stage 2 * grade 3 * 2.5cm * ER+/PR-/HER2-

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EleanorJ
EleanorJ Member Posts: 752
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Anyone with same diagnosis? What was your treatment? Radiation? Chemo? Hormones? Trying to get ahead with info before my onco appt. on Tuesday. I don't know about onco test yet, is that done on the tumor? or blood test? Also, my ER is + but a weak one, only 10%.

Thanks for all the help :)

Caroline

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  • dawn2203
    dawn2203 Member Posts: 119
    edited November 2008

    Hi Caroline, my diagnosis was stage ll grade 1 but 3 of my lymph nodes were positive too, this was due to being misdiagnosed. My treatments were lumpectomy, auxillary node clearance, 4 rounds AC chemo, 30 rounds of reads and now I'm currently taking tamoxifen. I can't help you with regards to the onco test because nothing is mentioned about it here in the UK. Good luck with your tratment. Hugs. Dawn.x  

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited November 2008

    Hi, Caroline.  I was a Stage 2, Grade 3, ER/PR positive, HER2 negative, one positive node.  I chose chemo because I never wanted to look back and realize there had been other things I could have done.  This way, I know we did everything we could to stop the beast.  I'm 1 1/2 years out from diagnosis and right now have  NED.  My er/pr status was 98%, so highly positive.  I had four D/D A/C, four D/D Taxol.  Am now on Arimidex.  Couldn't do radiation, because I have lupus and lupus patients don't heal well from radiation.

     Blessings,

    Gracie 

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited November 2008

    Thank you. Looks like I might not be able to do without chemo. I was hoping to find a few people that did other treatment than chemo.

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  • dawn2203
    dawn2203 Member Posts: 119
    edited November 2008

    Hi Caroline, my onc wanted me to do chemo because of node involvement, when I went for my second dose of chemo I was seen by a different onc as mine was in clinic dealing with the new bc patients. She looked at my notes and told me I could probably have got away with not havin chemo. At the time I was upset because I wasn't handling the chemo very well but now I'm glad I had it and know I did everything I could to rid me of this horrible disease. hugs.

    Dawn.x

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  • elisabeth
    elisabeth Member Posts: 255
    edited November 2008

    Hi.  I just wanted to let you that I did not do chemo because all 4 of my doctors said it was overkill for me.  They said because it was caught early and it was small, etc. that radiation and a drug treatment would be the best treatment for me.  It took me a while to process this information because I was so devastated by the diagnosis.  The statement that Mayo and many clinics say is what will do the least harm with the most benefit. Definitely talk to more than one doctor if you can.  Also, if your insurance company pays for the oncodx genetic test the results of that would help you make your decision.  

    I hope this helps.  E 

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  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited November 2008

    I'm so Struggling now. I just got my oncotype back which was 9 and my IDC is 2.8 Stage 1 Grade 2, and will see the Medical Oncologists tom. but I was told by my Surgeon and Radiation Onco that I will need Chem. since the size of the tumor and location. I had the Mammosite Radiation so now I was a tad more ready to hear that but I needed Chemo. but now the Oncotype Score and I am So Confused and Overwhelmed.

    Is there Anyone else feeling the same or went through the same??

    Thank You,

    Jerri

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited November 2008

    Jerri - wait to see what the medical oncologist says tomorrow, afterall he is the specialist. And ask why you would need chemo if it's only 9. Keep us udpated, I have my appt. with med. onco. tomorrow as well. Getting nervous.

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  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited November 2008

    Thank You! I found out the Score is 14 so it is 9% reoccurnce. Just stressing. I can't believe my Husband stated to go shopping. I will keep you updated as Good Luck For You as Well.

    Jerri

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  • elisabeth
    elisabeth Member Posts: 255
    edited November 2008

    Hi Jerri.  I'm glad your score is low - yeh.  Did your insurance pay for this test?  Also, how did you get up the psychological courage to even do the test?

    E 

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited November 2008

    Jerri - how did your appt go? Your oncotype is still low. I have to wait some more. Onc says he's about positive I need chemo, but is sending slides to get my oncotype number. He did say that it's up to me and I can decide to skip finding out my number and start chemo now, so I'm expecting it to come back high. But by waiting & hoping, I'll be able to fully enjoy Thanksgiving since I won't know about the results for another 3 weeks :)

    Caroline

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  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited November 2008

    Hi Caroline,

    I saw the doctor and Loved him. He wished I never had the Oncotype though. He stated with my age and the size of the tumor he still recommened Chemo. He stated my numbers would go up with doing the Chemo and then tamo. and then I think he will change it after 2 years because of my age. I now really need to decide on the kind of Chemo which I think either Cytoxcin or CMF which I know I'm mispelling so if anyone knows much about these more Please let me know but I have to do a Whole body scan to be sure no other problems.

    Oh but now on Celexa for the Hormones and Xanax to help with my crazy stress. I don't know why but crying so much more yesterday and today. I see the Doctor again on the 18th.

    I just want ALL of us to ENJOY our Lives to the Fullest without the Fear of Cancer.

    ENJOY your Time. Oh, don't forget to vote!

    Thank You,

    Jerri

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  • sewbutton
    sewbutton Member Posts: 41
    edited November 2008

    Hi everyone, I am new on this site and just wanted to let you all know that I had my first treatment on Oct. 30 and will have number 2 on Nov. 20. My treatment is Taxotere and Cytoxan. My hair is falling out just as I was told it would. I have always had overly thick hair so it looked pretty good for a few minutes...now it is pretty lifeless and I think I should just do the deed and have it shaved off...it is driving me crazy with the shedding. Now I am looking forward to the wig. Just in time for the holidays!Kiss Well, I must cut this short and get in the shower. I think I will skip the shampooing and wear my hat. And to make me feel even better...I will shop on line for more hats and such.

    Take care everyone and it has been great reading all about this. It has helped me a lot.

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  • paras
    paras Member Posts: 63
    edited November 2008

    if you dont mind i would like to know what the onco type dx numbers were?

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  • sewbutton
    sewbutton Member Posts: 41
    edited November 2008

    I'm not understanding what the onco type dx numbers are...where would I find those? So far the only copy of a pathology report I have gotten is from the surgeon.

    I must say...I finally drug myself up and had the head shaved and wig fine tuned. Let me tell you, even though I cried all the way to the beauty shop, during the shaving, all the way back home...and some after I got home...the wig looks much better than the hair did before it was removed. I am soooo happy I got this over with. Now, 3 more chemo treatments (21 days apart) and then some radiation...I can handle it, I hope. Undecided 

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  • julieagw2
    julieagw2 Member Posts: 11
    edited November 2008

    My dx was almost exactly like yours....I had a lumpectomy followed by 4 rounds of chemo (cytoxan/taxatore) and  37 days of radiation and am now on tomaxafin for 5 years.   I never had the oncotype test done. 

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited November 2008

    Julie, I think that's what we're looking at for treatment, altough my slides have just been read by Hopkins and they decided that I have 1 lymph node involved :( Not sure what this all changes yet.

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  • lmrunner
    lmrunner Member Posts: 22
    edited November 2008

    I also am stage II with 2 tumors - 2.3 cm & 2 cm.  I had a mastectomy on 10/29/08 and am awaiting the results of the oncotype dx test.  As my nodes were clear, I am going to make my decision on whether to do chemo or not on what the onco score is.  My oncologist wants me to still go thru chemo due to the size of the tumors & the fact that it was invasive, and given the fact that I'm only 48 and pre-menopausal.  But I don't want to do chemo if I don't have to.  I should get the oncotype results back next week sometime.  I will definitely do tamoxifen though.  Just not sure on the chemo. 

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  • scarp
    scarp Member Posts: 104
    edited November 2008

    Pinklady - If it helps, I have been thru 2 rounds of CMF with very little in the side effect dept.  Mostly tiredness.  there is a whole thread on CMF under "help me get thru treatment" in case you haven't seen it.

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  • LisaEpstein
    LisaEpstein Member Posts: 19
    edited January 2012

    Hi I two am stage 2 grade 3 er positive pr- her2- none of my lympe nodes were affected all neg and I had clear margins. I had a lymsectomy and next week I go to oncologist wondering what treatment I will need.

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