I wish you WELL.

Hi Anna from Sweden, I have stage 3 BC cancer that started in 2000, 15 nodes affected but didn't spread else where one breast taken off.  I had 6 months chemo, stem cell transplant, and 30 days of  radiation.  My cancer came back in April of 2008, I think due to depression, and not eating right.  It came back as stage IV in my pelvis, 7cm, liver 2/2 cm tumors, and 13 cm on my oviars,and they cannot tell if  the fluid in my right lung is cancer.  I had my overies out and tubs. They said get my life in order. I ordered some Poly MVA and started taking 8 teaspoons a day since May, 08, along with eissac tea, and colloidal silver, a quart a day, and ordered a rife machine that I've havn't started yet looking for a amp.Well five weeks ago they said my makers drooped from 200 to 116, that was 5 weeks ago I'm scheduled to have blood work again. My doctor wants me to stop the poly to see if Femara is the one that's working but I'm not going to do this.  I hate the drug Femara because I have thinning of the hair, and trying to fine a estrogen blocker thats natural to stop tumor growth. I know there are cures around the corner here in the USA like the IT101 trails in Ca, and nanobots, but these are going to take either 3/5, or 7 years more testing to be done. I'm scared of chemo and ct scans because it makes cancer come back and you become more resistance to treatment with drugs like these later. I'm fighting this the best way in knowledge of alternative medicine in diet, get juicing fresh organic vegetables and fruits a day to help.  Good luck with everything, I starting my survivorship I guess but wanted to let you know I have similar symptoms.

Thanks for telling your story.  It gives me hope.  I have recently been diagnosed with stage IV Cancer - a big surprise, as just last February I was diagnosed with stage I BC.  I had a lumpectomy and radiation and thought I was cured.  I was taking Femara as adjuvant therapy.  On a fluke when I needed a CT scan for another reason, they found cancer in my bones.  I have no pain and it was such a shock to me.  My oncologist looked at a CT scan that I had last January before I was diagnosed with BC and he said he could see it in my bones by looking at that scan.  So it was actually in my bones before I was diagnosed with BC.  I have been distraught these last couple of weeks.  I am now on Zometa in addition to Femara.  I did have the flu like (really achy)symptoms with my first dose of Zometa and ran a fever, which I'm just now getting over.  I'll be dreading my next dose.

Dear Curls,

I too have stage IV BC.  I was diagnosed intially w/ BC in 1999 had Surgery, chemo and XRT followed by Tamoxifen.  Like a dummy, I quit taking the Femara because it was so expensive and I thought I had it licked.  Well, it came back in 2006  as mets to my bones and lungs.  Yikes!  One MD gave me a 2 yr guestimate and I'm still here.  I have tried hormonal tx - 1 worked for awhile.  Then Abraxane which worked for awhile, then I tried Xeloda which didn't work at all for me, now I'm on Gemzar and my numbers keep climbing.  It's funny how some Rx's work for some, but not others.  I have certainly learned that you can't compare individuals.  We are all so different.  So don't get into that way of thinking. Even my reaction to chemo and radiation the first time around was nothing compared to the 2nd time around ('99 vs '06).  Everybody and each time will/can be different.  I've heard lots of good stories out there.  Keep me posted if you hear of any great stage IV stories.  I wish the best for you.  Rebecca

Rebecca..Thank you for your story. As i said in my story...i just don't do these, but for some reason I was reading tonight. your story made my heart smile....Keep Fighting .. I like you, have found we are all so different on how we react to the treatments, so that is why I didn't say to much about that. I do know one thing we all have in common and thats our "will" to fight. I'm proud to be in that group with you and everyone else.

They told me 16 months 3 years ago and I am now NED! Get a second opinion. I was fortunate enough to get in with Dr Gabriella D'Andrea at Sloan-Kettering. They just have a different outlook on stg4 up there. I feel like I will live to be a crochetty old lady at this point! BTW my mets were in my liver

That's the kind of wonderful news we need to hear  I just got a pass this AM to "remission" have beeen on Taxol and Avastin in 3 wk cycles - will do two more cycls and then maintain with Avastin every two weeks. Stage IV seems doable with some helpStage IV in Feb with PT Scan

Hi everyone,

               thought id just say thankyou to all these ladies who have shared their stories, without it ladies like myself would at some point think their was no hope left.

I first found my breats cancer november 10 2007,but was diagnosed in feb 2008,had lumpectomey,an node removal from arm pit,had 14 out of 16 positive nodes,an uneven margins ,so they needed to do mastectomy,they decided to give me chemo first ,i found more lumps develope in my breast while i had chemo which i was told was highly unlikely.

Told oncologist i felt if they left my breast there any longer id die so please take it now,when they took it, i was right 2 other lumps had developed so i was reisstant to fec the chemo drug,an docitaxil,made me incredibly sick,so i had to stop it on second bout.

 When they looked at my breast they found out i was not growth 2 but 3,with high grade dcis,while all this went on it spread to my colar bone nodes,they sent me for radio therapy on the whole area the cancer had been an now these new nodes, i was told it was highly unlikely id get through it as i had so many nodes positive, but in december 2008 i was told i was unoffically free of cancer.

Its now been just over a year an i have had some odd an very unpleasant symptoms happening, gp thought it was nothing ,then 2 lumps appear in my neck,i knew then without anyone telling me it was back,i had had a clear bone scan a few months before an have now had a clear ct from the neck down, due my head scan results soon.

I was told about on the 19 feb 2010 my cancer was now secondary an in my neck,its growing at some amazing rate,which is scaring the life outa me, i keep pushing them to take my ovaries,or at least give me zolodex,but Im being made to wait an try Xeloda,with herceptin as im her2 positive,but what really got me me is how long it takes them to get you into treatment,al the time i wait i watch my body get worse an worse.

I have lost all movment in the left side of my neck,im in accute pain constantly from my left shoulder blade to middle of spine an all way up to my neck,it has stopped me doing the simplest of things,but luckily one gp came to my rescue, im now on 60 mg of morphine twice daily,along with oramorph every 4 hours,i wish i didnt have to take such things but i just cannot function with out it.

Im a mother of four kids all under 10,an all i ask for is another 15 years,let me bring my kids up,then who ever it is up there that decides can have me,just not yet please.

All these stories have given me hope even if i can feel my body getting worse,as soon as my treatment starts hopefully i shall be as lucky as the ladies here.

God bless you all,all my best Jervinia.x

Just bumping this thread and looking for more inspiration. I was diagnosed with stage III breast cancer in august and after a long story of shoulder pain no one would listen too im now all the sudden stage 4 with mets to my bones sitting in a rehab center after it was found emergency spine surgery was needed to save my T1 and right arm. I went from being told a little chemo and i was looking at a normal life span to now radiation and a lot of chemo might extend my life a few years depending on how the lesions react to the chemo. I need the stories of stage four long term survivors!! Im 28, i want to know a family and a normal life could still be out there....

It's so frustrating when things change so rapidly. The great news is that if things can get worse they sure as hell can get better. I'm praying for many many years for you and that you'll get the family and love you desire:)



Xoxoxo

Racheal

TO TEXAYN 2005  My story is so similar to yours that I had to write and thank you for the encourgement.  I went in for an MRI on 1/12/2012 for back pain and two hours later was told that I had bone mets with unknown primary diagnosis.  They could not find cancer with pet or cat scans.  I had a biopsy done on the spine and now they are pretty sure the cancer is from the breast.  I am having a MRI of the breast tomorrow.  I had a mammo done a month ago and it was negative.  I am still in shock.  I do not have a clue what is in store for me, but will let .know.  I found this site today and what a blessing.  God Bless YOu.

Barb,

BARB  My sister's diagnosis is similar to yours in that she also had regularly scheduled mammograms and breast cancer was not found until she was having digestive issues and the cancer was eventually found in her colon. She also had mets to the bone as well as other places. She has invasive lobular carcinoma which as I have read is often not found in mammograms because it does not form tumors but sheets. She was diagnosed @ stage IV in fall of 2006, went through a clincal trial and used hormone therapy, had her 1st grandchild in 2007 and was clear for 2 to 3 yrs, had her 2nd grandchild. They detected slight disease progression about 1.5 yrs ago and she began chemo again and has continually been on a couple of different chemo treatments. What she is taking now may be helping but it is too toxic for her. I can only imagine she will try something different in the next couple of weeks. I wish you well!

I am so Happy for you!

I am a 5 year Stage 2A survivor.  Just celebrated with my friends.  Then a scan which was actually of my kidneys (I had a stone) showed something in the bottom part of my lung.  After a PET scan confirmed metastisis I became Stage 4.  My cancer never was in my lymph nodes, so I was caught off guard.  Original site was left breast - but cancer showed up in right lung (outside) - early catch - guess thanks goes to kidney stone.  Not in brain, liver or bones at this moment.  I have been reading your stories and found them very comforting.  Does anyone out there have mets to lung?