Hpw bad is the AC/T chemo, anyways??

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katrina
katrina Member Posts: 2

Hi-- first time posting here..... just back from first meeting with oncologist. I'll have 3 mos. of the AC combo, then 3 more months of the Taxol (sp?)--she told me it really won't be bad, as far as the side effects-- but I am wondering how realistic she is being. I am a SAHM homeschooling two kids age 6 and 9, and I am wondering how impaired my functioning will be, if at all. 

I know everyone has different reactions, but can anyone out there tell me their reaction to the AC 3-week cycle, then the Taxol? How did you feel? How was your energy? What was it like?

Comments

  • ravdeb
    ravdeb Member Posts: 3,116
    edited November 2008

    I was on dose dense. I didn't do well on the AC but the Taxol was easy with little to no side effects and my hair ever grew back, if that is a marker at all for easy side effects.

    AC tends to be more difficult but some women say the opposite. Doing it every 3 weeks is said to be easier than the dose dense, in some cases. I'm sure more women will give your their experiences. My girlfriend did it every 3 weeks and wasn't bothered by it at all.

  • Brenda_R
    Brenda_R Member Posts: 509
    edited November 2008

    I didn't have Taxol but the A/C kicked my behind.  Mine may have been age related, but I was also very run down from being a caregiver to my elderly mother.

    Seems to me that younger ladies fare better. 

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited November 2008

    Had 4 DD A/C last year at the age of 59.  No real problems although I didn't feel like going out dancing, if you know what I mean. 

    The worst part was approx. day 3-4 after treatments.  Then, I'd bounce back and be fairly normal.

    It's shitty but most of us do okay.  And then it's over.  Yay!

    Best wishes to you.

  • JanDun1
    JanDun1 Member Posts: 52
    edited November 2008

    Hi,

     Just finished dd chemo treatment. 4 AC, 4 Taxol. AC was very easy for me. The worst thing of course was loosing my hair. No other side effects. Taxol gave me a thick icky feeling in my mouth and then 2 to 3 days later my legs would ache pretty bad. Other than that it was surprisingly easy and like I say, had I not lost my hair I really wouldn't have been all that inconvenienced. 

  • debk55
    debk55 Member Posts: 108
    edited November 2008

    Hi, I am doing the dose dense AC now. The 3-5 days I am very tired a queasy if I try to do any thing. but then I get some energy back. I would think you could home school if you have your lessons planed ahead and I need to have food made up ahead of time. I can heat & serve but cooking a meal is not something I want to be doing on my bad days.    I have heard a lot of women work though I do not know how I could.   I too jut lost my hair and that has been the worst so far.  Good Luck, Deb :)

  • DGHoff
    DGHoff Member Posts: 624
    edited November 2008

    I did dose-dense AC. I worked pretty much full time throughout. I would have chemo on Fridays, and then go in for my nuelasta shot Saturdays. I'd have pretty good energy until Wednesday when I would hit the wall of tiredness, so I would work from home those days. Then I'd start to build back up.  The tiredness and the constipation were the worst part. Just be sure to drink tons of water and to take stool softeners the day of and day after chemo, and you'll probably do fine. 

    Taxol was much easier for me. My hair started to grow back, although my nails got a little funky. Otherwise it was pretty easy. 

    Good luck!

  • TPPJ
    TPPJ Member Posts: 1,017
    edited November 2008

    As long as you get Emend before each A/C and for the few days following, you'll be fine in the nausea department.  I did feel super wired for a few days from the Decadron.  I'd say that was my worst s/e.  Like clockwork, I lost my hair on day 18 after first A/C infusion.

    No nausea at all with the Taxol.  I did fine until about treatment 7, where it made me pretty tired.  It's good that you are home schooling because you probably won't feel like leaving the house all that much.  If you can kind of take it easy, at home, you'll be OK.  It's all do-able.  I finished my taxol a year ago April.

  • lisa39
    lisa39 Member Posts: 255
    edited November 2008

    I had a hard time with A/C.  I did it once every 3 weeks, just like you'll be doing.  I felt pretty lousy for 5 days post treatment, then it would lift and I'd be ok for weeks 2 and 3.  I took Emend and it did help with the nausea, but I needed to supplement with Olanzapine.  I also took Gravol whenever I needed a top-up and Pepcid for the gross acid-reflux A/C gave me.  I found Taxol much easier in comparison.  You may need to make alt. arrangements for your kids' homeschooling for the first few days post-AC.

    Good luck!

  • angie27
    angie27 Member Posts: 863
    edited November 2008

    Hi, I did 4 AC every 3 weeks, everyone is different as you know, in my case, I have to say I did ok, except for constipation, I will go for infusion on Tuesdays, be ok on wed and Thursday, by Friday I start to feel very tired and I will have to rest for 3 days, most important listen to your body and eat well, also take all of your pre-meds as directed, the metal taste and the chemo fog was uncomfortable but manageable.

    Then I did 12 weekly of Taxol/herceptin, here my symptoms were, the metal taste, leg cramp, and the good thing was that my hair starting coming back, now I am just on Herceptin and thats a walk in the park.

    Please come back here if you have any other questions or concerns:

  • Roya
    Roya Member Posts: 346
    edited November 2008

    I took A/C every 2 weeks x4 doses then Taxol.  With the A/C I would have nausea and vomiting for about 2 days starting the next day after my chemo.  The doc gave me quite a  few meds for nausea but none of them seemed to work. After 48 hours the nausea would dissipate.  I did become fatigued more easily but that could have been from not eating which was secondary to the nausea.  Also food did not taste the same, not for the better.   I also lost my hair.

    I too am a SAHM but I ended up sending my 4 year old daughter to full time preschool because I was so tired and slept so much more that I could not watch her and keep her safe like I should .  I just finished 4 rounds of Taxol ( every 2 weeks) and have decided that my daughter will remain in full time preschool since she enjoys it so much, she is learning more, and it has broadened her contact with other kids her age.

    No nausea with the Taxol but I do have neuropathy in my finger tips and toes.  My toes sometimes feel cold and numb which is very uncomfortable.  This s/e began about 5 days after my first dose of Taxol and has not yet gone away. .  I also got pain in my legs after about 5 days post infusion and this would last about 2 days.  I lost my eyebrows and eyelashes after starting Taxol.

  • Debbi5108
    Debbi5108 Member Posts: 182
    edited November 2008

    Katrina,

    I too had 4 A/C every 3 weeks and didn't have to much trouble as long as I took the nausea meds wether I needed them or not, little to no pain and as long as you start the schooling early enough I would say its doable as you may require a nap, thats what it did to me it made me a little more in need of a nap, I'm by no means saying it's a walk in the park as I did get a little nauseous at times usually when I forgot my meds. As for the Taxol I am doing them weekly (every Monday) and if I didn't know better then I'd swear I wasn't doing Chemo my hair is growing and other than wanting to take an occassional nap I am GREAT!!!! Maybe I just like naps LOL. My onco told me I could choose between every 3 weeks on the Taxol or 1 a week and that once a week was a little easier, so Once a week was for me. Taxol does make me have a little bit of aches but, I thought what the heck when I am done with all this having the flu will seem like nothing LOL. Best of luck to you and yours, Debbi

  • Emma303
    Emma303 Member Posts: 3
    edited November 2008

    I just started DD A/C on Monday. I will have 4 rounds of A/C and 4 rounds of T every 2 weeks. I have two kids, 3 1/2 year old and 22 months and i have been exhausted since Monday.   I have had my good moments, but we have had a lot of help this week and I really needed it.  Everybody is different, but I wouldn' t have been able to homeschool my kids this week.   At one point, I found myself fighting to keep awake to watch my daughter, and my son was a preschool at the time (he goes 3 mornings/week).  The other thing I feel lis mentally foggy.  I just don't feel like I am quick to think about things.  I also feel like I am moving in slow motion sometimes.

    That's not to say you will feel that way, you may be fine.  I expected to be tired, but I didn't expect such exhaustion!  I am hoping next week is better!

    When are you scheduled to start?

    Emma

  • katrina
    katrina Member Posts: 2
    edited November 2008

    Thanks to all of you who replied-- it's great to hear a bunch of different experiences.

    Turns out I need another excision, so the chemo won't start till mid December sometime-- and I am going to meet another oncologist to ask (among other things) why it was not  suggested to do the "dense dose"-- since it seems that is the going thing, now, maybe? but I'll get a Dr's opinion on that on Monday.

    Thanks again-- I'll be reading lots of what everyone has to say, and I'm sure I'll be posting again!! --katrina 

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited November 2008

    I did TAC - all three at once, every three weeks over a 4-1/2 month period (6 total infusions). I worked throughout, took moderate hikes the second and third weekends after treatment. I had some peripheral neuropathy, which is mostly gone now (after 10 weeks). My energy levels on weeks 2 and 3 were so high that my onc was constantly fussing at me to slow down and rest more! Appetite was fine after week 1 following the infusion. Chemo hit my digestive track mostly...heartburn (resolved with Prilosec) and awful constipation. I burped more than usual. Thrush from the dexamethasone was a drag.

  • mer1957
    mer1957 Member Posts: 534
    edited November 2008

    I did the AC x 4 dose dense, every 2 weeks.  I had mine on Thursday, was sick Sat and half of Sunday but antivan for nausea really worked but made me sleep.  This schedule might work well with your home schooling as you are sick only on Sat and Sun, monday you are dragging but I worked through, went to the gym every day.  Taxol was more body pains, esp the back and legs, but no nauseau.  I got some Celebrex which really helped but was hard on my stomach, and took lots of Ibuprofen and Tylenol.  You can do this!

  • Chris71
    Chris71 Member Posts: 5
    edited November 2008
    The AC was easier for me than the Taxol. On AC I felt crappy for about a week, horrible taste/feeling in my mouth, at the time I thought it was bad. But Taxol is really kickin me in the butt! I go for chemo on wednesdays, by friday afternoon I start to feel it. I get horrible pain from the waist down. Once in a while its in my arms and back. Its a dull throbbing pain everywhere. Then I get a sharp throbbing pain that moves! With each treatment it has gotten a little worse and lasts a little longer. Frown I have tried all the OTC drugs, nothing helps. I am now taking Morphine so I can sleep at night, the only thing is it makes me sleep during the day too, so I have to suffer through it if I want to stay awake. I don't think too many people get the pain this bad from it so hopefully you won't. Not trying to scare you...just being truthful.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2008

    For me, it was rough. On AC, My productivity at work plummeted as I sat at my desk with chills, diahrea and body aches from my Neulasta shot. My hair fell out on day 16, my nails turned black after two Tx, Taxol put me in the hospital with high fevers twice, and I had to take disability leave from work. I have just been switched to Taxotere, and am hoping for less SE's.

    On the up side, the Tx shrunk my tumor from over 7 cm to almost nothing, which after all was the whole idea. Physically, I had a rough time with the SE's. That obviously is not the case with everyone.

    Bette 

  • LisaF
    LisaF Member Posts: 200
    edited November 2008

    Hi Chris and Bettelou,

    I just had my first taxol on Wednesday and am bummed.  I had read it was so much easier than A/C.  Not for me!  My legs are killing me and I'm already starting to get that tingling in my feet.  Hopefully it won't last much longer!

    Good luck Katrina!  We'll all get through this!

    Lisa 

      

  • larajv
    larajv Member Posts: 12
    edited September 2017

    Your treatment is exactly what mine is. How are you doing now

  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2017

    larajv.....this is a 9 year old thread and not active....maybe you should find a more recent thread

    BTW I did the same chemo 12 years ago

  • Kicks
    Kicks Member Posts: 4,131
    edited September 2017

    Larajv - not sure wbich person you were asking how their TX went but as almost all who had posted in this Thread 9 yrs ago have not been to BCO in years (one is still active apparently) it is highly unlikely that you will get a reply.

    If you look for a more current/active Thread about A/C and Taxol, you will info from those of us who did it and still co.e to the site.

    It would help with people being able to give pertinent reply to you if you would fill out your Profile with the info of what you are dealing with - there are so many variables with BC that just saying BC doesn't say much.

    Added: I did 4 DD A/C neoadjuvant and 12 weekly Taxol adjuvant 8 yrs ago.

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