Anyone starting chemo in Aug. 08?

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  • Misty1
    Misty1 Member Posts: 272
    edited December 2008

    Corinne, from what my onc says, Herceptin is the miracle drug for us Her2 girls.  I am just happy that we have something to fight recurrence without giving any SEs like the chemo.  From what I understand, this drug will shut down the Her2 gene.  If (and I hope this never happens) there were to be a recurrence and I would get a cancer in the other breast, it may or may not be Her2+.  This drug is turning off the Her2 switch.  I hope that makes sense.  I am so glad I have been able to help you.  I assume you'll be joining me with the tamox?  It has been three weeks now, and I have not had any SEs from that. 

    GO, ALIBUG!!  You better still check in here with us girls.  I know how you feel about your cruise.  My DH and I leave for ours on 1/24.  Nothing like showing off the new girls in a bikini!!

    Lisa, I agree with your about the hair-I am confident about myself around the house and in front of my DH.  I am just not ready to go commando at work.  I admire your strength and the model you are setting for your daughter.

    ~Misty

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited December 2008

    Thanks Misty.:)  Baby steps with the hair. Its winter anyways, I am sooo happy about that. I don't know where your at ,but I am in MI so its sooo cold here. Hats are a must right now anyways :)

    I have been reading about expanders and reconstruction. Women were talking about all their pain, and I was freaking out a little. Then they all said they would do surgery and the expanders 100 times over ever having to do chemo.   That expanders are nothing compared to chemo. 

    I think we are all doing AWESOME.  It sounds like chemo is the worst of it all, and then its maintenance after.   Man I am happy they made that clear :)

    I am getting psyched about new boobies :):):)

  • alibug05
    alibug05 Member Posts: 182
    edited December 2008

    Well girls I am OFFICALLY DONE!!!!!!! The rads girls all hugged me and told me what a pleasure it was to get to know me and it almost made me cry.  They are having a party today at work for me so that will be nice!!!!!!  I just am glad to be done.  I go back on January 12th for a check-up so until then NO DOCTORS!!!!!!   Loves to all.......

  • mommy3abm
    mommy3abm Member Posts: 221
    edited December 2008

    WOOOOHOOOOO Alibug!!!!  Way to go girl!  I am soo happy for you!  My kids and I were using my treatment days as a way to practice fractions in the car this morning.  They figured out that I am 1/3 of the way done.

    Misy1 and Alibug - so happy to hear about your travel plans.  DH is giving the kids and I a trip to Disney World for Spring Break!  I can't wait.  My kids really deserve it!

    Lisa- you sound wonderful and I am so happy to hear it!  Love and hugs to that precious little one too!  She is the reason you are doing all this!  When people say to me, "I don't know how you are doing this."  My response is "My kids!"

    BetteLou- you are in the home stretch!  Keep your chin up and know that you have that sweet man and the rest of us rooting for you!

    OK...now I have to go back and read because my short term memory is shot...

  • mommy3abm
    mommy3abm Member Posts: 221
    edited December 2008

    Ok...here goes...

    Roya - How grows the hair?  My dh has started calling me "Fuzzy Wuzzy was a bear!"  I love it.  I can't stop touching my fuzzy head!

    Deanna - how was the trip?  I hope you enjoyed it!  I was a well deserved one!

    Corinne - I sure hope you are feeling better after the last chemo.  WOOOHOOO for no more chemo!

    Has anyone heard from Tonya, or Hood?  I am hoping that all is well and that they are too busy "living" to check in!

    Love and hugs to all!

    Stacy

  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2008

    Hi, Stacy & everyone...  First, another big WOHOO to Alibug!  You are my inspiration for what's ahead!  And, Stacy, I am thrilled to know that you're up and running with such a full-time schedule while still doing rads!  You, too, are an inspiration!

    Misty, I've also been wondering about Gail.  Knowing her a bit, I have a feeling she's just on to other things already, but I'll give her a call this week if she doesn't check in here. 

    Deen, I don't feel like I've particularly "aged," but I certainly don't feel as energetic as I did pre-bc.  Still hoping that will come back when I'm done with rads and my hair, eyebrows & lashes grow back.  But, for now, I just feel kind of at loose ends, like I need more energy and maybe even a new direction to feel revitalized.

    Tonya, have a wonderful trip and Happy Birthday.  Bette, how did Tom's support group work out? 

    (((Hugs))) to everyone above and everyone else.  I just have to tell you that after being away from these boards for a few days, it is crystal clear what an awesome group of strong women you all are!    Deanna

    P.S.  Will anyone else here be joining a January rads group?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Deanna, Tom's support group went great! Eleven attended, and the discussion went well. they are already starting to share stories and resources and help each other. 

    I am so proud of him for stepping out and starting to give back after what we have been through so far.

    Alibug, Way to go! Enjoy your party!

    Stacy, Congrats on your fuzzy head

    Corinne, Yeah for no more chemo!

    My last chemo is this Wednesday, 12/17. I have a lot of people praying that it will not result in a fourth hospitalization. I would prefer to be home for Christmas! I have to admit that I am anxious about this treatment. Perhaps more anxious than for my very first one, because I know more of what can happen. I am thinking I will take some Ativan before I go.

    Tomorrow is Tom's day off, and we will be baking cookies for the chemo nurses. They will be decorated with BC ribbons in pink icing/

    My surgery is 1/20/09. I hope to join a February rads group. 

  • Roya
    Roya Member Posts: 346
    edited December 2008

    Wow Alibug, congrats are in order.  I am so happy for you! 

    Bette, How proud you must be of Tom for taking such an active role in a support group.  To have support like this is absolutley a blessing!

    Lisahugs, maybe you could post a photo of your baby for us?

    As for here, last Saturday I  threw an 18th birthday celebration for my eldest DD .  The years pass so quickly!!!! Turn around and they're tiny, turn around and they're grown............

     So my youngest DD is just 4 and I plan to be around for her 18th as well !!!!!  My first rads treatment is tomorrow.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Tom just called, and he is sick. He isn't coming tomorrow because he doesn't want me to catch it and jeopardize my last chemo. I understand, but I am so depressed. It has been a quiet, lonely weekend, and I was really looking forward to his visit.

    I guess I will have to bake the cookies by myself.Cry

    Bette 

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited December 2008

    I went without my hat today.  It started getting colder outside, and I think I was expecting compliments which didn't come LOL. So baby steps :)

    Roya,theres Ella. She's getting more photogetic now.  God bless you during your rads. This part really is easy except for not knowing how the skin will take it.   I am just sooo worried about the new boobies part. Its all in Gods hands, and will be better than what I can imagine. :)

    Stacy,  your right. When I start getting down about anything and negative thoughts try to creep in, theres a part of me that is like "there is NO WAY  I  will leave this baby girl " :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Lisahugs, Ella is adorable! God has really blessed you with this precious little life! It's great that you could actually go without a hat. The compliments will come.

    Roya, Children do grow up so quickly. My DD is now married and happily fixing up her first house with her husband. Perhaps someday I will hold a grandchild in my arms. That is my goal: to be here to see my grandchildren grow up. I have to remind myself of this as I face my last chemo, the mastectomy, the rads. The purpose behind all this is survival. I will be losing a breast, but the important thing is that I will be getting the cancer out of my body. I have to focus on that.

    Tom tells me that he is marrying me as a whole woman; he is not marrying just body parts. And I want to be here to spend as much time as God gives me with him. I have IBC, which has a high rate of recurrence; we will take it one day at a time and thank God for each day.

    This day has its own tasks: baking cookies, wrapping gifts. and doing laundry. Hopefully these will keep me busy enough so that I don't miss Tom too much. I am also trying not to think about tomorrow's chemo and its SE's.

    We have a winter storm watch out for today. A good time to stay home and keep busy.

    Wishing a pleasant day to all.

    Bette 

  • Roya
    Roya Member Posts: 346
    edited December 2008

    Lisahugs, that is the cutest, most adorable baby!!!!!! You are sooooo blessed! Yes she will grow up seemingly so fast so enjoy every moment!!! Soon enough you will be holding those grandbabies and you will look back at now and realize that all this chemo, mastectomy, and rads was so worth it!

    Today was first rads and it was very time consuming since they had to take more pictures and  etc. but after today they said that the whole process should only take about 10 minutes from start to finish.  It is only the first round that takes so long.  There is a bottle of aloe in each dressing room for afterwards.

    Bette, hope you are ok what with the winter storm watch.  Keep warm!!!

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited December 2008

    Bette-One day at a time is good :)  And when you can't run, walk and when you can't walk, crawl.   I am learning that rest is so important. I seem to go go go when I should be resting. But I will crawl if I have to. I will not give up :)

    Thank you ladies for baby compliments. She laughs all the time now. Its great. :)

    Roya, so happy you posted about your first rads. I am going to get myself some aloe and take it with me. I always forget to come home and put my ointment on :(  I am getting really red now, 10 down.  I was thinking I need to put aloe on too, so that just confirmed it. And thankyou for your motivation I really do appreciate it.  So going to get aloe tomorrow and bringing it along with me :)

    Bette-that storm must be the one that is here now :) Its sooooo pretty. yet so yucky to be in.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    I had an appointment at lunchtime, so I had to drive in the sleet and snow. I took my time and got home safely. Now it is snowing and the cars are covered. It is pretty if you don't have to drive. I have chemo at 9 AM tomorrow. I may walk if there is ice and snow on the ground. It is only two blocks away.

    My BC cookies came out really well. I hope the nurses like them.

    Tom is home nursing his cold. I'm hoping he is better by Saturday so we can see each other !

    I am so anxious about this last chemo. I know what happened the last three times, and I really don't want to go through it again. But if that is God's will, I will celebrate Christmas in the hospital. I'm sure there will be other patients celebrating with me on the oncology floor.

    I am definitely in a nesting mood today. Trying to get things done before I start to feel the SE's. I so do not want to do this. I have to hang on to it being the last one.

    Have a good night, and if you are in a cold snowy place, keep warm and safe.

    Bette 

  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2008

    Oh, Bette, I'm praying hard for you that you won't be as sick as you've been with the last few rounds!  You have such a great attitude, though, and thank God this is your last one!

    Lisa ~ I just want to kiss those sweet little cheeks!  Ella is absolutely adorable, and she looks so alert for her age!  Makes me smile just looking at her sweet little face.  And, yes, she needs you, so I know you will continue to stay strong for her.

    Roya ~  I guess the fact that your RT facility provides aloe means they feel it's the best thing to use.  Good to know; thank you.  I've been watching another thread here for that kind of info', and so far it seems like straight aloe vera gel and/or a cream that contains calendula are the most recommended.   

    I've also been reading up on curcumin being a protectant, as well as enhancing the effect of rads on cancer cells.  I haven't decided yet if I want to use it, but my rad onc said it was fine when I asked her about it.  If anyone else has any input, please let me know.

    Stay warm, those of you who are in the cold belt ~ Deanna

  • DFOnt
    DFOnt Member Posts: 145
    edited December 2008

    Deanna, I wasn't familiar with the term curcumin so I googled, it seems to be the same as or part of turmeric?  I read that it was supposed to be good for fighting cancer but didn't know about it helping radiation treatment.  I've been trying to sprinkle turmeric on whatever I can. I'm hearing about all different kinds of creams that are supposed to be the best so I don't know!  Apparently our centre gives you some so I'll see what the nurses say.  I've got some glaxall base cream and I've heard lubriderm, and I do have aloe vera gel.....I guess I should go over the info pack and video that they gave me again.  I go for the set up / simulation session next Tuesday, then I'll find out when I start.

    Bette I wish you the best with your treatment tomorrow, it's the last one anyway!!!!  Maybe you'll get a break.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Hello night owls! 

    It is 3AM here and I am sleepless. In six hours I report for my last Taxotere. I am most anxious. I am going to have some warm milk and try for another three hours of sleep.

    I know what can happen with this drug, and I am scared. God, please take away my fear.

     Our snow has switched to rain. Not wanting to get soaked, I will drive to chemo with my cookies

    After this, it is on to surgery and rads.

    Bette 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Chemo is over, except for two-three weeks of SE's. Whatever comes I will accept from God's hand and deal with it. For now I have a headache and a cough. Considering the weather, it is a very good afternoon for some Tylenol and a nap.

    Bette 

  • g94u67
    g94u67 Member Posts: 436
    edited December 2008

    Hi everyone,

    Well it's been a so-so week. Went to the my BD and thought I would have a great visit. Not so. While everything turned out great on my path report and surgery, I just found out I tested postive for the BRAC1 "deleterious mutation" gene. Needless to say I am very bummed. Now I'm researching everything about ovary removal. Dr. said I don't have to make this decision now. I just may go into menopause which would be great. But now my odds have shot up to maybe 30%. Does anyone know much about this?  If so please PM me. I'm so confused. While removing the ovaries may prevent reoccurance, the cons are scary: dimentia, osteoporosis and cardiovascular problems. Yikes. 

    I also just had my 5th TX starting Taxotere today.  So far, so good.

    On the upside I'm so happy to hear your done Allibug! Congrats!

    Lisa your baby is beautiful. Watch the toenail.  Hope it's better.

    Get plenty of rest Bette. Take that nap!

    Prayers & Hugs all,

    Jeannine

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited December 2008

    Hello ladies, yes baby is so alert. We have a activity bouncer on the way for her, I am soooo excited. She loves to bounce and wants to touch everything. I put her by the Christmas tree and she was very gently stroking the needles. Amazing to me :)

    Life here is ok. I am doing my best to get past what my husband did (pill addiction during the major part of this). Its very difficult to trust him,. and it sucks. He's working on making it better, but I can't seem to get past it.   This whole BC experience (and of course having my baby) has made me think about SOOOO much now.  Life will not ever be the same.

    Bette- I am praying for you too. The Bible says 2 or more in prayer  will send the demons to flight (2,000 right :). So in the name of Jesus we pray you have peace and are able to push past any side effects you have. We pray that only in Gods will do you have any side effects, and if you do to reveal the purpose for them. In Jesus name we pray. Amen

    Thanks Jeannine- I am healing so slowly. But am healing :)   I am with you on the confusion of the ovaries being removed. I have had my obgyn  scaring me with stories of his late sister in law(28 when she passed from reoccurence).  He's more afraid of me having another baby then I am. And is making it out to be like I will die for sure if I do too.    I am not ready to make any decisions about this now.  And I am really thinking that it can come back anywhere, so taking out my baby maker just doesn't feel right to me right now.   This is where my faith, and relationship with Jesus comes in. It is in Gods hands ALL OF IT.  And the "enemy" doesn't want me to have any more babies that will grow up knowing God and knowing he is a defeated foe.  

    Now if I was done having babies I honestly think I would do it. No more periods, hello :)  I did premenopause, it sucked but was doable. Now yrs of that would be a little much, but its going to happen someday anyways ?  Sorry if I sound a little ignorant.  The hot flashes stunk, but I am already moody and emotional so that was nothing new:)

    Its going to be ok.It really is :)

    I  

  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2008

    Wow, Jeannine, you must feel so blindsided, to get this far and have a new "complication" suddenly thrown at you!  It sounds like the kind of dx you need to sit down and speak with a top expert about.  No doubt there are areas on this board that have great advice and support, too.  Is  there a genetics counselor at the facility where you're being treated?  I know there's a full-time one @ UCLA, and I'd be happy to call and get her contact info' for you if you don't have that kind of counseling available where you are. (I'm not sure if facilities outside of the largest ones offer that.)  Anyway, feel free to PM me if I can help in anyway.  I'm just glad that they tested you so that you know what you're dealing with and will get the best treatment.  (((Hugs)))   Deanna 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    I am praying that all of you have a wonderful holiday season.  I am posting this from the comfort of my hospital room, I have been here since Sunday with laryngitis and pneumonia.  My son's friend brought his laptop today so that I could "reconnect with the world" LOL.  I was hoarse, coughing for a few days, but when the shortness of breath kicked in I moved quickly to the ER.  They have pumped me full of 2 anitbiotics, 2 breathing tx a day, tx for a staph inf that started after I got here, and generally let me rest (I requested a "Do Not Disturb" sign on my door and NO BP, temp,etc between 10pm - 6am).  Thankfully I can go home tomorrow, and hopefully will stay on track to have #7 on Monday, I don't even care if I can't eat Christmas dinner, I'm intent on counting down!  Last tx is 1/14, surgery 1st wk of March, then rads, just don't know how many yet.  Going to make appt 1st part of Jan with PS for so he can see the "before" effect.

    Bette - I'm praying that you are resting well with minimal SE's, and can spend the holiday with your loved ones.

    I've reflected back on my "thankful" Thanksgiving and need to share with you all how much more it means to me today.  First of all, IT SNOWED!!!  That of course is not at all the most important, but remember I live in south Louisiana, it actually stuck to the ground.  It started at 3am, lasted till about 9am, and there was no trace of snow on the ground by noon, oh well, I got a little snow anyway.  12/06 was a memorial svc for my uncle, dx w/pancreatic cancer in October.  It was a beautiful svc and I walked away knowing he was at peace.  12 hours later I was awakened by a phone call that one of my Bayoudemons sisters was killed in an accident.  The driver of the bike, another of our members, was in critical condition, but she was killed instantly when a truck ran over them.  She would have been 51 on 12/15, the burial was delayed until 12/12 and the week was just unbearable.  The world lost a wonderful woman.  She participated in all of our fundraisers (Bayoudemons is a motorcycle club that holds fundraisers for individuals in need and for organizations such as Hospice, St. Jude's, MDA, etc.). She was a Sunday school teacher, left 2 adult children and 1 teenager, 6 grandchildren, and of course her husband and other family members.  I think the stress, the crying, being around too many people, etc contributed to me being sick, but I am determined to rest for the next two days and be there Saturday for my Bayoudemons family as we host a Toys for Tots drive.  My friend who passed had battled cancer 8 years ago and won, I found out last week that it had recurred and I beleive that she is at peace having passed doing something she loved, instead of going through the tx and losing the battle.  She was a very strong supporter for me and always told me how much she loved me and was praying for me, and I miss her greatly. But I am going to fight a little harder now cause I know her prayers are being heard even louder now, cause she'll go up to God himself and say "Excuse me, but we need to chat about something...."  

    Anyway, she encouraged me to use this board and I thought I should give her a little kudos for all of the advice she gave.  And again, every day that I awake, I am thankful for that day, no matter what it brings.  I hope everyone has a wonderful, peaceful holiday, and looks forward to a new year of blessings.

    ~~~~~~~~~~~~~~~~~Hugs and Kisses, Prayers and Merry Wishes~~~~~~~~~~~~~~~~~~~

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Chelli, great to hear from you from the hospital. I know from recent experience what that is like. I am deeply sorry for your recent losses.

    Today I am resting. No nausea, just some heartburn after my LAST Taxotere. This weekend is the critical time. If I can just get through without a high fever, I will feel as if I am home free. Neulasta shot today. Praying it will help this time with my low WBC.

    Most of my presents are wrapped and under the tree. I want to have all in readiness for my family should I not be well.

    Tom will be here to love and nurse me over the weekend. His cold is over, and I look forward to his company. 

    Prayers to all, and wishes for a happy holiday. I will be celebrating my Lord's birth wherever I am.

    Bette 

  • Roya
    Roya Member Posts: 346
    edited December 2008

    Chelli, so many life changes for you!  I am especially sorry for the sudden loss of your friend.  She must have been so very special.  This is something that we are never truly prepared for and to be taken  so quickly must be very difficult for you.  I am glad that part of her legacy for you is that you will fight even harder because of her prayers.  This can be inspirational for each of us.  My thoughts and prayers are with you.

  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2008

    Chelli ~  I am so sorry to read about your friend.  I can only imagine how shocking her accident was for you and all of her friends, and how unfair it seems for someone so good and loving to be taken way too soon.  Like Roya, I'm glad to know that her spirit has and will continue to encourage you, and I hope that you got to go home from the hospital today.

    Bette, I'm keeping my fingers crossed (along with praying with your other friends here) that you will not get sick this time! 

    On an entirely different and much lighter note, does anyone know if you can use regular shampoo & conditioner on a synthetic wig, or do you have to use the ones the wig manfacturers sell for that purpose?  I'm not sure if they're any different from any gentle hair products, or if you really need something special because the wig isn't real  After LV, mine could use a wash, and I hate to buy something special for it if I don't have to, but am also afraid of messing it up.

    Deanna 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Deanna, My wig salon said I could use Woolite on my synthetic wig. I have used it many times and it has worked fine. I use half a capful in a sinkful of cool water, suds gently and then rinse. I blot the extra moisture with a towel, then dry on a wig stand. When it is completely dry, shake it out and it should return to it's original perky self. Hope this helps!

    Bette 

  • Misty1
    Misty1 Member Posts: 272
    edited December 2008

    Good Morning, Girls!

    Bette-Congrats for being done chemo-see, your time did come!!!  I know it will be worth the wait for you.  Now, just stay well!!

    Deanne-I bought a special wig shampoo and wash it once a month.

    Jeannine-sorry to hear about the gene test.  However, I know you will make the right decision about what to do.  Better to know than to not know.

    As for me, hair is still coming along!!  I probably have less than 1/2 in.  But, it is dark!!  It is straight(so far!!)  I just love seeing something up there.  I have been showing more friends and family how I look now.  They love it short.  

    We're having 15 neighbor couples over tonight for a holiday cocktail party.  Can't wait!!  It feels so nice to do normal things again.  Today marks my 6-month "cancerversary".  I am so glad this time has flown by since then.  I have come such a long way mentally.

    Have a good one!!

    ~Misty

  • DFOnt
    DFOnt Member Posts: 145
    edited December 2008

    Wig cleaning - I ordered a package of wig shampoo / conditoner / hair spray from tlc or headcovers, it wasn't very expensive.  I thought at the Look Good Feel Better workshop they said to wash them every 3 - 4 days.  It's the cap part that gets dirty.  I don't wear it every day so I've washed it about once a week.

  • Roya
    Roya Member Posts: 346
    edited December 2008

    Bette, thanks for the info about the Woolite.  Not only is it very practical, but I can buy it here.

    Hopefully, I won't be needing my wigs very much longer.....Wink

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2008

    Roya, You're welcome to the info

    I'm hoping for the day when I can lay aside the wig, scarves and hats. I would like to have cute soft, short hair for my March 28 wedding, with a fancy hat or flowers to dress it up. We will see. Chemo is done. The countdown to HAIR is on.

    I am tired today, but no fever so far. If I get through Saturday and Sunday alright, I may have turned the corner and be getting over this ordeal.

    It sleeted here all day and is now freezing. Hopefully Tom can make it over the roads tomorrow to visit me. I miss him so much.

    Bette 

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