Anyone starting chemo in June 08
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Wyoming, I just posted my drinking question on the drinking thread too. I have no eyelashes that I know of because I quit trying to swipe at them with mascara a week or so ago. My hair is about the same length as yours too. I think we gals that had the TAC are slower with the hair growth as sometimes the hair will start to grow if you are only doing the taxotere alone after the AC. Does that make sense? Anyway, it is not coming in as fast as I want....damn the luck. Thanks for the reply....I am still planning on discussing the anti-dep. with the onc anyway. I know it will help the night sweats too which probably will get worse when I start the tamoxifen. I have a four day weekend after tomorrow....yea! HunkyD
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Happy Thanksgiving to all the American Ladies.
Hunky D.... It does say not to drink with the tamoxifen.. I have been on it since Oct 1. but I still drink when I want. Since we will be on it for 5 years, I can't imagine not drinking all that time.
My hair is covering my head and looks like I have a halo of hair... still not able to go without the wig yet...maybe by Christmas. I have no eye lashes still but yet the hair on my chin is starting to grow... how lovely.
I am still battling with the rash under my boob... doing a saline solution 4 times a day and then air drying for 15 minutes. Hopefully by the weekend it will be fading. It seems there is always something.
Hope everyone is doing alright and Enjoy each day.
Karen
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I have not had any alcohol since I began Chemo in June. Chemo was done end of October, but I am closing on Dec 5 for surgery -- lump and sentinel node biopsy- still no alcohol. Today I had an ultrasound, which showed nothing on the breast or lymph nodes ( which confirms the chemo zapped my tumor), EKG was normal, and blood work. Then I played bridge, went to grocery store and got a flu shot at the drug store mini clinic.
Hair is coming in around the sides, but very little on top. No eyebrows or lashes, but chin hairs are showing up - dare I add "mustache" hairs also showing?? Some more bone aches and stiffness, but tylenol works on them. Finger nails are still tender, toe nails not growing back yet.
Happy Thanksgiving in case I do not get back on before. HUGS, nancy
Is your rash from rads, karen? I will do them after the first of the year and was told to use a hair dryer to be sure all was dry and no deodorant, but corn starch.
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I have a little bit of fuzzy hair, like a baby duck, and a few eyelashes trying to grow in. Unfortunately the eyelashes seem to not know which way to grow in and are stabbing me in the eyeball all day
Had a quiet Thanksgiving with the family, I cooked, not sure how anything tasted since I still can't tell but everyone ate it so I guess it passed muster. Wonder where that expression came from? Now I am going to bed so I can work tomorrow. Hope everyone has a great weekend. Kelly
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Kelly, to pass muster means to meet the required standard (google has ALL the answers !!!! )
I had a lovely day at my only son's in laws (we call each other the outlaws) and got alone time with my son on the ride to and from. His wife stayed over to help her mom get ready and cook and today will go shopping - guess they are already out there battling the crowds and traffic.
One week to go till surgery and I need to organize the food supply. Also gonna do a clean up of stuff sitting around on the dresser, dining table and floor... Nancy Neat is NOT my nick name...!!
Hugs for all, Nancy
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I hope today finds all well. I almost forgot to go to radiation today. Kept thinking it was Sunday. We had a nice holiday yesterday anyway. Yes, I had plenty of wine. Nancy..hope you get all your things in order before surgery. You won't feel like doing much right afterwards as you already know. I hope you have someone that can look in on you daily. KKing, hope your rash is getting better. Doesn't the saline sting like the devil on your rash?.. I have finally developed one on my clavical-shoulder area. They didn't tell me to do anything different yet. I have been trying to keep it aired out also. I got marked up Wednesday for my boost template. I have 10 more trts to go. I know the worst is yet to come. Wyoming, hope you had a good time at your daughters. Did you have to go in today for trt? My techs said 3 patients called in and said they were not coming. I just want to get done. No eyelashes but I can feel fuzz on a portion of my brows... Vino...check in with us every now and then and let us know how you are doing. Chocolate....are ya home yet? Hope everyone has a great weekend. HunkyD
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I remember after my husband had open heart surgery and that big wound down the middle of his chest. They gave us saline solution to wash it with and said to air dry as much as possible till it healed over and that was like 20 years ago.
Thanks Hunky - I am a list maker and will get most of it done if not all of it. I have some cryptogram and cross word books, and a couple of DVD's that I enjoy watching over and over - Shawshank Redemption is my all time favorite.
Have a good weekend. HUGS, Nancy
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Good luck with the surgery Nancy.
Kelly .. glad to hear from you, seems you are doing well.
HunkyD... the saline actually feels so good, it gets rid of the itchiness and then I air dry and it feels tight but I put on polyspoirin on the rash and glaxal cream on the rest of the breast and feels good. Actually, it is finally settling down a bit, it was hot and angry...(my sisterinlaw is a nurse and that is how she described it). Just think you are getting to the end of your rads soon... that is great.
Hoping everyone else is doing well. I am trying to get my eating habits under control and plan on starting an exercise program next week... we'll see if that pans out. Also, I am going to Wellspring here.. a cancer resource centtre. I joined the healing journey.. it is a program created by a doctor at Princess Margaret Hospital in Toronto. I t teaches you to quiet your mind because you all know it keeps going and going and the thoughts are not always good ones. They use imagery to change your thinking and try to help you heal. I needed something so I am giving this a shot. If you want to read about it go to the princess margaret website.
Enjoy your day
Karen
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Hope everyone who celebrated Thanksgiving had a nice one. I went to my daughters and had a great time. Played with both grand-babies and ate too much. I'm starting my Christmas decorations today. My rash on my shoulder and clavicle area is all most gone. I used benadryl and cortisone cream. For the rest of my chest and underarm I use Maiderm cream. The only place that is painful is the scar under my arm. I cake the cream on, helps some. I notice my eyelashes are coming in and my eyebrows or should I say my forehead hair is coming in. I never had much for eyebrows but now my fuzz is a uni-brow. I've notice my joints are stiff. I hope it isn't just a sign of old age...ugh!!!
Good luck Nancy on surgery. One more step towards the end.
Everyone have a great weekend.
Wyoming
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Thanks everyone for the good wishes. I hope everyone has a really good week. HUGS, Nancy
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8 more radiations to go. Tomorrow I also see both oncs and have bloodwork. I am really dragging today. Husbands birthday. I came home from radiation and made stuff for taco dinner and got his gifts wrapped in todays newspaper. Wow, guess I should have checked my wrapping stock. It was either that or xmas wrap. I did justify it with some nice bows and ribbon. I have finally sat down and realized I have be working solid since 1:30 when I got home. The wind is blowing about 35mph here right now. No work for me tomorrow because of the long doctor day. Cut my hand on some old nail on the back of the garage taking out the trash also. It is my bad arm. Needless to say that chapped my a##!!! I doctored it up but hope it doesn't give me problems. I hope all my June buddies are doing OK. Wyoming...I still have some rash. I had a DAA a couple nights ago. After I read that you were treating yours with benadryl, I saw in the cupboard some benadryl spray. Sprayed some on and it felt good. Real good! Went to use it the next morning and saw it was for dogs or cats. Husband had bought it for a rash to use on our hunting dog. GAWD...I am losing it!!! Didn't tell that story to the rad techs or I would have never heard the end. KKing, hope your program turns out well. I have almost decided not to go the anti-dep route after I read how hard effexor is to go off of. I am pretty sure that is what he would recommend as to not interfere with the efficacy of tamoxifen. I just don't know...I am not a happy person and know the heat will be pumped up with the tamoxifen. I've rambled on enough...take care all...HunkyD
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Hey Junies......stay strong.......you are all coming to the end of your rads........doesn't sound very fun....:(.......my surgery is fast approaching.....had my pre-op with PS a few days ago and found out that I do not need to stay over night in the hospital if I am feeling Ok.....so that is good news......finished all of my christmas shopping and even my wrapping so I am all ready to go.....needed that done and off my mind......so now I have 13 busy days to go before my bilat......I am trying to stay positive.....but am getting very worried for the flat days ahead before all my fills.......sorry I haven't been around to support you ladies lately.....will try and stop by more often........HunkyD......I think about you often and am sure you will be OK......rusty nail and all.
Cheers
Jax
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Jax, good luck with the surgery - what kind? I have a lump and sentinel node biopsy on Friday. Both the MRI and ultrasound show nothing - ned or no evidence of a tumor or cancer cells. The lump will be the triple check to see if any bits of microscopic nasties are there. Then a more detailed discussion of rads depending on the node results. On and on with more medical appointments is not the way I wanted to fill the empty spaces in my life, but I am still here and kicking butt each step of the way. Hugs and happy thoughts, Nancy
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Hunky D.. sounds like you are were having a bit of a rough day. 8 more to go... that is great. How is your skin holding up??
Vinogal... best wishes when you go for the surgery. Make sure you rest a lot afterwards..even if it is Christmas. I have met a girl who had the bilat and she has done really well. She just started reconstruction.
Nancy, that is good news..NED. Keep kicking butt.
I am feeling much better these days as my rash is finally going away.. thank God. Saline solution is the answer for that . I guess I should do some Christmas shopping but haven't attempted that yet. As for my exercise plan, haven't started that either. Maybe tomorrow.
Hope this finds all the Junies doing well. Have a enjoyable day
Karen
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Nancy.....my thoughts are with you for tomorrow. I know you will be fine. HunkyD
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Nancy you will do great, stay positive.
HunkyD, I have 7 more rads left. Doing the booster radiation on where my tumor was, so the rest of my chest and underarm should start to heal. My hubby says it looks like a real bad sunburn. My rash is gone, but my skin is scaly on my shoulder and back. Eye brows are coming in, not enough yet for make-up but I can see them if I squint.
Jax, you are soo organized. I only have about half my shopping done and none of it is wrapped.
Junies have a great weekend.
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NO lymph node involvement. Pain pills are working real good. HUGS and Thanks to each of you. LOVE, Nancy
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Glad things went well for you Nancy. I hope you have a speedy recovery. You will be surprised how fast you are up and at em. Hey Wyoming...we are on the home stretch. I have 5 days of boosts next week and that is it. My doc also said my skin will heal from now on and says it doesn't look bad at all. I have no open sores and they gave me some cream with lydocaine in it to help with itching. It is better than the dog spray. Hehe. I am still however, having the internal pain still underarm from my mastectomy, but doc hopes that will gradually get better. It is more sore now to accomplish the MLD I do daily to move the lymph fluid. He gave me a script for pain if I need it. Jax, my girl, you are organized. Only a little over a week till your surgery. I know how anxious you are to get that rolling. I wish I could be done with reconstruction but that is on the back burner due to radiation for quite a while. You are a remarkably strong young woman and I am praying for some good results for your bilat and reconst.
My husband has really been a help kicking in with grocery shopping, cooking...or ordering food to go, bless his heart. He is bbqueing steak tonight and I am making the baked taters, bread, and brocolli with hollandaise. Real slimming, right? My diet isn't going very well. My eyebrows are returning...and maybe some stubbles for lashes...I still am not trying mascara....just going with the liner. I don't want to traumatize any of the little babies that are growing. My hair is growing slower than I want but I guess I am expecting too much. There hasn't been a plethora of posts going on here from the others. I know everyone is busy with holidays or just trying to get to a place where it isn't all about cancer. I still feel very vulnerable, and enjoy reading everyones posts. It helps me deal. Have a great Saturday Night everyone.....I sincerly hope you all are feeling no pain. HunkyD
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Just checking in on my June Chemo Buddies seems like everyone is moving a long with their treatments. I am finally down to one last chemo infusion - yea! Can't believe I've been receiving weekly infusions since June - seems like forever - heck, 6 months is a long time. Looking forward to the break between chemo and surgery. Although I don't think I've ever be as organized as Jax with all the prep work. Hunky, dinner sounds great. Can you set an extra plate at the table? I'll bring the wine!
Rover
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Rovergirl...glad to hear from you. You can have dinner here anytime. No need to bring the wine. I am glad you are almost done with the chemo. 6 months is a long time. Hope your post chemo recovery time is short. You are still moving forward, and check in with us to let us know of your surgery date. We will all be there for you. Take care June-Bird! HunkyD
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I haven't posted much, but just wanted to stop in and say hi. I finally had my last chemo a week ago. --Rovergirl, you and I had a similar schedule it seems...and I agree 6 months IS a mighty long time! Congrats on your last infusion coming up!!-- I saw my surgeon last Thursday and she did an ultrasound and couldn't see anything at all left of the tumor. I also went for a PET scan last week and will get those results today.
Surgery is scheduled for Jan 9th. Lumpectomy and sentinel node biopsy. Hoping for clean margins and no nodes so I can get healed and move on to radiation.
Sounds like everyone here is doing pretty well with rads and surgeries. We are all getting closer!!
Carolyn
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Hey Junies........stay strong my ladies........let's all look forward to 2009.......
HunkyD........just this week to go......awesome........should be a great Christmas gift to put this stage behind you......I'll join you for dinner too!
Rover and Carolyn......sorry it as been such a long road for you.......but congrats on being at the end......or close.......and wishing you guys good luck with you up coming surgeries...
To everyone else........I hope you are all doing well and getting ready for Christmas.......stop by and give us an update.....like HunkyD......I enjoy hearing from you all.
As for me........I am starting to get anxious to get this surgery on the road........am feeling very content with my choice to do the bilat mastectomy......but wish it was behind me already......looking forward to my party on the 13th......and finished all my christmas baking this past weekend........have got a good number of meals made and in the freezer......so now again with the waiting.......aaarrgh!.........mascara is my new best friend and the eyebrows are almost all the way back.......gonna try dying my hair purple with a non permanent colour......just for fun.....the wig is driving me crazy......seems to bother me a lot more now that I have hair underneath.
Cheers
Jax
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O.K.......so hair is purple now.......not quite the colour I was thinking........but it's hair........I posted a pic on the Hair...Hair thread......if you wanna take a peek!
Cheers
Jax
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Wow Jax.....you have a lot of hair. Way more than myself. You look absolutely "mahvelous"!!! I don't think my hair really started growing until last month. I can't wait until mine gets long enough to mess with. Good Job! HunkyD
I don't suppose they make temp blonde hair coloring? That just wouldn't make sense. That's what I was, and that is what I want to go back to. I think am going to have a dishwater shit blonde/gray/something.
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I don't think temp blonde would work.......I made it to 37 without ever having to colour my hair........but unless it lightens up a lot......I may have to start.......I think mine too is dishwater shit blonde something......sucky......but atleast it's hair......I think I will try a bunch of temp colours during this growing out stage......may as well have fun with it........can't wait for a bit more length......seems to be growing so slow
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Carolyn, just wanted to wish you well on finishing up. Praying your PET scans are good. Sounds like chemo did its job and you will be ready for your surgery.
Guess I have given Vino enough shit about her hair today. I am extremely upset because I don't have anywhere near that much. I would like a little feedback from everyone else to see if I am the only one follicly challenged. Jax and I finished chemo the same time. I am holding to my guns however, that, a person might start growing hair back after they are finished with the Adriamycin. I had TAC thus, having the red devil until the end, where as gals doing the dose dense AC + T get a faster start out of the gates on hair growth. That is my story and I am sticking to it. Who knows...anyway...you look great Jax. Later my friends...HunkyD
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I believe you are right HunkyD.......it seems to be a fact......my hair started to grow back on the Taxol......barely......but a little covering before the end.......I've always been a fast hair grower......so I hope that hasn't changed.......it seems really slow to me......but sorry yours is slower.....soon......we will all be sexy again by the summer.......that's my story and I'm sticking to it.......
Cheers
Jax
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WOW Jax!!! You have way more hair than I do. I think I'm also follicley challenged HunkD. I have about 1/4 of inch of gray and darker gray. I'm hopping when it gets longer it will be my old shitty dishwater blonde that I can dye pretty blonde and some red. IT is soft!! I sit around rubbing my head. One of my students has shaved his head about a month ago but he has more. Jax, I like you story about being sexy by the summer. Maybe my body will be swimsuit ready too!!!!!
We had a blast of cold air today. Winter is here. YUCK. I live in Wyoming and I don't like the snow or cold. Go figure.
I have been finished with chemo for two months and I'm stiff in the hips and hands. Is anyone still experiencing this?
Everyone have a good week and enjoy the Holiday shows!
Wyoming
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Way to go Rover and Carolyn... you are at the end of the chemo.. good luck with the upcoming surgery.
I am like you Hunky D ... I still have a short halo of hair.. not sure of the colour.. it seems dark but when you move in closer it is looking mighty grey.
Wyoming, I am two monthes out from chemo and I find I am having discomfort in the lower back. Otherwise, the rest of the body seems to be getting back to normal.
Jax... I liked the colour. I may be where you are in about 2 monthes... my hair is slow growing. Did get my eyebrows and lashes and a couple of lovely chin hairs.
Have a good week... Enjoy the day
Karen
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Wyoming, I haven't had any hip pain, just the underarm pain on the mastectomy side. Radiation has increased that. We all are going to freak out over every pain we have now....one of the post trt gifts this sh*t disease has blessed us with. Hope your discomfort eases up. Got my script for the effexor (anti-dep) today but after reading too much on the internet didn't fill it. Good huh? HunkyD
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