average age of triple neg/and fund raise

janinvan · November 2008

Ladies: When I asked my surgeon if she has had many triple negative patients, she said that most were -"younger" ! She has been a surgeon for years..... I just turned 61.

What is the general consensus re age? Why?

I've also consulted (in collaboration with the breast surgeon) with a thoracic surgeon, in case it's safe to remove some remaining cells -near/on my pectoral muscle, near my collar bone and near a couple of ribs.....

A Pet scan ,and an MRI will help to determine this...

CT scans don't really indicate "CANCER" cells --do they? (I've had a few CT scans)

ARE there events to fund raise for research/meds --SPECIFICALLY for TRIPLE NEG. ?

WHY ???

PDXmom · November 2008

www.tnbcfoundation.org

Msklapkin · November 2008

I was 50 at diagnosis

smerf · November 2008

I was 60 at diagnosis, and all my docs were surprised. It is uncommon at this age, but it happens.

Kayree · November 2008

I was 44 when diagnosed.

smithlme · November 2008

I was 47...

bar62 · November 2008

I was dxed at 62...AF/AM though...they say it shows up a lot more with AF/AM...Bah Humbug!

teharring · November 2008

I was diagnosed at 30.

Jisman · November 2008

My Mom was diagnosed at 76! Quite the surprise for her surgeon.

tos · November 2008

I was diagnosed at 56 and 61.

Boo46 · November 2008

46 at DX

Analemma · November 2008

50 at dx.

Gabby · November 2008

I was 48 when diagnosed.

Lindy58 · November 2008

I am 50 and was just dx in September.

LisaSDCA · November 2008

I was 49 at diagnosis.

My sister was 29.

Lisa

bourscheid · November 2008

44 at dx (just this Aug.)

Raye99 · November 2008

39

Analemma · November 2008

Janinvan - when I was dx with mets last December my daughter in law started a fundraiser for tnbc. Here's the link

http://www.tnbcfoundation.org/peoplemaking.htm

Her projects are "The Lemonade Stand" (my grandchildren) and "Terri and Larisa" (Larisa is the dil). They did a three event run and raised money on a website, about $3200 I think. I think we'll see more triple negative fund raisers as people become aware that this is different.

Brenda

Laurita60091 · November 2008

49 at dx Sept 2007

janinvan · November 2008

re age/fundraising replies---thanks! ....However----they need to research for triple negative a tremendous amount MORE! I think that the diagnosis and prognosis is often very --"wait and see" ... The attitude/lack of more knowledge-- of the experts-- could lead someone to stop work/career, etc.

Besides scans--- could core biopsies(with a special needle) be used in certain situations? (some time after the treatment--not just at the time of diagnosis)

wvgirl · November 2008

I was 43 when I was dx 11/26/2007

jdash · November 2008

39 and 49 for me

debk55 · November 2008

I was dx at 52 this sept and I am I a clinicial trial E5103 to see is adding avastin to the AC & T will help, I think the trial is still open. It is they the EEOG and I am ging to ST joe Mercy in Ann Arbor.

Hope this helps, Deb:)

jdash · November 2008

wow thats interesting- they didnt offer that when i had my tx i had AC & T but on a high note for everyone I had a very large tumor and positive nodes and had adjunct chemo - when my dbl mast was done and nodes removed no sign of any cancer total response to the chemo

thats the great thing about trip neg

ddlatt · November 2008

i was diagnosed at age 54, triple negative, Stage 1, Grade 3, 8 millimeter tumor in right breast. had a double mastectomy last week (11.20.08), will meet with oncologists next week about treatment.