Negative biopsy

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nursiegurl
nursiegurl Member Posts: 2
edited June 2014 in IBC (Inflammatory Breast Cancer)

I posted this in another forum but this forum may be more appropriate. Hi all, I'm new here and very confused! I'm 33 yrs old, in July I found an area of thickening in my left breast that is tender. Over the course of the last 6 weeks my left breast has doubled in size. A week ago I saw my gyn who ordered a diagnostic mammogram and US. The results of that showed architectural distortion on all views so I was sent for a breast MRI which showed the same with suspicious lymph nodes in the right and left axilla. My radiologist told us he believes it's inflammatory breast cancer based on all the imaging and the "peau d' orange" appearance of the skin. The gyn thinks lobular. I had a stereotactic biopsy and the results came back as a benign harmatoma. Both the gyn and radiologist say that they think the pathology is wrong and that I need to aggressively follow up on this. I have an oncology appt this week but I'm just curious if anyone has any input? The harmatoma dx makes no sense as there is no mass on any of the studies and the literature from my gyn says a harmatoma is easily identifyable on mammogram. Thanks for any input!

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  • ibcspouse
    ibcspouse Member Posts: 613
    edited November 2008

    Nursiegurl

    You might consider a punch biopsy of skin, or a FNA of the axillariy lymph nodes. The symptoms you describe are very worrisome and you have a gyn that is doing the right thing.  When my wife's bx came back negative that stopped everything.  It was almost 5 months later that she was dx with IBC, by that time it had spread to both breast and beyond.  It was later found out that the biopsy had been mis read. 

    Good luck, hope it is a harmatoma

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  • shrink
    shrink Member Posts: 936
    edited November 2008

    You're right.  This doesn't make sense.  What about those lymph nodes? Your decision to move ahead aggressively sounds correct.  Hope it's nothing serious but better to be safe and not delay.

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