meet you. My name is Brenda and I live about 20 miles from Orlando, Florida. I should begin my chemo in January also. I had a modified radical on November 11. I will need radiation after the chemo so I have not had any reconstruction yet.
This is my first post on the boards, although I have been reading a lot since my diagnosis. There is a lot of great information that should help us get through this.
I am a tough old broad and don't intend to let this beat me. I just turned 63 last Friday. My family is afraid for me, but I am doing everything possible to stay positive and keep everything as normal as possible.
I had my port put in last week. Mine was put in my arm.
We will get through this.
Brenda
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I just had my bilat mastectomy yesterday, and am meeting with my oncologist on january 5. There is cancer in my nodes, and I definately need chemo, and from what I can tell, will start sometime in january. I'll let you know when. It's a total blow to me, because the surgeon didn't expect node involvement. I'm still reeling.
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I had a PET scan that showed 2 nodes, but when the pathology came back there were 5. The onco was not pleased with this report. I guess he was hoping the PET was accurate.
I know what you mean about the reeling. Everyday seems to bring something else to think about that you did not plan for.
Never in my wildest dreams did I think this would be in my future.
Keep us posted. I will let you know tomorrow after I see my onco. I hope he will set my schedule then. I am scared but anxious to get started.
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Hi Brenda and Gryffin,
While I'm sorry that you are here, I'm glad I'll have others to go thru this battle together!
Cancer will NOT beat me. I'm 45 and have 2 young kids that need a Mommy! My son is 9 and my daughter is 5. I MUST beat this. So far, my prognosis is good. While I do have lymph node involvement, my receptors are good and I'm loving my oncologist.
I'll be doing TC for 6 cycles. Then, I'll do radiation and then tamoxofin. I'm going to kick cancer's butt!
I'm in Manhattan Beach, CA....a little beach town south of the LA airport. I'm being treated thru UCLA.
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Really glad both of you are here too. We will all kick this. My treatment is through Florida Hospital Cancer Institute in Orlando. I will find out tomorrow what my treatment will be an when it will start.
Have to work tomorrow, so signing off now. Stay close. We will need each other.
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starting chemo in january
Adriamycin/Cytoxan and Taxol - then radiation, then zometa for six months
after hearing the opinions of my reno, nevada oncologists, i met with a well-known breast cancer specialist in san francisco at UCSF, dr. mark moasser, who recommends adriamycin/cytoxan every two weeks, four cycles, taxol every two weeks, four cycles, radiation (36 treatments), and six months of zometa, to help prevent recurrence. he said he recommends the most aggressive chemo treatment because he said it's my one and only chance to keep cancer from recurring, because if it recurs, i'll be spending the rest of my life trying to slow it down. his recommendation is completely different from my reno oncologists (who recommended TC and no radiation). he does not recommend that i get a port.
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Hi ddlat,
I've been posting for a few days trying to find a January group and here we all are! Sorry that you have to be here but I could use the company.
I'm curious....why does your doc NOT recommend a port? Mine thinks a port is a good idea but maybe that is because I had 6/17 positive nodes and therefore already "lost" one arm. Don't want to damage the veins in the other arm. Would love your thoughts.
thanks!
Lisa -
hi lisalisa - my san francisco doc looked at my veins and said they're fine for chemo. he said that not having a port is standard for his practice. my reno doc said that he doesn't recommend a port because of the 10% chance of infection and the additional surgery involved for placement and then removal. but several of my friends have ports and love them.
so glad you started this thread!
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well, i JUST got a call from UCLA. i'm having my port put in TOMORROW! ack! short notice but otherwise I lose a week or two due to the holidays!
so, i'm off to finish up some holiday gift buying for the kids' teachers, etc. Still trying to get my Christmas cards finished as well.
ack!!!
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Ladies,
I won't be a regular member of your group, but I just wanted to send some encouragement your way. I started chemo in September 2008 and just went for my last treatment today. I was on DD 4AC followed by 4 Taxol. I developed neuropathy after my third taxol treatment, so my doctor decided not to treat me with #4. She told me that the risk of the neuropahy worsening and/or becoming permanent were not worth the benefit that I would receive from #4.
When I started in September, I thought that the date of my last treatment would never get here, but it does. And, believe it or not, faster than you think.
I was blessed with very few side effects during the process (other than hair loss). One of the best pieces of advice I got was to know what the potential side effects are but do not asume that you will get all or even any of them.
You're in my thoughts.
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Good luck tomorrow, Lisa. I saw my onco today and my first treatment will actually be in December. Day after Christmas. How about that for a Christmas gift? I probably could have asked to wait a week, but it seems pointless. I just want to get started as soon as possible.
I am so glad I had the port put in. They had to take blood again today and my veins are terrible. I can't imagine trying to get through the treatments without the port.
My treatment will be 4 rounds of AC every two weeks and then Taxol every week, I think for 6 weeks. Then the radiation. Reconstruction after all that. 2009 is going to be a long year.
Let us know how you make out tomorrow. I will be thinking about you.
Brenda
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Thanks, Brenda! your posts makes me feel better about the port. I'll let you know how it goes!
Lisa
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I am starting chemo in January, 09 , so thanks for starting this post. I will have four hour drip of chemo every 3 1/2 weeks for 18 weeks. Not sure of the chemo names, yet. Still needed time to wrap my brain around the idea of how it will spell out with my work schedule. I have to work as much as possible.....want to need to and of course we will see if I can do this.
<:AtomicElement>Any good places to find wigs? I went to TLC and most of them don't even come close to my hair style, which is really a non hair style since I was trying to grow it out! Go figure! Almost there to just beyond my shoulders and now I have to lose it all.
<:AtomicElement>Does anyone know if we lose eyelashes too? I know eyebrows, but eyelashes???
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Hi
I will be starting T/C on January 7th. I am Triple Negative. My tumor was very small, 6mm, clear margins and no lymph node involvement. I was dx on Oct 24th and had my lumpectomy on Nov. 21st. My surgeon is a dear, he was my husband's doctor when he was fighting melanoma, so we have a long history, he referred me to his oncologist friend, who my husband would see when he was in the hospital. MY onco was the one who really recommended I do the chemo after looking at the numbers, I chose to go for it, as an insurance policy to keep it from coming back. My surgeon agreed that I should go for it and that I would manage it fine. I am 59 have two children 22 and 23 who lost their dad almost 5 years ago to melanoma.
I have a great group of friends who have been with me each step of this journey. Last week we went shopping for my wig. It was our "wig" party. I guess I am as ready as I will ever be to get this part of my life journey over. I know I will be fine, I guess it is just the unknown that scares me. I learned years ago that what you read sometimes scares you more than the actual treatment.
sally
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jrgolomb -- you might contact your Amer Cancer Society for a list of wig suppliers locally --also ask them about their LookGood Feel Better Program and get yourself signed up for it - there's no charge, you get a wonderful bag of new makeup, you get wig/scarf tips, and (best of all) you will probably have some ladies in the class that have already bought their wigs and can give you personal recommendations of providers. I bought my wig locally, but I did order the bangs from TLC -- to wear with turban or hat I hope. The hair salon from which I bought my wig helped me match color and then she cut/styled it to my style.
You may also want to browse the Dec group postings - I think there are some good comments there. I am doing 4 tx 21 days apart and am working through them also...or intending to do so!
Brenda (Dec group)
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I meet with my oncologist on Tuesday, Dec. 23 and port will be placed Jan. 8 so I'm assuming we'll probably start in Jan.
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I had my port put in yesterday....more painful than I expected!
My oncologist called and I can't start chemo on 12/29 as planned. So, rather than wait till January 5th, I'm doing my first round of chemo on Tuesday 12/23. ack! But, I'm sticking with the January group....the December women are too far ahead.
Glad there will be a few of us to lean on each other!
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Hi I'm scheduled to start December 29. I had a Picc line inserted in my upper arm a week ago and asked if I could wait until after Christmas to start. The line is a bit annoying but not painful and doesn't interfere with anything I want to do. They don't do ports much where as I live as it takes surgical time that the docs can't get. I'm scheduled for 6 cycles, three weeks apart and then radiation afterwards. I'm hoping the nausea and tiredness won't be any worse than what I had when I was pregnant.
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jrgolomb,
I got my wig through TLC. My hairdresser helped me pick it out since he's known my hair for almost 20 years. Once I got it, I took it to him and he cut it to resemble my own cut as best he could. That helped a lot. In fact, people who know me casually, but don't know what I'm dealing with have actually complimented me on my new hairstyle. That has helped a lot...although I'm not sure what it says about my own hair. Oh well!!!
Jordie
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Lisa, I hope you are doing better today. Where did they put your port? Mine was really not painful as much as annoying.
I, too, am starting my chemo in Dec., however am staying with the January group. My computer was down last night and most of today or I would have asked sooner how you made out.
I saw my breast surgeon yesterday for the follow-up after having my port put in. She says everything looks good and is glad I am starting my chemo next week.
Welcome to the others in our group. I think we are all trying to wrap our heads around the whole thing. I feel like I have been on a roller coaster since October. Every day seems to bring something new or something I hadn't even considered.
I did some major house cleaning today. I figure I won't have as much strength or energy once the chemo begins.
Everyone, keep smiling, keep a positive attitude. We can all beat this monster within us. Even at 63, I still feel like I have a lot of living to do.
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Hello January 2009 Chemo Group - I thought I would pop in to offer you all some encouragment - I am from the January 2007 Chemo thread - we are mostly all 2 years out now!!
Chemo is tough, but not as bad as you may imagine - it is doable, just be sure to take all the premeds they give you, and after your treatments, take the antinausea drugs at the first hint of nausea - the trick is to stay ahead of the game, not play "catch up." Don't be a hero, if your family, friends and neighbours offer to help - take them up on it - be it a casserole in the freezer for dinner, grocery shopping, taking your kids etc. - they want to help, let them. If you can afford a cleaning lady/service and you don't already use one, this might be one luxury that really is not a luxury - fatigue is a big s/e of treatment.
It is a rollercoaster ride, especially in the beginning, from the shock of being diagnosed, surgery, radiation (if you need it), chemo, Herceptin (if you are Her2+ like me, you will get this as well, but the s/es are minor, in most cases.) But once you know your treatment plan, and start it, you will feel more in control.
Good luck ladies. you'll get through it, I can tell you from experience.
all the best
Caya
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Thanks for the encouragement, Caya. It is good to hear from someone who has been there. I've been giving that cleaning service some real thought. My friend has someone she uses and I am going to get her name. Even for the heavy stuff.
Thanks again.
Brenda
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Hello All, looks like we are all in this together; what a way to meet! I was diagnosed Nov. 10; had bilateral mastectomy (no reconstruction planned) on the Nov. 17th; and will begin chemo (taxotere and cytoxan) on Dec. 30 (4 rounds, in three week intervals). So far this has been quite a journey....but not a shock in my case. As a 61 year old with 32 years of cysts, aspirations, biopsies, and mammo/ultrsounds with repeated call-backs, I had a sense that this time was different. I have since spent all my energy doing something about it and trying to become informed and prepared for the next step. I have been cruising this site gathering info, preparing my arsenal (wig, possible needed supplies, etc), and letting all my friends and family overwhelm me with their love and kindness. I keep telling myself and all who care for me that this is "doable"! With our shared support for one another, it becomes even moreso.....
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Hi all. Latest news for me is I will start chemo January 8-exactly one month after surgery. I will get my port in December 29. Right now I am dealing with one reluctant tube from my mastectomy. Still draining at about 60ccs. I will be very glad when that is finished. I also am going to try and work as much as possible since I am the breadwinner here......My husband works hard, but he is self employed. I got on the chat room last night and people were very helpful. Thanks to the previous chemo individuals' advice. The biggest advice: stay ahead of the game, don't be afraid to ask for drugs and take meds for constipation.
I am still very scared, but know I have to do this. Laters!
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Thank your for the encouragement! I have many questions for the oncologist on Tuesday but are there things I should ask/know about that I might not think of? It is all so new to me....
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Hi Bev, I think the most important questions would be those regarding side effects, what to expect, diet, how long each treatment lasts. Ask what drugs are available to counteract side effects. My doc gave me a prescription for anti nausea that I will have filled before my first treatment. Take everything they will give you. I am told that taking a CD player or MP3 to listen to music is probably best. My breast surgeon put it this way: Take music to listen to, lay back, relax,close your eyes and picture the medication going in and killing off all those bad cells.
I know not everyone experiences the same side effects, but it is good to know what is possible. I read that soy products are not good for anyone on chemo. My onco agreed. There are some really good posts on here with lists of products that are good for us to have on hand in case. I will try to find them and let you know where they are.
Ask which drugs you will be getting and how many treatments of each. In my case, I have to have radiation, so that will be done after the chemo.
Don't be afraid to ask all your questions. You need to know everything. When were you diagnosed? I got mine on 10/15. Modified radical mast with axillary dissection 11/11, port installed 12/11, first chemo 12/26.
Good luck on Tuesday.
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What a great bunch of women are already gathered here! I'm only a few days out of surgery, and still have my drains in. So I don't yet know the chemo regimen. I should get my full path report within the next two days, and hope to get at least one of my drains out this week. January 5th I consult with my onc and surgeon. This will be the first time I meet my oncologist, but I've heard that she's very, very good.
Hugs to all of you, and I hope our journey feels short and sweet.
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I'm meeting with my oncologist tomorrow to review side effects, anti nausea, etc. I'll post tomorrow night. My chemo was moved up from 12/29 to 12/23 so I'm trying to learn as much as possible as quickly as possible!
I think I posted earlier, but I'll be doing TC for 6 cycles.
More tomorrow!
Lisa
p.s. my port is feeling better! but, i can't shower till Tuesday....that is driving me nuts LOL!
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