just diagnosed in ON

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lizard
lizard Member Posts: 2

Just diagnosed with DCIS, multi centered. Still feeling a little shell shocked. Am trying to sort out my options. Any recommendations for reconstruction at the same time as the mastectomy? Has anyone gone to any private clinics? Cedar Breast Clinic or Ville Marie in Montreal? Just want to get it over with and move on....

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  • mke
    mke Member Posts: 584
    edited December 2008

    You could try this same post in the reconstruction forum and put Ontario in the title. I think they do this at Princess Margaret in Toronto, but I didn't want recon so I didn't do that.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2008

    I had immediate reconstruction done at PMH.  I was thrilled with both my surgeon and my PS but unfortunately my PS isn't there anymore.  But I know that some of the women here have gone to the new PS who's replaced her so hopefully someone will come by who can give you more information.

    Depending on the type of reconstruction you want done, I know that immediate reconstruction is available at a number of other hospitals in the Toronto area.  Implant reconstruction is easier; fewer PSs do DIEPs, TRAMs and GAPs.  Before I changed surgeons and moved to PMH, I was considering immediate reconstruction at Trillium in Mississauga.  I'm pretty sure that immediate reconstruction is also available at Sunnybrook.

    Is there is a reason why you are thinking about a private clinic? 

  • lizard
    lizard Member Posts: 2
    edited December 2008

    mke - why did you decide not to have recon done?

    bessie - how many surgeries did you have to have for the reconstruction? I was thinking that a private clinic might be able to get me in faster. How long did you have to wait at PMH to have the second reconstruction surgery done? 

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2008

    lizard,

    I had two surgeries.  The first was a joint surgery with my breast surgeon and the PS.  That's when I had the mastectomy and the expander was put in.  The second was just with the PS; that was when I had the expander replaced with the implant plus I had an implant added into my 'good' breast for symmetry.

    For the 2nd surgery, my PS insisted on waiting at least 2 months after the expander was filled before doing the surgery.  This is to let the the muscle get used to it's new stretched position.  With scheduling, my surgery ended up being 3 months after my last fill so I guess you could say that I waited one extra month. 

    If you have immediate reconstruction at PMH, you usually can get scheduled in within a reasonable period of time.  This is because you are having your breast cancer surgery at the same time as your reconstruction so it's considered an urgent surgery and it's prioritized - bumped to the top of the list.  Similarly, once you have your reconstruction underway, while the next surgeries are not quite as urgent, you aren't going to left waiting for months and months - because you are in process, you are still considered to be fairly high priority.  The long long delays that you hear about with reconstruction tend to be when someone is not having immediate reconstruction.  In this case, the surgery is not considered urgent because the breast cancer has already been operated on.  So whereas I was able to get in to see the PS at PMH (actually she worked out of TGH but operated at both PMH and TGH) within 1 week of requesting the appointment, I know that at around that time, if someone wanted to see this same PS about reconstruction but it was not immediate reconstruction, the wait time for an appointment was 9 months to 1 year.  That's the thing about the Canadian system.  There can be long waits, but that's in part because urgent surgeries are continually being bumped to the top of the list.  So it's the elective and non-urgent surgeries that have to wait.  Wait times for urgent surgery usually are not a whole lot different than they are in the U.S..

  • mke
    mke Member Posts: 584
    edited December 2008

    I decided not to have reconstruction for a number of reasons.



    I was tired of having my breasts operated on, nearly everything that has gone wrong with me has been breast related, 3 rounds of BC and benign papillomas.



    I have a mild phobia about foreign objects in my body, it was with reluctance that I had a tooth crowned. So implants were a non-starter and the TRAM etc. were just too much surgery.



    I'm 62 years old, my husband was never a breast man and it's highly unlikely that I will ever care about any other man's opinion of my body.



    My style is casual and I have never favoured low necklines. I was relatively small breasted and I doubt that many people notice the difference. Breasts were never important in my self image. I have yet to go get prostheses although it's been close to a year.



    I do think there is no right or wrong here - it just depends on everyone's circumstances and attitudes.





  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    I, too, am not getting reconstructed or prophylactics. I was very large breasted and am enjoying my flatness! It looks like I have lost a fair bit of weight (I guess I have!) and clothes just look so much neater on me. I am not flaunting my flatness, in fact, gave away a half bag of gorgeous sweaters and tops that flaunted my cleavage! The tops were now too low and had too much sagging fabric to look right. I have opted for lighter tops and am very happy with my decision so far.

    If only this last damn drain could come out and I could go back to work! 

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