Anyone starting chemo in Aug. 08?
Comments
-
Thank you Bette, Tonya & Misty. Yes what a relief it was. God is great!
I hope you're feeling better Bette. When is your surgery? I'm glad to hear you'll be staying with your daughter for recovery. Praying your appt. w/ PS and Dr. go well.
It's nice to be off chemo for 3 more weeks. Then it's Taxotere or Taxol. Now I'm getting worried about those SE's.
Prayers to all,
Jeannine
-
Hi I am new to this site. I just saw my oncologist and she is recommending chemo. I thought I would not need chemo just thought I would have to take the tamoxifen. Want to know if anyone has info on the following chemo. She is recommending that I have CMF once every 3 wks. for 8 treatments for 24 wks. Or I can do a trial which is the same CMF once every 10 to 11 days for a total of 80 days. I would have to give myself an injection everyday of Neupogen to boost blood cells.
Was wondering if anyone has had this chemo and if they can give me more information about side effects etc. Dr. explained alot but I would like to talk to someone who has experienced it. I want to make the right decision for me. I am 46 and have two kids ages 13 and 10.
Anyone who would like to answer this post I would really appreciate it.
Colleen 1960
-
Well, I don't think I have a cold after all. My eyes continue to pour... makeup is a thing of my past, and this is HORRIBLE as I have terrible skin. My nose bleeds every day, and some days it seems to bleed all day long. I've wiped/blotted my eyes so much that they are raw like your nose gets when you have to wipe constantly.
The watering, streaming eyes is driving me insane. I actually believe it's a SE of the Taxotere. I'm still tired and achey-like, too. I'm so glad to only have ONE MORE Taxotere treatment!!! Please, please tell me that my eyes will be normal again once I'm finished!! I'm so ready to be normal (okay, I've never been normal, but you know what I mean
)!
-
Colleen, I am not familiar with your Tx as I did ACT. I was told that due to my age, 38, chemo is a given...onco told me that it would be with anyone with IDC under the age of 50. Just wanted to let you know that all of here are a testiment to the words, "It can be done!" Good luck!
SheRee, I, too, had the runny eyes and an eye twitch on the Taxotere! It stopped soon after my last Tx. Hang in there!!
Misty, will be thinking of you with your exchange surgery. I hope you enjoy your new look!!
Bette and Roya, hope the temps stay down!
Tonya, it was so good to see your post. Still praying for your mom!
I see the rads onco tomorrow to get my rads plan! I am hoping for only 5 weeks. We shall see!
Hugs to all!!
Stacy
-
Temp is till elevated. Tylenol helps alot. Took some and ventured out to church today. It was good just to be with other people as I am very isolated except for medical appointments and Tom's visits. Got home and went to bed and heard a knock on the door. A man from church had brought me the flowers from church! So I have this lovely big flower arrangement in my living room now. It was a nice surprise.
Tomorrow will be quiet, but on Tuesday I am going to get fitted for a post-surgical bra and after that to the baker to look at wedding cakes (and taste samples, YUM)
Wednesday is Chemo # 7, Taxol again. I am really apprehensive about this stuff. I do not want to go to the hospital again. If I get a fever, it will mess up Thanksgiving week. I am tired of this. I want my life back! Does anyone else fell like BC has just taken over? I guess I must be depressed today.
Stacy, good luck with the rads onco tomorrow.
Happy Sunday to all
Bette
-
bumping us up!!!!!!!!!!!!!!!!!!
-
Bette, I felt much the same way as you in that I continually had to plan my life and activities around chemo. I found my friends were even asking me if it was my 'chemo weekend' before wanting to make plans with me.
This will not go on forever. Chemo is only for so long and then it is over and you will lbe free again. How many Taxols are you going to receive? I had to do 4.
You are not in this alone! Your BC sisters are here with you sending you so many positive thoughts and prayers.
-
Had consult and simulation for rads today...got 3 tatoos and some lovely semipermanent painting done on my chest. Rads start Dec. 1 and I will have 33 days worth! UGH!!! One tatoo area still a little sore, but this will pass. My hubby is now calling me a bald bada*s mama because of my tatoos...he has 2 that actually look like something other than freckles and has been dying for me to get one! There shall be no others!!!
Stacy
-
Stacy, does it hurt to get the tatoos?
-
Ummmm...yeah it does, but it is over really quick!
-
Good evening,
Had to visit the BS today. My arm swelled up like a ball. BS squeezed out 300 cc of fluid. Yuk. The nurse tried to convince me (over the phone) it was normal to swell up. I was like "No, not like a balloon". Boy did it feel better to have it drained. DH got mad because I've been on the pc too much. (Hello, need to KIT w/my people!)
Hope you're feeling better Bette. Happy cake sampling.
I had one of those temp tatoos. They do hurt. Rock on Stace!
Wishing everyone well.
Jeannine
-
I FINISHED chemo yesterday!!! YAY!!! I have to go in today to get my neulasta shot and a steroid (depo-something) shot, and then moving on to rads!! Whoo-hoo!! I'm so excited. Supposedly I can start rads in two weeks, so I'm going to make my appt today before the neulasta kicks in and places me firmly on the sofa for a few days
I didn't realize we'd get tattoos for the rads... hmmm. BUT i do already have two tattoos, and once my treatment is over I plan on getting two more. I have a sun that represents my son, Billy, a ladybug for my "Caiti-bug", and now I want a bell for "Kelsey-bell" and of course a pretty little pink ribbon to remind me of all I've come through.
Hope everyone has a wonderful day.
-
I have a surgery date: December 23. I am losing my breast for Christmas. I hung up from talking to the surgical coordinator and promptly had a panic attack. I am not mentally ready to look down at my chest for the first time since puberty and be able to see my feet.
Tom and I have decided to move the wedding up to March, since I need his both his health insurance and also his companionship and love on a full-time basis. We are in love, and every other weekend does not seem to be enough. I was able to get the minister, organist and caterer for the new date. Now I have only 4 months to get ready. AARGH.
Tomorrow I learn whether I am continuing with my last 2 Taxol treatments . If so, I must prepare myself for the possibility of another fever. On a practical basis, if I go to the ER again, I must remember my cell-phone charger, journal, and some other creature comforts.
Today I get fitted for a post-surgical bra. Anyone who has had surgery, did you get one of these? What are they like?
Roya, thanks for your encouragement. It does help to know that my BC sisters are behind me.
At least after the fitting I get to go look at and taste cakes!
-
Congratulations SheRee! You did it!
I'm so happy for you!
Bette: I'm sorry to hear about your upcoming mastecomy. I wrestled with that too. What's wonderful for you is you have Tom's love and support during this time. You have so much on your plate now. Take it day by day and give it to God.
Hugs,
Jeannine
-
Hey Girls,
Congrats SheRee!! It's so nice to cross another girl who has finished off the list. We'll keep cheering everyone until the last chemo is done by all of us.
Bette-tough decision, but I am sure you will deal with it. I had mine in July and didn't look back after making that decision. Have a piece of cake for me-I LOVE cake!!
Jeannine, glad you had the fluid drained. I know that feels so much better. I had the same situation as you. I did not get drains at surgery because I bled very little, but something sure did collect in the following days after surgery.
I am off to the exchange surgery tomorrow morning. Believe it or not, I am actually excited for this surgery. I hope it closes another chapter of this book. I'll let everyone know how it goes if i am not too drugged when I get home!!
hood, you are up for your expander surgery tomorrow-good luck! We'll be in la-la land at the same time.
~Misty
-
Sheree, Congrats on your last chemo!!! Isn't is wonderful.......we are moving on along now and it sure feels good.
Chelli, hope all is well with you. I miss hearing from you.,
Misty and Hood, you are in my thoughts and prayers for your exchange surgery tomorrow.
Jeanine, hope you are feeling much better since the episode with your arm.
Stacy, you also mentioned a semi permanent painting...what's that all about? I am starting to think that rads is scarier than chemo....it leaves reminders! They say that we will be much more fatiqued with rads than chemo too. I appreciate all the info that you are sharing. Knowledge is power and this helps a lot.
Bette, congrats on your wedding date and plans. I am so happy for you!. Soon all these treatments will be over and done with........and only a long ago memory.
-
Hi
I started my round of FEC today. I have a pump that I have to wear around for 48 hours while it pumps the chemo. A little tired, don't know if it's the chemo or the Benedryl. Have cottonmouth, too.(Decadron, maybe?).
Sheree- congrats
Jeanine- sorry to hear about your arm. Hope it gets all better:)
Bette- I'm praying good things for you. My heart goes out to you with all that you have been through. Getting ready for a wedding is a real chore,(except for the cake sampling), and I hope it goes as you have dreamed of.
Wishing good things for everyone! Deen
-
I haven't been on the boards for a long time - I am prone to depression and have been hibernating....................................today my six year old daughter told the school counselor that she didn't know what she was going to do because her daddy still had not found a job and her mommy was dying! WAKE UP CALL . I'm going to try this attitude thing again--please help.
-
Monique
Sometimes we dont know exactly how this is affecting our children. It sounds like counseling is a good idea. I'm praying for you and your family
Roya
Usually you have an option as to whether you want the permanant tatoo dots, I opted not to get them. I think they used some kind of permanant marker that eventually faded away.
-
Ladies your all wonderful. I am terrible at remembering who wrote what and going back up and down to types everyones names. Thankyou to a shot memory
Anyways, I have had rest,,,cleared my head and am ready for next step. I go tomorrow for rads consult,,and my healing is coming along great. I can lift my arm over my head now
I will be on aviatin,,,and xeloda,,,anyone hear of those or done them ? They are chemo pills
But am prepared. Can still have my news boobs right after rads,,,soooo happy.
Everyone whose prayed for me and posted back,,,thankyou. Roya,Deann,Jeannine, and the rest of you.
I went to church on Sun. night with my mother in-law. I was on the altar floor yelling and screaming, and crying. What a release this was LOL. I don't know if anyones into charismatic church,,,but I LOVEEEEE it. I can say I went home free and refreshed. This really is a spiritual thing. I had people praying over me.
We can't have a testimony without a test. And God doesn't want us to hide,,,He wants us to share what He's doing. Lean on Him,,and Know He will get you thru.
Hubby is doing good. He feels terrible.. And that info about the psych....has been utilized. He's going 3 days a week right now. He's not racing around like a mad man anymore either. And yes,,,he's 33 . A VERY young 33 LOL. So time will tell. Loving the Lord has gotten him thru. Other wise he would'nt have gotten any healing (spiritually
Life is good again. I have been wearing my prostesis
Can't spell (fake boobs
Anyone else LOL ? Its amazing how all this works. I feel as if God is stripping me down on the outside to allow me to see ALL I am on the inside. All HE made me to be
Its soooo super ficial the outside stuff. Now I am given a gift of really knowing who I am in Christ. One day at a time
And its not a great feeling to face all this stuff.,,,but after the pain comes healing and revalation.
Anyone else getting this gift also ? I never thought I'd be bald,,,30 lbs over weight,,,braces, pale, no boobs and still at peace with myself and the stuff I'm going thru.
The bad days do pass
-
Monique - I'm praying for you. I know it's hard... I struggle with depression, too, and this journey has been a total emotional roller coaster for me. I'm here and if you want or need to talk, feel free to PM me. ((Hugs))
-
I didn't get Taxol today. They are giving me a week to rest, and then switching me to Taxotere every three weeks.
This puts off surgery until January. So I have more time to get used to the idea of waking up with no left breast.
My brother just called Tom and offered us the use of his timeshare at a resort in Florida for our honeymoon! It is his wedding gift to us. This is so exciting! I have something beyond treatment to look forward to.
Bette
-
Bettelou, my prayers are with you. You have really been a trooper throughout all of this. i am so happy that Tom has just stuck by you so. my heart aches for each and everyone of us going through all of this. i did my 5th treatment on Monday and have been so tired that I fell asleep face down on the table. I was sick all night and today I am up -just barely. tomorrow I am getting rehydration. Hopefully that will help some. Only one more of this cocktail mixture and I move on to surgery. I keep reciting verses over and over so that I can be strong. SheRee, I am so happy for you being done. You are right it is a roller coaster emotional ride. I talked with my onc. who said between the chemo and the menapause to expect depression. I am struggling. A friend of mine just wrote me this verse and I hope it is okay to share it with you all.
Isaiah 40 Hast thou not known? hast thou not heard, that the everlasting God, the Lord, the creator of the ends of the earth, fainteth not, neither is weary? there is no searching of His understanding, He givieth power to the faint: and to them that have no might He increaseth strength. Even the youths shall faint and be weary, and the young men shall utterly fall: BUT they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
Please Lord let me find in you my strength that I need for today. Amen
-
Hey Girls,
Just got back from the surgery. Expander and port are out and the implants are in!! Feel okay right now. I am going to follow the pain meds like I did when I had the mast. in July, so hopefully I will stay on top of it. They said that is the key.
Bette-how was the cake?! That is great news about your FL trip. That will be a nice treat for the both of you.
Corinne-I think this means you only have one TX left. You will get through this!!!
to the CA girls-I hope you were not affected by any of the fires in the LA area.
~Misty
-
Monique, there is a special thread for moms with young children. Many of the issues regarding young children are shared there. Here is where you will find it.
Day to Day Matters + Family Issues for Those Who Have Breast Cancer
-
Lisahugs, I so agree with what you said about the things that we are going through being very spiritual. What matters ishow we grow through it all. What a testimony we will have! So glad that DH is better. Remember, addiction does not go away overnight. Be watchful.
Bette, hope the Taxotere works better for you than; the Taxol did.
Misty, did they have to sedate you to take the port out. I was sedated to have mine placed and don't really want to be sedated again.
Corinne, thanks for the scripture. I needed that.
-
Hey ladies
5 days after my taxotere, still waiting for side effects to set in! Maybe I did have a virus last time, or maybe the extra drugs I got with this infusion are helping. My temp has still been bouncing up and down a bit though, that drives me crazy. Bette, I hope it works better for you than Taxol, maybe the extra little break in between will help too. About the mastectomy, I didn't have much of a problem with it, thought of it more as losing a cancerous tumour than losing a breast! Recovery wasn't bad either. Sounds like you have a lot to look forward to this spring!!! I also just booked a trip to Florida for my sister and I at the end of March. Taking advantage of the great deal Disney World has on, by 4 nights, get 3 free!
Deen, that's different having a pump for the FEC, although that's what my homecare nurse expected me to have here, maybe it depends on the treatment centre. I've had cottonmouth with both the FEC and Taxotere. Biotene mouthwash and toothpaste helps, and I find chewing gum helps too.
Lisahugs, sounds like things are moving in the right direction for you and hubby.
I think I'm going to call about getting a proper prosthesis. I went to one local place a couple of months ago and they never called me back. I've heard about a place near where I get my chemo that is supposed to be wonderful so I'm going to go there and get some good bras too. I've just been using cheap fake boobs that I ordered from Sears, and Wonderbra mastectomy bras, which are not very nice.
Nice to hear from everybody.
-
Hi Everyone,
I've been outside almost non-stop since my last chemo (2 1/2 weeks ago) - am loving getting some energy back bit-by-bit. I want to do everything at once that I haven't felt like doing in weeks! Riding my horse, camping and even cleaning house is a blessing. But now I've run out of active anti-cancer treatments - and I like DOING SOMETHING about it - taking a pill doesn't sound like I'm doing enough.
I do have the expander to deal with - Misty - so glad you got your exchange surgery done - what's it like? As you expected? I have no idea what I will look like with anything more than small breasts.
Bette - what a wonderful honeymoon for you guys - I'm so happy for you & glad it's moving up.
Corinne - Thinking of you and really celebrating the last TX for you.
The fires haven't come close to the CA desert area where I live - thanks for thinking of us out here!
Hugs to everyone,
Gail
-
Sheree... Have you reported the nosebleeds to your onc? That's a fairly unusual SE, and makes me wonder if there might be something going on with your blood counts? And for the watery eyes, someone on the TC board recently suggested that soothing eye drops help.
Jeannine... How's your arm? Did it swell anymore after it was drained? Hope not!
Bette... That's wonderful news about your March wedding. Boy, love must be giving you superwoman energy, to be able to plan a wedding while on chemo! And happy to hear that your surgery has been postponed until after the holidays.
Monique... Hope you've been able to talk to your daughter and assure her that you're not going to die anytime soon. What a burden for a 6 year old to handle. You know there was another thread here recently about a school counselor who had pulled a child your daughter's age out of class to talk to him or her about their Mom's bs. Totally inappropriate, and, of course, the Mom was furious. I hope something like that didn't happen to your daughter.
Lisa... So good to hear that you and our DH are both doing better. You have a great attitude, and I agree with you that there are gifts to be found in the most unwelcome events, like bc. I also believe that God is in control, and that things are unfolding exactly as they should, and that sometimes we don't see the blessings in trials until much later, when we realize how they kept us from a wrong path, or opened a door, or propelled us towards something or someone we would not have found without it.
For Corinne (and everyone else)... Don't forget Jeremiah 29:11 "For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
Thinking of each and every one of you... Deanna -
Hi girls!
I'm back home with my family! Came home horribly weak, unable to do just about anything (like climbing the stairs in this house), but now I'm finally regaining some strength (one month out). I've lost all the stubble I had on my head -- a real Kojak head now -- and no more eyebrows. I couldn't believe how much hair I lost just two days ago! When does it end?
Haven't got time to catch up right how. Just wanted to tell everyone I'm safe & sound with my family again.
Hugs all around.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team