What would you suggest

Options
ibcspouse
ibcspouse Member Posts: 613
edited June 2014 in IBC (Inflammatory Breast Cancer)

In Dec, the first International Conference on IBC will be held in Houston.  They will have a workshop on advocacy.  If you could suggest anything to them, what would it be.  How would you advocate for IBC awarness,  

Have any of you had your doc, surgeon, onc, radiologist, nurse or gyn say they are going.  They would pick up CME credits, learn about dx, imaging, path, treatments, and standards of care. 

· Share on FacebookShare on Twitter

Comments

  • rosied51
    rosied51 Member Posts: 170
    edited November 2008

    I honestly think that more Dr's need to educate themselves about IBC.

    · Share on FacebookShare on Twitter
  • Squeaker
    Squeaker Member Posts: 87
    edited November 2008

    I'll share my thoughts on this. First and most important - it's exciting to see this happen. MDA has done a great job of assembling an intl faculty. Since it's so close to San Antonio Symposium, I do worry that attendance would maybe suffer w/budgets so tight these days. Clearly, the medical profession needs to tune in to our plight better. Education/advocacy from Peer to Peer ...that's a cirriculum/conference thing this event addresses very well!  Prof to Pt or Pt to Pt or Educational Advocate to Pt is a whole different world, I think to still be defined. My medical team feels that while MDA has the prime team, they are not always the best for open and equal collaboration among other facilities & peers.  I wonder if education and advocacy for the 3 other groups I mentioned above is best served by some group stepping out from the umbrella of MDA to seek a focused and collaborative mission on education and advocacy. Maybe this is the place to start. Certainly questions for smarter people than me to ponder!  I'll look forward to seeing the outcome of this event.  Happy weekend All!

    · Share on FacebookShare on Twitter
  • ibcspouse
    ibcspouse Member Posts: 613
    edited November 2008

    Rosie, I agree.

    Squeaker,

    Cam(the IBC part of ibcspouse) and I were at MDA yesterday for treatment and had a long talk with the Research nurse practioner for the IBC clinic.  She said that in the future, they would be taking IBC on the road.  I took this to mean they will have more conferences in more cities.  I hope this is fact.  You are right about the Peer to Peer, she told me that all discusion would be way over the heads of any lay person, but try to do the nurse to nurse part in a way that will give useful information for the front line providers. 

    · Share on FacebookShare on Twitter

Categories