Anyone starting chemo in Aug. 08?
Comments
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Deanna, Thank you for the verse. i am in tears this morning. Hanging on to each verse and anything else that I can. I am real queasy today. going for rehydration in a half hour. They say it could help so I am running!!! For anyone else in this predicament today I am covering you in prayer. I love you all and thank you for your support, prayers and friendship. Mamashift: I am with you today and trust you will continue to gain your strength, Hugs, Corinne
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Deanna - Yeah, I reported it to my oncologist who didn't seem very concerned. I also searched for it on the YSC board, and was relieved to find that it's not as uncommon as one might think. Actually it seems fairly common during taxotere. I'm using artificial tears, but my eyes are still driving me nuts!!!
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Hi MamaShift, soooooo glad to see you back and to know that you are with your family again! Are you in the Ukraine now?
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Hi, everyone.
DFOnt-thanks for the advice. Started my FEC this week.They put a pump on me Tues and took it off Thurs.
The depression is a lot worse with this chemo. Thank God this site is here. It really helps to know others know how it is and understand.
Corrine6- I'm right there with you on the nausea. Not sure if my anti-nausea pill had time to absorb before I hurled this morning. Prayers right back at you!:)
I didn't have these SEs with my Abraxane txs, so this is awful. My family has been great, but they still rely on me so much for everything. They keep calling to ask what the plans are for Thanksgiving, and I don't know if I will be better by then or not. They're not used to me being out of it like this, and they don't know how to handle it. I love them all and I hope I'll feel better by then.
I get my first Neulasta shot today. I have been taking Neupogen, but I've heard awful things about Neulasta and the bone pain. Anyone have any good experience with it? I've read enough bad stuff. Thanks again and I pray everyone feels better. Deen
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Hi, Deen... Sorry you're feeling so awful. For the Neulasta pain, many women use Claritin (or a generic version of it, but not the "D" version), or Extra Strength Tylenol. Both seem to work well for most women. The Claritin can be taken before you experience any discomfort, to keep it from coming on.
As far as Thanksgiving goes, as much as you may want to do it, it may be the year to let others step up and take a turn. Without knowing what the usual arrangements are in your family, maybe you could ask someone else to host it, or at least have everyone bring something so that you have very little to do. You need to level with your family -- be sure they know this is all temporary -- but that if they could figure out Thanksgiving this year, it would be the best thing they could do for you right now, so that you don't have to worry about it. It's time to let others take care of you a bit. Deanna
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Hey everyone!
Roya - I got 3 permanent tatoos, they look like little freckles and the painting they did looks like Sharpie marker. Several lines on my torso so that they can line up the lasers. You are right about scary...I think because it is definitely a visual reminder!! But, if we can do chemo, we can do this!!
Misty and Hood- How are you girls doing?
Mamashift - yea for family and a safe journey!!!
Hugs to all!!
Stacy
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Deanna-thanks, I'm definitely trying the Claritin. Love your new look!:) I'm going to ask each of my family to bring a dish for TG, and that should be enough. I'm usually the healthy one of the bunch, so it will take some getting used to. I love to cook, so I hope to feel better by then.
I'd like to hear about other peoples' Thanksgiving plans. It's very different when we're going thru this. But I do feel thankful that I am getting the tx that I need and am thankful that I have a lot of great family and friends to support me through it, including the friends on this website!
Praying good things for everyone, Deen
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Deen
I'm in Canada so we already had our Thanksgiving last month. I chose to skip it this year. Mainly to avoid germs. Our family tends to share sicknesses at big family get togethers. My husband and I had a small turkey dinner at home, we did invite my mom over but that was it. Everybody else completely understood. I said I should be good for Christmas and will probably host that here. My main thing throughout chemo has been to avoid getting sick or ending up in the hospital, that would make it much more difficult to get through it. This is just temporary and right now our health is the most important thing.
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Oh, speaking of Thanksgiving... someone on the TC board shared that her hairstylist told her to be careful opening a hot oven when wearing her synthetic wig. Evidently, they can singe if they get too close to the heat! Just thought I'd pass along the possibility, since most of us probably haven't done to much cooking or baking in our wigs! Deanna
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Hey Girls,
I am feeling good two days after the implants surgery. I took off the special bra that I have had on since leaving the surgery. I got my first real look at the "new girls." I can't believe how good they look. I don't feel like I look fake at all, probably because I chose to be on the smaller size. They have a nice shape and should be pretty comfortable and perky for the next 40-50 years-haha!! I am still taking the pain meds and just laying around the house. I love this!! Once again, my DH has been there every step of the way. He is wonderful.
Hope everyone is doing well. Hood, how are you doing with the new expander in? It probably feels uncomfortable now, but you will get used to it.
How are all of the rads girls doing? Who is left on the chemo?
So happy to see T'Giving next week on the calendar. Who would have thought we all would have made it to this point back in August?! I am going to my aunt's house that day, so I won't have to cook.
~Misty
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Misty1 - glad to see you like your "new girls"!!!!! Also glad you aren't in much pain. Mommy3abm - I too got the permanent markers too - just alittle uncomfortable but it is only for a second. I know everyone keeps telling me that they wouldn't want the "reminder" of the cancer by looking at the marks. I guess in my mind " I won't EVER forget I have cancer and they are kinda like my badges of courage. Cause guess what - I DID IT!!!!!!!!! I made it thru chemo and only have 15 more rads sessions left. I know everyone is different but I guess I didn't mind - nobody can see them but my hubby and he doesn't care!!!!!! Good luck to all who are up next week for chemo - hang in there - you can make it. Lots of us already did!!!!!!!!!! Keep going. Loves to all............
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I got a call from my surgeon's office today, and surgery is now January 20, with pre-op appointments on January 6 and 7. I sure hope it is not snowing in Baltimore on those days! Due to the change in date, the head of plastic surgery will now be putting in my expander. He looks friendly on the website; I need a consult with him as well before the surgery.
This coming Wednesday is my first Tx of Taxotere. I am hoping and praying that I will not be sick over the holidays. I want to cook our first Thanksgiving dinner, not be a basket case on the couch!
Today I got my first disability check in the mail. It is already in the bank, even though I had to clean 4" of snow off my car to get there. I talked with my boss and HR , and they sound as if they want me back. This is encouraging!
My fingers fell as if they are "waking up"! I got some Christmas knitting in today.
All in all, things are looking up. I feel blessed and very thankful today. And the extra week off from chemo has been great. Tom is scheduled to visit tomorrow, so I have him to look forward to! We are both hug-deprived right now, but that will change as soon as he arrives!
Love to all and a great weekend!
Bette
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Hello to all night owls!
Up late. Too much on my mind after an eventful day, so I thought I'd BUMP us up!
Bette
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Stacy, thank you for reminding me that getting those tatoos for rads are just as doable as getting the chemo was. Having 3 new 'freckles' is really nothing to be worried about.
Thanks for the encouragement.
Misty, congrats on the "New Girls!" Did you decide on the saline?
Bette, how long after your last Taxol did your fingers start to feel as if they were 'waking up?'
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Roya, It has been about three weeks now, since my last Taxol. My fingers are improved, but not all the way "there". My toes are still numb. The numbness is the chief reason that I am being switched to Taxotere. I am hoping for few SE's as my treatment is right before Thanksgiving.
Bette
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Thanks for letting me know Bette, My toes are still very numb. Makes me feel so strange when I am walking. I have almost fallen a couple of times because my toes can't feel me walking on them and I have stumbled.
There is no Thanksgiving here but many in the expat community still celebrate. I will host a small dinner for family and friends. I celebrate both French and American holidays so my kids will know both traditions.
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Hi everyone, Today is my first day I feel somewhat better. I am going to go to the grocery store. My first time out all week except for rehydration. Ugh!! What a pitiful week!! My last chemo before surgery is on the 9th. I have two weeks to gain strength. Roya, my neuropathy is there and my nails have turned colors but that is the least of my problems at this point. My BIG problem has been my nauseated stomach. yuck!! Anyhow, thank you all for your support!!
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Hi Girls, It's makes me feel so good to read all of your posts! Thank you so much for being there! I had my tissue expander with alloderm + 250 cc saline put in on Wed (3 days ago) and it has been pretty sore and uncomfortable. I was finally able to get comfortable enough to sleep last night and feel much better today. I go back to the ps on Monday & hoping to get a look at it then! I'm so happy yours turned out so well Misty! I hope mine does too.
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Hi Hood, I just posted on our Nov. reconstr. board, but I saw your message here. I am glad you are doing well. Wow-250 cc's is a lot to begin with. How big are you going to go? I stopped at 240, even though I could have gone up to 300. The worst part for me has been the uncomfortable surgical bra. I couldn't take it anymore, so I took it off. My DH and I bought some sports bras at Target today, so I will wear one of those.
Roya, I wound up going with silicone. I was told they would be much more natural. I have to say, they look REALLY good!!! Of course, this is from someone who was barely an A cup all of my life. For my smaller structure, I am probably a large B/small C now. For those who are headed down this lovely road of implants/reconstruction, you are in for your reward soon!! Funny to say, but I don't know if I will do nipple reconstruction on the left side. I just may do the "tattoo." so for all of you rad girls, I may be sporting one with you!!
Corinne, it sounds like you are taking a beating with this nausea. I hope you are back to yourself soon and on your way to your LASTONE!!! Woo-hoo, we'll celebrate with you soon!!
~Misty
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Misty, I am so glad that you went with the silicone. The salines are very hard and unnatural feeling. Silicone is soft and natural. Silicone feels more like you were born with them.
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I keep forgetting to mention,
I have a DARK COVERING OVER MY HEAD!! Could hair be on the way?! It's been almost 8 weeks since the last chemo. I have noticed a dark shadow for the past two weeks. Now, I see some sprouts coming through the shadow. Anyone else?!
~Misty
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Me too, Misty! Dark sprouts/fuzz! More like a serious 5 o'clock shadow! LOL!
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Me, too, Misty! Weird white "fuzz" seems to be giving way to a dark undercoat. Who would have thought 1/32" of hair could be so exciting?! Deanna
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Got it too...although mine is mostly white or transparent! Got a few hairs that are over 1/2 in. long! When I say few I really mean a few, like 10 or so!
Stacy
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I'm in Lithuania now for the next few years.
I'm still shiny bald. But I'm only 6 weeks out. My mom got hair at 8 weeks, too, so hopefully I have only two more weeks to wait! Psyche!
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I started growing fuzz during chemo. It almost made me regret shaving my hair, but at the rate it was falling out, I had no choice. My head is all fuzzy, and like Stacy, I have a FEW that are over 1/2" long.
My biggest pain right now is my eyes. They're still running like mad!! My eyelashes (all three of them!!)/eyelids are stuck together when I wake up, my entire eyelid, side of my eye and under my eye are red and irritated, and I'M GOING CRAZY!! Is no one else having eye problems? My onco said use artificial tears... uh, not working. Please help.
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My eyes got red and stuck together during chemo with AC. My oncologist ended up giving me antibiotic ointment to use for a week, and that did the trick.
Bette
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I've had whitish fuzz on my head for a while now. Finally shaved off most of the rest of it a few weeks ago. Didn't shave it right to the scalp though, so those ones are still a bit longer and stiffer. Doesn't seem to be growing too fast! My eyebrows have been slowly coming out and I seem to have less eyelashes, but not completely gone. My eyes do water more now too.
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Yep, losing the eyebrows and lashes here too! Off to the onco for follow up!
Stacy
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It is discouraging that I have to look forward to losing my brows and lashes as well as my breast. I f they are slow to grow back, my wedding pictures should be really interesting!
I ordered my invitations today. No turning back now. the wedding is really going to happen on March 28, 2009
Bette
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