Tri-neg looking for B17/Juicing Alt

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I've posted this same thing with my tri-neg sisters but there are more alternative believers in this category so I thought I'd repost and add my links that I know about.

I've been doing tons of reading and research.  I was dx on 8/14 with Stage I Grade 3 Tri Neg 1.5cm.  On September 23rd, I chose to do a radical bilateral mastectomy.  We were very successful.  Complete removal of tumor, clean margins, nothing in the other breast, I had my Sentinal node and 2 others removed with NO sign of cancerous cells in all 3 nodes.

My Ki67 66% 

Went to my oncologist last week and they are recommending 4 months of chemo

AC every 2 weeks 4 times then TC every 2 weeks 4 times.

I've been crying because I don't understand why I should have to subject myself to this treatment when there is no spread according to my pathology report.  I've requested a PET Scan to make sure there is no other cancerous tumors in my body.

In researching, I've read that with the exception of a few specific types of cancer (mainly lukemia) that chemotherapy is basically a waste of time.  Sure, all that poison will kill you by killing all fast growing cells, but it also sets you up for future failure.  But, in my research, I can treat my cancer naturally.  There is a B-17 metabolic therapy that I can do that will do the same thing but instead of killing ALL fast growing cells, it targets cancerous cells removes the cancer cells naturally.  Plus, I'm not poisoning myself.  I'm merely giving my body what's it's been screaming for all this time.  Proper nurishment with the right fruits, veggies, vitamins, and minerals, etc.  

Because neither treatment is 100% guaranteed, I am just looking for feedback from other tri-neg sisters.  Most I'm sure have chosen chemo, but I'm looking for those that have similar situations that have chosen to go the hollistic approach and their outcome.  I don't believe that chemo is the right decision for me, but I'm wanting a little more re-assurance.

Here are my links that have lead me to believing I should choose alternative treatments:

http://www.healingcancernaturally.com/ 

http://www.worldwithoutcancer.org.uk/FINALGUIDEUKpdfEbook.pdf

http://www.apricotpower.com/store/

I've also read several books by:

Ralph W Moss

Dr. Charles B Simone

etc. 

 Thank you Sisters!!

Love,

Carebear36 

Comments

  • roseg
    roseg Member Posts: 3,133
    edited November 2008

    well, it's a free country.

    I usually like to look at the numbers of people treated in studies.  For a common cancer like breast cancer I think it's most convincing when they have at least 500 participants.

    If you are going to go this way then be sure that you have science on your side.To me that means studies with MANY participants.  They need a treatment group and a control group. There isn't any reason to waste your time and money on treatments that don't have solid statistical backing. In my way of thinking it'd be better to just hope the surgery got it all and not waste time/money on the vitamin thing. Don't put your hope in something that someone says, ask to see the evidence.

  • amberyba
    amberyba Member Posts: 608
    edited November 2008

    Carebear36, 

    your story has touched my heart, though I am not triple negative, I can understand your concern....I have read the same about chemo....and agonized when I was first diagnosed that I might have to go thru Chemo. There are a lot of great stories out there of those who have either gone thru traditional or holistic treatment with great success. I was just reading about the success of melatonin with both hormone negative cancer and hormone positive. I do pray for your decision....that you will have confidence and peace about the choices you make....

    There is a good book out that a friend suggested to me, Cure your Cancer. It might be of interest.

    May the Lord Bless you!

    Amber

  • ddlatt
    ddlatt Member Posts: 448
    edited December 2008

    dear carebear, i am also triple negative, stage 1,  grade 3. tumor 1.2 cm, 1 millimeter from chest wall. dx 10/3/08. i had a double mastectomy without reconstruction (by choice, could have had lumpectomy) on 11/20/08. i struggled with the decision about chemo and radiation and did a lot of research. i have never been sick a day in my life, not even the flu, i was vegetarian, very health-conscious. i'm adopted, so i don't know my family history, and have not had the BRCA testing yet. i have two grown sons. i don't even like taking aspirin for a headache, so the idea of chemo and radiation is completely anathema to the way i approach health. but after doing all my reseach and also talking to people who took the holistic route and also the chemo/rad route, i decided to go ahead with chemo (Taxotere, Cytoxan, 4 cycles) and radiation (36 sessions) because my understanding is that even with a PET scan, there could be cancer cells in my body that don't show up on scans and that may be minuscule at this time and the chemo will hopefully stop their growth. the radiation i agreed to because the tumor was 1 millimeter from the chest wall, a place that has a high rate of recurrence.  bottom line, though, is that i am doing this because of my sons. they are 30 and 28. i want to give my body a fighting chance to live longer to be with them (we are extremely close and i live down the street from my youngest son and his wife), based on hard, cold statistics. but i have told them that if the cancer metastasizes to brain, liver, or bone, that i'm not going to live a life of chemo and radiation; i want quality of life, even if it's short, not a life of all these dr appts and infusions, etc.  i am curious to know what your decision was - you posted november 16th. it sound like you are one of those incredibly motivated and educated people who knows exactly what you want and what your body wants. ideally i would love to treat this holistically but i know i don't have the energy nor commitment to do so. i admire those who do.  please update us!

  • Malady
    Malady Member Posts: 32
    edited December 2008

    Carebear: 

    I choose not to do chemo and feel exactly as you do.    I also had clear margins and could almost repeat everything you said as it sounds exactly like mine.    I was diagnosed 14 months ago and am doing just fine without any chemo.    My Doctor has said the first 2 years are the most likely time for it to come back.   I have 9 months to go and my 2 years will be up.

  • sfbaer
    sfbaer Member Posts: 24
    edited December 2008

    Hmm. I'm in a mix feeling after reading carebear's post. I'm a son of my 62 yr old mom, who dx her first bc in mid 06. I wasn't paying much attention to it, and after lumpectomy and 36 rad everyone in my family thought it was over. In July 08, she felt a soft lump right below her collar bone on the side where she had her first bc. She didn't tell me until September when the lump is about egg size. By that time we still thought it's some clogged lymph vessels or muscle sprain or immflamation (the most commom approach from Chinese med standpoint). However I still urged her to talk to her primary doc. After all the routine testing, it's dx to be bc, and I finally found out it's tri negative (my shame of not looking into it 2.5 yrs ago), which is same as her first bc according to the Onc's. My mom had her first TC (every 3 weeks) 2 days before Thanksgiving. We sometimes would think back and felt a little regret of not doing chemo. We chose not to do chemo at the first place because of the same concern that carebear has, but you may want to consider again due to the fact that triple negative bc is more chemo-sensitive and more prone to come back. If you believe in the holistic way to treat bc, you may also use it to recover your body from chemo. I have been digging into any research about triple negative bc in past weeks. It seems to be more secure to do chemo although there's no standard therapeutic for it yet. 

    The first onc who we saw in October retired right before my mom's first tx. He prescribed AC/C at first. Then my mom's case was referred to another onc, who's about mid 30's, from Harvard med and then UCSF. He switched the AC to Taxotere because based on some recent study TC works best on my mom's cancer (I'm not sure what that means yet, but I believe he means trip neg). I also think the side effect is less significant compared to AC family chemo. 

    Anyway, enjoy everyday and maintain QOL are really the main purpose of living. Keep us posted on any good diet/holistic treatment, please~

  • Blessyou
    Blessyou Member Posts: 1
    edited December 2008

    I think you should try B17 way the goverment and this so called charities lie to us telling us there is no other way to treat cancer , but there is B17 is , the way we have stoped our selfs from getting cancer for 1000s of years only in moden day we don't eat fruit pip's and nuts as much as we used to when we was hunter gathers.

    Think about it what would make the companys more money, giving you tons and tons of drugs or helping you with a natrual diet ?

    This world we live in is driven by greed , do what is best for you.

    my nan had 2 years on Chemotherapy and it didn't do her any good.

    If it feels right to do this diet ,don't let any one tell you different.

    Or maybe do both ?

    Good luck I hope you can over come this.....

  • Yazmin
    Yazmin Member Posts: 840
    edited January 2009

    To DDlatt who wrote:

    I decided to go ahead with chemo (Taxotere, Cytoxan, 4 cycles) and radiation (36 sessions) because my understanding is that even with a PET scan, there could be cancer cells in my body that don't show up on scans

    I totally understand your rationale for going along with chemo. I did too, but dropped off when I realized how useless it is: indeed, there is exactly a 1% chance that chemo will catch those stray cancer cells for you. I am not saying it is fair, but, sadly, that's how far Conventional Oncology has taken us.

     Also: as of 2006, the American Board of Oncology has decided to discontinue chemo for ER+, PR+, HER-, after it became vastly obvious that in 20-years of slapping anybody that came through the door with chemo, it has make NO DIFFERENCE AT ALL for this particular group. That's when I decided to drop it. I personally suspect that it makes very little difference for other types of BC as well but here is the situation: they've got NOTHING else in their arsenal, and that's the only reason chemo treatments for BC have not been completely discontinued. Besides, chemo is HIGHLY profitable. As you know, of course, from your chemo bills.

     I wished I had better news for you, and don't we all deserve to get more bang for our tax buck, now that "they" have been raising billions supposedly for BC research (pink this, pink that). Unfortunately, we are still at Square Zero, basically. CANCER IS A HUGE, HIGHLY PROFITABLE BUSINESS. By the way, see the attached link on pinking and how the same companies that organize the yearly pinking frenzy are also the ones who manufacture cancer-causing chemicals that are then released into the environment: http://www.thinkbeforeyoupink.org/Pages/AboutTheCampaign.html (basically: Think before you pink)

  • Yazmin
    Yazmin Member Posts: 840
    edited January 2009
    Tri-neg looking for B17/Juicing Alt

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